Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 Ive been having difficult week.. Iam facing possible cholangiocarcinoma myself..my ERCP photos didnt look good this time around. I will find out more on the 21st. Andi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 Iam facing possible cholangiocarcinoma myself..my ERCP photos didnt look good this time around. Andi, As other have said, this could be wrong. Twice I've been faced with what the docs said was CC but both times they were WRONG! The first time were the brushings from an ERCP which the lab kept reading as possible adenocarcinoma. My doctor didn't believe it and decided to have me take a few weeks of antibiotics believing what they were really seeing was infection. And it was infection. Apparently the lab has great difficulty telling the difference between cancer and infection. Scary to say the least. The other time was an MRI which said there was a tumor in a duct. My hep and the other doctors at my center (MRI wasn't done at my center) said nope, that is your duct. It is funny now but it wasn't at the time. So hang in there and don't give up. Blessings, Barby UC - age 11, ileostomy - age 17 (1972), continent ostomy - 1994 PSC - 1995 married 23 years, 5 sons ages 10-21 KS - tornado (1983) and house fire (2002) survivor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 .... or it could be nothing. Radiographs are notoriously difficult to read for the untrained, myself included. I know an engineer who was adamant about a radiograph that clearly (to him) showed a flaw in a pipe weld. The specialist not only showed him he was wrong, but pointed out a manufacturing flaw in the pipe that he missed! Arne 51 - UC 9/77 - PSC 4/00 Alive and (mostly) well in Minnesota -----Original Message----- ...my ERCP photos didnt look good this time around. I will find out more on the 21st. Andi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 I hope its nothing. Maureen knows what the steroids do to your thinking and on top the Cipro Iam taking causes terrible nightmares. Everything from the past dredged up. My fears, regrets... I cant say that I dont cry, I do. Becuase Iam so heartbroken by the deaths in our group and everyones suffering. Andi So hang > in there and don't give up. > > Blessings, > Barby > UC - age 11, ileostomy - age 17 (1972), continent ostomy - 1994 > PSC - 1995 > married 23 years, 5 sons ages 10-21 > KS - tornado (1983) and house fire (2002) survivor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 Andi, I can't tell you how many times they have thought they saw the worse in my photos over the years. One time this radiologist got so excited and said it had metasticized throughout my liver! It was air he was looking at; air in the biliary ducts from having the scopes and the surgeries. The radiologist guys that read these tests see them so infrequently; it got to be a joke between my Dr and I. I am sorry that you are having to deal with it; I know how the wait is and will think about you. Tee > Ive been having difficult week.. > > Iam facing possible cholangiocarcinoma myself..my ERCP photos didnt > look good this time around. I will find out more on the 21st. > > Andi Quote Link to comment Share on other sites More sharing options...
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