Hi everyone

[Guest guest]

Dave,

Much of IgAN is only discovered on a routine medical simply because the

symptoms can be very mild during the early years, so mild that they are only

picked up when urine happens to be checked. At that point, it's quite common

for nothing at all to be seen on tests like CT scans, kidney x-rays, etc.

This is because there just isn't enough damage done to the kidneys yet.

I don't think there is a single person in this group who has not encountered

things to complain about during the course of their disease and their

dealings with the medical world. Unfortunately, it's not a perfect world and

sometimes things are missed. I can understand your displeasure, but at least

they have found it, and we all have to move on from that point forward. Good

luck with your treatment.

Pierre

Re: Hi everyone

> this should be a poll how many ahve been dignosed for iga on acedent. or

> discoverd by mistake. what I am saying is they eitehr went looking for

> sotmhign else and found this or they were having some test done and they

> found it.. I know on me I have hemochromotis and they thought what I was

> having was realted to that in my town I had 2 ct scans and the idiot

> rad here never noticed a thing. then I went up to a beter hopsitel 100

> miles away for a liver biopsey and they found the spots on my kidney and

> started doing tests and foudn out the spots were kidneyc ancer then they

> noctied a few thing sin blood tests and then did a biopsey and found the

> iga.

>

[Guest guest]

Welcome to the group.

Blood pressure control is probably the single most important thing. 150/90

is still on the high side if it's your resting BP. I'm sure your doctor will

want to add something to the Cozaar if it doesn't go much lower. The best

you can really expect from any given BP med alone is 5 to 10 points.

Have you read the information on www.igan.ca yet?

Pierre

Hi everyone

> I was recently diagnose with IGAN, discover by mistake when my gallblader

> started acting up, I got very sick at the begining but pretty much doing

alright

> my kidney funtion is 39% and creatine is 1.9. female 37 yo

> I have try to find as much info as I can.

> I believe that for one to fight something you have to really know it.

> I am taking Cozaar for my blood press. with is going really high up to

210/100

> at time with med is 150/90 but I'll figure it will take a while to

control.

> I also started taking 6g of fish oil pills, they seem to be good in other

areas besides

> the kidney, so I will give it a try.

>

> It is really soothing to be able to exchange opinions and gather info,

from other

> people , that knows exactly how you feel.

>

>