Re: Colin was scanned at Hanger on Monday

[Guest guest]

Hi Mish

Please let us know when your son gets his band and how the fitting

goes.

Sandy WIllow's Mom Cranio Germany Grad 02/04

--- In Plagiocephaly , " cjwrcw " <michele_walsh@y...>

wrote:

> Well, we went to the Hanger facility in Woburn, Ma. The orthotist

> was very nice and says he does alot of kids for Dr. in

> Boston. It is a passive helmet, however. I had hoped for an

active

> one with correction ant. and post. The protocol they use(per Dr.

> , according to the orthtist) is to treat the posterior

> flattening " aggressively " ) and the face will correct one it is

> growing on a better shaped skull. Ds has a bossing of his left

> forehead, and his left ear is ant. and his right eye appears a tad

> lower than right. I also realize nobody is perfectly symmetrical

> anyway. I was reading some discussion of this " face following "

> afterwards this week, here. I think it was also craniofacial

doctors

> who had told someone this?

>

> Anyway, it would not be possible for us to go to CT every week,

> especially with older 4 yo dd in tow. So, this was our option,

and

> is essentially the same treatment as NOPCO in Boston, according to

> the clinic where I went. They often take clients from NOPCO

because

> they have most of the insurance contracts. We anticipate it being

> covered 100% with a letter of medical neccessity.

>

> We should have it in about a week from now. Ds has some bad

patches

> of eczema on his face and I am hoping we can control skin problems

> when he starts wearing his helmet. I want to try to post some

> pictures of him, but we do not have a digital camera! I need to

just

> take some anyway, but a digital would be great to be sure we

capture

> the shape before and after the treatment.

>

> So, that is where we are. Thanks for the help. mish

[Guest guest]

Mish,

I'm so glad you have been able to make your decision! Please let us

know how the initial fitting goes in a week! Do you know what brand

of helmet you are getting? I'm wondering if it's the Hanger Cranial

Band, or if it's a product ordered from Orthomerica (Starband,

etc.) All of those are active though, so I'm not sure which one

your ortho is speaking of... did he happen to let you know what sort

of adjustment/appt. schedule you son will be on? If they are more

frequent, then perhaps the helmet you are getting is active. I have

read that a lot of babies get correction to the other accompanying

asymmetries, so please have faith!

Take care,

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " cjwrcw " <michele_walsh@y...>

wrote:

> Well, we went to the Hanger facility in Woburn, Ma. The orthotist

> was very nice and says he does alot of kids for Dr. in

> Boston. It is a passive helmet, however. I had hoped for an

active

> one with correction ant. and post. The protocol they use(per Dr.

> , according to the orthtist) is to treat the posterior

> flattening " aggressively " ) and the face will correct one it is

> growing on a better shaped skull. Ds has a bossing of his left

> forehead, and his left ear is ant. and his right eye appears a tad

> lower than right. I also realize nobody is perfectly symmetrical

> anyway. I was reading some discussion of this " face following "

> afterwards this week, here. I think it was also craniofacial

doctors

> who had told someone this?

>

> Anyway, it would not be possible for us to go to CT every week,

> especially with older 4 yo dd in tow. So, this was our option,

and

> is essentially the same treatment as NOPCO in Boston, according to

> the clinic where I went. They often take clients from NOPCO

because

> they have most of the insurance contracts. We anticipate it being

> covered 100% with a letter of medical neccessity.

>

> We should have it in about a week from now. Ds has some bad

patches

> of eczema on his face and I am hoping we can control skin problems

> when he starts wearing his helmet. I want to try to post some

> pictures of him, but we do not have a digital camera! I need to

just

> take some anyway, but a digital would be great to be sure we

capture

> the shape before and after the treatment.

>

> So, that is where we are. Thanks for the help. mish

[Guest guest]

Hi Mish,

How exciting to be moving along with things! I was surprised to

read you're getting a passive helmet, as I thought the hanger band

was active and some Hanger's use STARbands, which are also active.

Hmmm! Let us know when Colin's band is in and if you get any

pictures uploaded!

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

--- In Plagiocephaly , " cjwrcw " <michele_walsh@y...>

wrote:

> Well, we went to the Hanger facility in Woburn, Ma. The orthotist

> was very nice and says he does alot of kids for Dr. in

> Boston. It is a passive helmet, however. I had hoped for an

active

> one with correction ant. and post. The protocol they use(per Dr.

> , according to the orthtist) is to treat the posterior

> flattening " aggressively " ) and the face will correct one it is

> growing on a better shaped skull. Ds has a bossing of his left

> forehead, and his left ear is ant. and his right eye appears a tad

> lower than right. I also realize nobody is perfectly symmetrical

> anyway. I was reading some discussion of this " face following "

> afterwards this week, here. I think it was also craniofacial

doctors

> who had told someone this?

>

> Anyway, it would not be possible for us to go to CT every week,

> especially with older 4 yo dd in tow. So, this was our option,

and

> is essentially the same treatment as NOPCO in Boston, according to

> the clinic where I went. They often take clients from NOPCO

because

> they have most of the insurance contracts. We anticipate it being

> covered 100% with a letter of medical neccessity.

>

> We should have it in about a week from now. Ds has some bad

patches

> of eczema on his face and I am hoping we can control skin problems

> when he starts wearing his helmet. I want to try to post some

> pictures of him, but we do not have a digital camera! I need to

just

> take some anyway, but a digital would be great to be sure we

capture

> the shape before and after the treatment.

>

> So, that is where we are. Thanks for the help. mish