Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Hi , Great to hear from you! Congratulations on your lab results. Those are excellent numbers! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Dear Derrick, According to what I've learned, statins can cause joint pain, and of course, muscle pain. The excellent benefit of statins are well known, however. Pravachol is supposed to cause the least of these problems in the drug class. Also, it is possible that the joint pain is from something besides the statin. Depending on how high your cholesterol is, the new medication Zetia may be helpful. You could talk to your doctor about trying it. In 6 weeks if your lipids go up, you might try going to a lower level of the Pravachol and adding Zetia. The combo is very effective according the the studies. Good luck! rotghi Derrick Hartley wrote: > > , > Interesting you should mention joint pain and Statins, I have > been on 40mg Pravachol for about 1 year and I have had joint pain in > my shoulders. I put it down to arthritis and old age creaping on. I > mentioned it to my neph just this week and he thought arthritis. > Where do you get joint pain? > > Derrick > Sydney Australia > > > > > > f > > > Hi guys, > > > > > > Well, another milestone in my kidney disease history will pass > this > > evening > > > when I finally get my first dose of EPO. Never needed it before > (26 > > years > > > with IgAN). Since I started dialysis last October, my hemoglobin > > has been > > > hovering around 108-115. They kept hesitating to start me on epo, > > because > > > everytime my hemoglobin dipped under 110, the next blood work 2 > > weeks later > > > it was back up again. Consistently under 110 is generally what > they > > look at. > > > But the dips are getting lower. 106 last week. So, the doc > decided > > to order > > > it. > > > > > > They use two types here: Eprex or Aranesp. My dialysis neph > > mentioned both, > > > but decided on Eprex. People on hemodialysis don't get > injections, > > so the > > > potential antibody reaction problem with under-the-skin injected > > Eprex is > > > not a factor (the main reason why they use Aranesp). The Eprex is > > simply put > > > in the dialysis line, for me at present, once a week. So, we'll > see > > how it > > > goes. > > > > > > I also started on Lipitor a couple of weeks ago, for high > > cholesterol. No > > > problems so far. In fact, except for some dizziness the first day > > or two, no > > > side effects at all that I can tell. > > > > > > Pierre > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2003 Report Share Posted May 31, 2003 If it's osteoarthritis " old age arthritis " it will show up on xray. Then if it is, you can take Glucosamine Chondrotin which is great and has been proven to help arthritis. Take care! > > > Date: 2003/05/30 Fri PM 10:13:45 EDT > To: iga-nephropathy > Subject: Re: Starting Eprex > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 Derrick, You know, most of the people I know who are on longer than 3-4 hours are people who can't get a good enough flow through their access, and so can't get a good enough dialysis except with a longer time. Maybe the nurses just like to spend more time with you I usually run at a flow of 400 to 450, and I've been as high as 500 without any problems, but my fistula is excellent, at least so far. Here are some of my current numbers: K pre-dialysis: 3.8 mmol/L (I seem to retain good kidney function with respect to potassium, so I'm on No.3 bath) K post dialysis: 3.6 mmol/L Urea (pre-treatment): 20.3 mmol/L Urea (post dialysis): 4.1 mmol/L Urea reduction rate: 80% Kt/v: 2.0 Creatinine: 683 umol/L (that's just before treatment) The nephs seem to be satisfied with all that. This Thursday is the first Thursday of the month, so it's blood work night for me. They do it once a month like that, except for hemoglobin which they check at mid-month too. There is one setting on my prescription which I have to remind them each time because it's unusual. That's the one for bicarb. Most people run at 36. Mine runs at 32, because apparently my blood isn't acidic enough for the higher number. The nurses keep forgetting because it's unusual, and it has to be input into the machine manually. I still run into the odd nurse who doesn't know how to input that. I get on the machine at 1800 hrs. Usually, the nurse that puts me on goes home at 6:30, and then one from the incoming shift takes over. On my last treatment, the one who put me on was asking how I got kidney failure, and it turned out she was very familiar with IgAN. Then the next nurse also asked the same thing, and she had never heard of it - but she was very interested in hearing about it. The dialysis centre has about 150 nurses, plus they sometimes rotate in and out of the two in-patient dialysis units at the other hospital campuses, so there's a lot of variety in nurses. It's surprising how many are very attractive though. The other day, two of then were fighting over who would put me on. Must be because I've regrown my mustache Pierre Re: Starting Eprex > Pierre, > Welcome to the Eprex and Statin club, you won't know yourself > in three weeks time when the Eprex kicks in. Having said that, your > dialysis team will keep a close eye on your Hemoglogin level since if > rises to much it creates problems with dialysis. I envy you on > dialysis for 3.5 hours, I am on for 5 which has caused me to question > the length of time I am on. What are your serum creatinine and urea > levels now Pierre? > > > Derrick > Sydney Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 That was such a nice message . Thanks! That made my day :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 Pierre, Nurses fighting over you? You must be flattered! No wonder you seem so positive about dialysis. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 I think it's probably more a matter of timing (as in when I get taken off) than of charm, and maybe also because I'm easy to needle compared to some, but these days, I'll take my flattery wherever I can get it Pierre Re: Re: Starting Eprex > Pierre, > Nurses fighting over you? You must be flattered! No wonder you seem so > positive about dialysis. :-) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 Pierre, I really don't think that the nurses were fighting over you because you've re-grown your mustache, I bet they were arguing over you because you're probably known around the dialysis unit as Stud Muffin! Come on now, who out there told your little secret? Connie Re: Re: Starting Eprex Derrick, You know, most of the people I know who are on longer than 3-4 hours are people who can't get a good enough flow through their access, and so can't get a good enough dialysis except with a longer time. Maybe the nurses just like to spend more time with you I usually run at a flow of 400 to 450, and I've been as high as 500 without any problems, but my fistula is excellent, at least so far. Here are some of my current numbers: K pre-dialysis: 3.8 mmol/L (I seem to retain good kidney function with respect to potassium, so I'm on No.3 bath) K post dialysis: 3.6 mmol/L Urea (pre-treatment): 20.3 mmol/L Urea (post dialysis): 4.1 mmol/L Urea reduction rate: 80% Kt/v: 2.0 Creatinine: 683 umol/L (that's just before treatment) The nephs seem to be satisfied with all that. This Thursday is the first Thursday of the month, so it's blood work night for me. They do it once a month like that, except for hemoglobin which they check at mid-month too. There is one setting on my prescription which I have to remind them each time because it's unusual. That's the one for bicarb. Most people run at 36. Mine runs at 32, because apparently my blood isn't acidic enough for the higher number. The nurses keep forgetting because it's unusual, and it has to be input into the machine manually. I still run into the odd nurse who doesn't know how to input that. I get on the machine at 1800 hrs. Usually, the nurse that puts me on goes home at 6:30, and then one from the incoming shift takes over. On my last treatment, the one who put me on was asking how I got kidney failure, and it turned out she was very familiar with IgAN. Then the next nurse also asked the same thing, and she had never heard of it - but she was very interested in hearing about it. The dialysis centre has about 150 nurses, plus they sometimes rotate in and out of the two in-patient dialysis units at the other hospital campuses, so there's a lot of variety in nurses. It's surprising how many are very attractive though. The other day, two of then were fighting over who would put me on. Must be because I've regrown my mustache Pierre Re: Starting Eprex > Pierre, > Welcome to the Eprex and Statin club, you won't know yourself > in three weeks time when the Eprex kicks in. Having said that, your > dialysis team will keep a close eye on your Hemoglogin level since if > rises to much it creates problems with dialysis. I envy you on > dialysis for 3.5 hours, I am on for 5 which has caused me to question > the length of time I am on. What are your serum creatinine and urea > levels now Pierre? > > > Derrick > Sydney Australia To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 Oh Connie, You are BAD!!!! :-) I am so glad that we have our wonderful stud muffin that I think I would fight over him too. Re: Starting Eprex > Pierre, > Welcome to the Eprex and Statin club, you won't know yourself > in three weeks time when the Eprex kicks in. Having said that, your > dialysis team will keep a close eye on your Hemoglogin level since if > rises to much it creates problems with dialysis. I envy you on > dialysis for 3.5 hours, I am on for 5 which has caused me to question > the length of time I am on. What are your serum creatinine and urea > levels now Pierre? > > > Derrick > Sydney Australia To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2003 Report Share Posted June 4, 2003 I don't know... that mustache is a pretty powerful attraction Of course, it would look a lot better if it were thicker and not as grey. I'm afraid to try Grecian formula in case it might make me too irresistable. Pierre RE: Re: Starting Eprex > Pierre, > I really don't think that the nurses were fighting over you because you've > re-grown your mustache, I bet they were arguing over you because you're > probably known around the dialysis unit as Stud Muffin! Come on now, who > out there told your little secret? > > Connie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2003 Report Share Posted June 4, 2003 You know PIerre, that's what I like about you... always an abundance of caution. Cy RE: Re: Starting Eprex > Pierre, > I really don't think that the nurses were fighting over you because you've > re-grown your mustache, I bet they were arguing over you because you're > probably known around the dialysis unit as Stud Muffin! Come on now, who > out there told your little secret? > > Connie > Quote Link to comment Share on other sites More sharing options...
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