Re: Delayed Gastric Emptying

[Guest guest]

Celiac disease is associated with delayed gastric emptying. The article link

below (hope it works) is titled

" Gastric emptying of solids is delayed in celiac disease and normalizes after

gluten withdrawal. "

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstra\

ct & list_uids=10766320

It took our son a full 6 months before his gastoparesis (sp?) resolved. Before

going GF he only had a bm every 5-7 days. Now he goes every 2-3 which is

considered to be in the normal range.

There are additional articles on pub med which support the connection.

Best Wishes.

[Guest guest]

Did your son have any other symptoms? I have a 6 yo son who only moves his bowels 1-2 times a week and I am concerned about this. My nine year old son was dx with CD in 3/03 and has been GF since that time. He had issues with loose stools and cramping, bone pain, and DH. My 6 yo so far has tested negative by blood except his anitgliadin antibody is elevated at 101. I am not sure what to do. I would appreciate any input you might have. Thanks. Kim Fulton

-- Re: Delayed Gastric Emptying

Celiac disease is associated with delayed gastric emptying. The article link below (hope it works) is titled "Gastric emptying of solids is delayed in celiac disease and normalizes after gluten withdrawal."http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=10766320It took our son a full 6 months before his gastoparesis (sp?) resolved. Before going GF he only had a bm every 5-7 days. Now he goes every 2-3 which is considered to be in the normal range.There are additional articles on pub med which support the connection.Best Wishes.

[Guest guest]

>

> " Gastric emptying of solids is delayed in celiac disease and

normalizes after gluten withdrawal. "

Dear -

Thanks for the article. I think that's the first article I've seen

linking delayed gastric emptying with CD. None of my GI doctors

(and I've seen like 5 different ones) thought that the 2 were

connected. The reason I was given for getting the gastroparesis was

that it was from a virus, but who knows...maybe it does have

something to do with the CD. I'm curious to see what an emptying

test would show today, now that I've been GF for about 14 months. I

don't think that it would be back to normal because I still have the

symptoms of delayed emptying, but I wonder if it would be better?

I'd have the test done again but it consists of eating yucky beef

stew and lying flat on a table for 2+ hours. Not my idea of fun,

lol.

-Laurie in CT

[Guest guest]

I have a 6 yo son who only moves his

> bowels 1-2 times a week and I am concerned about this.

Kim-

I was having a lot of problems with constipation. At first my GI

thought that it was the gastroparesis that was slowing motility

throughout my whole GI tract. But then I read that in some people

with CD, they tend to have constipation, not diarrhea. For me this

whole thing is very confusing because I have the 2 different GI

conditions, and I'm not sure what symptoms to attribute to which

condition. But as was stated in the article that posted a

link to, maybe the gastroparesis is all realated to the CD...who

knows. The constipation is better on the GF diet, but I still have

symptoms of slowed gastric emptying. So far that hasn't improved

much.

OK, now the reason why I wrote all this. I was in the same boat as

your son, with having a BM like every 5 or 6 days, unless I took a

laxitive. And like your son, only my anti-gliadin level was high.

But I did have 2 positive biopsies, which confirmed the diagnosis.

So I guess what I'm saying is that you should keep an eye on your

son. Have you tried him on a GF diet? I'd be curious to see if his

constipation improved.

Hope all my rambling helped some, lol.

-Laurie in CT

[Guest guest]

Laurie,

How did you decide to go forward with a biopsy with constipation and elevated anti gliadin IgG? I would love to hear more about your situation. I am really in a delimma with my son. He has low muscle tone, sensory intergration problems, low iron stores, and is a very picky eater. He has been diagnosed with sensory food aversion. He gags and chokes on foods due to texture and intense taste aversions. I have not tried the GF diet for several reasons. I feel it is too restrictive to do without a true diagnosis as well as feeling like I cannot take away foods without true reason because he only eats about 10 foods total. I would love to hear more from you. Thanks. Kim Fulton

Re: Delayed Gastric Emptying

I have a 6 yo son who only moves his> bowels 1-2 times a week and I am concerned about this. Kim-I was having a lot of problems with constipation. At first my GI thought that it was the gastroparesis that was slowing motility throughout my whole GI tract. But then I read that in some people with CD, they tend to have constipation, not diarrhea. For me this whole thing is very confusing because I have the 2 different GI conditions, and I'm not sure what symptoms to attribute to which condition. But as was stated in the article that posted a link to, maybe the gastroparesis is all realated to the CD...who knows. The constipation is better on the GF diet, but I still have symptoms of slowed gastric emptying. So far that hasn't improved much. OK, now the reason why I wrote all this. I was in the same boat as your son, with having a BM like every 5 or 6 days, unless I took a laxitive. And like your son, only my anti-gliadin level was high. But I did have 2 positive biopsies, which confirmed the diagnosis. So I guess what I'm saying is that you should keep an eye on your son. Have you tried him on a GF diet? I'd be curious to see if his constipation improved.Hope all my rambling helped some, lol.-Laurie in CT

[Guest guest]

Laurie,

There are other articles on the pub med site that link delayed gastric emptying

and CD. My son only had elevated IgG, but has " peripheral neuropathy of unknown

origin " which is linked to gluten intolerance/cd....and he has the gene -

HLA-DQ8. He also had headaches , diareah, stomach aches and vision issues

(floaters), oh, and night sweats....all which resolved quickly on the GF diet.

Unfortunately, the foot pain hasn't which probably means the peripheral nerve

damage is not going to heal.

Blessings - I am thankful for this board!

in FL

[Guest guest]

> Laurie,

>

> There are other articles on the pub med site that link delayed

gastric emptying and CD. My son only had elevated IgG, but

has " peripheral neuropathy of unknown origin " which is linked to

gluten intolerance/cd....and he has the gene - HLA-DQ8.

HLA DQA1*0301:DQB1*0302 = DQ8, DQ8 is a serotype

the DQA1*:DQB1* is a haplotype. Tell your freinds that and they will

be really impressed. BTW you will be happy to know that your son and

I are related by at least the last 150,000 years. lol.

> He also had headaches

fat digestion issues, green tea is helpful for mine.

> vision issues (floaters)

floaters are not a problem, everyone has one or two. Visual problems

you should worry about are called visual aura with migrane. This is

seen in CD and could be indicative a severe lower bowel reactivity.

New studies reveal that migranes can damage the CNS. Another ocular

problem is ocular MG.

One the flip side, I have had this, and I am still the smartest

person I know, heh-heh. I don't mean to make light of this, the

visual aura/migrane was the most unpleasant experiance I have ever

had, even more unpleasant than the 2 days I bloated up before my

stomach ruptured (which, actually was a relief).

> oh, and night sweats....all which resolved quickly on the GF diet.

Yeah but I used to not need a blanket and now I do, and want the

heater right next to my bed. My biggest problem was sweaty feet, I

could not wear shoes for 8 full hours. This goes to show you how

energy is being used by the gut/immune response in C.D.

> Unfortunately, the foot pain hasn't which probably means the

> peripheral nerve damage is not going to heal.

......

> in FL

Most of my cardiovascularlar/neurological problems have cleared but

one. Might I make a recommendation, CD causes a general loss of fatty

acid adsorbtion and CD individuals can become fat and oil intolerant,

the headaches you mention are a possible sign. The neurological

deficit takes months if not a year to recover. I found fish oil and

fish a rather wonderful antidepressant that when consumed in large

amounts helped to rapidly recover those neurological problems,

especially the depression. Fishoil has been implicated as a negative

association with certain neurological disorders including manic

depression, what this means is that people who less fish oil are at

greater risk.

You have already heard of the mineral imbalances associated with

CD, so mineral suppliments may help also.

There is an autoimmune disease that I believe is associated with CD,

based on the association of 4 other diseases of the same class called

Fibromyalgia. Autoimmune diseases are the result of antibodies

against self proteins, these antibodies are generally directed

against the rarer proteins of the body and as a result cause some

strange manifestations. The half-life of an antibody is about 125

days which means if the plasma cells immediately stop produciing

antibodies the level may be high enough 6 to 8 months later to

manifest disease. In fact this is what is seen for food allergies

associated with CD, that it takes 8 months of allergen avoidance to

clear antibodies. There could be something in his diet, meat, egg or

milk that is triggering the autoimmune response, and this may need to

be cleared for 8 months or so.

[Guest guest]

Thanks. I was not aware of the delayed gastric emptying before now. Kim fulton

-- Re: Delayed Gastric Emptying

Celiac disease is associated with delayed gastric emptying. The article link below (hope it works) is titled "Gastric emptying of solids is delayed in celiac disease and normalizes after gluten withdrawal."http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=pubmed & dopt=Abstract & list_uids=10766320It took our son a full 6 months before his gastoparesis (sp?) resolved. Before going GF he only had a bm every 5-7 days. Now he goes every 2-3 which is considered to be in the normal range.There are additional articles on pub med which support the connection.Best Wishes.

[Guest guest]

Hi Laurie,

I have not tried on a GF diet. I am concerned about removing gluten and then being unsure if it helped--what would I do then? I do not take the GF diet lightly. It affects every aspect of my older son's day. He seems to be very sensitive. I think I would probably go forward with the biopsy instead of trialing the diet. I just think it is such a life long commitment and would not want to put any non celiac person on a GF diet. Thanks for all of your info. By the was, yes, has been on Miralax and it has been a lifesaver for him. Kim Fulton

-- Re: Re: Delayed Gastric Emptying

Laurie,

How did you decide to go forward with a biopsy with constipation and elevated anti gliadin IgG? I would love to hear more about your situation. I am really in a delimma with my son. He has low muscle tone, sensory intergration problems, low iron stores, and is a very picky eater. He has been diagnosed with sensory food aversion. He gags and chokes on foods due to texture and intense taste aversions. I have not tried the GF diet for several reasons. I feel it is too restrictive to do without a true diagnosis as well as feeling like I cannot take away foods without true reason because he only eats about 10 foods total. I would love to hear more from you. Thanks. Kim Fulton

Re: Delayed Gastric Emptying

I have a 6 yo son who only moves his> bowels 1-2 times a week and I am concerned about this. Kim-I was having a lot of problems with constipation. At first my GI thought that it was the gastroparesis that was slowing motility throughout my whole GI tract. But then I read that in some people with CD, they tend to have constipation, not diarrhea. For me this whole thing is very confusing because I have the 2 different GI conditions, and I'm not sure what symptoms to attribute to which condition. But as was stated in the article that posted a link to, maybe the gastroparesis is all realated to the CD...who knows. The constipation is better on the GF diet, but I still have symptoms of slowed gastric emptying. So far that hasn't improved much. OK, now the reason why I wrote all this. I was in the same boat as your son, with having a BM like every 5 or 6 days, unless I took a laxitive. And like your son, only my anti-gliadin level was high. But I did have 2 positive biopsies, which confirmed the diagnosis. So I guess what I'm saying is that you should keep an eye on your son. Have you tried him on a GF diet? I'd be curious to see if his constipation improved.Hope all my rambling helped some, lol.-Laurie in CT

[Guest guest]

Philip,

Thanks for all of the info. I am going to try the fish oil. My husband alread

takes cod liver oil capsules. He has autoimmune history on his side of the

family. He has Reiter's syndrome, his sister has Vitiligo and his grandpa had

epilepsy (not sure if epilepsy is autoimmmune, but the other two are.)

My step-grandmother smoked a pack of cigarettes a day and lived to be 94, in her

own house, paying her own bills, etc. She had been taking cod liver oil for as

long as we could remember and we used to make fun of her! She swore by it, and

now we are becoming believers.

Thanks again for all of your input!

susan

[Guest guest]

I put all three of my children on a gf diet with only the elevated

(and barely) IgG (I had no desire to biopsy them.) I'm also celiac,

though I didn't do the biopsy either, since I had all the signs of

intestinal damage with many other complications. Plus, my father died

from CD two years ago, he was 75, with late onset CD. They diagnosed

him by autopsy. I put my kids on the diet and all three have had

tremendous health improvements. None of them showed any " typical "

signs of CD, so they might have been just intolerant, though my

eldest has DH (didn't know it then, but know it now.)

You shouldn't worry about putting a child, or anyone for that matter,

on a gf diet only to find they don't need it. If they are NOT gluten

intolerant, going off it and back on it will have no effect on them.

Since not all gluten intolerant people develop CD but, instead,

develop other gluten related problems (cancers, other autoimmune

problems, nerve damage, ataxias, neuropathies, DH...you should see

what they found with my father...apparantly gluten was atrophying

part of his brain and destroying nerve cells for far longer than it'd

been attacking his villi) to wait for just one of the possible

diagnoses might cause other, less immediately noticable damage. Imo,

gluten intolerance is the cause, CD is just one of the symptoms.

Fyi, some of the symptoms that have disappeared with the removeal of

gluten from my asymptomatic children are:

6 year old daughter: she had " dangerously enlarged " tonsils. I had to

record her breathing every night and for the last two years fought

the doctors over having them removed (I hemorraged as a child from a

tonsilectomy, so the idea terrified ME.) Her tonsils are now

considered absolutely normal. The change took about 3 weeks, but

after one week it was noticeable. She has less trouble eating now,

her gag reflex is much less (could be tonsil related.) She has far

fewer colds and she gets over them very quickly now. (Now, however,

she gets diarrhea and vomits after getting glutened.)

10 year old son: For him, the most amazing change is his temperament.

He is far more controlled and relaxed. He is able to concentrate much

better. He doesn't feel like everyone is against him anymore (but,

man, when he gets glutened, we know it by this!) He " feels " better,

mentally, he says. His " normal growing pains " (feet and leg bones)

have almost disappeared (except when glutened.) He no longer gets

little itchy " bug bites. " Not one nose bleed in 5 months (whereas he

would commonly wake up with one gushing, 3-4xs a month.) He has

always been very underweight and we've often taken him to the doctor

because he becomes incredibly pale with dark sunken rings around his

eyes (looking like he's on the verge of dying from anemia!) He looks

a million times better! Now, he does get an upset stomach whenever he

gets glutened, plus his mental attitude is severely effected.

15 year old son: His skin totally cleared up (he had ketosis? pilaris

and acne.) The ketosis pilaris supposedly has nothing to do with

gluten reactions, but when he gets glutened, he gets it covering his

entire body now plus nasty areas of typical DH. He says he doesn't

feel depressed and hopeless anymore (but this is his first hint he's

gotten something, he says he goes from " everything's fine " to " life

sucks " in a very short time. He also gets full gastro reactions and

migraines along with the DH. Lucky guy =( )

> Hi Laurie,

> I have not tried on a GF diet. I am concerned about

removing gluten

> and then being unsure if it helped--what would I do then? I do not

take the

> GF diet lightly. It affects every aspect of my older son's day.

He seems

> to be very sensitive. I think I would probably go forward with the

biopsy

> instead of trialing the diet. I just think it is such a life long

> commitment and would not want to put any non celiac person on a GF

diet.

> Thanks for all of your info. By the was, yes, has been on

Miralax and

> it has been a lifesaver for him. Kim Fulton

[Guest guest]

Philip,

Thank you for providing info on food

allergies. My food allergies started a few months after CD symptoms surfaced. The

foods I ate most often, turned into allergies. I would love to go back to

eating those foods again…you’re email gives me hope.

Jill

There

is an autoimmune disease that I believe is associated with CD,

based on the

association of 4 other diseases of the same class called

Fibromyalgia.

Autoimmune diseases are the result of antibodies

against self

proteins, these antibodies are generally directed

against the

rarer proteins of the body and as a result cause some

strange

manifestations. The half-life of an antibody is about 125

days which

means if the plasma cells immediately stop produciing

antibodies

the level may be high enough 6 to 8 months later to

manifest

disease. In fact this is what is seen for food allergies

associated

with CD, that it takes 8 months of allergen avoidance to

clear

antibodies. There could be something in his diet, meat, egg or

milk that is

triggering the autoimmune response, and this may need to

be cleared

for 8 months or so.

[Guest guest]

Thanks for sharing your information with me. I am rethinking my decision and will let you know. I made appoints with Dr. Fasano at the UMD Hospital today for another opinion before moving forward with the biopsy. Thanks again. Kim Fulton

-- Re: Delayed Gastric Emptying

I put all three of my children on a gf diet with only the elevated (and barely) IgG (I had no desire to biopsy them.) I'm also celiac, though I didn't do the biopsy either, since I had all the signs of intestinal damage with many other complications. Plus, my father died from CD two years ago, he was 75, with late onset CD. They diagnosed him by autopsy. I put my kids on the diet and all three have had tremendous health improvements. None of them showed any "typical" signs of CD, so they might have been just intolerant, though my eldest has DH (didn't know it then, but know it now.)You shouldn't worry about putting a child, or anyone for that matter, on a gf diet only to find they don't need it. If they are NOT gluten intolerant, going off it and back on it will have no effect on them.Since not all gluten intolerant people develop CD but, instead, develop other gluten related problems (cancers, other autoimmune problems, nerve damage, ataxias, neuropathies, DH...you should see what they found with my father...apparantly gluten was atrophying part of his brain and destroying nerve cells for far longer than it'd been attacking his villi) to wait for just one of the possible diagnoses might cause other, less immediately noticable damage. Imo, gluten intolerance is the cause, CD is just one of the symptoms.Fyi, some of the symptoms that have disappeared with the removeal of gluten from my asymptomatic children are:6 year old daughter: she had "dangerously enlarged" tonsils. I had to record her breathing every night and for the last two years fought the doctors over having them removed (I hemorraged as a child from a tonsilectomy, so the idea terrified ME.) Her tonsils are now considered absolutely normal. The change took about 3 weeks, but after one week it was noticeable. She has less trouble eating now, her gag reflex is much less (could be tonsil related.) She has far fewer colds and she gets over them very quickly now. (Now, however, she gets diarrhea and vomits after getting glutened.)10 year old son: For him, the most amazing change is his temperament. He is far more controlled and relaxed. He is able to concentrate much better. He doesn't feel like everyone is against him anymore (but, man, when he gets glutened, we know it by this!) He "feels" better, mentally, he says. His "normal growing pains" (feet and leg bones) have almost disappeared (except when glutened.) He no longer gets little itchy "bug bites." Not one nose bleed in 5 months (whereas he would commonly wake up with one gushing, 3-4xs a month.) He has always been very underweight and we've often taken him to the doctor because he becomes incredibly pale with dark sunken rings around his eyes (looking like he's on the verge of dying from anemia!) He looks a million times better! Now, he does get an upset stomach whenever he gets glutened, plus his mental attitude is severely effected.15 year old son: His skin totally cleared up (he had ketosis? pilaris and acne.) The ketosis pilaris supposedly has nothing to do with gluten reactions, but when he gets glutened, he gets it covering his entire body now plus nasty areas of typical DH. He says he doesn't feel depressed and hopeless anymore (but this is his first hint he's gotten something, he says he goes from "everything's fine" to "life sucks" in a very short time. He also gets full gastro reactions and migraines along with the DH. Lucky guy =( )> Hi Laurie,> I have not tried on a GF diet. I am concerned about removing gluten> and then being unsure if it helped--what would I do then? I do not take the> GF diet lightly. It affects every aspect of my older son's day. He seems> to be very sensitive. I think I would probably go forward with the biopsy> instead of trialing the diet. I just think it is such a life long> commitment and would not want to put any non celiac person on a GF diet. > Thanks for all of your info. By the was, yes, has been on Miralax and> it has been a lifesaver for him. Kim Fulton

[Guest guest]

> Philip,

>

>

>

> Thank you for providing info on food allergies. My food allergies

started a

> few months after CD symptoms surfaced. The foods I ate most often,

turned

> into allergies. I would love to go back to eating those foods

again.you're

> email gives me hope.

>

Hope comes from many directions, because I could not eat anything but

fish I used it as an excuse to buy a boat and go fishing, there aint

enough antibodies in the world to cover all the different kinds of

fish you can catch. lol.

As crazy as that sounds fish are much more diverse than land animal

foods and so you can stay one jump ahead of your immune system while

your antibodies recede.

Authentic mexican food. Stay away from the flour tortillas, the

Guisadas and Tortas and Pan dulces, there is a whole spectrum of food

there that can fill you palatte until your allergies recede. In most

cases if you tell the wait staff you are allergic, they understand

and will remember.

[Guest guest]

Liz

Your GI can do a test to find out if you have delayed gastric emptying. One is that you swallow some capsules and then get abdominal xrays each day or every other day to see where they are in the digestive system and how long it takes for them to pass in your stool. I have had this one a couple of times about 15 years ago. I had another where they have you fasting and then eat chicken livers (UGGG) with something in it that shows in the xray and lie under an xray machine for about 3 hours and it takes pictures every so many minutes to see how long it takes for it to travel through your digestive system. Later on, they gave me some kind of oatmeal with the radioactive material in it which tasted better than the chicken livers.

They may have even a newer test now, but the two above are the ones that I had.

ita

[Guest guest]

Cheryl,

here in Tarpon Springs. It took our son 6-8 months for the delayed

gastric emptying to resolve and this is consistent with a study I saw published

on Pub Med. We actually tracked how often he had a BM. Before going GF, it was

about 7 times per MONTH! The first month GF he went 8 times, second month 9

times, then a jump to 13 times and so on. It has not changed much since about

the 7th month.

This part of it is apparently a process, as opposed to the headaches, GI

symptoms, irritablity, etc. with which we saw immediate results.

His IgG was 80 and after 1 year GF dropped to 12. He is HLA-DQ8.

Give it some time on the GF diet and you will probably see results.