Front Page Star, Jaxson's Story

[Guest guest]

Wow... I really didn't think I'd see Jax's picture for another few

months! Needless to say, I had to exit and come back to check and see

if that was really him.

Jaxson's journey began most likely before birth, in uterine. I had

lots of pregnancy problems, was on and off of bedrest and in and out

of the hospital for premature labor. I had to do shots of steriods as

well as drugs to stop the labor from 5 months on. My boy just wanted

out! Now.. looking back, that may have been better... at least a

little earlier.

While pregnant, I had ultrasounds weekly, due to the contant

contractions. Not once did my doctor estimate how big Jax was. He

said 'they are normally wrong anyway' - as they were with my first. I

didn't really think anything of it. I was induced 3 weeks early due

to contracting every 2 minutes for the last month w/o dialating much,

just couldn't take it any longer. July 15th, Jax was born 9lbs 15oz.

He was delivered with the use of a vacuum as he was jammed in there -

the suction had to be used twice as the first time it got his head

out, but his shoulders were stuck still. The pulled him after the 2nd

suction only produced one shoulder out...

Jaxson was born not being able to move his right arm. He had a large

cephalahematoma on the right side of his head as well. After coming

home from the hospital after complications for both he and I, I

noticed that he wouldnt move his head to the left and the back of his

head appeared " funny " . At his 2 week followup I mentioned it, they

said 'he's just a baby, he'll come around'. Which is the same thing

we were told for his arm... that did start to move though.. At his 2

month checkup I went in ready for a fight, I knew something was

wrong.

His ped gave us no explanation, just referred us to a physiatrist.

This doc diagnosed Jax with torticollis and plagiocephaly (we later

found out Jax was diagnosed with tort, plagio and a brachial plexus

at birth, but were never told, found out by his med records only). We

started pt and ot, and the doc gave us ideas for repoing him. We

tried that for 2 months, while waiting to get into the cranial facial

doc. We saw no improvement. December 4th was the day Jax received his

CranioCap. I have to admit, I hated it at first... I cried looking at

him. I struggled with taking him anywhere because I hated the looks.

But, after a couple of weeks with him in it, I couldn't wait to take

him out.. show off his new design.

April 9th of this year Jax " graduated " from his CranioCap due to it

being too small. We were told yet again that it would round out on

it's own now. I again struggled with banding him again, but came to

the decision that I wasn't going to. It's something I still question,

his shape is still terrible (noticeable when his hair is wet, or

touch). I know I can't get his hair cut much as it will show..

If it wasn't for the moderators and active members of this group I

seriously would have lost my mind. Jaxson is a success due to not

only me, but you guys as well. I thank each of you...

~Kim~

mom to Jaxson

[Guest guest]

Kim,

Thanks for sharing your story with us. Jaxson is a little doll!

Looks like he loves his bear buddy.

Dustie

> Wow... I really didn't think I'd see Jax's picture for another

few

> months! Needless to say, I had to exit and come back to check and

see

> if that was really him.

>

> Jaxson's journey began most likely before birth, in uterine. I

had

> lots of pregnancy problems, was on and off of bedrest and in and

out

> of the hospital for premature labor. I had to do shots of steriods

as

> well as drugs to stop the labor from 5 months on. My boy just

wanted

> out! Now.. looking back, that may have been better... at least a

> little earlier.

> While pregnant, I had ultrasounds weekly, due to the contant

> contractions. Not once did my doctor estimate how big Jax was. He

> said 'they are normally wrong anyway' - as they were with my

first. I

> didn't really think anything of it. I was induced 3 weeks early

due

> to contracting every 2 minutes for the last month w/o dialating

much,

> just couldn't take it any longer. July 15th, Jax was born 9lbs

15oz.

> He was delivered with the use of a vacuum as he was jammed in

there -

> the suction had to be used twice as the first time it got his head

> out, but his shoulders were stuck still. The pulled him after the

2nd

> suction only produced one shoulder out...

> Jaxson was born not being able to move his right arm. He had a

large

> cephalahematoma on the right side of his head as well. After

coming

> home from the hospital after complications for both he and I, I

> noticed that he wouldnt move his head to the left and the back of

his

> head appeared " funny " . At his 2 week followup I mentioned it, they

> said 'he's just a baby, he'll come around'. Which is the same

thing

> we were told for his arm... that did start to move though.. At his

2

> month checkup I went in ready for a fight, I knew something was

> wrong.

> His ped gave us no explanation, just referred us to a

physiatrist.

> This doc diagnosed Jax with torticollis and plagiocephaly (we

later

> found out Jax was diagnosed with tort, plagio and a brachial

plexus

> at birth, but were never told, found out by his med records only).

We

> started pt and ot, and the doc gave us ideas for repoing him. We

> tried that for 2 months, while waiting to get into the cranial

facial

> doc. We saw no improvement. December 4th was the day Jax received

his

> CranioCap. I have to admit, I hated it at first... I cried looking

at

> him. I struggled with taking him anywhere because I hated the

looks.

> But, after a couple of weeks with him in it, I couldn't wait to

take

> him out.. show off his new design.

> April 9th of this year Jax " graduated " from his CranioCap due to

it

> being too small. We were told yet again that it would round out on

> it's own now. I again struggled with banding him again, but came

to

> the decision that I wasn't going to. It's something I still

question,

> his shape is still terrible (noticeable when his hair is wet, or

> touch). I know I can't get his hair cut much as it will show..

> If it wasn't for the moderators and active members of this group

I

> seriously would have lost my mind. Jaxson is a success due to not

> only me, but you guys as well. I thank each of you...

>

> ~Kim~

> mom to Jaxson

[Guest guest]

Hi Kim,

What a big guy Jaxon was at birth, especially for being 3 weeks

early at that! That picture is a riot . Thanks for sharing his

story with us.

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

> Wow... I really didn't think I'd see Jax's picture for another

few

> months! Needless to say, I had to exit and come back to check and

see

> if that was really him.

>

> Jaxson's journey began most likely before birth, in uterine. I

had

> lots of pregnancy problems, was on and off of bedrest and in and

out

> of the hospital for premature labor. I had to do shots of steriods

as

> well as drugs to stop the labor from 5 months on. My boy just

wanted

> out! Now.. looking back, that may have been better... at least a

> little earlier.

> While pregnant, I had ultrasounds weekly, due to the contant

> contractions. Not once did my doctor estimate how big Jax was. He

> said 'they are normally wrong anyway' - as they were with my

first. I

> didn't really think anything of it. I was induced 3 weeks early

due

> to contracting every 2 minutes for the last month w/o dialating

much,

> just couldn't take it any longer. July 15th, Jax was born 9lbs

15oz.

> He was delivered with the use of a vacuum as he was jammed in

there -

> the suction had to be used twice as the first time it got his head

> out, but his shoulders were stuck still. The pulled him after the

2nd

> suction only produced one shoulder out...

> Jaxson was born not being able to move his right arm. He had a

large

> cephalahematoma on the right side of his head as well. After

coming

> home from the hospital after complications for both he and I, I

> noticed that he wouldnt move his head to the left and the back of

his

> head appeared " funny " . At his 2 week followup I mentioned it, they

> said 'he's just a baby, he'll come around'. Which is the same

thing

> we were told for his arm... that did start to move though.. At his

2

> month checkup I went in ready for a fight, I knew something was

> wrong.

> His ped gave us no explanation, just referred us to a

physiatrist.

> This doc diagnosed Jax with torticollis and plagiocephaly (we

later

> found out Jax was diagnosed with tort, plagio and a brachial

plexus

> at birth, but were never told, found out by his med records only).

We

> started pt and ot, and the doc gave us ideas for repoing him. We

> tried that for 2 months, while waiting to get into the cranial

facial

> doc. We saw no improvement. December 4th was the day Jax received

his

> CranioCap. I have to admit, I hated it at first... I cried looking

at

> him. I struggled with taking him anywhere because I hated the

looks.

> But, after a couple of weeks with him in it, I couldn't wait to

take

> him out.. show off his new design.

> April 9th of this year Jax " graduated " from his CranioCap due to

it

> being too small. We were told yet again that it would round out on

> it's own now. I again struggled with banding him again, but came

to

> the decision that I wasn't going to. It's something I still

question,

> his shape is still terrible (noticeable when his hair is wet, or

> touch). I know I can't get his hair cut much as it will show..

> If it wasn't for the moderators and active members of this group

I

> seriously would have lost my mind. Jaxson is a success due to not

> only me, but you guys as well. I thank each of you...

>

> ~Kim~

> mom to Jaxson

[Guest guest]

Thank you so much for sharing your story.

Sue

Colin F. STARband 6/29

Buffalo, NY

> Wow... I really didn't think I'd see Jax's picture for another few

> months! Needless to say, I had to exit and come back to check and

see

> if that was really him.

>

> Jaxson's journey began most likely before birth, in uterine. I had

> lots of pregnancy problems, was on and off of bedrest and in and

out

> of the hospital for premature labor. I had to do shots of steriods

as

> well as drugs to stop the labor from 5 months on. My boy just

wanted

> out! Now.. looking back, that may have been better... at least a

> little earlier.

> While pregnant, I had ultrasounds weekly, due to the contant

> contractions. Not once did my doctor estimate how big Jax was. He

> said 'they are normally wrong anyway' - as they were with my first.

I

> didn't really think anything of it. I was induced 3 weeks early due

> to contracting every 2 minutes for the last month w/o dialating

much,

> just couldn't take it any longer. July 15th, Jax was born 9lbs

15oz.

> He was delivered with the use of a vacuum as he was jammed in

there -

> the suction had to be used twice as the first time it got his head

> out, but his shoulders were stuck still. The pulled him after the

2nd

> suction only produced one shoulder out...

> Jaxson was born not being able to move his right arm. He had a

large

> cephalahematoma on the right side of his head as well. After coming

> home from the hospital after complications for both he and I, I

> noticed that he wouldnt move his head to the left and the back of

his

> head appeared " funny " . At his 2 week followup I mentioned it, they

> said 'he's just a baby, he'll come around'. Which is the same thing

> we were told for his arm... that did start to move though.. At his

2

> month checkup I went in ready for a fight, I knew something was

> wrong.

> His ped gave us no explanation, just referred us to a physiatrist.

> This doc diagnosed Jax with torticollis and plagiocephaly (we later

> found out Jax was diagnosed with tort, plagio and a brachial plexus

> at birth, but were never told, found out by his med records only).

We

> started pt and ot, and the doc gave us ideas for repoing him. We

> tried that for 2 months, while waiting to get into the cranial

facial

> doc. We saw no improvement. December 4th was the day Jax received

his

> CranioCap. I have to admit, I hated it at first... I cried looking

at

> him. I struggled with taking him anywhere because I hated the

looks.

> But, after a couple of weeks with him in it, I couldn't wait to

take

> him out.. show off his new design.

> April 9th of this year Jax " graduated " from his CranioCap due to

it

> being too small. We were told yet again that it would round out on

> it's own now. I again struggled with banding him again, but came to

> the decision that I wasn't going to. It's something I still

question,

> his shape is still terrible (noticeable when his hair is wet, or

> touch). I know I can't get his hair cut much as it will show..

> If it wasn't for the moderators and active members of this group I

> seriously would have lost my mind. Jaxson is a success due to not

> only me, but you guys as well. I thank each of you...

>

> ~Kim~

> mom to Jaxson

[Guest guest]

Thanks for posting your whole story Kim. I am so sorry that you are

not happy with Jaxson's head shape as it is after treatment. Good

luck.

> Wow... I really didn't think I'd see Jax's picture for another few

> months! Needless to say, I had to exit and come back to check and

see

> if that was really him.

>

> Jaxson's journey began most likely before birth, in uterine. I had

> lots of pregnancy problems, was on and off of bedrest and in and

out

> of the hospital for premature labor. I had to do shots of steriods

as

> well as drugs to stop the labor from 5 months on. My boy just

wanted

> out! Now.. looking back, that may have been better... at least a

> little earlier.

> While pregnant, I had ultrasounds weekly, due to the contant

> contractions. Not once did my doctor estimate how big Jax was. He

> said 'they are normally wrong anyway' - as they were with my first.

I

> didn't really think anything of it. I was induced 3 weeks early due

> to contracting every 2 minutes for the last month w/o dialating

much,

> just couldn't take it any longer. July 15th, Jax was born 9lbs

15oz.

> He was delivered with the use of a vacuum as he was jammed in

there -

> the suction had to be used twice as the first time it got his head

> out, but his shoulders were stuck still. The pulled him after the

2nd

> suction only produced one shoulder out...

> Jaxson was born not being able to move his right arm. He had a

large

> cephalahematoma on the right side of his head as well. After coming

> home from the hospital after complications for both he and I, I

> noticed that he wouldnt move his head to the left and the back of

his

> head appeared " funny " . At his 2 week followup I mentioned it, they

> said 'he's just a baby, he'll come around'. Which is the same thing

> we were told for his arm... that did start to move though.. At his

2

> month checkup I went in ready for a fight, I knew something was

> wrong.

> His ped gave us no explanation, just referred us to a physiatrist.

> This doc diagnosed Jax with torticollis and plagiocephaly (we later

> found out Jax was diagnosed with tort, plagio and a brachial plexus

> at birth, but were never told, found out by his med records only).

We

> started pt and ot, and the doc gave us ideas for repoing him. We

> tried that for 2 months, while waiting to get into the cranial

facial

> doc. We saw no improvement. December 4th was the day Jax received

his

> CranioCap. I have to admit, I hated it at first... I cried looking

at

> him. I struggled with taking him anywhere because I hated the

looks.

> But, after a couple of weeks with him in it, I couldn't wait to

take

> him out.. show off his new design.

> April 9th of this year Jax " graduated " from his CranioCap due to

it

> being too small. We were told yet again that it would round out on

> it's own now. I again struggled with banding him again, but came to

> the decision that I wasn't going to. It's something I still

question,

> his shape is still terrible (noticeable when his hair is wet, or

> touch). I know I can't get his hair cut much as it will show..

> If it wasn't for the moderators and active members of this group I

> seriously would have lost my mind. Jaxson is a success due to not

> only me, but you guys as well. I thank each of you...

>

> ~Kim~

> mom to Jaxson