new weakness

[Guest guest]

Good Morning group~After yesterday's storms--wild, windy and very rainy, today is a breath of relief; sunshine, azure skies, cool breeze, music of birds...glorious...

I'm a wee bit upset and concerned, as for now 7 days, I have a new 'thing': a real weakness and numbness in my right arm but especially in my hand and fingers. Typing is much more difficult and time consuming. I asked my daughter, Lia to put her index finger out so I could try to sqeeze it and have her compare my left and right. She claimed I wasn't even trying on my right side. I insisted I was. She looked a bit baffled. Do I just assume this is MS flaring or progressing? or do I worry that it might be related to the Tysabri? I dunno. I contacted the prescribing doc (for Tysabri) and his nurse said before my vacation (we are leaving June 30 for 2 wks for Myrtle Beach,SC, to visit my in-laws) that I should be seen by MY neuro (who isn't the dr. that ordered the Tysabri) to do a check-up. I DO have an appt. 6/29--same day as Sharon! lol! So that's good...

Wondering if anyone else is on Tysabri. I'm supposed to go every 4 wks for an infusion, but we will be away. Technically, that would be July 4. I am wondering if there is a 'window' of time after that I can be infused--like 4 to 6 wks. The prescribing docs nurse 'thought' so, but wasn't certain, and believe it or not, there is no literature regarding this! If I choose to get infused down in SC, it is involved. First off, I have to find an infusion center that is TOUCH certified, then they have to unenroll me up here in NY, enroll me down there, then when I'm back up here, I'll have to re-enroll for NY...Seems a bit of a pain, huh? What would YOU folks do? Just looking for ideas and opinions...Thanks! love to all, kate