A lil' advice from the veterans & others pls - the egg child

[Guest guest]

All veterans & others who've been there -

My dd is 4, we began SCD 100% 3 weeks ago today. Progress has been un~flipping

believable!!!!! I must tell you that I recently (Dec 03) had to withdraw her

from public school due to lack of FAPE. She had gotten so awful - behaviors,

language went from 4 wd phrases to 1 wrd and only to get her needs met, stimms

came back, therapy sucked - we couldn't get anything out of her no matter how

fun we made it, her regression was everything that I saw in Dec. 02. I didn't

think I'd ever get her back. We worked continuosly on everything, I researched

SCD to great lengths and decided it was worth a shot.

I followed all the rules, did the intro first and everything. I found out 1 week

into the diet that her supplements were illegal and pulled those. We had some

die-off, nothing near what we had when we went GF/CF (awful behaviors for

weeks), but lots of progress just the same. For the first time in her life she

had formed stools. By week 2 she was back at the table and doing her therapy,

happily I might add, her language was coming back 2 wd phrases. By week 3, she

drew her very first stickman on Wed. (he had no feet,hands and was missing the

left arm - but hey, we're cooking with gas now!!!)She is calling for me, I hear

her down the hall saying " mommy " , if she wakes before I do, she'll come into my

room and pat me and say " wake up, mommy " , she has changed DRAMATICALLY over the

last few weeks, she is happy, her belly has decreased in size, it seems the fog

is lifting, her personality is coming out, she understands things you say to

her, she can follow 2 step commands, the difference in her auditory processing

is significant - needs lots more work, but you can tell things are changing. I

could go on, but my list would get quite extensive and to be honest I can't

remember everything w/o pulling out my journal !!!!!!

For those who remember my bestest girlfriend, she's the one who doesn't eat

sweets, and is the egg baby - she has eaten only scrambled eggs for 3 weeks now,

with only Welch's white grape juice diluted with filtered water. At the

beginning of week we introduced legal probiotics, and Friday we introduced legal

Houston's enzymes. All her other supplements I've put on hold for a while, and

I'll introduce them gradually each week - checking for tolerance levels.

My question is this, as far as her diet goes, we're still on the intro.

Yesterday she asked for crackers - this meant graham crackers to her - are there

recipes for these or a substitute anyone knows of bc I can't find one. The

other question is, bc she's asking for these things, they require nut flour and

the stages say no nut flour for a while. I'll say we're still in the stages of

" circus poop " (meaning, it's different shapes, colors, and sizes, textures and

all that neat stuff - changing her diaper is like Forest Gump's box of chocolate

expression - " you never know what you're gonna get " . They are much better than

they were before SCD and she goes usually once every other day. With that being

said, must I conform to the stages, should I be forcing her to eat things (she's

a bit stubborn - I know her Momma and she's just like her (poor kid)) or should

I just sit back and let her tummy be our guide. I make chicken pancakes,

applesauce, pearsauce, yogurt, gleatin, squash chips, squash fries, banana

pancakes, apple pancakes and all the other things she can have, but she won't

touch them and screams " all done finished " when I show her the plate.

I'm not ditching the diet - way to many positives to let a few negatives

overwhelm me - I'd just like a little " hand-holding " and " comfort " and advice on

a possible next step, if there is one.

I appreciate your support and will take any feedback you'd like to offer...

Karyn, Mom to 4.1, dx autism, GF/CF, SCD 3 weeks