Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Oh, no! That's aweful! At least he is still young enough that if you wanted to try the DOC BAND - you could. I think you are justified with legal action. We have DOC BAND. It's been great so far. Didn't get it on til 11 months. It's helping. My son's face is symetrical again and the flat part on the back right is rounding out. His ears are still not equidistant - but we started at 11 months - so that might not change. Same thing - torticollis. I know some folks who fly in from Barbedos (sp?) each Cranial Tech trip. They think it's worth it. I'm so sorry to hear about your ordeal. Would recommend DOC BAND. Jeannette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Dear … I have been repo’ing my own (9 months old) since she was almost 4 months old so I don’t know from firsthand knowledge what you have been through, but my heart breaks over what you and have had to endure. I just wanted to say, please please please don’t let this experience (as devastating as it has been) keep you from doing what you originally thought was best for him. If ’s head was bad enough for you to believe he needed a band for correction, then please don’t be deterred. Don’t let this make you doubt yourself. I totally understand that you have lost faith in Starband and the orthotist (I would have felt the same way), but please don’t lose faith in your own instincts as ’s mom. If you are considering checking in to a DOC band, definitely do it. A lot of people travel a great distance to go to CT rather than a closer orthotist with any other type of band. CT does nothing else but DOCbands, and I don’t remember reading a single post here where someone was anything less than thrilled with their treatment at CT. Plus at 8 months old, can still get good correction from an active band like DOCband. I wouldn’t rely on natural growth to round him out to your satisfaction at this age. Please don’t give up, . We’re all behind you all the way! Becky (’s mom) in Pgh, PA PS…as far as legal action, it can never hurt to check into it. Especially if you are now in the position of having to correct further damage caused by the incorrect band. And, another thing, I would go in there and DEMAND a full refund for that inexcusably substandard band! Starband Nightmare My now 8 month old son got his Starband on his six month birthday. I was reluctant to persue the helmet, but decided it was in his best interest. He was born with Torticollis and had moderate back, left side head flattening. He tolerated the helmet well in the beginning, although neede a few adjustments for skin irritation. I then started to notice severe red areas into his second month of use. Come to find out, the helmet was originally made incorrectly. It was made for a child with right side flattening. Before the 1st few layers were removed he was wearing a helmet that restricted left side growth (his flat side) and promoted right side growth. Looking back now, that is why we didn't see any improvement in the first few weeks of use. Eventually layers were removed from the left side and we saw some imrpovement. It wasn't untill the red areas started to show up that one orthosist realized the helmet was made incorrectly. My husband and I are devistated. They made him a new helmet, but the fit is terrible and he doesn't tollerate it well. I have totally lost confidence in helmet treatment and am terrified of more mishaps. still has flattening and now an area of indentation on his left side were the closure was put by accident (it was supposed to be on the right). I was thinking of persuing the DOC band, but the nearest facility is about 3 hours from my house. I feel like we should just let nature take its course and see how his head developes without intervention. The entire experience makes me sick and enraged. Why my child? is currently in PT for the Torticollis, so that is being addressed. I need some advice. We are even concidering taking legal action. What should we do next? Has anyone else experienced this nightmare? For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 Oh , I am sooo sorry to hear of what you and have been through, it's appalling!! Please don't give up. He is still at an age for correction and that is what he needs. My daughter Angelina is just over 9 mos and just received her first helmet and I think she will achieve great correction at her young age. I don't blame you one bit for wanting to throw in the towel and pursue legal action (might be an option by the way). If you wanted to change facilities and go with the DOC band, three hrs away seems pretty close to me considering I travel 5 hrs one way to my daughter's appts. I have to take a ferry both ways too and many of us travel great distances to get the treatment our kids deserve. flies from Seattle to San Diego for too. Perhaps will get used to the new helmet as well, it may take some time since it's putting gentle pressure in the areas needed. Maybe go back to building up his wearing time?? What every you decide, we are here for you. , mommy to Angelina 9 mos with tort, local helmet 09/04 in , B.C. Canada -----Original Message-----From: mjcsec2001 [mailto:mjcsec@...]Sent: Thursday, July 15, 2004 8:00 PMPlagiocephaly Subject: Starband NightmareMy now 8 month old son got his Starband on his six monthbirthday. I was reluctant to persue the helmet, but decided it was inhis best interest. He was born with Torticollis and had moderateback, left side head flattening. He tolerated the helmet well in thebeginning, although neede a few adjustments for skin irritation. Ithen started to notice severe red areas into his second month of use.Come to find out, the helmet was originally made incorrectly. It wasmade for a child with right side flattening. Before the 1st fewlayers were removed he was wearing a helmet that restricted left sidegrowth (his flat side) and promoted right side growth. Looking backnow, that is why we didn't see any improvement in the first few weeksof use. Eventually layers were removed from the left side and we sawsome imrpovement. It wasn't untill the red areas started to show upthat one orthosist realized the helmet was made incorrectly. Myhusband and I are devistated. They made him a new helmet, but the fitis terrible and he doesn't tollerate it well. I have totally lostconfidence in helmet treatment and am terrified of more mishaps. still has flattening and now an area of indentation on his leftside were the closure was put by accident (it was supposed to be onthe right). I was thinking of persuing the DOC band, but the nearestfacility is about 3 hours from my house. I feel like we should justlet nature take its course and see how his head developes withoutintervention. The entire experience makes me sick and enraged. Whymy child? is currently in PT for the Torticollis, so that isbeing addressed. I need some advice. We are even concidering takinglegal action. What should we do next? Has anyone else experiencedthis nightmare?For more plagio info Quote Link to comment Share on other sites More sharing options...
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