Re: LillSis: Glucophage for mito.

[Guest guest]

Noreen,

How is your Mom supposed to SEE cellular damage that the Glucophage may

do? Sorry, but sometimes I get frustrated with doctors not even using

common sense at times.

Any response from ask the mito doc yet?

LilSis

> " P. NOREEN TEMRES " wrote:

>

>

> LilSis: tHE VISIT COVERED SO MUCH, AND i CAN'T REMEMBER WHETHER THE

> DOCTOR SAID " WE " OR " THEY " WERE FINDING SOME RESULTS ON AN

> EXPERIMENTAL BASIS, BUT IT WAS A " GENERIC " REPLY, NOT MENTIONING A

> SPECIFIC GROUP OR STUDY, AND i WAS TRYING TO ABSORB AS MUCH AS

> POSSIBLE OF WHAT HE WAS SAYING, SO i DROPPED THE BALL, THERE! hE

> BELONGS TO A GROUP OF THREE ENDOCRINOLOGISTS, SO IT IS POSSIBLE HE WAS

> REFERRING JUST TO HIS GROUP. i AM GOING TO POST THE SAME QUESTION ON

> " aSK tHE mITO dOC " : tHEY MIGHT NOT HAVE TIME TO ANSWER, BUT IT WILL

> BE WORTH A TRY, AND i WILL LET YOU KNOW ANYTHING i FIND OUT, FROM ANY

> SOURCE. iN THE MEANTIME, HE DID SAY FOR MOM TO TRY ONE GLUCOPHAGE,

> AND IF SHE DIDN'T SUFFER ANY SIDE EFFECTS, TRY ANOTHER ONE IN A COUPLE

> OF DAYS FOR AWHILE, AND THEN SHE SEES HIM BACK IN A MONTH; AS THINGS

> STAND, THOUGH, i AM HESITANT FOR HER TO START THE GLUCOPHAGE AT ALL,

> UNTIL i HAVE MORE INFORMATION. i WILL KEEP YOU POSTED ON ANYTHING i

> FIND . . .

>

> tHANK YOU SO MUCH!

>

> nOREEN FOR lEAH

>

>

>

>

> Re: Glucophage.

>

> > Can you find out " WHO " is experimenting with glucophage with mito

> > patients? Is this an actual drug trial and who is doing it? I sure

> > wouldn't chance it with the lactic acid implications involved

> myself.

> >

> > LilSis

> >

> > > " P. NOREEN TEMRES " wrote:

> > >

> > > Maybe Glugophage has already been discussed here before, and I

> missed

> > > it, but I need to know a little more about it. My mom saw a new

> > > endocrinologist for her second visit yesterday, and he wrote her a

> > > prescription for Glucophage, saying that although it is a drug

> used

> > > for treating diabetes, they are experimenting with its use in

> mito, as

> > > it has been shown to be helpful in some people for helping the

> > > mitochondria use energy more efficiently. Have any of you been

> tried

> > > on Glucophage? I am a little worried, as mom is 78 years old and

> > > pretty fragile, and I doubt that any of these drugs are tested on

> > > 78-year-old women before being put on the market! If anyone has

> had

> > > any experience with Glucophage, I would really appreciate knowing

> if

> > > this is a safe drug for mito. I do believe this is a good doctor,

> but

> > > this is only our second visit, and I am worried about mom starting

> on

> > > this medication before hearing what some of your experiences with

> it

> > > might have been . . . so I would really appreciate anything you

> know!

> > >

> > >

> > > Noreen for Leah (Mom with Mito)

> > >

> > >

[Guest guest]

Re: LillSis: Glucophage for mito.

> Noreen,> > How is your Mom supposed to SEE cellular damage that the Glucophage may> do? Sorry, but sometimes I get frustrated with doctors not even using> common sense at times.> > Any response from ask the mito doc yet?> > LilSis> > > >

LilSis: I honestly don't know how any cellular damage would be assessed other than by followup laboratory tests while on the Glucophage. The doctor told mom to start the Glucophage very slowly, and advance only if she didn't suffer any side effects, and she is to see him in one month, so he is proceeding cautiously. I still feel uneasy, and although I had a little trouble posting my question to Ask the Mito Doc because of a Microsoft update we got that was blocking my UMDF login without my knowing it, I got the question posted early this morning, and I will sure let you know as soon as I get any response at all.

In trying to work out the login problem, Kara and Melinda at UMDF, and Terri, the webmaster, were just amazing: What a great group of people UMDF has been gifted with!

Thanks for your concern, LilSis, and I will certainly let you know what response I get to my question to the Mito Doc.

Noreen for Leah (Sweet Little Mom with Mito)

[Guest guest]

LisSis,

Can you send me the email address where you can send mitodoc questions??

thanks.

Eileen

[Guest guest]

thNKS

[Guest guest]

thanks Lil Sis,

i am a member i just couldn't remember where i was see that........

Eileen

[Guest guest]

First of all you need to be a UMDF member, are you? If so, go to

http://www.umdf.org/ then click on Mitochondrial Disease in the upper

right hand corner of the main page, then scroll down to " Ask the Mito

Doc " .

LilSis

Gme240@... wrote:

>

> LisSis,

>

> Can you send me the email address where you can send mitodoc questions??

> thanks.

>

> Eileen

>

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

>

[Guest guest]

Noreen,

I'm sorry I wasn't very clear. Most of the meds that shouldn't be taken

by mito patients is because those meds cause further damage to the

mitochondria, and THAT can't been seen in any blood test that I know

of. That is why I say that your Mom can't " see " those kind of side

effects and those are the dangerous ones in my book for mito patients.

I hope I haven't confused you further.

(LilSis)

> " P. NOREEN TEMRES " wrote:

>

>

> Re: LillSis: Glucophage for mito.

>

> > Noreen,

> >

> > How is your Mom supposed to SEE cellular damage that the Glucophage

> may

> > do? Sorry, but sometimes I get frustrated with doctors not even

> using

> > common sense at times.

> >

> > Any response from ask the mito doc yet?

> >

> > LilSis

> > > >

> >

> LilSis: I honestly don't know how any cellular damage would be

> assessed other than by followup laboratory tests while on the

> Glucophage. The doctor told mom to start the Glucophage very slowly,

> and advance only if she didn't suffer any side effects, and she is to

> see him in one month, so he is proceeding cautiously. I still feel

> uneasy, and although I had a little trouble posting my question to Ask

> the Mito Doc because of a Microsoft update we got that was blocking my

> UMDF login without my knowing it, I got the question posted early this

> morning, and I will sure let you know as soon as I get any response at

> all.

>

> In trying to work out the login problem, Kara and Melinda at UMDF, and

> Terri, the webmaster, were just amazing: What a great group of people

> UMDF has been gifted with!

>

> Thanks for your concern, LilSis, and I will certainly let you know

> what response I get to my question to the Mito Doc.

>

> Noreen for Leah (Sweet Little Mom with Mito)

>

>

[Guest guest]

Happy I could help.

(LilSis)

Gme240@... wrote:

>

> thanks Lil Sis,

>

> i am a member i just couldn't remember where i was see that........

>

> Eileen

>

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

>