Guest guest Posted March 20, 2005 Report Share Posted March 20, 2005 Vicki Good for you! your getting well is the key! Hugs Kelley new to group Hi group, I am new to this group, so I don't realy know where or how to start. I have an 18 year old daughter who has been diagnosed with bpd. I feel like I am the one going crazy tho. I am having a hard time figuring out what is behaviour and what is a symptom of the disorder. I am also afraid and on edge most times- terrified to answer the phone in case she's tried killing herself again. She is away at university. I feel horrible, like it is my fault that she is suffering like this. I guess i just need a place to vent, where people will understand. Rita Send questions & concerns to WTOParentsOfBPs-owner . " Stop Walking on Eggshells, " a primer for non-BPs can be ordered via 1-888-35-SHELL (). For the table of contents, see http://www.BPDCentral.com<http://www.bpdcentral.com/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 Hi there, I just wanted to introduce myself to the group. I came over after the chelation group shut down and have been too busy with the kids to spend much time with the group but the last couple days have really enjoyed reading the posts. I get a lot out of other peoples experience and thank-you all for sharing them! I've got 3 boys. The oldest is typical and the younger 2 regressed into autism nine months apart and have mitochondrial disease type 1. Just as I was overcoming the shock of my middle sons regression and learning about what to do my baby (he's 3 today) started to regress. He was 15 months at the time. My boys are on a modified SCD diet (with no casin, yeast, low phenol and sugar). We are also chelating, do namenda, valtrex, B-12, naltrexone, fluconazole and loads of supplements. My children are low functioning. My almost 5 year old started to put words together after we started valtrex but my little one didn't respond. Both boys autism is so similar as far as behavior and blood work the older one is having slow but gradual gains but my baby doesn't respond to much. He regressed in school last year so he has a home ABA program (40 hrs) a week from the school this year ( we gave him 20 hrs. last year after full day preschool) and hes picking up some sign but the biomed doesn't seem to do much for him so far. I know it works cause it is working on my other son. I'm switching DAN! Dr.'s next month hoping that Dr. Rossignal will help us with HBOT. My youngest almost died in the spring because of a reaction to clonidine and I'm pretty sure my current DAN! is now afraid to try things with him. I'm active in trying to get insurance coverage for ABA therapy because I believe that once we clean these little guys up, with biomed., they respond best to the intense 1:1 intervention. I recognize some of the people on here from other lists and look forward to sharing hope with all of you. If your interested in seeing my little guys go to http://www.autismvotes.org/site/c.frKNI3PCImE/b.4445103/k.D5E8/Virginia.htm Autism Votes Virginia and click on the cute little guy, that would be my youngest Korlan or you can look at his webpage (it really needs to be updated) www.korlanneedsyourhelp.org . Take care, Casandra Quote Link to comment Share on other sites More sharing options...
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