Re: Cranio Cap & How Long /To Ann And Kim & anyone else wanting to read

[Guest guest]

Ann,

I was told by Dr. Wood that he would see Jaden at the end of his 4

months of wearing the cap. I'm figuring at that time, he will have

either grew out of it like Jax or Dr. Wood will assess his situation

at that time.

I questioned our OT today about the alignment of Jaden's ears. He

has shearing on his right ear, and his right ear sits closer to his

face than does his left. The OT said that this will not improve

thru the CranioCap, while I could have sworn Dr. Wood told us it

would. When I asked Steve, the OT, about using an active band

instead of this passive one, he didn't know the terms I used and

asked me " what's that? " . I was shocked. The questions I had for

him on how the cap is fitting Jaden went unanswered for the most

part, and he strongly encouraged me to speak w/ Dr. Wood about how

the cap should perform, and the results we should be getting from

it. I made Steve get out the tape measure, because I wanted to know

if there had been some rounding (which I knew there was because I

take pics of his little noggin every week), and I wanted numbers.

Sure enough, his numbers increased, and Steve even said he could

definately see the rounding out start. I thought that these bands

can also correct symmetry if ears are crooked? I'll have to go look

in the past posts, because I remember reading a recent post

somewhere about ears not being aligned. Who posted that? Can

anyone give me info on that again? I'd appreciate it. Thing is, if

this CranioCap is not meant to help realign the face, ears, cheeks,

etc.... then what good is it? You'd think if the plates in the head

realign in a nice shape, the rest of the head will realign correctly

also. Am I wrong on this?

I'll be putting in a call to Dr. Wood to get answers. I do not want

to have to go to CT for a DocBand. It's too far away. It's been 3

weeks now and I told Steve that Jaden should have settled in his Cap

by now. He said " I'll be the judge of that " and shaved off a few

more things to make a better fit, then told us not to use any lotion

like the Aquaphor they reccommend because it's making it slide

around on Jaden's head. In the beginning he TOLD us to use a lotion

to help prevent skin breakdown, and w/ Jaden's eczema, I just don't

want it to flare up, so I used it as a good preventative measure.

Now he is telling us that another mother was in there today and said

she was using Gold Bond Medicated Powder, said it helped decrease

the sweat, but didn't let the band slide around. Ok, fine. I will

try that then. But if his eczema flares up I'm gonna be ticked.

Kim, I am very proud of the work you have done so far to get this

awareness out to the health care facilities. I will be putting in a

call to you at home to talk more about this and what I should be

doing here on my end of town. Nice thing is that you and I both

have the SMCD system here and there. I will take care of the

Virginia hsptl up here and the one in Hibbing also, along w/ other

area facilities and clinics.

Ann was sick today so no PT for Jaden. We stopped by the camera

place and I picked up a bunch more stickers for Jaden. Am

decorating it tonite. He's sleeping w/ it off right now because

Steve told me to wash it out w/ a mild detergent to get any oils out

of there from the lotions I have been using on his head. So it's

drying out right now. I am starting to question this man, because I

feel that he is knowledgeable in some aspects, yet is hiding behind

his little " Go team GO! attitude to provide a positive atmosphere

for us. He could not answer WHY Jaden's soft spot was bulging and

throbbing when his cap comes off, and said he's never seen this

before. Another reason I will be contacting Dr. Wood. I need

answers about how it IS and is NOT supposed to perform. And if

Jaden's ears will realign.

> Hi Ann,

> Jaxson (my son) was in the helmet 12 weeks and 5 days.. his head

> still was not " normal " though. He grew out of his CraniCap. The

> results vary widely, especially if you're starting out with severe

> plagio (such was my son).

> If you are not comfortable with the shape of Hope's head still,

> definately speak up about it. Do you see Dr Wood? If so, talk to

him.

> I know he's vague, quick, etc.. but voice your concern. I wish I

had

> been even more vocal as I am still hoping for roundess and for his

> ears to allign...

> Good luck and keep going until you are satisfied!

>

> Kim

> mom to Kaela (9) and Jaxson 10 mo

>

> --- In Plagiocephaly , " Ann " <myhushpuppy@y...>

wrote:

> > Hello again,

> >

> > I have been a little MIA lately, sorry. Been super busy with the

> > kids-imagine that...LOL.

> >

> > Have a question though for those of you who have Cranio Caps.

Hope

> > has been in her Cranio Cap for almost 6 wks now and we just had

a

> > helmet ck last wk and the Ortho said she might be done by the

end

> of

> > this month. She was very flat on the one side and " is " popping

out

> > in the back but I personaly feel she is still flat on the side.

I

> > was surpriced when he said she might be out of helmet in a few

wks.

> > He pulled out her mold and she has changed alot but I still feel

> she

> > is flat on the side and her forhead is still crocked.

> >

> > How long can she stay in the helmet? Will staying in it longer

> truly

> > help? Or is there only so much the helmet can do? Plus what

about

> > the ear shearing? I thought this would get better when head

rounded

> > out but it is not?

> >

> > Thanx

> >

> > Ann

> >

> > Hope-6/29/03

[Guest guest]

Correction: Steve the OT told me the GOld Bond Medicated Powder was

used to help mainly w/ the sweat but for the itching also.

And that last post was by me, sorry I forgot to sign it.

~Amy, mommy to Jaden MN, plagio/mild tort, started CranioCap 4/23/04

> > > Hello again,

> > >

> > > I have been a little MIA lately, sorry. Been super busy with

the

> > > kids-imagine that...LOL.

> > >

> > > Have a question though for those of you who have Cranio Caps.

> Hope

> > > has been in her Cranio Cap for almost 6 wks now and we just

had

> a

> > > helmet ck last wk and the Ortho said she might be done by the

> end

> > of

> > > this month. She was very flat on the one side and " is " popping

> out

> > > in the back but I personaly feel she is still flat on the

side.

> I

> > > was surpriced when he said she might be out of helmet in a few

> wks.

> > > He pulled out her mold and she has changed alot but I still

feel

> > she

> > > is flat on the side and her forhead is still crocked.

> > >

> > > How long can she stay in the helmet? Will staying in it longer

> > truly

> > > help? Or is there only so much the helmet can do? Plus what

> about

> > > the ear shearing? I thought this would get better when head

> rounded

> > > out but it is not?

> > >

> > > Thanx

> > >

> > > Ann

> > >

> > > Hope-6/29/03