Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Hi Pierre, I am glad they are starting you on Eprex. Within a few weeks, you should be able to tell a significant improvement in your fatigue and energy level. Nice you don't have to get an additional injection though! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Hi guys, Well, another milestone in my kidney disease history will pass this evening when I finally get my first dose of EPO. Never needed it before (26 years with IgAN). Since I started dialysis last October, my hemoglobin has been hovering around 108-115. They kept hesitating to start me on epo, because everytime my hemoglobin dipped under 110, the next blood work 2 weeks later it was back up again. Consistently under 110 is generally what they look at. But the dips are getting lower. 106 last week. So, the doc decided to order it. They use two types here: Eprex or Aranesp. My dialysis neph mentioned both, but decided on Eprex. People on hemodialysis don't get injections, so the potential antibody reaction problem with under-the-skin injected Eprex is not a factor (the main reason why they use Aranesp). The Eprex is simply put in the dialysis line, for me at present, once a week. So, we'll see how it goes. I also started on Lipitor a couple of weeks ago, for high cholesterol. No problems so far. In fact, except for some dizziness the first day or two, no side effects at all that I can tell. Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Pierre, Sorry to hear that you will need Epo soon. I also noticed that you started on Lipitor. You may want to look into or adjust the dosage of Lipitor. Every time after I was on Statin for 2 or 3 weeks, I would get joint pain and anemic. At first my neph thought the joint pain was gout caused by my high uric acid, so I was prescirbed Allopurinal. It took us awhile to figure that one out. Now I am trying half a pill (5mg) hoping to be able to tolerate it better as I have some stubborn cholestrol numbers to deal with. For the new memebers, I am a long time member. Most of the time I am just lurking as I was able to maintain my kidney funtion at around 40% since diagnosis in December 2001 - my most recent lab was done on May 19, 2003, came back with 1.9 creatinine and 40% creatnine clearance, and urine protein down from 1091 mg to 240 mg. Thanks to fish oil, Lisinopril, Avapro, and off and on Prenisone (a week of 10 mg every other month or so when I had my joint pain before we figured out what's causing it) and Statin (Zocor or Pravacol). Good Health to everyone. > Hi guys, > > Well, another milestone in my kidney disease history will pass this evening > when I finally get my first dose of EPO. Never needed it before (26 years > with IgAN). Since I started dialysis last October, my hemoglobin has been > hovering around 108-115. They kept hesitating to start me on epo, because > everytime my hemoglobin dipped under 110, the next blood work 2 weeks later > it was back up again. Consistently under 110 is generally what they look at. > But the dips are getting lower. 106 last week. So, the doc decided to order > it. > > They use two types here: Eprex or Aranesp. My dialysis neph mentioned both, > but decided on Eprex. People on hemodialysis don't get injections, so the > potential antibody reaction problem with under-the-skin injected Eprex is > not a factor (the main reason why they use Aranesp). The Eprex is simply put > in the dialysis line, for me at present, once a week. So, we'll see how it > goes. > > I also started on Lipitor a couple of weeks ago, for high cholesterol. No > problems so far. In fact, except for some dizziness the first day or two, no > side effects at all that I can tell. > > Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 , Interesting you should mention joint pain and Statins, I have been on 40mg Pravachol for about 1 year and I have had joint pain in my shoulders. I put it down to arthritis and old age creaping on. I mentioned it to my neph just this week and he thought arthritis. Where do you get joint pain? Derrick Sydney Australia f > > Hi guys, > > > > Well, another milestone in my kidney disease history will pass this > evening > > when I finally get my first dose of EPO. Never needed it before (26 > years > > with IgAN). Since I started dialysis last October, my hemoglobin > has been > > hovering around 108-115. They kept hesitating to start me on epo, > because > > everytime my hemoglobin dipped under 110, the next blood work 2 > weeks later > > it was back up again. Consistently under 110 is generally what they > look at. > > But the dips are getting lower. 106 last week. So, the doc decided > to order > > it. > > > > They use two types here: Eprex or Aranesp. My dialysis neph > mentioned both, > > but decided on Eprex. People on hemodialysis don't get injections, > so the > > potential antibody reaction problem with under-the-skin injected > Eprex is > > not a factor (the main reason why they use Aranesp). The Eprex is > simply put > > in the dialysis line, for me at present, once a week. So, we'll see > how it > > goes. > > > > I also started on Lipitor a couple of weeks ago, for high > cholesterol. No > > problems so far. In fact, except for some dizziness the first day > or two, no > > side effects at all that I can tell. > > > > Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Pierre, Welcome to the Eprex and Statin club, you won't know yourself in three weeks time when the Eprex kicks in. Having said that, your dialysis team will keep a close eye on your Hemoglogin level since if rises to much it creates problems with dialysis. I envy you on dialysis for 3.5 hours, I am on for 5 which has caused me to question the length of time I am on. What are your serum creatinine and urea levels now Pierre? Derrick Sydney Australia > Hi guys, > > Well, another milestone in my kidney disease history will pass this evening > when I finally get my first dose of EPO. Never needed it before (26 years > with IgAN). Since I started dialysis last October, my hemoglobin has been > hovering around 108-115. They kept hesitating to start me on epo, because > everytime my hemoglobin dipped under 110, the next blood work 2 weeks later > it was back up again. Consistently under 110 is generally what they look at. > But the dips are getting lower. 106 last week. So, the doc decided to order > it. > > They use two types here: Eprex or Aranesp. My dialysis neph mentioned both, > but decided on Eprex. People on hemodialysis don't get injections, so the > potential antibody reaction problem with under-the-skin injected Eprex is > not a factor (the main reason why they use Aranesp). The Eprex is simply put > in the dialysis line, for me at present, once a week. So, we'll see how it > goes. > > I also started on Lipitor a couple of weeks ago, for high cholesterol. No > problems so far. In fact, except for some dizziness the first day or two, no > side effects at all that I can tell. > > Pierre Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Rotghi, Thanks for that information, you can always learn something on this site. I had muscle pain initially but that has subsided, these pains in my shoulder may just be old age creeping on! Derrick Sydney Australia > > > > Hi guys, > > > > > > > > Well, another milestone in my kidney disease history will pass > > this > > > evening > > > > when I finally get my first dose of EPO. Never needed it before > > (26 > > > years > > > > with IgAN). Since I started dialysis last October, my hemoglobin > > > has been > > > > hovering around 108-115. They kept hesitating to start me on epo, > > > because > > > > everytime my hemoglobin dipped under 110, the next blood work 2 > > > weeks later > > > > it was back up again. Consistently under 110 is generally what > > they > > > look at. > > > > But the dips are getting lower. 106 last week. So, the doc > > decided > > > to order > > > > it. > > > > > > > > They use two types here: Eprex or Aranesp. My dialysis neph > > > mentioned both, > > > > but decided on Eprex. People on hemodialysis don't get > > injections, > > > so the > > > > potential antibody reaction problem with under-the-skin injected > > > Eprex is > > > > not a factor (the main reason why they use Aranesp). The Eprex is > > > simply put > > > > in the dialysis line, for me at present, once a week. So, we'll > > see > > > how it > > > > goes. > > > > > > > > I also started on Lipitor a couple of weeks ago, for high > > > cholesterol. No > > > > problems so far. In fact, except for some dizziness the first day > > > or two, no > > > > side effects at all that I can tell. > > > > > > > > Pierre > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 Derrick, Chandra, and Notghi, Sorry I didn't respond sooner. I didn't open my computer at all this weekend. We (my husband and I) are busy repainting our house - that tells you something about my recovery from my joint pain. My joint pain locations varies, so far hips, knees, feet, and ankles. I haven't had a shoulder pain yet. It usually came on as a dull pain, then could advance to excruciating/debilitating in a couple of days. In my most recent attack, it was gone in four days after I stopped taking Pravachol. Notghi, thanks for the tips for medication, I'll mention that to my neph. I never stopping learning new things from this group! Thanks. > > > > > Hi guys, > > > > > > > > > > Well, another milestone in my kidney disease history will pass > > > this > > > > evening > > > > > when I finally get my first dose of EPO. Never needed it > before > > > (26 > > > > years > > > > > with IgAN). Since I started dialysis last October, my > hemoglobin > > > > has been > > > > > hovering around 108-115. They kept hesitating to start me on > epo, > > > > because > > > > > everytime my hemoglobin dipped under 110, the next blood work > 2 > > > > weeks later > > > > > it was back up again. Consistently under 110 is generally what > > > they > > > > look at. > > > > > But the dips are getting lower. 106 last week. So, the doc > > > decided > > > > to order > > > > > it. > > > > > > > > > > They use two types here: Eprex or Aranesp. My dialysis neph > > > > mentioned both, > > > > > but decided on Eprex. People on hemodialysis don't get > > > injections, > > > > so the > > > > > potential antibody reaction problem with under-the-skin > injected > > > > Eprex is > > > > > not a factor (the main reason why they use Aranesp). The > Eprex is > > > > simply put > > > > > in the dialysis line, for me at present, once a week. So, > we'll > > > see > > > > how it > > > > > goes. > > > > > > > > > > I also started on Lipitor a couple of weeks ago, for high > > > > cholesterol. No > > > > > problems so far. In fact, except for some dizziness the first > day > > > > or two, no > > > > > side effects at all that I can tell. > > > > > > > > > > Pierre > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 --- LOL Pierre I love your sense of humor ! but you are right there must be sth about mustache All the best, Elvira In iga-nephropathy , " Pierre L \(groups\) " <pgl- groups@s...> wrote: > Derrick, > > You know, most of the people I know who are on longer than 3-4 hours are > people who can't get a good enough flow through their access, and so can't > get a good enough dialysis except with a longer time. Maybe the nurses just > like to spend more time with you > > I usually run at a flow of 400 to 450, and I've been as high as 500 without > any problems, but my fistula is excellent, at least so far. > > Here are some of my current numbers: > > K pre-dialysis: 3.8 mmol/L (I seem to retain good kidney function with > respect to potassium, so I'm on No.3 bath) > K post dialysis: 3.6 mmol/L > Urea (pre-treatment): 20.3 mmol/L > Urea (post dialysis): 4.1 mmol/L > Urea reduction rate: 80% > Kt/v: 2.0 > Creatinine: 683 umol/L (that's just before treatment) > > The nephs seem to be satisfied with all that. This Thursday is the first > Thursday of the month, so it's blood work night for me. They do it once a > month like that, except for hemoglobin which they check at mid- month too. > There is one setting on my prescription which I have to remind them each > time because it's unusual. That's the one for bicarb. Most people run at 36. > Mine runs at 32, because apparently my blood isn't acidic enough for the > higher number. The nurses keep forgetting because it's unusual, and it has > to be input into the machine manually. I still run into the odd nurse who > doesn't know how to input that. > > I get on the machine at 1800 hrs. Usually, the nurse that puts me on goes > home at 6:30, and then one from the incoming shift takes over. On my last > treatment, the one who put me on was asking how I got kidney failure, and it > turned out she was very familiar with IgAN. Then the next nurse also asked > the same thing, and she had never heard of it - but she was very interested > in hearing about it. The dialysis centre has about 150 nurses, plus they > sometimes rotate in and out of the two in-patient dialysis units at the > other hospital campuses, so there's a lot of variety in nurses. It's > surprising how many are very attractive though. The other day, two of then > were fighting over who would put me on. Must be because I've regrown my > mustache > > Pierre > > Re: Starting Eprex > > > > Pierre, > > Welcome to the Eprex and Statin club, you won't know yourself > > in three weeks time when the Eprex kicks in. Having said that, your > > dialysis team will keep a close eye on your Hemoglogin level since if > > rises to much it creates problems with dialysis. I envy you on > > dialysis for 3.5 hours, I am on for 5 which has caused me to question > > the length of time I am on. What are your serum creatinine and urea > > levels now Pierre? > > > > > > Derrick > > Sydney Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 Thanks , your heart warming responses make this group feel like home for all of us list memebers!! > Hi , > > Great to hear from you! > > Congratulations on your lab results. Those are excellent numbers! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 Pierre, Thanks for that, figures similar to mine, which is reassuring. The procedure is also similar but the dialysis unit is much larger than the one I attend. Your fistula is appears to be more developed than mine, I am at a flow rate of 300. Thanks for the info. Derrick Sydney Australia > Derrick, > > You know, most of the people I know who are on longer than 3-4 hours are > people who can't get a good enough flow through their access, and so can't > get a good enough dialysis except with a longer time. Maybe the nurses just > like to spend more time with you > > I usually run at a flow of 400 to 450, and I've been as high as 500 without > any problems, but my fistula is excellent, at least so far. > > Here are some of my current numbers: > > K pre-dialysis: 3.8 mmol/L (I seem to retain good kidney function with > respect to potassium, so I'm on No.3 bath) > K post dialysis: 3.6 mmol/L > Urea (pre-treatment): 20.3 mmol/L > Urea (post dialysis): 4.1 mmol/L > Urea reduction rate: 80% > Kt/v: 2.0 > Creatinine: 683 umol/L (that's just before treatment) > > The nephs seem to be satisfied with all that. This Thursday is the first > Thursday of the month, so it's blood work night for me. They do it once a > month like that, except for hemoglobin which they check at mid- month too. > There is one setting on my prescription which I have to remind them each > time because it's unusual. That's the one for bicarb. Most people run at 36. > Mine runs at 32, because apparently my blood isn't acidic enough for the > higher number. The nurses keep forgetting because it's unusual, and it has > to be input into the machine manually. I still run into the odd nurse who > doesn't know how to input that. > > I get on the machine at 1800 hrs. Usually, the nurse that puts me on goes > home at 6:30, and then one from the incoming shift takes over. On my last > treatment, the one who put me on was asking how I got kidney failure, and it > turned out she was very familiar with IgAN. Then the next nurse also asked > the same thing, and she had never heard of it - but she was very interested > in hearing about it. The dialysis centre has about 150 nurses, plus they > sometimes rotate in and out of the two in-patient dialysis units at the > other hospital campuses, so there's a lot of variety in nurses. It's > surprising how many are very attractive though. The other day, two of then > were fighting over who would put me on. Must be because I've regrown my > mustache > > Pierre > > Re: Starting Eprex > > > > Pierre, > > Welcome to the Eprex and Statin club, you won't know yourself > > in three weeks time when the Eprex kicks in. Having said that, your > > dialysis team will keep a close eye on your Hemoglogin level since if > > rises to much it creates problems with dialysis. I envy you on > > dialysis for 3.5 hours, I am on for 5 which has caused me to question > > the length of time I am on. What are your serum creatinine and urea > > levels now Pierre? > > > > > > Derrick > > Sydney Australia Quote Link to comment Share on other sites More sharing options...
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