Re: Kim- the countdown begins-

[Guest guest]

Yikes, I can't believe your neuro wouldn't write a script w/Jordan's

assymetry still being so high! I'm glad you followed through with

your ped and will be getting him a second helmet. What a year it

has been for Jordan! It sounds like me made a ton of progress in

that first band though. I'd love to see pictures of his progress if

you've been taking them. Let us know how he does with his second

band.

, mom to Hannah, DOCgrad

Cape Cod, Ma

> Kim,

> I kinda ran into the same problem you are having. Jordan

didn't get

> his band until he was 9 months with an asymetry of 39 mm. Our

neurosurgeon

> saw him last month after being in the band for 4 months and said

he was

> pleased with his correction, down to 23mm and he was not

recommending

> another band. He feels as some docs do that this is now just

cosmetic and

> thats the way his head is going to be shaped. So I just got a

script from

> our ped and Jordan was casted for his second helmet on Monday. Our

> insurance balked at picking up the second band due to it not being

indorsed

> by the neuro but our ped bombarded them with info on plagio and it

was

> pre-approved. If our ped would not have written the script, I

would have

> found a new ped that would. I am not happy with Jordan's head

shape (still

> on the high end of the severe scale) and will continue to band him

until he

> is too old or has received the correction I want.

> Good Luck and remember that you can't go back and fix this in a

few years if

> it still bothers you. Get a second or third opinion if necessary.

>

> F.~~Buffalo, NY

> Mama to:

> , Jordan (cranio,plagio & tort~Starband 10-24-03) &

> Click below to see our boys!

> http://www.babiesonline.com/babies/t/twinsjordanjohn

>

> -

>

>

> > Hi ,

> > The doc he saw said no, that most babies should have whatever

> > correction they will have after 3 months of treatment. I told him

> > that I wanted to see more, that I still can tell by looking at

him

> > something isnt right - he said that all babies that have plagio

will

> > have a degree of flatness after treatment (i knew this already).

I

> > asked the ortho about it, he said they will do what they can to

get

> > it there by months end. I have done a TON of reading about

plagio

> > with treatment (in the group as well as various sites) and I KNOW

> > more correction can occur after 8 months.

> > I don't know if I should just be happy with the way it is

(which i

> > am, just not satisfied) or what I should do. I guess my deciding

> > factor will be at the end of the month- if any more correction

has

> > happened...

> >

> > Kim

> >