Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Jerry, Welcome to the Group. As Darin mentioned, I’m one of several retreads here, having had 2 Tx’s virtually back-to-back in 1985. I’m also one of the Group who has been diagnosed with recurrent PSC, after 17 years of excellent post-tx health. Yes, Darin, I’m at L+18 (eighteen days after being Listed). I finally beat the medical bureaucrats into submission in the last week of April. There were not very many people ahead of me when I was listed, so every time the phone rings now, I jump, and I don’t even go across the street to pick up the mail without my cellphone. Jerry, it’s good to have another experienced voice in the group. I’m glad you found your way here. Steve Rahn L Tx 9/6 & 9/8 '85. (Wash. U-STL) Listed for Re - Tx (U of Iowa) " Do not go gentle into that good night Rage, rage against the dying of the light " (Dylan ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Glad you found this group, Jerry. It's good to have another experienced voice. I'm one of the other " two-timers " but I got mine within a three-day period. I can't imagine having to start all over dealing with tx issues after several years. All my doctors were more or less convinced I had PSC, right up until my formal tx evaluation when suddenly they just weren't sure, so they backed off to a " We don't really know " diagnosis. Today is the second anniversary of my " rebirthday #1 " but haven't had too much chance to sit and ponder the " what ifs? " Lots of relatives will be arriving by evening for my daughter's h.s. graduation on Sunday, so yesterday and today I've been home making my way down one very long " honey-do " list. Well, brisket's in the oven now--one more thing to check off. House painters are finishing up this morning, just in time (thought we needed a little more stress this week). I'm really looking forward to being back in my office Tuesday morning--and getting some rest! Rich in KC Crohns, cryptogenic cirrhosis, liver txs 5/23 & 26/2001 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Thank you for the welcome. Yes it was difficult going through liver failure twice. My first transplant worked very well for about five years (from Oct 1993). My alk phosphatase went haywire after about 3 years. The last year was tough. I had fully expected not to see two grandchildren who were born that last year (I now have seven). But the new liver did become available. I guess the message is - don't give up. Jerry > Glad you found this group, Jerry. It's good to have another > experienced voice. I'm one of the other " two-timers " but I got mine > within a three-day period. I can't imagine having to start all over > dealing with tx issues after several years. All my doctors were more > or less convinced I had PSC, right up until my formal tx evaluation > when suddenly they just weren't sure, so they backed off to a " We > don't really know " diagnosis. > > Today is the second anniversary of my " rebirthday #1 " but haven't > had too much chance to sit and ponder the " what ifs? " Lots of > relatives will be arriving by evening for my daughter's h.s. > graduation on Sunday, so yesterday and today I've been home making > my way down one very long " honey-do " list. Well, brisket's in the > oven now--one more thing to check off. House painters are finishing > up this morning, just in time (thought we needed a little more > stress this week). I'm really looking forward to being back in my > office Tuesday morning--and getting some rest! > > Rich in KC > Crohns, cryptogenic cirrhosis, liver txs 5/23 & 26/2001 > > > > > > Quote Link to comment Share on other sites More sharing options...
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