Re: Sympathetic Nerve Blocks/RSD KID DOCTOR

[Guest guest]

I HAD A NUROLIGIST THAT TREATED MY RSD MIGRAINES FOR TWO WEEKS IN THE HOSPITAL. IT TOOK 16 SPINAL BLOCKS TO BREAK THE CYCLE. ANYWAY HE NOW ONLY TREATS CHILDREN. RICARDO AYALA MD. 1401 CENTERVILLE RD. TALLAHASSEE, FLORIDA 32308 HE EVEN RUNS A CAMP FOR CHILDREN SO THEY CAN MEET AND PLAY WITH CHILDREN LIKE THEMSELVES.

HOPE THIS HELPS...JOYjazmee03 wrote:

Today I finally found a doctor who would see my daughter and who says he knows about RSD. I have called doctors offices everyday for the last six months trying to get someone who treated RSD, when ever I did find one they did not treat kids. It is so bizarre to have a child with this illness and no doctors to turn to. Well, I finally found a doctor who does not treat children who will see my baby. He listened to me and said he is surprised she did not have a nerve block earlier that the nerve block may have been successful earlier on but he would give her one now and see. Stefanie is 12 yrs old and she has RSD in her left foot. I like that the doctor stepped up to the plate and genuinly wanted to help. That is the kind of doctor I feel comfortable with. I have read your email Beth and was like

OMG give the girl her nerve block. Do not stress, keep calling to get through to your friend from church, get his home number and call him. There are ways to get around ego driven doctors. Continue your blocks, if they are lessening the pain they are working! Stefanie has been working her butt off 3 times a week in physical therapy and on medicines and she still can not run. I actually feel she will never return to sports or be able to run again unless she has a nerve block. I feel she now has a movement disorder. She no longer has a cold foot, or a blue foot her swelling is down and she is no longer hypersensitive. However she is in pain everyday but tolerates it. She is on neurontin and I do not like that drug, for burning pain that she feels everyday too. She sweats at night like she is having a bad nightmare, her body twists and turns and if she wakes up at anytime she

gets a migrane and I cant get her backto sleep. well, talk to youlater Stef just woke up and is crying of burning pain. bye, and Stefanie 12 yr old rsd left foot Albany New york 1/12/03