Re: New here-question about age/treatment

[Guest guest]

Hi & welcome to our group!!

Wow, it's great to hear of a ped dx'ing plagio & tort at a younger

age and better to hear you already have an appt w/your neuro this

Fri! Many of us wait a month or more for a neuro appt.

The younger you begin a band, the better & faster the correction

will be. Babies heads grow the fastest & most under 6 mos of age.

And with your son having tort. repositioning would be next to

impossible.

Where abouts do you live? Maybe we have someone else in your area

being such a huge group.

For tort help, (many members will chime in as well) you can get help

at www.torticollis.org

Keep us posted

Debbie Abby's mom

MI

> Hi, I'm new here. My 3 month old son was just diagnosed (both with

> Torticollis and Plagio) and we have an appointment on Friday with

the

> neuro. Do they usually start the band/helmet right away or do they

> wait until they are a certain age? I have heard conflicting things

> from nurses, the PT, etc. I'm just wondering if it's better to

just

> start them ASAP? Also, any ideas for making the PT excercises

easier?

> He screams and struggles the entire time-it makes it so hard to

do!

> Thanks in advance for any help you may have!

>

[Guest guest]

Welcome .

Your son is a little younger than ours who started at 10 months but

when we started the exercises he would also scream and fight. He was

at an age where he loved songs and counting, so we had his older

brother count for him, he would stay very still and smile whenever we

counted to him. Whenever I would do the exercises, I would first

start playing with him, singing " this little piggy " on his toes and

tickling his tummy, etc. just to get him to think we were playing and

then I would have his brother count and I would start the exercises.

But between each exercise or when he started to fight again I would

continue with the playing. He got used to it. He still struggles now

and again but we get through them a lot easier. I still have to sing

to him through them :-)

Good luck, don't give up on the exercises, my son has had a

tremendous improvement on his neck movement.

Mom to Ryel (DocBanded 11/10/03)

Pensacola, Florida

> Hi, I'm new here. My 3 month old son was just diagnosed (both with

> Torticollis and Plagio) and we have an appointment on Friday with

the

> neuro. Do they usually start the band/helmet right away or do they

> wait until they are a certain age? I have heard conflicting things

> from nurses, the PT, etc. I'm just wondering if it's better to just

> start them ASAP? Also, any ideas for making the PT excercises

easier?

> He screams and struggles the entire time-it makes it so hard to

do!

> Thanks in advance for any help you may have!

>

[Guest guest]

Hi ,

Welcome to the group! You are so lucky your ped is so on top of this!

For so many of us here it took us months and months to finally get a

diagnosis.

I hope they have told you how important tummy time is, it really

helps to strengthen the neck muscles. In the beginning most babies do

cry during PT. It does get easier for them as time goes on.

The younger a baby is banded the better and faster the correction.

If you are going to band, please make sure you throughly interview

the potential orthotist. Experience is a MUST, the more the better.

These bands/helmets in the wrong hands can and do more harm than

good. Please let us know how you make out on Friday. Don't be

surpised if your specialist wants you to take a wait and see

approach. Remember this is your baby and YOUR DECISION whether or not

you band him.

> Hi, I'm new here. My 3 month old son was just diagnosed (both with

> Torticollis and Plagio) and we have an appointment on Friday with

the

> neuro. Do they usually start the band/helmet right away or do they

> wait until they are a certain age? I have heard conflicting things

> from nurses, the PT, etc. I'm just wondering if it's better to just

> start them ASAP? Also, any ideas for making the PT excercises

easier?

> He screams and struggles the entire time-it makes it so hard to

do!

> Thanks in advance for any help you may have!

>

[Guest guest]

Hi stacy,

I see you have already had some wonderful replies, and I really

don't have much to add, but I do want to welcome you to the group.

My daughter was banded fairly early at 4.5 mos and saw amazingly

fast correction. How severe do you think his plagio is? Please let

us know how his appt goes on Friday--how great you were able to get

in so quickly! Where are you located? My Hannah didn't have tort,

so unfortunately I don't have any helpful hints.

, mom to Hannah, DOCgrad

Cape Cod, Ma

> Hi, I'm new here. My 3 month old son was just diagnosed (both with

> Torticollis and Plagio) and we have an appointment on Friday with

the

> neuro. Do they usually start the band/helmet right away or do they

> wait until they are a certain age? I have heard conflicting things

> from nurses, the PT, etc. I'm just wondering if it's better to

just

> start them ASAP? Also, any ideas for making the PT excercises

easier?

> He screams and struggles the entire time-it makes it so hard to

do!

> Thanks in advance for any help you may have!

>

[Guest guest]

Hi ,

3 months is usually the minimum, that is great that you are seeking

treatment so early.

I'm sorry to say that PT is usually rough, just remember that you

aren't hurting him, just pissing him off!

Good luck!

Natasha

> Hi, I'm new here. My 3 month old son was just diagnosed (both with

> Torticollis and Plagio) and we have an appointment on Friday with

the

> neuro. Do they usually start the band/helmet right away or do they

> wait until they are a certain age? I have heard conflicting things

> from nurses, the PT, etc. I'm just wondering if it's better to just

> start them ASAP? Also, any ideas for making the PT excercises

easier?

> He screams and struggles the entire time-it makes it so hard to

do!

> Thanks in advance for any help you may have!

>