Re: New to Group Sherry and Craig

[Guest guest]

Sounds like you are on a tough road. I, as many others in this group, have been

on the same road. In my case, I was transplanted in 1993 and again in 1999.

My underliying condition is PSC.

Something that was helpful, especially my wife, was a face-to-face support

group. The one we were involved with was sponsored by the American Liver

Foundation. There are others, such as those run by hospitals that perform

transplant surgery. Most of the information in these groups will be related to

Hepitius C, but dealing with liver failure is the same independent of the

reason for the failure.

A National Directory of Hepatitis Information was prepared a few years ago

under a contract with CDC. I have the section on Organization Information and

Services in an Access 2000 database (1.22 Mb). Unfortunately, there are no

services listed in the Stockton area. If you or any one else would like a

copy, I would be happy to forward one. There is no copyright notice in the

book, so it is for open distribution.

Jerry

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[Guest guest]

We actually live in Southern California. We have been attending a

support group at the VA Hospital in Loma and it has been

helpful. So far there is only one other person with PSC. Most have

either Hep C. We are finding it helpful reading through the archives

knowing that we aren't alone in this battle. Thanks for the

information.

Sherry and Craig

> Sounds like you are on a tough road. I, as many others in this

group, have been

> on the same road. In my case, I was transplanted in 1993 and again

in 1999.

> My underliying condition is PSC.

>

> Something that was helpful, especially my wife, was a face-to-face

support

> group. The one we were involved with was sponsored by the American

Liver

> Foundation. There are others, such as those run by hospitals that

perform

> transplant surgery. Most of the information in these groups will

be related to

> Hepitius C, but dealing with liver failure is the same independent

of the

> reason for the failure.

>

> A National Directory of Hepatitis Information was prepared a few

years ago

> under a contract with CDC. I have the section on Organization

Information and

> Services in an Access 2000 database (1.22 Mb). Unfortunately,

there are no

> services listed in the Stockton area. If you or any one else would

like a

> copy, I would be happy to forward one. There is no copyright

notice in the

> book, so it is for open distribution.

>

> Jerry

>

> ---------------------------------------------

> This message was sent using the LA Free-Net - LA's best kept secret.

> http://www.lafn.org/