Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 Hi Mandi, Please know that we are all here for you anytime. With what you just went through you definitely need people to talk to. I can't believe they messed with your mind like that. And by the way, you are not a drug addict. There is a difference between being dependent on a drug and being addicted to a drug. Being addicted means that you are taking narcotics and need narcotics and have no reason to take them. Being dependent on a narcotic means that you need them to get rid of pain. This is well documented and don't leave anyone tell you differently. I have been taking narcotics for 23 years and I don't even remotely consider myself an addict. I am dependent on them. And that is ok. No one can live with alot of severe pain and have a decent life without taking something to eleviate it. What you went through was really uncalled for. Also my dr has increased and decreased my narcotics as he sees fit. I have been taking MS Contin l5 mg for years anywhere from one pill once a day to two pills four times a day. If I have been on 8 a day for a long time and then he reduces it to two a day I don't have any problem at all. He does it over a long period of time. Never just says go from taking 8 to taking 2 a day immediately. No one could do that. I understand why you went to the detox center, so you would be monitored. But your dr, that is if he wanted to, could have reduced your meds slowly without much problem at all. I really feel for you. And now to not be able to get into him before the middle of Sept. Well that is rediculous. He is the one that was prescribing this drug to you and he should be the one monitoring you to get you off of it. Is there maybe another dr that you could go to that would be more understanding and more competent? I just can't get over these drs who prescribe narcotics to their patients for years and then neglect them when they need their help. Just not right. Please take care of yourself. You are in my prayers. Hugs, babs thanks all I appreciate all of you so9 much, to clarify a few things, i had a hugr blow up with my dr b/c he wouldnt try anything byt the percocet or other narcs i want to try alternative therapys, im too young to live on pain meds , i want tto try something else before my rsd gets worse. so i went in to get off the med (which i take as prescribed) safely(i have blod pressure probs) NOT drug rehab but according to them i was in denial, minipulative, and several other choice words, i was very upset the whole time in horrendous pain, and my dr wont see me till sept 17, i came out of there believing i was A junkie, addict ond a bad person , but i get home and slowly the fog lifted and i know my rsd is real and i'm a great person im not an addict, sure my body was depentant but after 8 years who wouldnt? could any of you get off your meds and deal with the pain and withdrawls?probably not thats why i went somewhere where thing could be monitored, guess i was wrong!!!!one more thing has vioxx helped anyone?keep on keepin on,lovemandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 I take Vioxx as part of my daily " cocktail " . Dr. started me on it 3 months ago. It is supposed to reduce inflammation, esp. in my spine. He also hoped that it would keep the RSD from spreading. It didn't. It spread from my R arm to my L arm, to my lower legs, to my head/face, to my upper torso. Maybe it is helping me in other ways. I have good ins., so I keep taking it. -Sharon, NY In RSD-CRPSofAmerica , " yourchefmandi " <YourchefMandi@c...> wrote: > I appreciate all of you so9 much, to clarify a few things, i had a > hugr blow up with my dr b/c he wouldnt try anything byt the percocet > or other narcs i want to try alternative therapys, im too young to > live on pain meds , i want tto try something else before my rsd gets > worse. so i went in to get off the med (which i take as prescribed) > safely(i have blod pressure probs) NOT drug rehab but according to > them i was in denial, minipulative, and several other choice words, i > was very upset the whole time in horrendous pain, and my dr wont see > me till sept 17, i came out of there believing i was A junkie, addict > ond a bad person , but i get home and slowly the fog lifted and i > know my rsd is real and i'm a great person im not an addict, sure my > body was depentant but after 8 years who wouldnt? could any of you > get off your meds and deal with the pain and withdrawls?probably not > thats why i went somewhere where thing could be monitored, guess i > was wrong!!!! > one more thing has vioxx helped anyone? > > keep on keepin on, > love > mandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Good Afternoon, I read this letter and it broke my heart. Oh how I wish I had some answers for you. All I can say is please keep fighting. Don't give up. I have a birth defect called Spina Bifida and do not have RSD. I just am typing to you because for what it is worth, I wanted to let you know you are in my thoughts and prayers. I read your note and I care. Sincerely, Dawngrmnpntrdgs wrote: Hi,Everyone Thanks for the information about the morphine pump and the second stimulater. we thought about it and we are going to find out if he can get a trail one to see if it reliefs more of his pain the same about the pump and then we will go from there.Also we dont know what stage he is in but i know this much he was also dxs with cancer this year to.We asked what type of cancer the doctors told him that it was rare form of cancer they also told him that maybe in his next life he might not have all of this.Yes we are getting another doctor we went last week we are waiting for the results to get back.He broke his ankle in 2000 and thats how he got this monster know it is in his legs and arms and his back and know it is going into his neck.The doctors have not said it yet but he thinks it has moved all over and from what I have been reading everyone knows more than the doctors when it comes to that stuff.Thanks for letting us talk to you all it is helping alot.I know that you are not suppose to give up but as any one went into remission of this we have been asking the doctors about it and no answers so please if there is some hope we need it and if not thats ok to we will fight this monster.Does any one get on the chat room and if so when. Thanks loves, Michele,Jeff and family Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Hi Michele, I will give you some hope. PLease don't ever give up hope. I got RSD 23 years ago from falling down a flight of steps and it has been full body for a long time now. I am not in remission anymore but I was put into remission three times. And even if it does not go into remission blocks might help with the horrible pain. When I get a flare my dr still gives me three epidural blocks to calm the RSD down and it works. It does not get rid of all the pain but it is cut by at least 50%. So take it from me, an old-timer, don't ever leave a dr tell you that there is nothing they can do. There are so much more treatments for RSD than there was when I got it. The only thing then were blocks. But l2 years ago I got two SCS's in and that changed my life. I am walking and using both arms. I hope I have been able to give you and your husband and family hope. That was my intention. I will keep all of you in my prayers. Take care and have a good night. Hugs, babs Thanks all Hi,Everyone Thanks for the information about the morphine pump and the second stimulater. we thought about it and we are going to find out if he can get a trail one to see if it reliefs more of his pain the same about the pump and then we will go from there.Also we dont know what stage he is in but i know this much he was also dxs with cancer this year to.We asked what type of cancer the doctors told him that it was rare form of cancer they also told him that maybe in his next life he might not have all of this.Yes we are getting another doctor we went last week we are waiting for the results to get back.He broke his ankle in 2000 and thats how he got this monster know it is in his legs and arms and his back and know it is going into his neck.The doctors have not said it yet but he thinks it has moved all over and from what I have been reading everyone knows more than the doctors when it comes to that stuff.Thanks for letting us talk to you all it is helping alot.I know that you are not suppose to give up but as any one went into remission of this we have been asking the doctors about it and no answers so please if there is some hope we need it and if not thats ok to we will fight this monster.Does any one get on the chat room and if so when. Thanks loves, Michele,Jeff and family Quote Link to comment Share on other sites More sharing options...
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