Guest guest Posted June 22, 2007 Report Share Posted June 22, 2007 Thankyou n. I love luv hope and have lots of it.Heck,who knows if its even that,AND if it is maybe the treatment they use for it will make me better or at least feel better. I miss all your posts and replys. Are you busy?feeln ok? The doc said the heat makes me sick because of the disease and alot of patients he has seen with it move,so my mom says like San Francisco. He says ya! She has been wanting to move that way.lol..we had a good laugh. But it is to congested and expensive! So,no way! Lol.. But dear n! I cannot wait to come see you! As soon as they give me treatment,and I feel ok to travel,guess were im goin first?? Guess? To see my dear friend n! I cannot wait! Luv ya! cassy --- MSersLife wrote: > Dear Cassy and group, I am doing well and hanging in here. . and there. Cassy, just > do keep us updated on all of this! My guess is that this may not be as bad as one > might think from reading the NORD sites. Let us hope that as you ARE still here, > that there is lots of room for HOPE and, of course, effective treatment. . .but do > " keep us posted, " love your way, > n > > -------------- Original message -------------- > > Thankyou n. I actually found this before my appt. > And wrote it down to ask the specialist. Then he told > me what he thought was goin on and I told him I had it > written down to ask. He said dont worry about what the > internet says cuz theres alot of bad stuff out there > about it. Well,duh.lol..Only those sites I trust so > maybe its bad stuff but its better to be educated > about it then not know anything. Thanks for the link > and the hope. How are you? I havnt seen you on here as > much and miss you. Hope all is well! Lots of luv, > cassy > --- MSersLife > wrote: > > > http://www.rarediseases.org/search/orgdetail_full.html?org_name=National%20Dysau\ tonomia%20Research%20Foundation > Here's the NORD link sent along with HOPE for Cassy! > > Love, > > n > > > > -------------- Original message -------------- > > > > Cassy,. > > > > You're right nothing sounds good. I'm scared for you > and with you. I > > hope it's not that and I hope it's not MS. I hope > it's all a bad > > dream. Unfortunately we all know it isn't that > either. I do hope yuo > > can get an answer and start treatment soon. > > > > Good luck at the cardio and let us know how it goes. > If there is > > anything I can do please let me know. > > > > Hugs, > > Peggy > > > > > > > > > > Hey guys. Well,im back from seein the doc. He > thinks I > > > have a dysautonomia disease. He thinks this is my > dx > > > but they have to wait to conform it till I see the > > > cardiologist and have testing. I will say im > scared. I > > > came across this today before my appt. On the mayo > or > > > nord site,and it covers my symptoms but dosnt look > > > like a good disease,well,guess theres no such > thing as > > > a good disease hu? Jus thought id let yall know! > Luv > > > to all,cassy > > > > > > > > > > > > > > > __________________________________________________________ > > ______________ > > > Sucker-punch spam with award-winning protection. > > > Try the free Yahoo! Mail Beta. > > > > http://advision.webevents.yahoo.com/mailbeta/features_spam.html > > > > > > > === Message Truncated === ________________________________________________________________________________\ ____ Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search http://search.yahoo.com/search?fr=oni_on_mail & p=graduation+gifts & cs=bz Quote Link to comment Share on other sites More sharing options...
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