Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Hello all, Jaxson had an appt with the ortho today - he agreed with me on getting more roundness and is going to keep going with treatment. YIPPEE - he will monitor his growth in this helmet, and go from there. VERY happy about that. After that, he had to go to a follow up with the neurologist. He thought at first (2 months ago) that Jax's weakness in his arm was most likey still from the Brachial Plexus. However, this time he thinks otherwise. He doesn't think that because Jax isn't weak in the sense he can't grab things, his arm doesn't move, things that were the case a few months ago. He grabs just fine. WAY too fine(head is still hurting from hair pulling this am). But, he is concerened because Jaxson is not using his arms to push up at all, cries when he rolls over them, and refuses to roll over from his back over his right arm. So, we are going for an MRI, scheduled April 6th. They told me that he cant eat/drink 4 hours prior!! WHAT??!! I laughed at them. This is a kid who LOVES his food. Today his weight was 24 lbs 14.4 oz. I don't know what to expect with the MRI - I know plenty of you have had to take your kiddos in - can you give me a heads up on what it's like? My heart will break when they stick him to make him sleepy Kim mom to Kaela (9) and Jaxson 8 mo tort/plagio/CranioCap Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Hi Kim, Thats great that Jaxson can keep rounding! As far as the MRI is concerned, we didn't have to do any of that so I don't have any advice for you. I can't imagine the no eating/drinking either! Jax is a big guy! My Hannah is on the other end of the spectrum--15 mos and not even 20lbs . Let us know how the MRI goes. Did they talk about any possibilities of what they think it may be? , mom to Hannah, DOC #3 3/30 Cape Cod, Ma --- In Plagiocephaly , " kasaint_2 " <kasaint_2@y...> wrote: > Hello all, > Jaxson had an appt with the ortho today - he agreed with me on > getting more roundness and is going to keep going with treatment. > YIPPEE - he will monitor his growth in this helmet, and go from > there. VERY happy about that. > After that, he had to go to a follow up with the neurologist. He > thought at first (2 months ago) that Jax's weakness in his arm was > most likey still from the Brachial Plexus. However, this time he > thinks otherwise. He doesn't think that because Jax isn't weak in the > sense he can't grab things, his arm doesn't move, things that were > the case a few months ago. He grabs just fine. WAY too fine(head is > still hurting from hair pulling this am). But, he is concerened > because Jaxson is not using his arms to push up at all, cries when he > rolls over them, and refuses to roll over from his back over his > right arm. > So, we are going for an MRI, scheduled April 6th. They told me that > he cant eat/drink 4 hours prior!! WHAT??!! I laughed at them. This is > a kid who LOVES his food. Today his weight was 24 lbs 14.4 oz. I > don't know what to expect with the MRI - I know plenty of you have > had to take your kiddos in - can you give me a heads up on what it's > like? My heart will break when they stick him to make him sleepy : ( > > Kim > mom to Kaela (9) and Jaxson 8 mo tort/plagio/CranioCap Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 Kim, When one of my kids had to have an MRI, they gave her some goofy juice that made her sleepy first. Then they put the mask over her face to put her out. They didn't do her IV until she was totally out. Maybe you can ask them to do it that way, it's a lot less traumatic. Let us know how you make out. --- In Plagiocephaly , " kasaint_2 " <kasaint_2@y...> wrote: > Hello all, > Jaxson had an appt with the ortho today - he agreed with me on > getting more roundness and is going to keep going with treatment. > YIPPEE - he will monitor his growth in this helmet, and go from > there. VERY happy about that. > After that, he had to go to a follow up with the neurologist. He > thought at first (2 months ago) that Jax's weakness in his arm was > most likey still from the Brachial Plexus. However, this time he > thinks otherwise. He doesn't think that because Jax isn't weak in the > sense he can't grab things, his arm doesn't move, things that were > the case a few months ago. He grabs just fine. WAY too fine(head is > still hurting from hair pulling this am). But, he is concerened > because Jaxson is not using his arms to push up at all, cries when he > rolls over them, and refuses to roll over from his back over his > right arm. > So, we are going for an MRI, scheduled April 6th. They told me that > he cant eat/drink 4 hours prior!! WHAT??!! I laughed at them. This is > a kid who LOVES his food. Today his weight was 24 lbs 14.4 oz. I > don't know what to expect with the MRI - I know plenty of you have > had to take your kiddos in - can you give me a heads up on what it's > like? My heart will break when they stick him to make him sleepy > > Kim > mom to Kaela (9) and Jaxson 8 mo tort/plagio/CranioCap Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2004 Report Share Posted March 28, 2004 Hi Kim, My son had a CT scan and had to be put to sleep (he was 4 1/2 mos and 19 lbs.) They did not give him an IV, however, they gave him chloral hydrate, an oral medicine that put him to sleep. He also could not eat or drink 4 hours prior, but we were told he could have clear liquids (i.e., apple juice) 2 hours prior to hold him over. You might want to check with your doctors about both of these. , our son, is having an MRI on April 1 and the same rules apply this time. He will have the oral anesthesia and is allowed clear liquids 2 hours prior. It definitely has helped us out because our little guy is a big eater too! (He's 23 lbs. and 6 1/2 mos. now) Also, was out for the count for almost 2 days even though they told us he should be wide awake after 2 hours. We were so worried that we took him to see his ped. but he said that was just a light weight, and everyone takes it differently. So, if baby Jaxson seems to be out longer than you're told he should be, don't worry!! Hope this helps! Maybe they can do baby Jaxson without a needle too! Good luck, a, mom to , 6 mos., plagio, STARband > > > > > > > > > Hello all, > > > > Jaxson had an appt with the ortho today - he agreed with me on > > > > getting more roundness and is going to keep going with > treatment. > > > > YIPPEE - he will monitor his growth in this helmet, and go from > > > > there. VERY happy about that. > > > > After that, he had to go to a follow up with the neurologist. > He > > > > thought at first (2 months ago) that Jax's weakness in his arm > > was > > > > most likey still from the Brachial Plexus. However, this time > he > > > > thinks otherwise. He doesn't think that because Jax isn't weak > in > > > the > > > > sense he can't grab things, his arm doesn't move, things that > > were > > > > the case a few months ago. He grabs just fine. WAY too fine > (head > > > is > > > > still hurting from hair pulling this am). But, he is concerened > > > > because Jaxson is not using his arms to push up at all, cries > > when > > > he > > > > rolls over them, and refuses to roll over from his back over > his > > > > right arm. > > > > So, we are going for an MRI, scheduled April 6th. They told me > > > that > > > > he cant eat/drink 4 hours prior!! WHAT??!! I laughed at them. > > This > > > is > > > > a kid who LOVES his food. Today his weight was 24 lbs 14.4 oz. > I > > > > don't know what to expect with the MRI - I know plenty of you > > have > > > > had to take your kiddos in - can you give me a heads up on what > > > it's > > > > like? My heart will break when they stick him to make him > sleepy : > > > ( > > > > > > > > Kim > > > > mom to Kaela (9) and Jaxson 8 mo tort/plagio/CranioCap Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Kim, good luck with the MRI. I really hope you get the answers your needing. Dustie --- In Plagiocephaly , " kasaint_2 " <kasaint_2@y...> wrote: > Hello all, > Jaxson had an appt with the ortho today - he agreed with me on > getting more roundness and is going to keep going with treatment. > YIPPEE - he will monitor his growth in this helmet, and go from > there. VERY happy about that. > After that, he had to go to a follow up with the neurologist. He > thought at first (2 months ago) that Jax's weakness in his arm was > most likey still from the Brachial Plexus. However, this time he > thinks otherwise. He doesn't think that because Jax isn't weak in the > sense he can't grab things, his arm doesn't move, things that were > the case a few months ago. He grabs just fine. WAY too fine(head is > still hurting from hair pulling this am). But, he is concerened > because Jaxson is not using his arms to push up at all, cries when he > rolls over them, and refuses to roll over from his back over his > right arm. > So, we are going for an MRI, scheduled April 6th. They told me that > he cant eat/drink 4 hours prior!! WHAT??!! I laughed at them. This is > a kid who LOVES his food. Today his weight was 24 lbs 14.4 oz. I > don't know what to expect with the MRI - I know plenty of you have > had to take your kiddos in - can you give me a heads up on what it's > like? My heart will break when they stick him to make him sleepy : ( > > Kim > mom to Kaela (9) and Jaxson 8 mo tort/plagio/CranioCap Quote Link to comment Share on other sites More sharing options...
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