Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 Hi , Your 447 converts to about 5 mg/dl in US terms, which is higher than mine which runs just below 3.0, but my creatinine clearance runs a bit lower than yours. I also am spilling about 3 grams of protein in 24 hours. I saw my Nephrologist last week, and he said that at this point, there really is no intervention that could produce measurable results in terms of delaying ESRD. I think there is a point of " no return " so to speak where reaching that level means that at some point, your kidneys will fail. As Pierre said, the greatest factor is really muscle mass. The more muscle mass you have, the higher serum creatinine you can tolerate. We have had some members go over 10, whereas others have started dialysis at 5-6 mg/dl. My Nephrologist thinks I will only make it to 5-6 because I only weight 120 pounds at 5 ft 6.5 inches, so I don't have lots of muscle mass. I will put a link in for calculating ESRD which should give you an estimation based on your body size and lab results. <A HREF= " http://nephron.com/mdrd/default.html " >http://nephron.com/mdrd/default.html\ </A> That should give you at least some guess on timing. I am sorry to hear you didn't get better news at your appointment, but please know we are here to support you along the way. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 You're getting into an area where it's very hard for anyone to make predictions. 447 umol, for me, was getting very close to when I needed to start dialysis (500 umol/L). But my creatinine clearance was about 20% or so at that point, and my actual calculated GFR was 12%. It depends on how big you are in terms of muscle mass. At the point where my cr clearance was about 20-30%, I had many pretty wild swings in serum creatinine (like over 100). It almost seemed like my kidneys were making last gasp attempts to work, but it was only fleeting. Spilling 3 grams of protein per day isn't going to slow down your kidney's decline at this point, that's for sure. I've often said on this group that I never had heavy proteinuria, which is true for 25 years with IgAN, except for the very end. Last summer, just before I had to start dialysis in October, I had moderate proteinuria right into June. In July though, I suddenly had heavy proteinuria, and I also started having severe swelling in my feet. They didn't even attempt to treat it except for increasing my dose of Lasix, because dialysis was obviously just around the corner. Pierre Update > Hi all > From my recent visit to my Neph. results are as follows > creat. 447 umol > protein 24 hr 3g per day. > Creat. has gone up 40 in 6 weeks, with no infection to blame. > quite surprised at protein 3g per day, as it has been about 4 years > since I did the last 24 hr. > Creatine clearence from 24hr, Neph said was 33. > Not realy sure what all this means, tried to ask Neph. but he was > very non commital. > Any ideas ? > Regards > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 Hi , You are truly so inspiration in your optimism and positive attitude despite your low kidney function. Sorry to hear you have to add yet another medication, but then again, for those of us including me who will eventually need a transplant, it is good training for all the meds those who are post-transplant have to take. I am praying everything will check out with your friend who wants to donate a kidney. After all the disappointments you have been through this year with your sisters, you deserve great news! On a side note, do you know what your creatinine clearance is from your urine tests? Take care , Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 Hi everyone, I just talked to my Neph about my new numbers. My Creatine is now at 6.1 and he said that he wanted to put me on some special vitamin that renal patients go on. He said that the low kidney function was messing up my Para thyroid which will call for extra calcium which takes it out of the bones. He said that he wanted me to take 2 a day at first. Yea team! Just a little more chemistry to offset the old prune kidneys. I hope that this will change for the better in a couple weeks. Update > Hi all > From my recent visit to my Neph. results are as follows > creat. 447 umol > protein 24 hr 3g per day. > Creat. has gone up 40 in 6 weeks, with no infection to blame. > quite surprised at protein 3g per day, as it has been about 4 years > since I did the last 24 hr. > Creatine clearence from 24hr, Neph said was 33. > Not realy sure what all this means, tried to ask Neph. but he was > very non commital. > Any ideas ? > Regards > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 , My Dr.s don't do creatinine clearances, they just check my blood. When all of you talk about clearances, I really don't follow that. I do understand the creatine though. I guess that my function is around somewhere between 10 and 13%. The Neph.s are really breathing down my neck. If I don't have surgery on the 16th, then I guess I will have access surgery instead! Make those Dr.s happy. :-) Re: Update Hi , You are truly so inspiration in your optimism and positive attitude despite your low kidney function. Sorry to hear you have to add yet another medication, but then again, for those of us including me who will eventually need a transplant, it is good training for all the meds those who are post-transplant have to take. I am praying everything will check out with your friend who wants to donate a kidney. After all the disappointments you have been through this year with your sisters, you deserve great news! On a side note, do you know what your creatinine clearance is from your urine tests? Take care , Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2003 Report Share Posted July 3, 2003 I normally just read the posts, but I thought I'd reply to this one. The creatinine does sound rather high, and it almost sounds like you are getting to the point where your kidney function is now deteriorating at a more rapid rate. Was your neph concerned about it at all? And the 3g of protein does sound a little too high for my liking - is your neph planning on putting you on prednisolone to bring that down a bit? I personally hate the prednisolone - it makes my face look like one giant zit!! lol johnfurness2001 wrote:Hi all From my recent visit to my Neph. results are as follows creat. 447 umol protein 24 hr 3g per day. Creat. has gone up 40 in 6 weeks, with no infection to blame. quite surprised at protein 3g per day, as it has been about 4 years since I did the last 24 hr. Creatine clearence from 24hr, Neph said was 33. Not realy sure what all this means, tried to ask Neph. but he was very non commital. Any ideas ? Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2003 Report Share Posted August 23, 2003 HI , I am glad you are feeling a little bit better, but please call your doctor about the reaction to the Cipro. I am relieved they are finally treating you as if you had a UTI though so you can get some relief. Have a great time at the wedding! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2003 Report Share Posted August 23, 2003 Hives when taking a new medication is not usually a good sign, . I would keep a close eye on it if it were me. Consider carrying some Benadryl in case of an allergic reaction (but ask the pharmacist first if it's Ok). Pierre UPDATE > Well I talked with my neph yesterday. He put me on Cipro and a pain > pill. He is treating it like a UTI even though my culture didnt grow > anything. I am glad that I am finally on something that will help me > out. I feel a little relief today, but not too much. I am heading to > a wedding but I thought since I wouldnt be here all night or tomorrow > that I would fill you in on whats going on. I also think that I am > alergic to this Cipro, I got hives last night and I am feeling really > funny. My heart is skipping, and that kind of scares me, so if anyone > else has had these symptoms with the Cipro let me know that its > probably normal???? Hum cant think of anything else, gotta run to > this wedding. Have a good day. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2003 Report Share Posted August 23, 2003 Hi , Thanks for checking in. Just want to second what Pierre said. I'd call the doc pronto and let him know what is happening. Allergies to antibiotics can arise even if you have never been allergic to them before. This is not something you want to mess with. Hope you have a good weekend. I hope you continue to get more relief. UTI pain HURTS. Cy UPDATE > Well I talked with my neph yesterday. He put me on Cipro and a pain > pill. He is treating it like a UTI even though my culture didnt grow > anything. I am glad that I am finally on something that will help me > out. I feel a little relief today, but not too much. I am heading to > a wedding but I thought since I wouldnt be here all night or tomorrow > that I would fill you in on whats going on. I also think that I am > alergic to this Cipro, I got hives last night and I am feeling really > funny. My heart is skipping, and that kind of scares me, so if anyone > else has had these symptoms with the Cipro let me know that its > probably normal???? Hum cant think of anything else, gotta run to > this wedding. Have a good day. > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 Not to grow a culture but have the symptoms of a UTI is not unusual for me I had this reoccurring for a period almost constantly for 5 years. In Lupus there is such a thing as an inflamed bladder causing similar symptoms and I believe this is going on here with us. As mentioned in previous posts I've had numerous cystoscopys where they didn't grow a culture but the wall of the bladder lining and urethra was very definitely inflamed. I think has had this problem too and the thinking is that the tiny particles of blood/Hematuria are irritating the bladder lining and thus making it very susceptible to infection/creating similar symptoms. Good luck Sally UK PS. Off subject ..... Still haven't crashed my computer yet!! Fingers crossed. UPDATE Well I talked with my neph yesterday. He put me on Cipro and a pain pill. He is treating it like a UTI even though my culture didnt grow anything. I am glad that I am finally on something that will help me out. I feel a little relief today, but not too much. I am heading to a wedding but I thought since I wouldnt be here all night or tomorrow that I would fill you in on whats going on. I also think that I am alergic to this Cipro, I got hives last night and I am feeling really funny. My heart is skipping, and that kind of scares me, so if anyone else has had these symptoms with the Cipro let me know that its probably normal???? Hum cant think of anything else, gotta run to this wedding. Have a good day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 The only thing I can think of is that 25 is your creatinine clearance. 25 is good in the sense that you don't need dialysis right away, but it's not good in the sense that it isn't very far away. It's hard to say what it corresponds to in terms of kidney function (GFR). While creatinine clearance corresponds roughly to GFR, it does so less and less as you lose kidney function. This is because some people clear a significant amount of creatinine via the renal tubules, in addition to most of it being cleared via the glomeruli. So, the less glomerular function you have, the more the amount being cleared by the renal tubules affects the number. Since it's glomerular function we're concerned about, not tubular function, the number ends up not corresponding exactly with the glomerular filtration rate - which is the same as saying percentage kidney function. A person with a creatinine clearance of 50 probably has close to 50% kidney function (just as a very rough example), but a person with a cr cl of 25 may have anywhere from 15 to 25% kidney function. Keeping in mind that dialysis is generally started when GFR approaches 10%, it's not too early to start putting in the catheter for PD or the fistula for hemo at about where you are now. The catheter for PD can wait a little longer, since it doesn't take 4 months to develop like a fistula does, but then, you can't know exactly when you will need it at this point. So, better to have it put it. In my opinion, it's also not too early to start your workups for as a transplant recipient. Pierre Update > Hi Everyone, just a quick update, and a question. > > Creat. 528 urea 33.7 These were my latest results, creat. seems to > be climbing in leaps and bounds. > > Question > > My specialist has asked me to do another 24 hr urine, he said the > last one, (one month ago) was very good at 25 ??? dont know what the > 25 means. > If the new 24 hr is worse, I think they will plan to put my PD > catheter in, as this is the modality I have chosen. they also said > they would get me an appt. with the Transplant Team. > Question is what does the 25 mean, and how good is it. > > thanks for any help given. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Hi , I am so relieved that they figured out the problem! Sorry you had to endure so much to get it all sorted out though. How frustrating though that they would not test you for lupus or HSP. On the joint pain though, anytime I have any type of viral or bacterial infection, my joint pain always flares up. You may remember that I do have HSP also. The good thing is that it always subsides once I get back on track and the infection is gone. Regardless of the cause for you, I pray that the joint pain will go into remission once the antibiotics kick in for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Well, it's certainly nice to know they found the problem. Any thoughts from them as to why you get these cysts? Pierre Update > Morning and Afternoon Everyone > > An update as promised. I spent the entire day yesterday at the > hospital, and the mystery is solved. > > Ultrasound of my right kidney revealed a cyst 3mm in diameter, fluid > filled, with they thought blood. This is the 4th cyst I have had > here now, and it is on the site where the original biopsy took place. > Under CT guidance I had this cyst aspirated, and the fluid was not > clear but bloody with pus like consistency, which indicated > infection, and I have reassured that this is highly unlikely to be > cancerous. This is probably why my urine test showed infection, but > if you remember I said I thought I did not have a UTI because I was > not symptomatic of such, and I think I have had enough UTI's to be > confident in this respect. > > I stayed the day as they wanted to make sure I did not hemmorahage > from the aspiration, and I didnt, plus I was told I may get the > histology from the labs, and it was not anything sinister, but > infected. > > So on a 14 day course of antibiotics, loads of rest, um excuse me I > seem to do nothing but rest LOL. The neph I saw was a lady, very > nice, and she is writing to my proper neph, to see if they need to > be doing anything about these cysts appearing on my kidney, but to > be frank short of removing it, she thought not a lot could be done, > with continual invasive procedures I run the very real risk of > damage and lesions, so that is a wait and see scenario. > > The pain and everything I mentioned she believes is a direct > consequence of this cyst, I beg to differ on that a little, I mean > why would my joints hurt? I asked to be tested for Lupus and HSP, > but this ruled out as unnecessary, this I will follow up with my > GP. The edema is as she put it there, but mild, and purely down to > fluid retention, probably due to my inefficient bladder function, > again this will be referred on to my urology team. > > So the procedure was painless, although today I do feel a tad sore, > but I had a wonderful night's sleep, courtesy of a sedative they > allowed me to bring home, basically to enforce good sleep for 12 > hours and to keep me still, I do tend to be a fidget widget! > > Sorry so long. > > Best wishes > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Hi , What a relief! It's just nice to go into a hospital and actually have a mystery solved. I'm very impressed! I hope your neph can shed some light on why these cysts seem to be recurring. I hope you feel better soon. Hopefully you and Jessie can spend the next 14 days comfortably curled up. My 15 year old, grotesquely obese feline hairball is on my desk snoring away as I type. It's a nice feeling. Cy Update > Morning and Afternoon Everyone > > An update as promised. I spent the entire day yesterday at the > hospital, and the mystery is solved. > > Ultrasound of my right kidney revealed a cyst 3mm in diameter, fluid > filled, with they thought blood. This is the 4th cyst I have had > here now, and it is on the site where the original biopsy took place. > Under CT guidance I had this cyst aspirated, and the fluid was not > clear but bloody with pus like consistency, which indicated > infection, and I have reassured that this is highly unlikely to be > cancerous. This is probably why my urine test showed infection, but > if you remember I said I thought I did not have a UTI because I was > not symptomatic of such, and I think I have had enough UTI's to be > confident in this respect. > > I stayed the day as they wanted to make sure I did not hemmorahage > from the aspiration, and I didnt, plus I was told I may get the > histology from the labs, and it was not anything sinister, but > infected. > > So on a 14 day course of antibiotics, loads of rest, um excuse me I > seem to do nothing but rest LOL. The neph I saw was a lady, very > nice, and she is writing to my proper neph, to see if they need to > be doing anything about these cysts appearing on my kidney, but to > be frank short of removing it, she thought not a lot could be done, > with continual invasive procedures I run the very real risk of > damage and lesions, so that is a wait and see scenario. > > The pain and everything I mentioned she believes is a direct > consequence of this cyst, I beg to differ on that a little, I mean > why would my joints hurt? I asked to be tested for Lupus and HSP, > but this ruled out as unnecessary, this I will follow up with my > GP. The edema is as she put it there, but mild, and purely down to > fluid retention, probably due to my inefficient bladder function, > again this will be referred on to my urology team. > > So the procedure was painless, although today I do feel a tad sore, > but I had a wonderful night's sleep, courtesy of a sedative they > allowed me to bring home, basically to enforce good sleep for 12 > hours and to keep me still, I do tend to be a fidget widget! > > Sorry so long. > > Best wishes > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Hi Pierre Thanks Pierre. Yes it would be nice to know why, and believe me I have asked, and thus far the only explanation I have been given is that the area is a weak spot and has never healed properly, but until I actually get to see my proper Neph I just have to run with that for now, although I personally want more concrete reasoning as you can imagine. Will keep you posted. Hope your ok Pierre. Best wishes Love Re: Update Well, it's certainly nice to know they found the problem. Any thoughts from them as to why you get these cysts? Pierre Update > Morning and Afternoon Everyone > > An update as promised. I spent the entire day yesterday at the > hospital, and the mystery is solved. > > Ultrasound of my right kidney revealed a cyst 3mm in diameter, fluid > filled, with they thought blood. This is the 4th cyst I have had > here now, and it is on the site where the original biopsy took place. > Under CT guidance I had this cyst aspirated, and the fluid was not > clear but bloody with pus like consistency, which indicated > infection, and I have reassured that this is highly unlikely to be > cancerous. This is probably why my urine test showed infection, but > if you remember I said I thought I did not have a UTI because I was > not symptomatic of such, and I think I have had enough UTI's to be > confident in this respect. > > I stayed the day as they wanted to make sure I did not hemmorahage > from the aspiration, and I didnt, plus I was told I may get the > histology from the labs, and it was not anything sinister, but > infected. > > So on a 14 day course of antibiotics, loads of rest, um excuse me I > seem to do nothing but rest LOL. The neph I saw was a lady, very > nice, and she is writing to my proper neph, to see if they need to > be doing anything about these cysts appearing on my kidney, but to > be frank short of removing it, she thought not a lot could be done, > with continual invasive procedures I run the very real risk of > damage and lesions, so that is a wait and see scenario. > > The pain and everything I mentioned she believes is a direct > consequence of this cyst, I beg to differ on that a little, I mean > why would my joints hurt? I asked to be tested for Lupus and HSP, > but this ruled out as unnecessary, this I will follow up with my > GP. The edema is as she put it there, but mild, and purely down to > fluid retention, probably due to my inefficient bladder function, > again this will be referred on to my urology team. > > So the procedure was painless, although today I do feel a tad sore, > but I had a wonderful night's sleep, courtesy of a sedative they > allowed me to bring home, basically to enforce good sleep for 12 > hours and to keep me still, I do tend to be a fidget widget! > > Sorry so long. > > Best wishes > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 , I am pleased you have got to the bottom of things, not an ideal situation but at least you know why and the doctors are in a position to fix it. You have been doggedly persistant and it has paid off - weel done! Derrick Sydney Australia > Morning and Afternoon Everyone > > An update as promised. I spent the entire day yesterday at the > hospital, and the mystery is solved. > > Ultrasound of my right kidney revealed a cyst 3mm in diameter, fluid > filled, with they thought blood. This is the 4th cyst I have had > here now, and it is on the site where the original biopsy took place. > Under CT guidance I had this cyst aspirated, and the fluid was not > clear but bloody with pus like consistency, which indicated > infection, and I have reassured that this is highly unlikely to be > cancerous. This is probably why my urine test showed infection, but > if you remember I said I thought I did not have a UTI because I was > not symptomatic of such, and I think I have had enough UTI's to be > confident in this respect. > > I stayed the day as they wanted to make sure I did not hemmorahage > from the aspiration, and I didnt, plus I was told I may get the > histology from the labs, and it was not anything sinister, but > infected. > > So on a 14 day course of antibiotics, loads of rest, um excuse me I > seem to do nothing but rest LOL. The neph I saw was a lady, very > nice, and she is writing to my proper neph, to see if they need to > be doing anything about these cysts appearing on my kidney, but to > be frank short of removing it, she thought not a lot could be done, > with continual invasive procedures I run the very real risk of > damage and lesions, so that is a wait and see scenario. > > The pain and everything I mentioned she believes is a direct > consequence of this cyst, I beg to differ on that a little, I mean > why would my joints hurt? I asked to be tested for Lupus and HSP, > but this ruled out as unnecessary, this I will follow up with my > GP. The edema is as she put it there, but mild, and purely down to > fluid retention, probably due to my inefficient bladder function, > again this will be referred on to my urology team. > > So the procedure was painless, although today I do feel a tad sore, > but I had a wonderful night's sleep, courtesy of a sedative they > allowed me to bring home, basically to enforce good sleep for 12 > hours and to keep me still, I do tend to be a fidget widget! > > Sorry so long. > > Best wishes > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2003 Report Share Posted September 21, 2003 , Glad to hear you are on the road to recovery. My advice is to take total advantage of being on bed rest. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 My son has been on the SC diet since May of 2003. His behavior immediately improved when I removed the rice and potatoes that he had been allowed to have on the GFCF diet. But I hadn't seen much other improvement. I finally tried the goat yogurt in November. This also helped him. Then just recently, I was re-reading a post that I had printed off, from who, I don't remember. But in the post it mentioned that yogurt And/Or acidophilus should be used, so I added back the acidophilus. I think that was the key. Because I had replaced the acidophilus with the goat yogurt and I was still fighting yeast problems. I also removed honey and juice. I'm not sure how long I should continue this strict regimen of no fruit or honey to help eradicate his yeast problems. Now he gets acidophilus AND goat yogurt, both 2 times a day. He is more vocal and tries to be more social, at school. However he has been having accidents, urinating in his pants, is this related to yeast die-off? His bm's are still not trophies, but I think we're closer. He did have some behavior problems when I added back the acidophilus and eliminated the fruit/honey. How long do I need to keep away from the fruit and honey? Also, this is my first post since we came back to pecanbread from lyris. I lost my job at the end of October and have been actively looking but I have not been successful. I haven't had the time to be more active. I need a job!!! 20 years old somewhere on the Autism spectrum. primarily non-verbal gfcf for over 4 years SCD 10 months. was previously diagnosed with Crohn's disease, 2 doctors and one blood test since then have proven that he does NOT have this disease, but then I've been doing dietary interventions with him a LONG time. VickiB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Welcome back Vicki, >> My son has been on the SC diet since May of 2003. His behavior immediately improved when I removed the rice and potatoes that he had been allowed to have on the GFCF diet. But I hadn't seen much other improvement. I finally tried the goat yogurt in November. This also helped him. Then just recently, I was re-reading a post that I had printed off, from who, I don't remember. But in the post it mentioned that yogurt And/Or acidophilus should be used, so I added back the acidophilus. I think that was the key. Because I had replaced the acidophilus with the goat yogurt and I was still fighting yeast problems. I also removed honey and juice. I'm not sure how long I should continue this strict regimen of no fruit or honey to help eradicate his yeast problems. Now he gets acidophilus AND goat yogurt, both 2 times a day. >> He is more vocal and tries to be more social, at school. However he has been having accidents, urinating in his pants, is this related to yeast die-off? His bm's are still not trophies, but I think we're closer. If the urinating started shortly after reintroducing the acidophilus then it is probably due in part to an improvement in his bowels. As the bm's move closer to trophies and away from D the body is not losing as much water in the loose stools. But this excess water has to go somewhere so it ends up as increased urine output. It just may take a period of sdjustment for him to get used to it. I think some people have mentioned increasing magnesium to help with this. So yes, it is related to the yeast die-off in that as more yeastie beasties die-off his bowels are improving. >> He did have some behavior problems when I added back the acidophilus and eliminated the fruit/honey. How long do I need to keep away from the fruit and honey? Those behaviours may be from increased die-off. Epsom salt baths or activated charcoal may help. Well, the when is up to you, but when you reintro honey and/or fruit go slow so you can guage his reaction. Probably a teaspoon a day or even half a teaspoon. Skip a day then if all is okay either do another 1/2 teaspoon or increase to 1 teaspoon, skip a day then increase on day 5. If you add fruit first make sure it is peeled, deseeded and cooked. >> Also, this is my first post since we came back to pecanbread from lyris. I lost my job at the end of October and have been actively looking but I have not been successful. I haven't had the time to be more active. I need a job!!! I hope you find a new job soon, good luck >> 20 years old somewhere on the Autism spectrum. primarily non-verbal gfcf for over 4 years SCD 10 months. was previously diagnosed with Crohn's disease, 2 doctors and one blood test since then have proven that he does NOT have this disease, but then I've been doing dietary interventions with him a LONG time. Wow! I love to hear those diagnosis disappear! Sheila, SCD 36 mos UC 20 yrs mom of SCD 21 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Thanks so much for the information! If the urinating started shortly after reintroducing the acidophilus then it is probably due in part to an improvement in his bowels. As the bm's move closer to trophies and away from D the body is not losing as much water in the loose stools. But this excess water has to go somewhere so it ends up as increased urine output. It just may take a period of sdjustment for him to get used to it. I think some people have mentioned increasing magnesium to help with this. So yes, it is related to the yeast die-off in that as more yeastie beasties die-off his bowels are improving. > Those behaviours may be from increased die-off. Epsom salt baths or activated charcoal may help. Well, the when is up to you, but when you reintro honey and/or fruit go slow so you can guage his reaction. Probably a teaspoon a day or even half a teaspoon. Skip a day then if all is okay either do another 1/2 teaspoon or increase to 1 teaspoon, skip a day then increase on day 5. If you add fruit first make sure it is peeled, deseeded and cooked. > I hope you find a new job soon, good luck > > >> 20 years old > somewhere on the Autism spectrum. > primarily non-verbal > gfcf for over 4 years > SCD 10 months. > was previously diagnosed with Crohn's disease, 2 doctors and one > blood test since then have proven that he does NOT have this disease, > but then I've been doing dietary interventions with him a LONG time. > > Wow! I love to hear those diagnosis disappear! > > Sheila, SCD 36 mos UC 20 yrs > mom of SCD 21 mos > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 That is awesome news and helps keeps us newbies very motivated to keep hanging in there! I am really happy for you and ! Kathy Abby's mom 2 weeks on SCD Update > Hi All,We've been on scd for 17 days,not counting the 2 weeks before > we did intro.At first I thought I had made a huge mistake,but now I > am starting to see the fruits of my labor paying off.He looked > horrible and very unhealthy at the beginning,but now he is looking > healthy again.We went through some pretty bad die-off and yes that is > very discourageing,when you see some old behaviors that were a thing > of the past return.I could not have made it through the beginning > stage without you guys that have dedicated your time to helping > people!Thank you so much!!!! has started pointing out > everything without prompting him and he is starting to state yes and > no when he wants something and when he does't,something we have been > working on for months!!!He is much more verbal and he is very > lively.He is learning things in normal ways other than just in his ABA > therapy.He always hated when I would run my blender and he would > scream after it stopped to let me know that he didn't like it,well > for about a week and a half he hasn't one time screamed after I ran > my blender!!!I know that this is just the beginning of better things > to come and I want to encourage anyone that is trying it to just give > it time,good things will come. > > DeAnn,mom to asd 3 1/2,scd 17 days > > P.S. also has been wanting to watch his brothers build > legos,something he could have cared less about 3 weeks ago!!!Yeah!! > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 I love all of these great reports!! Thanks for sharing. Jody mom to -5 and -7 SCD 13 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 DeAnn, I am so happy for you and ! All the best,Mimi > Hi All,We've been on scd for 17 days,not counting the 2 weeks before > we did intro.At first I thought I had made a huge mistake,but now I > am starting to see the fruits of my labor paying off.He looked > horrible and very unhealthy at the beginning,but now he is looking > healthy again.We went through some pretty bad die-off and yes that is > very discourageing,when you see some old behaviors that were a thing > of the past return.I could not have made it through the beginning > stage without you guys that have dedicated your time to helping > people!Thank you so much!!!! has started pointing out > everything without prompting him and he is starting to state yes and > no when he wants something and when he does't,something we have been > working on for months!!!He is much more verbal and he is very > lively.He is learning things in normal ways other than just in his ABA > therapy.He always hated when I would run my blender and he would > scream after it stopped to let me know that he didn't like it,well > for about a week and a half he hasn't one time screamed after I ran > my blender!!!I know that this is just the beginning of better things > to come and I want to encourage anyone that is trying it to just give > it time,good things will come. > > DeAnn,mom to asd 3 1/2,scd 17 days > > P.S. also has been wanting to watch his brothers build > legos,something he could have cared less about 3 weeks ago!!!Yeah!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Congrats Deann!! It is nice to see all your loving, hard work pay off!! One of the first things I noticed after starting my son on the diet is that he learned much faster too, especially reading and writing. Keep up the good work and take it slow. You can never go too slow with introducing new foods. I have learned this the hard way!! LOL. Best, > Hi All,We've been on scd for 17 days,not counting the 2 weeks before > we did intro.At first I thought I had made a huge mistake,but now I > am starting to see the fruits of my labor paying off.He looked > horrible and very unhealthy at the beginning,but now he is looking > healthy again.We went through some pretty bad die-off and yes that is > very discourageing,when you see some old behaviors that were a thing > of the past return.I could not have made it through the beginning > stage without you guys that have dedicated your time to helping > people!Thank you so much!!!! has started pointing out > everything without prompting him and he is starting to state yes and > no when he wants something and when he does't,something we have been > working on for months!!!He is much more verbal and he is very > lively.He is learning things in normal ways other than just in his ABA > therapy.He always hated when I would run my blender and he would > scream after it stopped to let me know that he didn't like it,well > for about a week and a half he hasn't one time screamed after I ran > my blender!!!I know that this is just the beginning of better things > to come and I want to encourage anyone that is trying it to just give > it time,good things will come. > > DeAnn,mom to asd 3 1/2,scd 17 days > > P.S. also has been wanting to watch his brothers build > legos,something he could have cared less about 3 weeks ago!!!Yeah!! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.