Re: New member

[Guest guest]

Hi Stevie/!

Welcome and happy birthday a bit belated... we share the same birthdate!!! how

cool!

glo

Lapbander wrote:

> 1. First Name:

>

> 2. Nick Name: Stevie

>

> 3. Age: 50

>

> 4. Birthday: January 15

>

[Guest guest]

Welcome ,

This is an active great group. I think you will find many folks

willing to be your friend. And you are definitely NOT alone. My

name is Betsy, live in rural Utah and am also fighting the

dragon.....about 6 months now and it is not easy. Am trying to go on

with life and live each day to the fullest. I marvel at how many

have had this problem for many years and how well they do. Hope to

get to know you better. Take Care.

May the Lord Bless,

Betsy

> Hello Everyone,

>

> I am Lee. I live in Athens, Georgia. Have lived with RSDS

> for a little over 7 years now. I recently found through Yahoo

Groups

> Search 4 groups, and joined then all so for those who belong to all

> or some of the same groups forgive me if I repeat what I am saying

> here.

>

> I feel I am the only one in the world who as RSDS. I do not know

> anyone else that has it. There are no support groups here in

Athens,

> or Atlanta which is only 50 miles from me. My hope in joining

these

> groups is to find out I am not alone. I am not the only one in the

> world whos day is measured by pain, and the ability to use arms or

> legs. I want to hear from all of you. I want to be friends with

you

> all too. So please do not be shy and right me.

>

> Basicly my story is this:

>

> First began in my right knee then started to spred through out my

> right leg. Three Doctors said it was Arthritis and take asprin,

> etc., and just deal with it. I went to our famila Doctor and

> surprise of all he knew instantly what was wrong. (Side note

> here...3 Hospital Doctors from times I have had to be admitted said

I

> was faking it just to get pain pills, and one said it was all

mental

> on my part. Have anyone else been told that too? )

>

> The pain has since spread into all my right leg and foot then left

> leg and foot to torso chest both arms and hands. Basicly from the

> neck down. We have tried all possible cures from heavy medications

> that kept me totaly as a Zambie to frankly Voodoo ( LOL ). I have

> refused since to take anything that does drug me up. I would

rather

> have the pain and be alive than as I was when drugged up. I guess

my

> main medication is a high doses of Morphine, to other drugs that

> works on the nervous system.

>

> The pain is always there, but the morphine helps to prevent me from

> killing everyone in sight or killing myself. Since I have had this

I

> have lost most everything I have loved. I lost my mate of many,

many

> years, my home, my money, and several friend. I have gone to

walking

> on my own to a cane then walker and now electric wheelchair. I

have

> had to be put on SSI (SSD does not cover all the medical needs I

have

> as well as SSI) I know live in Housing Units. But believe I do

not

> dwell on my loses. If I did I would give up. What I do is allow

my

> self a day every other week to be depressed and bath in self pity.

> Then at the end of that day I say OK that's it. Simple, but it

does

> work for me. I hurt terribly when touched, but I insist on hugs

from

> everyone. I can not go through my life with human contact. If you

> do you give in to the pain, and allow it to win. I will not let it

> win!!!!!!

>

> So that is basicly it. If anyone wants to find out more, PLEASE

> write, and share with me. I do not want to be the only one any

more.

>

> Thank you,

>

>

>

> ps: If you would like you can visit my HomePages at:

>

> http://www.geocities.com/mike_inathens/Homepage_1.html

[Guest guest]

Welcome ,

I know how you feel about feeling like the only one with RSD. You aren't, though, and through support groups, you'll find others that are in your area. We are all dealing with this thing the same way you are, "one day at a time" and "with a little help from our friends"

I think most of us have been told, at some time or another that this is "all in our heads", and that we're seeking drugs. I, for one, do not like to take drugs, never have and probably never will. I HAVE to, though, and hate being made to feel like a drug seeker. My current DR. is not like that at all, although I've seen some raised eyebrows within my family at times. Some of them think that since I appear "normal" I'm not in pain. Little do they know.

So, we're all going through a lot of what you are and have gone through, so if we can be of any help let us know. I know this group is wonderful and will do whatever they can!

Welcome again,

Jo

New Member

Hello Everyone,I am Lee. I live in Athens, Georgia. Have lived with RSDS for a little over 7 years now. I recently found through Yahoo Groups Search 4 groups, and joined then all so for those who belong to all or some of the same groups forgive me if I repeat what I am saying here.I feel I am the only one in the world who as RSDS. I do not know anyone else that has it. There are no support groups here in Athens, or Atlanta which is only 50 miles from me. My hope in joining these groups is to find out I am not alone. I am not the only one in the world whos day is measured by pain, and the ability to use arms or legs. I want to hear from all of you. I want to be friends with you all too. So please do not be shy and right me.Basicly my story is this:First began in my right knee then started to spred through out my right leg. Three Doctors said it was Arthritis and take asprin, etc., and just deal with it. I went to our famila Doctor and surprise of all he knew instantly what was wrong. (Side note here...3 Hospital Doctors from times I have had to be admitted said I was faking it just to get pain pills, and one said it was all mental on my part. Have anyone else been told that too? )The pain has since spread into all my right leg and foot then left leg and foot to torso chest both arms and hands. Basicly from the neck down. We have tried all possible cures from heavy medications that kept me totaly as a Zambie to frankly Voodoo ( LOL ). I have refused since to take anything that does drug me up. I would rather have the pain and be alive than as I was when drugged up. I guess my main medication is a high doses of Morphine, to other drugs that works on the nervous system.The pain is always there, but the morphine helps to prevent me from killing everyone in sight or killing myself. Since I have had this I have lost most everything I have loved. I lost my mate of many, many years, my home, my money, and several friend. I have gone to walking on my own to a cane then walker and now electric wheelchair. I have had to be put on SSI (SSD does not cover all the medical needs I have as well as SSI) I know live in Housing Units. But believe I do not dwell on my loses. If I did I would give up. What I do is allow my self a day every other week to be depressed and bath in self pity. Then at the end of that day I say OK that's it. Simple, but it does work for me. I hurt terribly when touched, but I insist on hugs from everyone. I can not go through my life with human contact. If you do you give in to the pain, and allow it to win. I will not let it win!!!!!!So that is basicly it. If anyone wants to find out more, PLEASE write, and share with me. I do not want to be the only one any more.Thank you,ps: If you would like you can visit my HomePages at:http://www.geocities.com/mike_inathens/Homepage_1.html

[Guest guest]

Hi , nice to meet you and welcome to the group. Well you are

not alone anymore. Now you have all of us.

Also now you know many people with RSD here. We are all here for you

whenever you need us. You can vent, ask questions, or just talk about

how you are feeling. We will listen. I have had RSD for 23 years and it

is full body. I have two spinal cord stimulators for l2 years now.

I take Morphine, 2 a day(l5mg each), also Effexor, Toprol. Anytime you

need someone to talk to just write a message.

Take care and you are in my prayers.

Hugs,

babs

[Guest guest]

I am Lee. I live in Athens, Georgia.

Welcome , I'm , also known as cubn2. I live in Crest Hill, IL.

I've had RSD for 5 1/2 years now. I am not on much these days, the weather isn't helping the cause here but I try to read some everyday. Mine started in my right elbow and has pretty much gone thru the whole body. I am sure you will like it here on the group, everyone is real friendly and there are alot of knowledgeable people here that can help you.

Post away with any questions or vents you might have.

soft huggs,

[Guest guest]

Hi everybody,

My name is Sara and I am a Cancer Survivor. I learned I had breast cancer in

2000 and had a right mastectomy in 2001. Somehow every time I had a mammogram I

always thought it was going to come back negative, so I never really worried

about having breast cancer. When I learned the bad news I was in shock and

devastated, especially when my doctor said I needed a mastectomy.

Today I can say I am happy I had the mastectomy because that way the cancer

didn't spread anywhere else and I am well and happy. Next year I will be

officially called a cancer survivor, thought I think I am already one.

This message goes to everyone of you who feels down, I would like you to cheer

up because better days are coming, you'll see, someday you'll put this behind

you and it will just become part of your own history.

You are all in my prayers.... Sara

________________________________________________________________

Speed up your surfing with Juno SpeedBand.

Now includes pop-up blocker!

Only $14.95/ month - visit http://www.juno.com/surf to sign up today!

[Guest guest]

Hi Sara and welcome to the group. You have a wonderful attitude. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

Re: New Member

Hi everybody,My name is Sara and I am a Cancer Survivor. I learned I had breast cancer in 2000 and had a right mastectomy in 2001. Somehow every time I had a mammogram I always thought it was going to come back negative, so I never really worried about having breast cancer. When I learned the bad news I was in shock and devastated, especially when my doctor said I needed a mastectomy.Today I can say I am happy I had the mastectomy because that way the cancer didn't spread anywhere else and I am well and happy. Next year I will be officially called a cancer survivor, thought I think I am already one.This message goes to everyone of you who feels down, I would like you to cheer up because better days are coming, you'll see, someday you'll put this behind you and it will just become part of your own history.You are all in my prayers.... Sara________________________________________________________________Speed up your surfing with Juno SpeedBand.Now includes pop-up blocker!Only $14.95/ month - visit http://www.juno.com/surf to sign up today!

[Guest guest]

Thank you nne, you are very sweet.

Sara

________________________________________________________________

Speed up your surfing with Juno SpeedBand.

Now includes pop-up blocker!

Only $14.95/ month - visit http://www.juno.com/surf to sign up today!

[Guest guest]

Thank you Sara. Your message came good to me. I just had a

mastectomy last month and hoping it will go as well with me as it has

with you.

Janie

>

>

> Hi everybody,

>

> My name is Sara and I am a Cancer Survivor. I learned I had breast

cancer in 2000 and had a right mastectomy in 2001. Somehow every

time I had a mammogram I always thought it was going to come back

negative, so I never really worried about having breast cancer. When

I learned the bad news I was in shock and devastated, especially when

my doctor said I needed a mastectomy.

>

> Today I can say I am happy I had the mastectomy because that way

the cancer didn't spread anywhere else and I am well and happy. Next

year I will be officially called a cancer survivor, thought I think I

am already one.

>

> This message goes to everyone of you who feels down, I would like

you to cheer up because better days are coming, you'll see, someday

you'll put this behind you and it will just become part of your own

history.

>

> You are all in my prayers.... Sara

>

> ________________________________________________________________

> Speed up your surfing with Juno SpeedBand.

> Now includes pop-up blocker!

> Only $14.95/ month - visit http://www.juno.com/surf to sign up

today!

[Guest guest]

Ike

Welcome to the site. You will find the ladies here to be very sweet, understanding, and helpful. I'm a 13 year survivor of Inflammatory breast cancer. I was in a study at a major cancer treatment center here and received chemo while pregnant. I'm like you in that I believe cancer came into my life for a reason.

Hope to get to know you better. I hope to get a chance to look at your site in a couple of days. It's very busy here with work, my son in school, and holidays next week.

Blessings

Pam

[Guest guest]

Nancee

Our cases are almost identical: I, too, was diagnosed with Invasive

Ductal Carcinoma of the left breast in July 2004. In September, I

had a mastectomy with sentinel node dissection, instead of a

lumpectomy w/radiation, in order to avoid radiation problems with my

pacemaker. My tumor ws 2.4 cm and considered a grade 3 (which means

aggressive). Surgeon was able to get clear margins and retrive 5

nodes. All nodes were clear. It was also suggested that I have

chemo which would have increased my chances by about 2-6% over

Arimidex alone--radiation was not indicated because I had had a

mastectomy. Just like you, I also chose not to have chemo. I am

also taking Arimidex (cancer was estrogen positive). My family

history also includes several cancers, but not breast cancer.

Would be interested in hearing more from you, especially how you are

living with the Arimidex (I started taking it late in October, after

trying Tamoxifen which gave me side effects.) Do you have side

effects from Arimidex?

Oh, yes, I'm 59 and single, no children. Are you also about my age?

Janie

>

>

> Hello everyone. My Name is Nancee. I was diagnoised with Invasive

> Ductal Carsinoma of the left breast in August 2004. I had a

> Lumpectomy with Sentinel nodes in September. My tumor was over 3cm

> and considered a grade 3. Surgeon was able to get clear margins and

> retrieve 9 nodes. All nodes were clear. It was suggested that I

have

> chemo but was told it would increase my chances by about 3-4% over

> radiation and Arimidex. I chose not to have the chemo. I just

> finished 6 weeks of radiation and am know taking Arimidex (cancer

was

> estrogen positive) Radiation went very well. Other than some

fatigue

> I tolerated it well. I was able to take the 6 weeks off from work

and

> that helped with the fatigue. I traveled 90 miles each day. I am a

> special education teaching assistant and thought it better for my

> students that I stay out rather than have me for 3 hours aday. I

live

> in New Hampshire and have had the great pleasure of being treated

at

> the Dartmouth Hitchcock Medical Center in Lebenon. Top of the line

> and state-of-the-art. My dad had breast cancer 32 years ago. I'm

> sure they did not know what to do for him that many years ago and

> unfortunately he did not survive. He was 52. My mom had colon

cancer

> 20 years ago and she to passed away. My family history is not good

> therefore I will be undergoing genetic testing in the Spring. It

> won't do me much good know but my children should know. I have 3

> kids. 25, Jenn 23 and 20. Our son is Autistic. I

> must stay around a long time for him. And I plan on doing just that.

> I am happy to be a part of the group and look forward to getting to

> know you all.

> Nancee

[Guest guest]

-Thank you so very much for the warm welcome. Can someone tell me a

little about the chats on Fridays. I would love to be a part of that.

I am enjoying a day to myself. I just recovered from pneumonia and

was out of work for a week . I had just gone back to work after my

radiation treatments . I had a feeling it would not be long before I

came down with something. My student had pneumonia and my immune

system was compromised just enough that " BANG " I got it to. I am

feeling much better and will try to get back to school tomorrow. I

hope I last longer this time but a school is so full og germs I

should probably wear a mask and gloves for awhile. My son and husband

went skiing today. Yesterday was 's 20th birthday and we will

celebrate tonight. His two sisters are coming for dinner. He's very

excited. His dad took him skiing to practice for Special Olympics

next month. He is a very good downhill skier and has won Gold medals

in previous olympics. Oh, well, I am getting to chatty. Take care and

thanks again for being there.

Love nancee-- In breastcancer2 , " charles svihlik "

<moochie1@a...> wrote:

> Hi Nancee and welome. I am nne, 59 with 3 children and 6

grandkids. Please feel free to ask questions etc. The ladies here are

wonderful.

> Hugs

> nne

> Breast Cancer Patients Soul Mates for Life

> http://www.geocities.com/chucky5741/breastcancerpatients.html

>

> Check out my breast cancer ornaments at:

> http://www.geocities.com/chucky5741/bcornament.html

> also check out my other ornaments and lots of nice gifts at:

> http://www.cancerclub.com

> New Member

>

>

>

>

> Hello everyone. My Name is Nancee. I was diagnoised with Invasive

> Ductal Carsinoma of the left breast in August 2004. I had a

> Lumpectomy with Sentinel nodes in September. My tumor was over

3cm

> and considered a grade 3. Surgeon was able to get clear margins

and

> retrieve 9 nodes. All nodes were clear. It was suggested that I

have

> chemo but was told it would increase my chances by about 3-4%

over

> radiation and Arimidex. I chose not to have the chemo. I just

> finished 6 weeks of radiation and am know taking Arimidex (cancer

was

> estrogen positive) Radiation went very well. Other than some

fatigue

> I tolerated it well. I was able to take the 6 weeks off from work

and

> that helped with the fatigue. I traveled 90 miles each day. I am

a

> special education teaching assistant and thought it better for my

> students that I stay out rather than have me for 3 hours aday. I

live

> in New Hampshire and have had the great pleasure of being treated

at

> the Dartmouth Hitchcock Medical Center in Lebenon. Top of the

line

> and state-of-the-art. My dad had breast cancer 32 years ago. I'm

> sure they did not know what to do for him that many years ago and

> unfortunately he did not survive. He was 52. My mom had colon

cancer

> 20 years ago and she to passed away. My family history is not

good

> therefore I will be undergoing genetic testing in the Spring. It

> won't do me much good know but my children should know. I have 3

> kids. 25, Jenn 23 and 20. Our son is Autistic.

I

> must stay around a long time for him. And I plan on doing just

that.

> I am happy to be a part of the group and look forward to getting

to

> know you all.

> Nancee

>

>

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

[Guest guest]

Hi Janie, I was 50 last April. I started the Arimidex on January

31st. I have not noticed any side effects. I am encouraged about what

I have read of Arimidex and hope I can stick with it. My doctor

suggested I take extra calcium and vitamin D as Arimidex can lead to

osteoporosis. I will probably have frequent bone density tests to

keep an eye on that. My dad had breast cancer and know 5 of my first

cousins on my dads side that's why I will be tested for the BRACA in

the spring. Hopefully my insurance will pay for it. I hear it's very

expensive but my kids need to know so that they have more frequent

screenings if it calls for it.

Nice meeting you Janie

Love Nancee

> >

> >

> > Hello everyone. My Name is Nancee. I was diagnoised with Invasive

> > Ductal Carsinoma of the left breast in August 2004. I had a

> > Lumpectomy with Sentinel nodes in September. My tumor was over

3cm

> > and considered a grade 3. Surgeon was able to get clear margins

and

> > retrieve 9 nodes. All nodes were clear. It was suggested that I

> have

> > chemo but was told it would increase my chances by about 3-4%

over

> > radiation and Arimidex. I chose not to have the chemo. I just

> > finished 6 weeks of radiation and am know taking Arimidex (cancer

> was

> > estrogen positive) Radiation went very well. Other than some

> fatigue

> > I tolerated it well. I was able to take the 6 weeks off from work

> and

> > that helped with the fatigue. I traveled 90 miles each day. I am

a

> > special education teaching assistant and thought it better for my

> > students that I stay out rather than have me for 3 hours aday. I

> live

> > in New Hampshire and have had the great pleasure of being treated

> at

> > the Dartmouth Hitchcock Medical Center in Lebenon. Top of the

line

> > and state-of-the-art. My dad had breast cancer 32 years ago. I'm

> > sure they did not know what to do for him that many years ago and

> > unfortunately he did not survive. He was 52. My mom had colon

> cancer

> > 20 years ago and she to passed away. My family history is not

good

> > therefore I will be undergoing genetic testing in the Spring. It

> > won't do me much good know but my children should know. I have 3

> > kids. 25, Jenn 23 and 20. Our son is Autistic.

I

> > must stay around a long time for him. And I plan on doing just

that.

> > I am happy to be a part of the group and look forward to getting

to

> > know you all.

> > Nancee

[Guest guest]

Hi Nancee,

We sometimes have chats at 7:30pm cst on Fridays. If you are interested post what Friday you would be available and some of us can see if we can get there to chat. Yahoo causes lots of problems so we don't chat like we used to. Sometimes we get kicked out of the group and can't get back in or sometimes we can see others but they can't see what we are posting!! I don't think Yahoo will ever get its act together. Its not just in our group. I belong to other groups and the same things happen there.

Please wish a belated Happy Birthday from me.

Hugs

marianne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

New Member> > > > > Hello everyone. My Name is Nancee. I was diagnoised with Invasive > Ductal Carsinoma of the left breast in August 2004. I had a > Lumpectomy with Sentinel nodes in September. My tumor was over 3cm > and considered a grade 3. Surgeon was able to get clear margins and > retrieve 9 nodes. All nodes were clear. It was suggested that I have > chemo but was told it would increase my chances by about 3-4% over > radiation and Arimidex. I chose not to have the chemo. I just > finished 6 weeks of radiation and am know taking Arimidex (cancer was > estrogen positive) Radiation went very well. Other than some fatigue > I tolerated it well. I was able to take the 6 weeks off from work and > that helped with the fatigue. I traveled 90 miles each day. I am a > special education teaching assistant and thought it better for my > students that I stay out rather than have me for 3 hours aday. I live > in New Hampshire and have had the great pleasure of being treated at > the Dartmouth Hitchcock Medical Center in Lebenon. Top of the line > and state-of-the-art. My dad had breast cancer 32 years ago. I'm > sure they did not know what to do for him that many years ago and > unfortunately he did not survive. He was 52. My mom had colon cancer > 20 years ago and she to passed away. My family history is not good > therefore I will be undergoing genetic testing in the Spring. It > won't do me much good know but my children should know. I have 3 > kids. 25, Jenn 23 and 20. Our son is Autistic. I > must stay around a long time for him. And I plan on doing just that.> I am happy to be a part of the group and look forward to getting to > know you all.> Nancee> > > > > > > > > ------------------------------------------------------------------------------>

[Guest guest]

-Consider your birthday wishes recived. Thanks so much for all the

info. I feel right at home with this group.

Love Nancee-- In breastcancer2 , " charles svihlik "

<moochie1@a...> wrote:

> Hi Nancee,

> We sometimes have chats at 7:30pm cst on Fridays. If you are

interested post what Friday you would be available and some of us can

see if we can get there to chat. Yahoo causes lots of problems so we

don't chat like we used to. Sometimes we get kicked out of the group

and can't get back in or sometimes we can see others but they can't

see what we are posting!! I don't think Yahoo will ever get its act

together. Its not just in our group. I belong to other groups and the

same things happen there.

> Please wish a belated Happy Birthday from me.

> Hugs

> marianne

> Breast Cancer Patients Soul Mates for Life

> http://www.geocities.com/chucky5741/breastcancerpatients.html

>

> Check out my breast cancer ornaments at:

> http://www.geocities.com/chucky5741/bcornament.html

> also check out my other ornaments and lots of nice gifts at:

> http://www.cancerclub.com

> New Member

> >

> >

> >

> >

> > Hello everyone. My Name is Nancee. I was diagnoised with

Invasive

> > Ductal Carsinoma of the left breast in August 2004. I had a

> > Lumpectomy with Sentinel nodes in September. My tumor was

over

> 3cm

> > and considered a grade 3. Surgeon was able to get clear

margins

> and

> > retrieve 9 nodes. All nodes were clear. It was suggested that

I

> have

> > chemo but was told it would increase my chances by about 3-4%

> over

> > radiation and Arimidex. I chose not to have the chemo. I just

> > finished 6 weeks of radiation and am know taking Arimidex

(cancer

> was

> > estrogen positive) Radiation went very well. Other than some

> fatigue

> > I tolerated it well. I was able to take the 6 weeks off from

work

> and

> > that helped with the fatigue. I traveled 90 miles each day. I

am

> a

> > special education teaching assistant and thought it better

for my

> > students that I stay out rather than have me for 3 hours

aday. I

> live

> > in New Hampshire and have had the great pleasure of being

treated

> at

> > the Dartmouth Hitchcock Medical Center in Lebenon. Top of the

> line

> > and state-of-the-art. My dad had breast cancer 32 years ago.

I'm

> > sure they did not know what to do for him that many years ago

and

> > unfortunately he did not survive. He was 52. My mom had colon

> cancer

> > 20 years ago and she to passed away. My family history is not

> good

> > therefore I will be undergoing genetic testing in the Spring.

It

> > won't do me much good know but my children should know. I

have 3

> > kids. 25, Jenn 23 and 20. Our son is

Autistic.

> I

> > must stay around a long time for him. And I plan on doing

just

> that.

> > I am happy to be a part of the group and look forward to

getting

> to

> > know you all.

> > Nancee

> >

> >

> >

> >

> >

> >

> >

> >

> > ----------------------------------------------------------------

----

> ----------

> >

[Guest guest]

Hi Anne and welcome. I had a mastectomy in 1990 and never regret having it. I did not have reconstruction either. My husband and I both agreed it was the right thing to do and neither of us have ever regretted me having it. I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html

Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com

New Member

Hi everyone,I have just joined and so have not read through all the posts yet. I am diagnosed with DCIS, have had 2 WLE but now face mastectomy next month. I would appreciate anybody's views on this, who have had it and think it was the right thing to do, or who have refused it and how they live with the decision.Also interested to know how many members are in the UK?Look forward to getting to know you all,Anne

[Guest guest]

I had a mastectomy in 1999 and have not had any problems at all. I

was also DCIS and almost stage zero because I found mine when it was

so small. If I had to make the choice again, I would do the same

thing; I have a prosthesis because I did not choose reconstruction

because both I and my husband did not think it was necessary...he did

not marry me for my breasts. We have had members from the UK but I

don't know if any are active right now...ladies from the UK, speak up,

Annie is looking for you. Doris

>

>

> Hi everyone,

>

> I have just joined and so have not read through all the posts yet.

>

> I am diagnosed with DCIS, have had 2 WLE but now face mastectomy

> next month. I would appreciate anybody's views on this, who have had

> it and think it was the right thing to do, or who have refused it

> and how they live with the decision.

>

> Also interested to know how many members are in the UK?

>

> Look forward to getting to know you all,

>

> Anne

[Guest guest]

Nancee: There is a lot of stuff to deal with, at least for me. I have some self esteem issues right now. I have also been the self confident one, but now I find it hard to find that inside me right now. What about you? Sounds like you have a lot of family support. I live in E. TN and my family is in W. KY and CA, so I am blessed with my church family and my work family.

Ren

[Guest guest]

Thank you nne for the prayers. Love, Sharon F.

> Sharon you will be in my prayers that all goes well with your MRI.

> Hugs

> nne

> Breast Cancer Patients Soul Mates for Life

> http://www.geocities.com/chucky5741/breastcancerpatients.html

>

> Check out my breast cancer ornaments at:

> http://www.geocities.com/chucky5741/bcornament.html

> also check out my other ornaments and lots of nice gifts at:

> http://www.cancerclub.com

> Re: New Member

>

>

>

> Dear Ladies, I saw my onc. today and everything went well except

I

> have to have an MRI on my neck on Tuesday because I told him it

> hurts and he wants to check it out because if you get cancer on

your

> neck he said it can cause neurological problems. Have any of

you

> had chemo and radiation at the same time. I am on Xeloda right

> now. I had cancer on my neck before but it was in a different

spot

> and I had 10 treatments of radiation for that but I wasn't on

chemo

> than. If I hope and pray enough just maybe just maybe it won't

be

> that darn old ugly dragon again. Take care, God Bless, Love,

Sharon

> F.

>

>

> >

> > -Hi Ren Very nice to meet you. I was diagnoised August 27th.

You

> and

> > I have had about 3 1/2 months for this to settle in. It is

> certainly

> > not How I expected to celebrate my 50's. My treatments are

done. I

> > just got over pneumonia and went back to work this week. My

Lord

> has

> > taken extra good care of me and my family through this ordeal

and

> I

> > am grateful for his blessings. Thank you for the welcome and I

> look

> > forward to getting to know you.

> > Hugs nancee-- In breastcancer2 , rendurall@w...

> wrote:

> > > Hello Nancee and welcome to our corner of the world. All of

us

> are

> > familiar

> > > here and will be a great support for you. I am Ren, 46 and

on

> the

> > back step

> > > of 47. Diagnosed with invasive carcinoma last Aug. 23, bi-

> latteral

> > in Sept.,

> > > implants, port, hospitalized twice, implants out, pneumonia

and

> > that was 2004,

> > > now it's 2005 and it is time to fight back. God is good and

in

> > control and we

> > > will make it.

> > >

> > > ren

>

>

>

>

>

> -------------------------------------------------------------------

-----------

>

[Guest guest]

Thank you Nancee for the prayers. Love, Sharon F.

>

> -Dear Sharon I am praying that ugly old dragon has not come back

> into your life. You are in my thoughts and I pray you MRI goes

well.

> Nancee-- In breastcancer2 , sharon_19462002

> <no_reply@y...> wrote:

> >

> > Dear Ladies, I saw my onc. today and everything went well except

I

> > have to have an MRI on my neck on Tuesday because I told him it

> > hurts and he wants to check it out because if you get cancer on

> your

> > neck he said it can cause neurological problems. Have any of

you

> > had chemo and radiation at the same time. I am on Xeloda right

> > now. I had cancer on my neck before but it was in a different

spot

> > and I had 10 treatments of radiation for that but I wasn't on

> chemo

> > than. If I hope and pray enough just maybe just maybe it won't

be

> > that darn old ugly dragon again. Take care, God Bless, Love,

> Sharon

> > F.

> >

> >

> > >

> > > -Hi Ren Very nice to meet you. I was diagnoised August 27th.

You

> > and

> > > I have had about 3 1/2 months for this to settle in. It is

> > certainly

> > > not How I expected to celebrate my 50's. My treatments are

done.

> I

> > > just got over pneumonia and went back to work this week. My

Lord

> > has

> > > taken extra good care of me and my family through this ordeal

and

> > I

> > > am grateful for his blessings. Thank you for the welcome and I

> > look

> > > forward to getting to know you.

> > > Hugs nancee-- In breastcancer2 , rendurall@w...

> > wrote:

> > > > Hello Nancee and welcome to our corner of the world. All of

us

> > are

> > > familiar

> > > > here and will be a great support for you. I am Ren, 46 and

on

> > the

> > > back step

> > > > of 47. Diagnosed with invasive carcinoma last Aug. 23, bi-

> > latteral

> > > in Sept.,

> > > > implants, port, hospitalized twice, implants out, pneumonia

and

> > > that was 2004,

> > > > now it's 2005 and it is time to fight back. God is good and

in

> > > control and we

> > > > will make it.

> > > >

> > > > ren

[Guest guest]

Welcome Raven!

You have joined a very helpful support group.

Sharon

>

>

> 1. Name: Raven Ritley

[Guest guest]

Hi Raven!!! Welcome! Jump in and be goofy any time.

Darcy

Raven wrote:

1. Name: Raven Ritley

2. City and state: Virginia Beach, VA

3. Are you a Southern California resident? nope..

4. Would you like to be added to our in person luncheon guest list?

only if it's in VA, lol

3. Email address: ask and I'll let you know

4. Obesity Help Profile name and/or OH URL:

http://www.obesityhelp.com/morbidobesity/profile.phtml?N=R1126558448

5. Are you: Considering Surgery, Pre Op or Post Op: Considering

Surgery going through the process required by my insurance

10. Insurance or self pay: Insurance

11. What is the name of your insurance company that covered your

WLS: Hopefully will be Tricare Prime

12.Birthdate: 08/22/78

13.Occupation: Mother and college student

14.Hobbies: Cross-Stitching, reading, doing my college work but not

necessarily in that order, LOL

15.Anything you would like the other members to know about you? I'm

a total goof most of the time, and I absolutely LOVE my two girls,

Tabitha almost 4, and Kaelin 2. Between them and hubby, they are the

light that makes me happy to wake up every morning.

We are a very active support group.

If the email becomes overwhelming,

please change your setting to NO EMAIL!

Please contact Group Creator

Robyn@...

[Guest guest]

Hi Raven!!

Welcome...lots of caring, supportive peeps here! We don't bite to hard....LOL !!

Feel free to join in at anytime.

BTW-Lots of goofs here, too!! (Just like you....We like to have fun.)

Take care, Barb

Raven wrote:

1. Name: Raven Ritley

2. City and state: Virginia Beach, VA

3. Are you a Southern California resident? nope..

4. Would you like to be added to our in person luncheon guest list?

only if it's in VA, lol

3. Email address: ask and I'll let you know

4. Obesity Help Profile name and/or OH URL:

http://www.obesityhelp.com/morbidobesity/profile.phtml?N=R1126558448

5. Are you: Considering Surgery, Pre Op or Post Op: Considering

Surgery going through the process required by my insurance

10. Insurance or self pay: Insurance

11. What is the name of your insurance company that covered your

WLS: Hopefully will be Tricare Prime

12.Birthdate: 08/22/78

13.Occupation: Mother and college student

14.Hobbies: Cross-Stitching, reading, doing my college work but not

necessarily in that order, LOL

15.Anything you would like the other members to know about you? I'm

a total goof most of the time, and I absolutely LOVE my two girls,

Tabitha almost 4, and Kaelin 2. Between them and hubby, they are the

light that makes me happy to wake up every morning.

We are a very active support group.

If the email becomes overwhelming,

please change your setting to NO EMAIL!

Please contact Group Creator

Robyn@...

[Guest guest]

Thank you all so much for the warm welcome. I've been trying to read

some of the posts, and good lord there are so many, LOL. And hey...I

might like a good bite now and then, LMAO. I do love to have fun,

hubby doesn't know what to do with me, lol. But he is a total

smartaleck so we get along wonderfully. I don't know how long it is

going to take before the surgery pre-op stuff gets started. I don't

really have any choice of Surgeons or hospitals which kinda sucks

but my hubby is Navy so it's not like we can afford for the

insurance *not* to pay for the surgery. The one I've been referred

to *waiting on my callback for my first appt./what ever they call it

here, lol* from what I've seen seems to have quite the waiting list.

So hopefully all my prayers will be answered and the surgery will be

done at the best possible time for me, that's all I'm asking. But I

won't even try to pretend that I'm not anxious and getting excited

already about my decision. I can't wait to get started on a

healthier me. I do get rather busy though, the college class I'm

taking right now is around 500 pages of reading a week, and it's all

Philosophy. But I love every second of it, even if I do get mentally

tired sooner, lol.

Blessings,

Raven

> Hi Raven!!

> Welcome...lots of caring, supportive peeps here! We don't bite to

hard....LOL !!

> Feel free to join in at anytime.

>

> BTW-Lots of goofs here, too!! (Just like you....We like to have

fun.)

>

> Take care, Barb

>

>

>

[Guest guest]

congrats and good luck!

good to have you in the family(even if you're only and 'in-law' right now...once

you have surgery, you get full-fledged privileges...)

blessings to all!

jb-bb

Raven wrote:

1. Name: Raven Ritley

2. City and state: Virginia Beach, VA

3. Are you a Southern California resident? nope..

4. Would you like to be added to our in person luncheon guest list?

only if it's in VA, lol

3. Email address: ask and I'll let you know

4. Obesity Help Profile name and/or OH URL:

http://www.obesityhelp.com/morbidobesity/profile.phtml?N=R1126558448

5. Are you: Considering Surgery, Pre Op or Post Op: Considering

Surgery going through the process required by my insurance

10. Insurance or self pay: Insurance

11. What is the name of your insurance company that covered your

WLS: Hopefully will be Tricare Prime

12.Birthdate: 08/22/78

13.Occupation: Mother and college student

14.Hobbies: Cross-Stitching, reading, doing my college work but not

necessarily in that order, LOL

15.Anything you would like the other members to know about you? I'm

a total goof most of the time, and I absolutely LOVE my two girls,

Tabitha almost 4, and Kaelin 2. Between them and hubby, they are the

light that makes me happy to wake up every morning.

We are a very active support group.

If the email becomes overwhelming,

please change your setting to NO EMAIL!

Please contact Group Creator

Robyn@...