Re: Tavin's bulging head!!! & strangers comments

[Guest guest]

Janet,

I was wondering about the flyer in your purse. Did you write it up

yourself, or did you pick it up somewhere, (Fat Chance, I'm sure.) I

wanted to make one for my diaper bag. Can you give me any hints?

Anyne else have any ideas?

Melany, Kody's Mommy 17 months to be DOCbanded 6/2

Dallas/ FW

--- In Plagiocephaly , " Janet " <syllicat@b...>

wrote:

> Well, we went back to Hanger today to have the orthotist look at

Tavin's

> head. He agreed that the helmet needed an adjustment and that the

skull

> bulging isn't what you want to see. We go back in two weeks for a

> follow-up. He thinks Tavin will actually be out of the helmet

soon. His

> head looks pretty good as for the rounding. Never imagined that I

would get

> rid of the flat spot and end up with two extra bulges around the

ears

> though! I am glad I spoke up about it. Everyone thought I was a

bit weird

> asking if their heads had these bumps. It just didn't seem right

to me.

>

> As for strangers..... most just look/stare at Tavin. I try to

engage

> people into conversation when I can and try to inform them about

plagio. I

> also have handouts in my purse to give folks. Most people are

relieved to

> hear that he is ok and not a head banger!! But it is funny how

some people

> just come out and ask and while the majority just stare. My motto

is if you

> can enlighten one person per outing, that is a good thing.

>

> I will be back this week, I hope, to inform you all about the lovely

> insurance stuff.... I promise

>

>

> Janet

> mom to Tavin (9 mo in Hanger helmet x 2 months)

> Louisville, KY

[Guest guest]

Janet,

I am glad your ortho agreed Tavin's helmet was in need of an

adjustment! Does he think that the helmet fit caused the bulging at

the ears? I hope the new fit can hold onto these bulges and flatten

them out before Tavin graduates! Some babies start off with bulges

over the ear(s) before treatment, and they are flattened out during

the course of treatment. I was happy to hear that he is doing well

as far as rounding, and that graduation is not too far off, though!

Have you ever run into another banded baby over where you are

located? I look and look here in central Kentucky, and I've never

seen one in person; I would love to talk with another plagio mom in

person!

Take care,

Christie (Mom to Repo'd Remy)

> Well, we went back to Hanger today to have the orthotist look at

Tavin's

> head. He agreed that the helmet needed an adjustment and that the

skull

> bulging isn't what you want to see. We go back in two weeks for a

> follow-up. He thinks Tavin will actually be out of the helmet

soon. His

> head looks pretty good as for the rounding. Never imagined that I

would get

> rid of the flat spot and end up with two extra bulges around the

ears

> though! I am glad I spoke up about it. Everyone thought I was a

bit weird

> asking if their heads had these bumps. It just didn't seem right

to me.

>

> As for strangers..... most just look/stare at Tavin. I try to

engage

> people into conversation when I can and try to inform them about

plagio. I

> also have handouts in my purse to give folks. Most people are

relieved to

> hear that he is ok and not a head banger!! But it is funny how

some people

> just come out and ask and while the majority just stare. My motto

is if you

> can enlighten one person per outing, that is a good thing.

>

> I will be back this week, I hope, to inform you all about the

lovely

> insurance stuff.... I promise

>

>

> Janet

> mom to Tavin (9 mo in Hanger helmet x 2 months)

> Louisville, KY

[Guest guest]

So did the ortho say that the bulges would go away?

natasha

--- In Plagiocephaly , " Janet " <syllicat@b...>

wrote:

> Well, we went back to Hanger today to have the orthotist look at

Tavin's

> head. He agreed that the helmet needed an adjustment and that the

skull

> bulging isn't what you want to see. We go back in two weeks for a

> follow-up. He thinks Tavin will actually be out of the helmet

soon. His

> head looks pretty good as for the rounding. Never imagined that I

would get

> rid of the flat spot and end up with two extra bulges around the

ears

> though! I am glad I spoke up about it. Everyone thought I was a

bit weird

> asking if their heads had these bumps. It just didn't seem right

to me.

>

> As for strangers..... most just look/stare at Tavin. I try to

engage

> people into conversation when I can and try to inform them about

plagio. I

> also have handouts in my purse to give folks. Most people are

relieved to

> hear that he is ok and not a head banger!! But it is funny how

some people

> just come out and ask and while the majority just stare. My motto

is if you

> can enlighten one person per outing, that is a good thing.

>

> I will be back this week, I hope, to inform you all about the lovely

> insurance stuff.... I promise

>

>

> Janet

> mom to Tavin (9 mo in Hanger helmet x 2 months)

> Louisville, KY

[Guest guest]

Janet and Christie -

Just wanted to chime in that we live in Cincinnati and I have never seen another banded baby. We are going up to Cleveland this weekend to get Jakes DOC band. They have hanger here but with his age I thought we better go with DOC. I am worried about the reactions we'll get but I'll try to use it as an education to others!

mom to Jake (17 mos) soon to get his DOC band.redlocks2003 <redlocks@...> wrote:

Janet,I am glad your ortho agreed Tavin's helmet was in need of an adjustment! Does he think that the helmet fit caused the bulging at the ears? I hope the new fit can hold onto these bulges and flatten them out before Tavin graduates! Some babies start off with bulges over the ear(s) before treatment, and they are flattened out during the course of treatment. I was happy to hear that he is doing well as far as rounding, and that graduation is not too far off, though!Have you ever run into another banded baby over where you are located? I look and look here in central Kentucky, and I've never seen one in person; I would love to talk with another plagio mom in person!Take care,Christie (Mom to Repo'd Remy)> Well, we went back to Hanger today to have the orthotist look at Tavin's> head. He agreed that the helmet needed an adjustment and that the skull> bulging isn't what you want to see. We go back in two weeks for a> follow-up. He thinks Tavin will actually be out of the helmet soon. His> head looks pretty good as for the rounding. Never imagined that I would get> rid of the flat spot and end up with two extra bulges around the ears> though! I am glad I spoke up about it. Everyone thought I was a bit weird> asking if their heads had these bumps. It just didn't seem right to me.> > As for strangers..... most just look/stare at Tavin. I try to engage> people into conversation when I can and try to inform them about plagio. I> also have handouts in my purse to give

folks. Most people are relieved to> hear that he is ok and not a head banger!! But it is funny how some people> just come out and ask and while the majority just stare. My motto is if you> can enlighten one person per outing, that is a good thing.> > I will be back this week, I hope, to inform you all about the lovely> insurance stuff.... I promise> > > Janet> mom to Tavin (9 mo in Hanger helmet x 2 months)> Louisville, KYFor more plagio info

[Guest guest]

Hi Theresa, my daughter and her son Chase will be in Cleveland Saturday sometime in the early afternoon getting his band checked. Maybe you will be there at the same time! You'll recognize Chase because his name is on the front of his band. , (my daughter) is not shy at all so maybe you two can compare notes. Good Luck to you!

Billie

Re: Re: Tavin's bulging head!!! & strangers comments

Janet and Christie -

Just wanted to chime in that we live in Cincinnati and I have never seen another banded baby. We are going up to Cleveland this weekend to get Jakes DOC band. They have hanger here but with his age I thought we better go with DOC. I am worried about the reactions we'll get but I'll try to use it as an education to others!

mom to Jake (17 mos) soon to get his DOC band.redlocks2003 <redlocks@...> wrote:

Janet,I am glad your ortho agreed Tavin's helmet was in need of an adjustment! Does he think that the helmet fit caused the bulging at the ears? I hope the new fit can hold onto these bulges and flatten them out before Tavin graduates! Some babies start off with bulges over the ear(s) before treatment, and they are flattened out during the course of treatment. I was happy to hear that he is doing well as far as rounding, and that graduation is not too far off, though!Have you ever run into another banded baby over where you are located? I look and look here in central Kentucky, and I've never seen one in person; I would love to talk with another plagio mom in person!Take care,Christie (Mom to Repo'd Remy)> Well, we went back to Hanger today to have the orthotist look at Tavin's> head. He agreed that the helmet needed an adjustment and that the skull> bulging isn't what you want to see. We go back in two weeks for a> follow-up. He thinks Tavin will actually be out of the helmet soon. His> head looks pretty good as for the rounding. Never imagined that I would get> rid of the flat spot and end up with two extra bulges around the ears> though! I am glad I spoke up about it. Everyone thought I was a bit weird> asking if their heads had these bumps. It just didn't seem right to me.> > As for strangers..... most just look/stare at Tavin. I try to engage> people into conversation when I can and try to inform them about plagio. I> also have handouts in my purse to give folks. Most people are relieved to> hear that he is ok and not a head banger!! But it is funny how some people> just come out and ask and while the majority just stare. My motto is if you> can enlighten one person per outing, that is a good thing.> > I will be back this week, I hope, to inform you all about the lovely> insurance stuff.... I promise> > > Janet> mom to Tavin (9 mo in Hanger helmet x 2 months)> Louisville, KYFor more plagio info