Re: & in PA

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SPeaking of this... I Just called and it's in, Now why didn't they call me.. i wonder how long it's been sitting there, it will be 3 weeks since insurance was approved and 4 weeks since she was casted..She's still so tiny , and i know her head is changing, for the worse i might add, and i hope the helmet will be fitted properly. We have our appt on thursday at 2 and Pt on thursday for her tort at 11. I am so sick over all of this... i just feel like crying... wish it was all over...

and my 2 Girls:Madison 6/17/02 & Ava 11/9/03FreeCycle

[Guest guest]

She was casted at 3 months 1 week and is now 4 months 1 week...Yeah it took a week for insurance approval. and 3 for them to ship it and recieve it back. I think we're getting the STARBand.. the only reason i know that is form others who have gone to Lawall. But they didn't even tell me that. They told me they had to ship the cast to Florida. So i will definately get pics up when she recieves it. We never got measurements for the assymetry, like the mm everyone knows. No idea what ours are.. And i know her face is growing assymetrical, in fact she seems to be getting a bumb on the side of her head opposite the plagio. It's all so fustrating. i can seeit in her eyes and Her ears are very missaligned. We didn't get any pics while we were there.So i really don't know what to expect. I will def. keep everyone posted om her appt on thursday. wish us luck:)

and my 2 Girls:Madison 6/17/02 & Ava 11/9/03FreeCycle

[Guest guest]

i didn't realize it has been 4 weeks since casting. I would

definitely check the fit closely. I would check out pictures in the files of

correctly fitting bands. I would definitely let the ortho know you are

concerned about the time between casting and fitting. Please let us know how

Thursday goes.

Angie and Jenna(STAR grad 1/03)

[Guest guest]

,

I am so sorry about the outage of their not calling you to tell you

that her helmet is in! 4 weeks is indeed a long time to go between

casting and fitting, no wonder you are so upset - I would be, too.

I don't know personally, but I have read other posts where an

extended time between casting and fitting can be a problem,

especially if the baby has had a growth spurt or change in head

shape. You and your daughter deserve a well-fitted product that is

going to successfully treat her plagio, so you should feel entitled

to demand a great fit and correctly-sized helmet. Would you please

post to the group and let us know how her Thursday appt. goes? I

will be thinking of you all and hoping that all goes smoothly.

Christie (Mom to Repo'd Remy)

> SPeaking of this... I Just called and it's in, Now why didn't they

call me..

> i wonder how long it's been sitting there, it will be 3 weeks

since insurance

> was approved and 4 weeks since she was casted..She's still so

tiny , and i

> know her head is changing, for the worse i might add, and i hope

the helmet will

> be fitted properly. We have our appt on thursday at 2 and Pt on

thursday for

> her tort at 11. I am so sick over all of this... i just feel like

crying...

> wish it was all over...

>

>

> and my 2 Girls:

> Madison 6/17/02

> &

> Ava 11/9/03

>

> FreeCycle

[Guest guest]

Hi :

Well shoot, that's not the update I was looking for

was only what, 4 mos when she was casted then? And is 5 mos

now? As Christie said, 4 wks to go between casting & fitting is too

long, especially when we're talking about a rapidly growing 4-5 mos

old baby's head. Yikes.

I had my own personal problem with that long of a gap between my

Abby's STARband casting & fitting. She was 7 mos old when casted,

waited 4 wks to be fitted and from the get go, her STARband never

fit properly.

I am not trying to freak you out, but please, be careful when the

band comes in. Keep a watchful eye for any red spots, etc.etc.. It

would be great if you could post a picture of her wearing it after

you receive it Thursday. Could you do that for us?

If you are at all uncomfortable w/the band's fit, don't hesitate to

demand a new casting & a new band at no cost to you or your ins.

company.

I'm sorry, how frustrating for you. Keep us posted.

Debbie Abby's mom

MI

> > SPeaking of this... I Just called and it's in, Now why didn't

they

> call me..

> > i wonder how long it's been sitting there, it will be 3 weeks

> since insurance

> > was approved and 4 weeks since she was casted..She's still so

> tiny , and i

> > know her head is changing, for the worse i might add, and i hope

> the helmet will

> > be fitted properly. We have our appt on thursday at 2 and Pt on

> thursday for

> > her tort at 11. I am so sick over all of this... i just feel

like

> crying...

> > wish it was all over...

> >

> >

> > and my 2 Girls:

> > Madison 6/17/02

> > &

> > Ava 11/9/03

> >

> > FreeCycle

[Guest guest]

Hi ,

Who is your ortho at the Lawall group? I don't have any experience with them, but heard from this group that Bud Lawall is supposed to be really good.

and (DOCgrad 13-Feb-04/10-14mos./PA)wishes0602@... wrote:

She was casted at 3 months 1 week and is now 4 months 1 week...Yeah it took a week for insurance approval. and 3 for them to ship it and recieve it back. I think we're getting the STARBand.. the only reason i know that is form others who have gone to Lawall. But they didn't even tell me that. They told me they had to ship the cast to Florida. So i will definately get pics up when she recieves it. We never got measurements for the assymetry, like the mm everyone knows. No idea what ours are.. And i know her face is growing assymetrical, in fact she seems to be getting a bumb on the side of her head opposite the plagio. It's all so fustrating. i can seeit in her eyes and Her ears are very missaligned. We didn't get any pics while we were there.So i really don't know what to expect. I will def. keep everyone posted om her appt on thursday. wish us luck:)

and my 2 Girls:Madison 6/17/02 & Ava 11/9/03FreeCycleFor more plagio info

[Guest guest]

Speaking of : Did receive her band Thursday? Hope so

& I hope it fits well and she's adjusting nicely!

Debbie

> She was casted at 3 months 1 week and is now 4 months 1

week...Yeah it took a week for insurance approval. and 3 for them to

ship it and recieve it back. I think we're getting the STARBand.. the

only reason i know that is form others who have gone to Lawall. But

they didn't even tell me that. They told me they had to ship the cast

to Florida. So i will definately get pics up when she recieves it.

We never got measurements for the assymetry, like the mm everyone

knows. No idea what ours are.. And i know her face is growing

assymetrical, in fact she seems to be getting a bumb on the side of

her head opposite the plagio. It's all so fustrating. i can seeit in

her eyes and Her ears are very missaligned. We didn't get any pics

while we were there.So i really don't know what to expect. I will

def. keep everyone posted om her appt on thursday. wish us luck:)

>

>

> and my 2 Girls:

> Madison 6/17/02

> &

> Ava 11/9/03

>

> FreeCycle

>

>

> For more plagio info

[Guest guest]

Yep she did!! she is now a banded baby:) ALthogh the fitting was a PIA. i think we mst have had a new guy. i was there for 2 hours before i cried...lol... it just didnt seem to fit right and then Bash at Lawall came to the rescue. Everything seems to be great! 2 faint red spots but they go away after a while when she has it off. We are slowly working our way to 23 hours. Her little head gets soo hot and sweaty. We have a check up on friday:)

and my 2 Girls:Madison 6/17/02 & Ava 11/9/03FreeCycle

[Guest guest]

I'm not sure who Bud Lawall is, but Bash is the one who finally came to my rescue after i got pretty upset, He's the one who casted her as well.

and my 2 Girls:Madison 6/17/02 & Ava 11/9/03FreeCycle

[Guest guest]

Glad to hear it's going well so far ! Please keep us posted

on her progress. The sweat will decrease over the next several days

after her body temp adjusts to this new thing on top her head.

Debbie

> Yep she did!! she is now a banded baby:) ALthogh the fitting was a

PIA. i

> think we mst have had a new guy. i was there for 2 hours before i

cried...lol...

> it just didnt seem to fit right and then Bash at Lawall

came to the

> rescue. Everything seems to be great! 2 faint red spots but they go

away after a

> while when she has it off. We are slowly working our way to 23

hours. Her

> little head gets soo hot and sweaty. We have a check up on friday:)

>

>

> and my 2 Girls:

> Madison 6/17/02

> &

> Ava 11/9/03

>

> FreeCycle

[Guest guest]

Ehh..... We're doing ok... Haven't made it through the night.... and i personally don't care. she hates this thing ... she is the crankiest when it is on.. Drives me crazy,. But we did decorate it today. Of course i can't get the pics to load. I am pretty much fed up.. but our PT says she sees changes... i see her head is lumpy?? I don't know.....I have no idea what to do anymore... sorry for the minor vent.

and my 2 Girls:Madison 6/17/02 & Ava 11/9/03FreeCycle

[Guest guest]

well lastnight.. we made it through... in fact she slept from 9:30-6:00. With her band on. i only had to get up 2-3 times to put the binky back in. BUT of course i took it off this morning and we now have 2 big red marks on her cheeks, that haven't gone away. we took it off at 11:00 or so and now it's 2:00... it almost looks like a little blister was going to form on each side of her little face.. One step forward 2 steps back... thats how this process is going.. ughh!

and my 2 Girls:Madison 6/17/02 & Ava 11/9/03FreeCycle

[Guest guest]

Aw :

I'm so sorry she's so unhappy in her band It's not too tight or

anything is it?

& their picutres have been a huge pain lately, you can email

the pics to & she can upload em for you if you'd like taime @

optonline.net

Hang in there.

Debbie

> Ehh..... We're doing ok... Haven't made it through the night....

and i

> personally don't care. she hates this thing ... she is the

crankiest when it is

> on.. Drives me crazy,. But we did decorate it today. Of course i

can't get the

> pics to load. I am pretty much fed up.. but our PT says she sees

changes... i

> see her head is lumpy?? I don't know.....I have no idea what to do

anymore...

> sorry for the minor vent.

>

>

> and my 2 Girls:

> Madison 6/17/02

> &

> Ava 11/9/03

>

> FreeCycle

[Guest guest]

I would call the ortho on monday. It sounds like an adjustment needs to be

made. Let us know what you find out.

Angie and Jenna(STAR grad)

[Guest guest]

Hi :

Ugh, always something!!! Is the redness better yet? Definitely call

your orthotist Monday, sounds like the band needs an adjustment.

Hang in there!

Debbie

> well lastnight.. we made it through... in fact she slept from 9:30-

6:00. With

> her band on. i only had to get up 2-3 times to put the binky back

in. BUT of

> course i took it off this morning and we now have 2 big red marks

on her

> cheeks, that haven't gone away. we took it off at 11:00 or so and

now it's 2:00...

> it almost looks like a little blister was going to form on each

side of her

> little face.. One step forward 2 steps back... thats how this

process is going..

> ughh!

>

>

> and my 2 Girls:

> Madison 6/17/02

> &

> Ava 11/9/03

>

> FreeCycle

[Guest guest]

Some correction. But miserable in the helmet, We had an adjustment on friday, and now it seems too small again, already. Right where the spacer goes there's room on either side and her skin kinda bunches up there. I dunno... i'm pretty fed up. She will NOT sleep with this thing on her head. He told me to let her sleep in the car seat, since she will sleep with it on in there, But how uncomfortable for the night. She likes to be streched out. Ackk... !

and my 2 Girls:Madison 6/17/02 & Ava 11/9/03"Can't use it...Don't throw it away!""Someone could probably use it in your area!"Keep unwanted items out of the dump!!ChooseFreecycleNeed help decorating for an event?Festive Creations

[Guest guest]

i wish it was that easy,,,,.. She was up to 20 hours. And it is a better fit.. But we need an adjustment, we're getting red spots in the wrong spots. And her head is hot. it's weird her head feels awefully warm, no fever, but her head is hot.. it's strange. and that is w/o her helmet on. So we have 3 appts on monday, one for the helmet , one for and Madison has an appt too. So we're pretty busy. I haven't seen any hange in her head, it's still retty bad yet. ughh... what a long road.

and my 2 Girls:Madison 6/17/02 & Ava 11/9/03"Can't use it...Don't throw it away!""Someone could probably use it in your area!"Keep unwanted items out of the dump!!ChooseFreecycleNeed help decorating for an event?Festive Creations

[Guest guest]

Thank you!! Happy Birthday to Robin too!! YAY!

and my 2 Girls:Madison 6/17/02 & Ava 11/9/03"Can't use it...Don't throw it away!""Someone could probably use it in your area!"Keep unwanted items out of the dump!!ChooseFreecycleNeed help decorating for an event?Festive Creations

[Guest guest]

Well shoot . I bet you're ready to scream at this point.

It's been a long time now and still no correction?? At 's young

age, she should be showing correction by now.

What does your orthotist say?

Sorry, hang in there.

Debbie

> i wish it was that easy,,,,.. She was up to 20 hours. And it is a

better

> fit.. But we need an adjustment, we're getting red spots in the

wrong spots.

> And her head is hot. it's weird her head feels awefully warm, no

fever, but her

> head is hot.. it's strange. and that is w/o her helmet on. So we

have 3

> appts on monday, one for the helmet , one for and Madison

has an appt too.

> So we're pretty busy. I haven't seen any hange in her head, it's

still retty

> bad yet. ughh... what a long road.

>

>

>

>

> and my 2 Girls:

> Madison 6/17/02

> &

> Ava 11/9/03

>

> " Can't use it...Don't throw it away! "

> " Someone could probably use it in your area! "

> Keep unwanted items out of the dump!!

> Choose

> _Freecycle_ (http://freecycle.org/)

>

> Need help decorating for an event?

> _Festive Creations_ (http://www.skellybones.com/suezr/suezr.html)

[Guest guest]

TELL MADISON RENEE THAT ROBIN RENEE IN ILLINOIS SAID HAPPY

BIRTHDAY, WE SHARE THE SAME DAY. (JUST A FEW YEARS DIFF.)

HAVE A GOOD DAY!

ROBIN