Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 Does anyone have facial tingling? I have been experiencing tingling on my nose and lips. Like there is a hair across your face but there is nothing there. Drives me nuts. I also am having numbness in my tongue. Makes me a little nervous. Under a lot of stress maybe, so hoping that’s all it is. Thanks, Connie From: MSersLife [mailto:MSersLife ] On Behalf Of |}onna Sent: Saturday, June 23, 2007 8:55 AM To: MSersLife Subject: Re: new weakness Kate, I won't presume to tell you if the numbness and weakness is or is not related to the Tysabri, because I don't have the foggiest idea.. But I can say that I've experienced the extra numbness and the weakness from time to time.. The one time I really remember was when I had to struggle to type.. my hands and fingers didn't want to cooperate. I fought with them though, and continued to force them to type.. made a ton of typos (learned how to hit the backspace key without looking.. LOL).. That was before I was diagnosed.. eventually it cleared up.. whether it left on it's own when the lesion that caused it went away, or whether my brain retrained the message paths to my fngers.. I don't know either.. I still type pretty fast, though tend to make more typos than I did before, though during that time I didn't type as fast because I had to concentrate, just like when I was learning to type in the beginning.... I think I've had one episode similar, though I'm pretty sure it was only one arm that was affected.. that was after diagnosis.. and I was admitted to the hospital, though ummm.. that was the time I walked out and didn't go back.. and haven't been back for anything truly MS related since... (stitches, from a broken glass while washing dishes, that could have been MS related, because I didn't realize the glass was broken until I cut myself..but not " technically " MS related) The one thing we have to remember is that none of the CRAB-T drugs are a sure-fire cure or sure-fire show stopper... We can still have a relapse, even though we're on the therapy.. they have been proven to reduce the number of exacerbations over time.. and then something like 25 to 39% depending on drug.. Well.. that would kind of calculate out to.. an IF/THEN type mathematical equation... IF you had 4 exacerbations per year, at 25% reduction THEN you'd still have 3 exacerbations per year... (39% would mean you'd still have 2.44 exacerbations per year)... and over a period of time, that 1 to 1.56 less exacerbation per year, would lead to less damage/disability than without the therapy.. (that could be why, in the United Kingdom, some medical authority has decided that the drug therapies for MS are NOT cost effective... but in my opinion.. only if you're the medical authority saying so is it not cost effective.. but from MY side of the table.. ANY COST to reduce my disability even the slightest IS cost effective..) Oh there I go again.. the wind blows long and hard in my messages.. LOL.. sorry |}onna new weakness Good Morning group~After yesterday's storms--wild, windy and very rainy, today is a breath of relief; sunshine, azure skies, cool breeze, music of birds...glorious... I'm a wee bit upset and concerned, as for now 7 days, I have a new 'thing': a real weakness and numbness in my right arm but especially in my hand and fingers. Typing is much more difficult and time consuming. I asked my daughter, Lia to put her index finger out so I could try to sqeeze it and have her compare my left and right. She claimed I wasn't even trying on my right side. I insisted I was. She looked a bit baffled. Do I just assume this is MS flaring or progressing? or do I worry that it might be related to the Tysabri? I dunno. I contacted the prescribing doc (for Tysabri) and his nurse said before my vacation (we are leaving June 30 for 2 wks for Myrtle Beach,SC, to visit my in-laws) that I should be seen by MY neuro (who isn't the dr. that ordered the Tysabri) to do a check-up. I DO have an appt. 6/29--same day as Sharon! lol! So that's good... Wondering if anyone else is on Tysabri. I'm supposed to go every 4 wks for an infusion, but we will be away. Technically, that would be July 4. I am wondering if there is a 'window' of time after that I can be infused--like 4 to 6 wks. The prescribing docs nurse 'thought' so, but wasn't certain, and believe it or not, there is no literature regarding this! If I choose to get infused down in SC, it is involved. First off, I have to find an infusion center that is TOUCH certified, then they have to unenroll me up here in NY, enroll me down there, then when I'm back up here, I'll have to re-enroll for NY...Seems a bit of a pain, huh? What would YOU folks do? Just looking for ideas and opinions...Thanks! love to all, kate Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 Hi, Connie: I certainly experience facial tingling. And, yes, it drives me nuts, too. Sadly I don't know what to do about it. I worry that it can develop into extreme pain in the future. --Mr. Dana F. Utz utzdana@... https://home.comcast.net/~utzdana/ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.