Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 Hello all. I see a lot of discussion up here from parents with kids who had mild to moderate regression as they " faded away " . However not many of you post about repetitive language or echolaic speech. Has anyone " recovered " from this? It is one of our key symptoms. Thanks for all your support. tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2010 Report Share Posted June 8, 2010 When my son was first diagnosed, he only repeated movie lines or phrases out of books, and the alphabet. He couldn't answer yes or no. The diet helped with this and the MB-12 shots. Once we got him interested in communicating, then he started repeating the last bit of our sentences. then we would take a carrot and a cookie, and say, "do you want the cookie or the carrot?" and of course he would say carrot because it was the last thing we said, so we gave him the carrot, and he would get mad, but we kept on until he used the correct word, and then gave him the treat. Later on he just used pieces of sentences, or just the nouns for something he wanted and I just pretended I didn't' understand unless he used a whole sentence. I always tried to work on his speech when he needed something so there was incentive to learn. He talks like a typical kid now.To: mb12 valtrex Sent: Tue, June 8, 2010 8:59:58 PMSubject: Echolaic speech Hello all. I see a lot of discussion up here from parents with kids who had mild to moderate regression as they "faded away". However not many of you post about repetitive language or echolaic speech. Has anyone "recovered" from this? It is one of our key symptoms. Thanks for all your support. tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 yes vit A helped and EFAs in our house. it was viral based and you DO go through a process of that to GET to lang as well Echolaic speech Hello all. I see a lot of discussion up here from parents with kids who had mild to moderate regression as they "faded away". However not many of you post about repetitive language or echolaic speech. Has anyone "recovered" from this? It is one of our key symptoms.Thanks for all your support.tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 One of mine did that. I would say a sentence, and he would take a word from that sentence and say it over and over and over. He actually stopped doing it after a couple of years without any treatment, because this was pre-intertnet days, back in the 1980s. His symptoms were always changing, and every couple of years, some would leave and new ones would develop. He finally started treatment about 4 years ago, and it only took a year before he was able to do regular school, but he still needs diet and treatments to keep symptoms away. His main causes to his symptoms were mercury and Bartonella and yeast overgrowth. Love and prayers, Heidi N Hello all. I see a lot of discussion up here from parents with kids who had mild to moderate regression as they " faded away " . However not many of you post about repetitive language or echolaic speech. Has anyone " recovered " from this? It is one of our key symptoms. Thanks for all your support. tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Echolaic speech, in my pdd son's case, subsided slowly and steadily over time, (probably due to speech therapy, his growth in vocabulary and more willingness to express himself) - I'm almost positive it's a processing issue as I sometimes tend to do the same myself when trying to digest a question someone is asking and searching in my mind for an answer to convey. We've also recently started my son on adderall for his adhd (interestingly enough, he presents with no "h", but for whatever reason, they do not diagnose straight "add" anymore hmmmm) anyhow, his teacher is quite confident that most of the remaining language processing issues will resolve itself as he is able to focus and "stay in the moment". The adderall, by the way, has been tremendously successful. (If anyone is aware of a natural alternative for it, I'd love to hear from you). I can only speak for my son when i tell you that it is very difficult for him to hold on to info that he does not find interesting or useful in the moment it is presented to him - for instance, he is 7 years old and until a few months ago didn't know the word for "pillow case" because in all these years, he never saw a reason to hold on to that vocabulary. You may want to keep an eye on your kiddo to make sure internal distraction isn't playing a role.To: mb12 valtrex Sent: Tue, June 8, 2010 11:59:58 PMSubject: Echolaic speech Hello all. I see a lot of discussion up here from parents with kids who had mild to moderate regression as they "faded away". However not many of you post about repetitive language or echolaic speech. Has anyone "recovered" from this? It is one of our key symptoms. Thanks for all your support. tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Tammy, adderall is for ADHD, right? I have heard of at least one person on these lists that uses caffeine as their " natural " for ADD/ADHD.  Echolaic speech, in my pdd son's case, subsided slowly and steadily over time, (probably due to speech therapy, his growth in vocabulary and more willingness to express himself) - I'm almost positive it's a processing issue as I sometimes tend to do the same myself when trying to digest a question someone is asking and searching in my mind for an answer to convey. We've also recently started my son on adderall for his adhd (interestingly enough, he presents with no " h " , but for whatever reason, they do not diagnose straight " add " anymore hmmmm) anyhow, his teacher is quite confident that most of the remaining language processing issues will resolve itself as he is able to focus and " stay in the moment " . The adderall, by the way, has been tremendously successful. (If anyone is aware of a natural alternative for it, I'd love to hear from you). I can only speak for my son when i tell you that it is very difficult for him to hold on to info that he does not find interesting or useful in the moment it is presented to him - for instance, he is 7 years old and until a few months ago didn't know the word for " pillow case " because in all these years, he never saw a reason to hold on to that vocabulary. You may want to keep an eye on your kiddo to make sure internal distraction isn't playing a role. To: mb12 valtrex Sent: Tue, June 8, 2010 11:59:58 PMSubject: Echolaic speech  Hello all. I see a lot of discussion up here from parents with kids who had mild to moderate regression as they " faded away " . However not many of you post about repetitive language or echolaic speech. Has anyone " recovered " from this? It is one of our key symptoms. Thanks for all your support. tom -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 How do you know all this stuff? LOL That makes sense being viral.To: mb12 valtrex Sent: Wed, June 9, 2010 5:15:16 AMSubject: Re: Echolaic speech yes vit A helped and EFAs in our house. it was viral based and you DO go through a process of that to GET to lang as well Echolaic speech Hello all. I see a lot of discussion up here from parents with kids who had mild to moderate regression as they "faded away". However not many of you post about repetitive language or echolaic speech. Has anyone "recovered" from this? It is one of our key symptoms.Thanks for all your support.tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 My son (5yo) does this when he has a PANDAS flare. It is a form of a tic in my son. Not sure about my 2yo yet as he has very little speech as of yet. > > Hello all. I see a lot of discussion up here from parents with kids who had mild to moderate regression as they " faded away " . However not many of you post about repetitive language or echolaic speech. > > Has anyone " recovered " from this? It is one of our key symptoms. > > Thanks for all your support. > > tom > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Our path follows yours very closely - although we're still working on "functional spontaneous" speech. I think there are two main reasons why my son uses scripts - 1.) It's how his brain is learning language and he often uses relevant scripts to situations and 2.) It's his anxiety stim. I think he has scripts running thru his brain 24/7 and he doesn't have a filter yet to not be saying them out loud. When my son's anxiety increases, the scripting increases. Inositol/Choline helps a lot in reducing his generalized anxiety. Others have reported that GABA and theanine also help. Manding what to say can be very effective for kids with echolalia. For instance me: "say.....I'm sorry for screaming". Son: "I'm sorry for screaming" - basically, I hold both ends of the conversation and over a period of time (yes, a loooooong period of time), he begins to develop more functional speech. Subject: Re: Echolaic speechTo: mb12 valtrex Date: Wednesday, June 9, 2010, 4:41 AM When my son was first diagnosed, he only repeated movie lines or phrases out of books, and the alphabet. He couldn't answer yes or no. The diet helped with this and the MB-12 shots. Once we got him interested in communicating, then he started repeating the last bit of our sentences. then we would take a carrot and a cookie, and say, "do you want the cookie or the carrot?" and of course he would say carrot because it was the last thing we said, so we gave him the carrot, and he would get mad, but we kept on until he used the correct word, and then gave him the treat. Later on he just used pieces of sentences, or just the nouns for something he wanted and I just pretended I didn't' understand unless he used a whole sentence. I always tried to work on his speech when he needed something so there was incentive to learn. He talks like a typical kid now. From: sallyajello <sally.ajello@ gmail.com>To: mb12 valtrex@ yahoogroups. comSent: Tue, June 8, 2010 8:59:58 PMSubject: Echolaic speech Hello all. I see a lot of discussion up here from parents with kids who had mild to moderate regression as they "faded away". However not many of you post about repetitive language or echolaic speech. Has anyone "recovered" from this? It is one of our key symptoms.Thanks for all your support.tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Really? I tell you why I find that fascinating - the kid LOVES coffee Since he was very small. I don't ever let him drink it. I will definitely look into that. Thanks!To: mb12 valtrex Sent: Wed, June 9, 2010 9:54:33 AMSubject: Re: Echolaic speech Tammy, adderall is for ADHD, right? I have heard of at least one person on these lists that uses caffeine as their "natural" for ADD/ADHD.On Wed, Jun 9, 2010 at 9:24 AM, T Lynn <t.lynn28@rocketmail .com> wrote: Echolaic speech, in my pdd son's case, subsided slowly and steadily over time, (probably due to speech therapy, his growth in vocabulary and more willingness to express himself) - I'm almost positive it's a processing issue as I sometimes tend to do the same myself when trying to digest a question someone is asking and searching in my mind for an answer to convey. We've also recently started my son on adderall for his adhd (interestingly enough, he presents with no "h", but for whatever reason, they do not diagnose straight "add" anymore hmmmm) anyhow, his teacher is quite confident that most of the remaining language processing issues will resolve itself as he is able to focus and "stay in the moment". The adderall, by the way, has been tremendously successful. (If anyone is aware of a natural alternative for it, I'd love to hear from you). I can only speak for my son when i tell you that it is very difficult for him to hold on to info that he does not find interesting or useful in the moment it is presented to him - for instance, he is 7 years old and until a few months ago didn't know the word for "pillow case" because in all these years, he never saw a reason to hold on to that vocabulary. You may want to keep an eye on your kiddo to make sure internal distraction isn't playing a role. From: sallyajello <sally.ajello@ gmail.com>To: mb12 valtrex@ yahoogroups. com Sent: Tue, June 8, 2010 11:59:58 PMSubject: Echolaic speech Hello all. I see a lot of discussion up here from parents with kids who had mild to moderate regression as they "faded away". However not many of you post about repetitive language or echolaic speech. Has anyone "recovered" from this? It is one of our key symptoms. Thanks for all your support. tom -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010  When Nyla started candizyme with yeast fighting enzymes she lost her echolalia. Echolaic speech Hello all. I see a lot of discussion up here from parents with kids who had mild to moderate regression as they "faded away". However not many of you post about repetitive language or echolaic speech. Has anyone "recovered" from this? It is one of our key symptoms.Thanks for all your support.tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 This is fascinating. My son also uses echolaic speech and scripting and he absolutely loves the smell of coffee! As a matter of fact one of the ways his aide in school calms him down is by letting him go to the teacher's lounge so he can smell the coffee. He's even tried to eat a couple of coffee beans! This is amazing. Cole, 6, ASD > > Really? I tell you why I find that fascinating - the kid LOVES coffee Since he was very small. I don't ever let him drink it. I will definitely look into that. Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 I have heard often/read that 1/2 cup of coffee (diluted with whatever works) is great as a natural stimulant for a number of kids. Think of what it does to calm you down and get ready for your day... > > > > Really? I tell you why I find that fascinating - the kid LOVES coffee Since he was very small. I don't ever let him drink it. I will definitely look into that. Thanks! > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 Yeast fighters helped us. One of the signs when is yeast is bad - we starting hearing " tv talk " . > > Hello all. I see a lot of discussion up here from parents with kids who had mild to moderate regression as they " faded away " . However not many of you post about repetitive language or echolaic speech. > > Has anyone " recovered " from this? It is one of our key symptoms. > > Thanks for all your support. > > tom > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 My kind of kid. > > > > Really? I tell you why I find that fascinating - the kid LOVES coffee Since he was very small. I don't ever let him drink it. I will definitely look into that. Thanks! > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 So do you think he might grow up and buy into the Starbucks Franchise? He will be worth a million and love his work! But seriously, I wonder if the smell of the coffee brings with it the calming effects of the caffeine in the coffee which is in the vapors from the pot?nancy jSubject: Re: Echolaic speechTo: mb12 valtrex Date: Thursday, June 10, 2010, 9:08 AM My kind of kid. > > > > Really? I tell you why I find that fascinating - the kid LOVES coffee Since he was very small. I don't ever let him drink it. I will definitely look into that. Thanks! > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2010 Report Share Posted June 10, 2010 I'm a bonafide Coffee drinker (so is my brother Rob (25, ASD)) -- and I can tell you - I LOVE the smells of coffee (any coffee), and I can drink a pot by myself and still go to sleep a half hour later. The caffeine does NOTHING to me (at least to the point of keeping me awake My other brother and my husband, not on the spectrum, same thing, caffeine doesn't hold them hostage to sleep.) I feel a weird saying this, (before pregnancy) I would drink coffee at night, or when I was feeling anxious, because it made me feel calm. Honestly, I thought it was just a self soothing thing or psychological (which I have always had something like that) -- as my Mom used to drink coffee at night too. laura :)To: mb12 valtrex From: endofautism@...Date: Thu, 10 Jun 2010 10:21:01 -0700Subject: Re: Re: Echolaic speech So do you think he might grow up and buy into the Starbucks Franchise? He will be worth a million and love his work! But seriously, I wonder if the smell of the coffee brings with it the calming effects of the caffeine in the coffee which is in the vapors from the pot?nancy jFrom: S <iferstevens>Subject: Re: Echolaic speechTo: mb12 valtrex Date: Thursday, June 10, 2010, 9:08 AM My kind of kid. > > > > Really? I tell you why I find that fascinating - the kid LOVES coffee Since he was very small. I don't ever let him drink it. I will definitely look into that. Thanks! > > > > > > > The New Busy is not the too busy. Combine all your e-mail accounts with Hotmail. Get busy. Quote Link to comment Share on other sites More sharing options...
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