Re: my decision sayith the neuro

[Guest guest]

Sheri,

You are doing so well under all this pressure. If Kadie only knew!

All these decisions about her little headshape : )

To band or not to band is always the question. At least on this site.

It seems to me that the majority in the medical field looks down on

orthosis equipment as a whole. I don't know why this is.

Kids really don't seem to mind the klunky things on their heads. If

they did, you wouldnt see too many pictures of smiling babies on this

site. Also, there are fit issues (and a few catrastophies like in

todays post-incorrect helmet)but I truly believe they work more often

then not.

Kadie has a brachy/plagio combo. I feel she could truly benefit

from a band/helmet. It couldn't hurt. You see such amazing results

and it's twice as fast as repoing. If she were my daughter I would go

ahead and have it done. I hope you don't take this post the wrong

way. Not trying to throw a monkey wrench into your decision.

Wether you decide to go with treament or not, however, she still is a

cutie pie. Good luck with your repositioning.

Sincerely,

Crista-Grayslake, IL

Mom to -9 mo old-DOCbanded 5/13 brachy

> Well Got great news from Kadies Neuro appt yesterday. He said she

is

> very mild plagio and it was completely up to me if I still wanted

to

> band her. If I would have guilty feelings of not doing it then I

> should but in his opinion she looks fine adn that if I kept up the

> repoing that she will still see some improvement but personally he

> thought she was fine. She has no asymentry in her features or ears

> so he said I wouldnt have to worry about that being an issue. He

was

> nice and did talk to us but he made a comment that I didnt like.

He

> said something to the affect that Plagio isnt something he really

> considers a bad factor cause it is cosmetic and he deals with other

> neuro problems that are much more serious that he says thank god

> plagio babies can at least use their brains. Flag up there for

> me!!! I do have to say I agree with him on how Kadie looks. I am

> happy with her face and ears. I am happy with her progress so far

> adn I believe she will continue to have more but you know there is

> always that second guessing yourself. " Am I doing the right

> thing.... will I be sorry later I didnt go ahaed and band

> her....will she be mad at me if when she is older that she isnt

> happy with her head shape... so on and so on....... Im looking at

> Kadie everyday and most days she looks great then there are days I

> see her and dont like what I see. My husband thinks she is great

and

> will even get better and so does the rest of my family.. I just

want

> to do what is best for her. For the most part I dont think she

needs

> to be banded, but you all know that this is time sensitive so i

> question my thoughs in thinking i dont have long to change my

mind

> ugggggggggggggggggggg

>

> Sheri mom to Kadie tort/resolved plagio/repoing

[Guest guest]

Sheri ~

There is good improvement from week 1 to week 3! WOW! Good job! I'm

sorry you still have mixed feelings. I don't remember how old Kadie

is but she looks itty bitty enough that repo'ing may just do it! I

will support you either way and cannot really tell you what to do bcz

I think she is on the mild side too. Honestly there are some babies

that I see on this sight where the decision is much harder than

others and Kadie is one of them. Keep us posted! I'm sorry I am not

much help but I am here to listen.

Sue

Colin F. 9.5 mos. STARband 6/29

Buffalo, NY

> Well Got great news from Kadies Neuro appt yesterday. He said she

is

> very mild plagio and it was completely up to me if I still wanted

to

> band her. If I would have guilty feelings of not doing it then I

> should but in his opinion she looks fine adn that if I kept up the

> repoing that she will still see some improvement but personally he

> thought she was fine. She has no asymentry in her features or ears

> so he said I wouldnt have to worry about that being an issue. He

was

> nice and did talk to us but he made a comment that I didnt like.

He

> said something to the affect that Plagio isnt something he really

> considers a bad factor cause it is cosmetic and he deals with other

> neuro problems that are much more serious that he says thank god

> plagio babies can at least use their brains. Flag up there for

> me!!! I do have to say I agree with him on how Kadie looks. I am

> happy with her face and ears. I am happy with her progress so far

> adn I believe she will continue to have more but you know there is

> always that second guessing yourself. " Am I doing the right

> thing.... will I be sorry later I didnt go ahaed and band

> her....will she be mad at me if when she is older that she isnt

> happy with her head shape... so on and so on....... Im looking at

> Kadie everyday and most days she looks great then there are days I

> see her and dont like what I see. My husband thinks she is great

and

> will even get better and so does the rest of my family.. I just

want

> to do what is best for her. For the most part I dont think she

needs

> to be banded, but you all know that this is time sensitive so i

> question my thoughs in thinking i dont have long to change my

mind

> ugggggggggggggggggggg

>

> Sheri mom to Kadie tort/resolved plagio/repoing

[Guest guest]

Hi Sheri:

Ahhhhhh, we can all relate to your confusion and stress!!! Bottom

line is do what YOU feel most comfortable doing. It does sound to me

like you're happy with her current headshape. As I'm sure others will

tell you, ask yourself " Will I be ok with her head 10 yrs from now

if IF it did NOT improve more on it's own over time? " If so, then so

be it and don't band. If not, then perhaps pursue banding her.

Ultimately, this is always the parents final decision and most

neuros/drs will not tell you what to do one way or the other, they

leave it up to us. I too wish someone would've just said " YES BAND

THAT KID! " lol just to take some of the pressure off me!

Let us know whatever you decide to do. Think long & hard about it,

weighing all the pros & cons.

Debbie

> Well Got great news from Kadies Neuro appt yesterday. He said she

is

> very mild plagio and it was completely up to me if I still wanted

to

> band her. If I would have guilty feelings of not doing it then I

> should but in his opinion she looks fine adn that if I kept up the

> repoing that she will still see some improvement but personally he

> thought she was fine. She has no asymentry in her features or ears

> so he said I wouldnt have to worry about that being an issue. He

was

> nice and did talk to us but he made a comment that I didnt like.

He

> said something to the affect that Plagio isnt something he really

> considers a bad factor cause it is cosmetic and he deals with other

> neuro problems that are much more serious that he says thank god

> plagio babies can at least use their brains. Flag up there for

> me!!! I do have to say I agree with him on how Kadie looks. I am

> happy with her face and ears. I am happy with her progress so far

> adn I believe she will continue to have more but you know there is

> always that second guessing yourself. " Am I doing the right

> thing.... will I be sorry later I didnt go ahaed and band

> her....will she be mad at me if when she is older that she isnt

> happy with her head shape... so on and so on....... Im looking at

> Kadie everyday and most days she looks great then there are days I

> see her and dont like what I see. My husband thinks she is great

and

> will even get better and so does the rest of my family.. I just

want

> to do what is best for her. For the most part I dont think she

needs

> to be banded, but you all know that this is time sensitive so i

> question my thoughs in thinking i dont have long to change my

mind

> ugggggggggggggggggggg

>

> Sheri mom to Kadie tort/resolved plagio/repoing

[Guest guest]

Hi Sheri,

I second Debbie!

Keep us posted.

-- In Plagiocephaly , " Debbie " <dj2kirby@s...> wrote:

> Hi Sheri:

> Ahhhhhh, we can all relate to your confusion and stress!!! Bottom

> line is do what YOU feel most comfortable doing. It does sound to

me

> like you're happy with her current headshape. As I'm sure others

will

> tell you, ask yourself " Will I be ok with her head 10 yrs from now

> if IF it did NOT improve more on it's own over time? " If so, then

so

> be it and don't band. If not, then perhaps pursue banding her.

> Ultimately, this is always the parents final decision and most

> neuros/drs will not tell you what to do one way or the other, they

> leave it up to us. I too wish someone would've just said " YES BAND

> THAT KID! " lol just to take some of the pressure off me!

> Let us know whatever you decide to do. Think long & hard about it,

> weighing all the pros & cons.

> Debbie

>

>

> > Well Got great news from Kadies Neuro appt yesterday. He said she

> is

> > very mild plagio and it was completely up to me if I still wanted

> to

> > band her. If I would have guilty feelings of not doing it then I

> > should but in his opinion she looks fine adn that if I kept up

the

> > repoing that she will still see some improvement but personally

he

> > thought she was fine. She has no asymentry in her features or

ears

> > so he said I wouldnt have to worry about that being an issue. He

> was

> > nice and did talk to us but he made a comment that I didnt like.

> He

> > said something to the affect that Plagio isnt something he really

> > considers a bad factor cause it is cosmetic and he deals with

other

> > neuro problems that are much more serious that he says thank god

> > plagio babies can at least use their brains. Flag up there for

> > me!!! I do have to say I agree with him on how Kadie looks. I am

> > happy with her face and ears. I am happy with her progress so

far

> > adn I believe she will continue to have more but you know there

is

> > always that second guessing yourself. " Am I doing the right

> > thing.... will I be sorry later I didnt go ahaed and band

> > her....will she be mad at me if when she is older that she isnt

> > happy with her head shape... so on and so on....... Im looking at

> > Kadie everyday and most days she looks great then there are days

I

> > see her and dont like what I see. My husband thinks she is great

> and

> > will even get better and so does the rest of my family.. I just

> want

> > to do what is best for her. For the most part I dont think she

> needs

> > to be banded, but you all know that this is time sensitive so i

> > question my thoughs in thinking i dont have long to change my

> mind

> > ugggggggggggggggggggg

> >

> > Sheri mom to Kadie tort/resolved plagio/repoing