Support Request to share your experience

[Guest guest]

My name is , my son Ryel is 14 mons adjusted age (he was 2

mons premature). I posted here a while back since Nov last year, the

replies were extremely helpful at a time when we had no idea what to

expect. I beg for your help once again.

Ryel was fitted in Nov 03 and is in his second Doc Band. We have been

denied twice by BCBS of FL and are now going on state appeal. Our

employer has a consulting firm who will be assisting us with this

appeal. The consultant, Steve Manning, would very much like to

contact as many people in this support group as possible to try to

build a case to reverse the denial. He feels that presenting

cases/experiences of the effectiveness of the Doc Band will be very

beneficial. We have been denied because of

experimental/investigational, not medically necessary and cosmetic.

Would anyone be willing to share your experience with Steve via email

so we can present a supported front to BCBS of Florida? If you are

willing to share your experience would you send your email address to

me so I can forward it to him or you can contact him or me directly

at the addresses below:

Marin - amarin35@...

Steve Manning - swmanning2k4@...

I would very much prefer if he could join the group as there is

sooooo much information here that I think he can use but I am not

sure if there is any protocols of who is allowed to join or who to

even ask about letting Steve join.

Your help and support will be greatly appreciated. Thank you in

advance.

Marin

Ryel's Mom (DocBand 11/10/03)

Pensacola, FL

[Guest guest]

Hi na,

Steve is more than welcome to join the group. I really hope he's able

to help you.

--- In Plagiocephaly , " amarinbz " <amarin35@h...>

wrote:

> My name is , my son Ryel is 14 mons adjusted age (he was 2

> mons premature). I posted here a while back since Nov last year,

the

> replies were extremely helpful at a time when we had no idea what

to

> expect. I beg for your help once again.

>

> Ryel was fitted in Nov 03 and is in his second Doc Band. We have

been

> denied twice by BCBS of FL and are now going on state appeal. Our

> employer has a consulting firm who will be assisting us with this

> appeal. The consultant, Steve Manning, would very much like to

> contact as many people in this support group as possible to try to

> build a case to reverse the denial. He feels that presenting

> cases/experiences of the effectiveness of the Doc Band will be very

> beneficial. We have been denied because of

> experimental/investigational, not medically necessary and cosmetic.

>

> Would anyone be willing to share your experience with Steve via

email

> so we can present a supported front to BCBS of Florida? If you are

> willing to share your experience would you send your email address

to

> me so I can forward it to him or you can contact him or me directly

> at the addresses below:

>

> Marin - amarin35@h...

> Steve Manning - swmanning2k4@y...

>

> I would very much prefer if he could join the group as there is

> sooooo much information here that I think he can use but I am not

> sure if there is any protocols of who is allowed to join or who to

> even ask about letting Steve join.

>

> Your help and support will be greatly appreciated. Thank you in

> advance.

>

> Marin

> Ryel's Mom (DocBand 11/10/03)

> Pensacola, FL

[Guest guest]

Thanks, Steve should be joining the group. Thanks also to all other

members who sent me replies that it was okay for Steve to contact

them via email.

This group is so helpful, I can't begin to express my gratitude. I

don't always have time to post (and am a bit shy) but I always am

reading messages.

Thanks again.

Ryel' Mom (DocBanded 11/10/03)

Pensacola, FL

> > My name is , my son Ryel is 14 mons adjusted age (he was 2

> > mons premature). I posted here a while back since Nov last year,

> the

> > replies were extremely helpful at a time when we had no idea what

> to

> > expect. I beg for your help once again.

> >

> > Ryel was fitted in Nov 03 and is in his second Doc Band. We have

> been

> > denied twice by BCBS of FL and are now going on state appeal. Our

> > employer has a consulting firm who will be assisting us with this

> > appeal. The consultant, Steve Manning, would very much like to

> > contact as many people in this support group as possible to try

to

> > build a case to reverse the denial. He feels that presenting

> > cases/experiences of the effectiveness of the Doc Band will be

very

> > beneficial. We have been denied because of

> > experimental/investigational, not medically necessary and

cosmetic.

> >

> > Would anyone be willing to share your experience with Steve via

> email

> > so we can present a supported front to BCBS of Florida? If you

are

> > willing to share your experience would you send your email

address

> to

> > me so I can forward it to him or you can contact him or me

directly

> > at the addresses below:

> >

> > Marin - amarin35@h...

> > Steve Manning - swmanning2k4@y...

> >

> > I would very much prefer if he could join the group as there is

> > sooooo much information here that I think he can use but I am not

> > sure if there is any protocols of who is allowed to join or who

to

> > even ask about letting Steve join.

> >

> > Your help and support will be greatly appreciated. Thank you in

> > advance.

> >

> > Marin

> > Ryel's Mom (DocBand 11/10/03)

> > Pensacola, FL

[Guest guest]

,

Feel free to jump in anytime, we're all here to support each other.

> > > My name is , my son Ryel is 14 mons adjusted age (he was

2

> > > mons premature). I posted here a while back since Nov last

year,

> > the

> > > replies were extremely helpful at a time when we had no idea

what

> > to

> > > expect. I beg for your help once again.

> > >

> > > Ryel was fitted in Nov 03 and is in his second Doc Band. We

have

> > been

> > > denied twice by BCBS of FL and are now going on state appeal.

Our

> > > employer has a consulting firm who will be assisting us with

this

> > > appeal. The consultant, Steve Manning, would very much like to

> > > contact as many people in this support group as possible to try

> to

> > > build a case to reverse the denial. He feels that presenting

> > > cases/experiences of the effectiveness of the Doc Band will be

> very

> > > beneficial. We have been denied because of

> > > experimental/investigational, not medically necessary and

> cosmetic.

> > >

> > > Would anyone be willing to share your experience with Steve via

> > email

> > > so we can present a supported front to BCBS of Florida? If you

> are

> > > willing to share your experience would you send your email

> address

> > to

> > > me so I can forward it to him or you can contact him or me

> directly

> > > at the addresses below:

> > >

> > > Marin - amarin35@h...

> > > Steve Manning - swmanning2k4@y...

> > >

> > > I would very much prefer if he could join the group as there is

> > > sooooo much information here that I think he can use but I am

not

> > > sure if there is any protocols of who is allowed to join or who

> to

> > > even ask about letting Steve join.

> > >

> > > Your help and support will be greatly appreciated. Thank you in

> > > advance.

> > >

> > > Marin

> > > Ryel's Mom (DocBand 11/10/03)

> > > Pensacola, FL