Guest guest Posted August 9, 2000 Report Share Posted August 9, 2000 No, but I wish she had told us about this for Max. Oh well, he is doing okay with the Zoladex. Jodi FYI > Hi everybody, > My is 10 yrs. old today! I can hardly believe it. He is away at > sleepover camp this week and doing great! This is his first time. A very > big step for all of us.(we had an early Poke'mon birthday party) > Anyway, I saw what Jodi wrote about delaying puberty and thought I would > share what Dr. H. has told us. She has told us she will probably use > as a guinea pig for a drug taken orally. I don't remember the name, but it > seems to me it was estrogen given to women that have breast cancer. I may > be wrong here. It was one of those things that was said on our way out the > door after being there for hrs. I do remember that it was in pill form and > believe she said 21 days on and 7 off. I was relieved that he wouldn't need > shots or other invasive procedures, but then there's the whole > experimenting thing. My husband says that it's all an experiment and we > have put our trust in Dr. H. and we should go with what she thinks best as > far as medical decisions. > Just thought I would share. Has anyone else been told this by Dr. H.? > Pat- Mom to 10yrs.- RSS, periactin, gh, asthma, past hypospadias, > possible ADD > Laine 6 1/2yrs.- none of the above > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 Hopefully this will come through the group. My oldest brother, Jim, is the CEO of the FDLI--the Food and Drug Law Institute. This is something he sent the family to show us some key issues the FDLI is trying to address...I thought it sounds very interesting, and thought provoking. love to all, kate The Food and Drug Law Institute1155 15th Street NW, Suite 800 Washington, DC 20005ph: www.fdli.org Moderator:Geeta Anand Janet Woodcock Ballenger F. Crowley Gottlieb Philip Katz D. Moreno June 28, 2007 | 9:00am – 12:15pm | Fulbright Center, at the offices of Hogan & Hartson | 555 Thirteenth Street, NW, Washington, DC 20004 FDLI’s first Colloquium, “Whose Life Is It Anyway?, focused on the Abigail Alliance case, access to unapproved drugs and related legal issues. The story of Penelope as reported by Geeta Anand in the May 1, 2007 The Wall Street Journal, presents a compelling need for an assessment of the rights, roles and responsibilities of those involved in access decisions and, for expedited processes. When one is willing to exercise the basic right to life by an informed decision to assume any and all risks and take an experimental drug as a final option, should the rights of others be able to prevent access because of different risk assessments? What is or should the law be and whose rights should take precedent - the individual, the corporation or the government? These challenging questions are being faced daily by thousands of Americans who feel helpless by being blocked to grasp the hope of innovation and scientific breakthroughs at their most desperate moments. Where do they turn and what are their options? FDLI has assembled an impressive panel to explore the issues and consequences of risk-based survival decisions. FDLI will ask the panel to derive concepts which are based in law, policy and ethics which might help clear the way to expedited access to experimental but potentially life saving cures. Please participate in this important Colloquium and help us seek solutions. Moderator: Geeta Anand, author, Wall Street Journal Confirmed Speakers: Janet Woodcock, MD, Deputy Commissioner and Chief Medical Officer, FDA Ballenger, Partner, Latham & Watkins F. Crowley, J.D., M.B.A. , President and Chief Executive Officer, Amicus Therapeutics Gottlieb, MD, Resident Fellow, American Enterprise Institute, formerly Deputy Commissioner for Policy, FDA Philip Katz, Partner, Hogan & Hartson, LLP D. Moreno, and Lyn Silfen University Professor at the University of Pennsylvania and Senior Fellow, Center for American Progress Other speakers to be announced as confirmed To register please visit www.fdli.org or call | $295 FDLI member • $395 Non-member (attendance is limited to the first 75 registrants)Student Discounts Available To unsubscribe, click herePlease allow up to one week for your email to be removed from our mailing list. AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Please visit: http://www.bicycleman.com awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour! Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
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