Re: Sometimes we want to just be disabled!!!

June 13, 2007

Amy, you applied for SSI without a dx? Wow. We applied for SSI for my oldest who had severe ADHD and a pending Autism dx, and were denied twice before they finally granted it on our 3rd attempt. What state are you in?

~Trista~********************************When the world says, "give up,"Hope whispers, "try it one more time."

Re: Sometimes we want to just be disabled!!!> > > > Gee, Mindy...Thanks for being brave enough to bring this up. You really helped break the ice for me, and for some reason, I'm crying right now...I can so totally relate to what you say here. For me, also, with a younger sis with MS--who was dx'd 5 yrs before me--SHE who bikes, works FT, is fit and trim--doesn't tell anyone she has MS! Here I am using a cane most days. I keep saying to myself: use it or lose it. Keep moving. Keep walking. Push yourself. However, I have heard more about the notion of : PACE YOURSELF. and that spoon story too. Like, if we were to bite the bullet, and yes, get into that scooter to do our shopping--groceries or Walmart or wherever--would we not have more energy at home for our family and kids? I am confused also. One day...I don't know when...I might just make the move. Get into one of those scooters and do my shopping...And then what? See how it feels. AND, if anyone asks me--I might just say--I'm finally learning to pace myself....And you know what, Mindy? Some days I just take my cane--even if I don't really need it that day. I think cause I don't "look sick" or, like I have MS either--and unlike my sister, for some reason, I want people to know...AND...while I'm on a roll I'll tell ya this!--when I work down in Tarrytown, NY at my little nursery school job--if I don't have my cane--the cars don't stop as often to let me cross the pedestrian crossing--but gee whiz--have my cane? They stop on a dime for me! Go figure! So, there can be perks with a cane! Again, I'm very, very happy you brought this topic up. It is a real source of angst for me personally . bless you, kate> > > > Now, I don't mean this to start another controversy. I am > > totally > > empathetic to those in a wheelchair.> > > > But for those of you that are not....do you ever wish sometimes > > you > > were just so you have an excuse? Maybe I'm just more vain > > then I > > realized. But today, I was doing my grocery shopping and I have > > a > > bad case of "concrete" legs and some heavy duty vibrating going > > on in > > my spinal chord (the nasueating kind). I was trying to walk > > around > > the store and holding on to my cart tightly while trying to > > maintain > > some sense of "there is nothing wrong with me". > > > > To most, I look totally healthy. I was looking at the electric > > carts > > and drooling but I wouldn't get into one because I don't "look" > > sick > > and I know people will be thinking I'm just lazy. Isn't that awful???> > At the same time, I get so confuddled in the stores anyways > > because I > > can't piece together where something would be anymore and I ask > > for > > help a lot in finding things. > > > > Plus, the worse thing is that we are such a small area and > > everyone > > knows me from my business. I had to stop and talk to at least > > five > > people and their interruptions sent me in the wrong direction > > for the > > next item. I was so flustered when I left and I'm sure I don't > > have > > half the stuff I need.> > > > Speaking of small towns, Akyba, I think I saw your hubby today. > > Was > > he in IM? Red van, right? > > > > Anyways, I'm going to take a nap...my body is telling me it's > > way > > over due.> > > > > > > > > > > Please visit: http://www.bicycleman.com > awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour!>

June 13, 2007

I began the process and began again, getting as far as a phone interview. During that call, I was told my son/s would not qualify as we had "too many vehicles". ROFLMHO Challis Trista wrote: Amy, you applied for SSI without a dx? Wow. We applied for SSI for my oldest who had severe ADHD and a pending Autism dx, and were denied twice before they finally granted it on our 3rd

attempt. What state are you in? ~Trista~********************************When the world says, "give up,"Hope whispers, "try it one more time." Re: Sometimes we want to just be disabled!!!> > > > Gee, Mindy...Thanks for being brave enough to bring this up. You really helped break the ice for me, and for some reason, I'm crying right now...I can so totally relate to what you say here. For me, also, with a younger sis with MS--who was dx'd 5 yrs before me--SHE who bikes, works FT, is fit and trim--doesn't tell anyone she has MS! Here I am using a cane most days. I keep saying to myself: use it or lose it. Keep moving. Keep walking. Push yourself. However, I have heard more about the notion of : PACE YOURSELF. and that spoon story too. Like, if we were to bite the bullet, and yes, get into that scooter to do our shopping--groceries or Walmart or wherever--would we not have more energy at home for our family and kids? I am confused also. One day...I don't know when...I might just

make the move. Get into one of those scooters and do my shopping...And then what? See how it feels. AND, if anyone asks me--I might just say--I'm finally learning to pace myself....And you know what, Mindy? Some days I just take my cane--even if I don't really need it that day. I think cause I don't "look sick" or, like I have MS either--and unlike my sister, for some reason, I want people to know...AND...while I'm on a roll I'll tell ya this!--when I work down in Tarrytown, NY at my little nursery school job--if I don't have my cane--the cars don't stop as often to let me cross the pedestrian crossing--but gee whiz--have my cane? They stop on a dime for me! Go figure! So, there can be perks with a cane! Again, I'm very, very happy you brought this topic up. It is a real source of angst for me personally . bless you, kate> > > > Now, I don't mean this to start another controversy. I am >

> totally > > empathetic to those in a wheelchair.> > > > But for those of you that are not....do you ever wish sometimes > > you > > were just so you have an excuse? Maybe I'm just more vain > > then I > > realized. But today, I was doing my grocery shopping and I have > > a > > bad case of "concrete" legs and some heavy duty vibrating going > > on in > > my spinal chord (the nasueating kind). I was trying to walk > > around > > the store and holding on to my cart tightly while trying to > > maintain > > some sense of "there is nothing wrong with me". > > > > To most, I look totally healthy. I was looking at the electric > > carts > > and drooling but I wouldn't get into one because I don't "look" > > sick > > and I know people will be thinking I'm just lazy.

Isn't that awful???> > At the same time, I get so confuddled in the stores anyways > > because I > > can't piece together where something would be anymore and I ask > > for > > help a lot in finding things. > > > > Plus, the worse thing is that we are such a small area and > > everyone > > knows me from my business. I had to stop and talk to at least > > five > > people and their interruptions sent me in the wrong direction > > for the > > next item. I was so flustered when I left and I'm sure I don't > > have > > half the stuff I need.> > > > Speaking of small towns, Akyba, I think I saw your hubby today. > > Was > > he in IM? Red van, right? > > > > Anyways, I'm going to take a nap...my body is telling me it's > > way > > over due.>

> > > > > > > > > > Please visit: http://www.bicycleman.com > awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour!>

Be a better Globetrotter. Get better travel answers from someone who knows.Yahoo! Answers - Check it out.

June 13, 2007

Show Off! Today it's 110 here in the Arizona Sonoran Desert. Sharon "Happiness is not a destination. It is a method of life." -Burton Hills Re: Sometimes we want to just be disabled!!!

You're welcome to visit the coast of New England. I'm not far from Cape Cod, it's almost noon, and only 54 degrees. I wore a jacket when I left the house today and put the heat on in my car. It's also drizzling. Well, it technically still is spring. I will enjoy it while it lasts... Suemindythores <mindythornyahoo (DOT) com> wrote: Stay cool today everyone...it' s already hot at 7:30am!! Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail, news, photos more.

Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online.

June 13, 2007

Trista, I'm in Idaho. SSI is based on symptoms, not necessarily just

dx. At the time I applied, I wasn't on meds yet and was fallign 6x

daily and jerking all the time. I still jerk intermittently -

generally several times weekly, sometimes worse (like last Tuesday,

several hours in a chunk, preceded an ugly, legs-won't-behave-must

use-cane-even-at-home week.)

My daughter qualified for SSI with a dx that's not *yet* in their

magic blue book. (she has eosinophilic esophagitis ... info at

www.apfed.org.) That's because her disorder is what they term

*equivalent* in impact to others in their book ... I had to document

her diagnosis, her symptoms, show how it met equivalency standards,

etc.

My dr wrote an excellent letter (I gave him the template from the

MSAA), and I hope it will be approved.

However, realize I already got two denials (last one was

because " arms and legs work normally in between the times that they

dont' " ) .. I " m waiting on a judge's meeting. Supposed to be last

fall, you'll notice it's already pushign for summer. Still waiting.

Their SSI neuro wrote that I couldn't drive or work. However, the ***

didn't read their info on the type of letter you need to send - while

I'm flailing, without body control, he focuses on the fact that my

mouth twitches. Okay, of all the symptoms, that's the LEAST

important, TYVM.

And I do have a dx ... it's just still a dx of " clinically possible

MS " . Dr & I believe it IS MS, but they are OBLIGATED to stick with

clinically possible language until / unless you show lesions ... I've

been on Copaxone for 18 months, so who knows if that's preventing /

healilng lesions? I'm not willing to go OFF it to prove a name.

I have no insurance, so applying was a no brainer. It's my only

option to get any kind of medical coverage - I couldn't afford

insurance through hubby's work when I was healthy, I sure as hell

can't afford any insurance now with pre-existing. On top of the

expenses we already HAD, I have about $100 / month split out between

hospital bill, neuro bill, guy who read the last MRI bill, and

Copaxone grant. THat, and remodel we did planning to MOVE so I could

get a **** downstairs bedroom, and now my hubby doesn't want to move.

I told him if SSI qualifies, I'm taking a chunk of that money and

doing the remodel needed to move our room downstairs (our room is

15x12, downstairs bedroom is 10x12 and HAS to keep the office crap in

it, there's no other place ... only way is with built-in's via

carpenter) ... hubby thought I was jumping the gun. Well, yes, I do

get up the stairs. I hang on, I do one step at a time, and I don't go

back up once I'm downstairs til bedtime ... but I do end up getting

up there. He's the same one that didn't want me in the riding cart at

first. (He realizes now that he was wrong ... he also didn't want DD

to have a feeding tube when she needed it since it would make her

*look sick*. He knew she WAS sick, but just didn't want her to *look

sick*.)

Moron SSI doc didn't understand why I was applying since I'm home

with kids, not *working*. Didn't realize that SSI is distinct from

SSDI, and SSI doesn't require work history, is related to disability

+ income/asset levels.

Anyway - not approved yet, but yes, I applied. It backdates if it

ever qualifies, so waiting isn't necessarily an advantage.

Amy in Idaho

> >

> > You know girls, I can totally relate. Here is how my thinking

> goes..............

> > 1. Other people might need the cart more

> > 2. Older people might need it more (I'm 36. This is crazy,

because

> most days the elderly could walk circles around me.)

> > 3. I have " no dx " . (which isn't completely true, but if I say

> possible MS,,people might ask more questions that I don't feel

like

> answering. If I say CFS/FM/MM.........still more questions.)

> > 4. What if people wonder why I need a cart today, when just a

few

> days ago I could walk ok?

> > 5. If I use it due to fatigue........ am I going to get some

> annoying person trying to tell me they know how it feels to be

> tired? NOT tired......fatigued.

> > 6. If I use it because of fatigue........ am I going to get

some

> well meaning person that scolds me and says I need to be getting

more

> sleep, or should see the Dr. or have I tried Melatonin? lol. Yes,

> it happened.

> >

> > Some days I am too prideful to use my cane when I need it. (I

know

> it's stupid) Yet, some days I use it when I don't need it,

because I

> don't want people to assume I'm " up for anything " , since I'm

feeling

> better. I am still learning. In the time I have been on this

group

> (a little over 2 years, maybe 2.5) I have learned so much from

you

> all. This is the place I can come to tell what's going on.......

and

> you " get it " . I get angry that I can't do what I want, when I

want.

> How dare my body not do what I want it to!? Yet, even through my

> anger, I am thankful. I am thankful for the lessons I am learning

on

> this journey. No, I don't want to go through his, but I might as

> well make the best of it, and be thankful for the blessings that

come

> with it. There are blessings.

> >

> > ~Trista~

> > ********************************

> > When the world says, " give up, "

> > Hope whispers, " try it one more time. "

> > Re: Sometimes we want to just be disabled!!!

> >

> > Gee, Mindy...Thanks for being brave enough to bring this up.

You

> really helped break the ice for me, and for some reason, I'm

crying

> right now...I can so totally relate to what you say here. For me,

> also, with a younger sis with MS--who was dx'd 5 yrs before me--

SHE

> who bikes, works FT, is fit and trim--doesn't tell anyone she has

MS!

> Here I am using a cane most days. I keep saying to myself: use it

or

> lose it. Keep moving. Keep walking. Push yourself. However, I

have

> heard more about the notion of : PACE YOURSELF. and that spoon

story

> too. Like, if we were to bite the bullet, and yes, get into that

> scooter to do our shopping--groceries or Walmart or wherever--

would

> we not have more energy at home for our family and kids? I am

> confused also. One day...I don't know when...I might just make

the

> move. Get into one of those scooters and do my shopping...And

then

> what? See how it feels. AND, if anyone asks me--I might just say--

I'm

> finally learning to pace myself....And you know what, Mindy? Some

> days I just take my cane--even if I don't really need it that

day. I

> think cause I don't " look sick " or, like I have MS either--and

unlike

> my sister, for some reason, I want people to know...AND...while

I'm

> on a roll I'll tell ya this!--when I work down in Tarrytown, NY

at my

> little nursery school job--if I don't have my cane--the cars

don't

> stop as often to let me cross the pedestrian crossing--but gee

whiz--

> have my cane? They stop on a dime for me! Go figure! So, there

can be

> perks with a cane! Again, I'm very, very happy you brought this

topic

> up. It is a real source of angst for me personally . bless you,

kate

> >

> > > Now, I don't mean this to start another controversy. I am

> > > totally

> > > empathetic to those in a wheelchair.

> > >

> > > But for those of you that are not....do you ever wish

sometimes

> > > you

> > > were just so you have an excuse? Maybe I'm just more vain

> > > then I

> > > realized. But today, I was doing my grocery shopping and I

have

> > > a

> > > bad case of " concrete " legs and some heavy duty vibrating

going

> > > on in

> > > my spinal chord (the nasueating kind). I was trying to walk

> > > around

> > > the store and holding on to my cart tightly while trying to

> > > maintain

> > > some sense of " there is nothing wrong with me " .

> > >

> > > To most, I look totally healthy. I was looking at the

electric

> > > carts

> > > and drooling but I wouldn't get into one because I

don't " look "

> > > sick

> > > and I know people will be thinking I'm just lazy. Isn't that

> awful???

> > > At the same time, I get so confuddled in the stores anyways

> > > because I

> > > can't piece together where something would be anymore and I

ask

> > > for

> > > help a lot in finding things.

> > >

> > > Plus, the worse thing is that we are such a small area and

> > > everyone

> > > knows me from my business. I had to stop and talk to at least

> > > five

> > > people and their interruptions sent me in the wrong direction

> > > for the

> > > next item. I was so flustered when I left and I'm sure I

don't

> > > have

> > > half the stuff I need.

> > >

> > > Speaking of small towns, Akyba, I think I saw your hubby

today.

> > > Was

> > > he in IM? Red van, right?

> > >

> > > Anyways, I'm going to take a nap...my body is telling me it's

> > > way

> > > over due.

> > >

> >

> > Please visit: http://www.bicycleman.com

> > awesome guy, fantastic site. All types of bicyles, many

> recumbents; perfect for an MS Bike Tour!

> >

>

June 13, 2007

I wish you all the luck in the world on the SSI. And I agree that you will need that room downstairs. My fil is leaving his house to us. I was telling my DH that I'd rather move towards the coast in a one story home. He agrees. His dad had to convert the game room into his room about 7 years ago, when his legs wouldn't make it upstairs anymore. What can I do with a huge house that's 2 story, when I won't be able to go up there? lol. I can still walk stairs, but not easily. My legs just aren't strong enough, and I just don't have the energy anymore.

By the way, when I worked at the SSA here years ago, they denied a poor lady who had cancer and was going through chemo/radiation. Know why? Because her job was not a "high tech" job. They figured she would be fine going back to picking fruit. I was so disgusted.

~Trista~********************************When the world says, "give up,"Hope whispers, "try it one more time."

Re: Sometimes we want to just be disabled!!!> > > > > > > > Gee, Mindy...Thanks for being brave enough to bring this up. You > really helped break the ice for me, and for some reason, I'm crying > right now...I can so totally relate to what you say here. For me, > also, with a younger sis with MS--who was dx'd 5 yrs before me--SHE > who bikes, works FT, is fit and trim--doesn't tell anyone she has MS! > Here I am using a cane most days. I keep saying to myself: use it or > lose it. Keep moving. Keep walking. Push yourself. However, I have > heard more about the notion of : PACE YOURSELF. and that spoon story > too. Like, if we were to bite the bullet, and yes, get into that > scooter to do our shopping--groceries or Walmart or wherever--would > we not have more energy at home for our family and kids? I am > confused also. One day...I don't know when...I might just make the > move. Get into one of those scooters and do my shopping...And then > what? See how it feels. AND, if anyone asks me--I might just say--I'm > finally learning to pace myself....And you know what, Mindy? Some > days I just take my cane--even if I don't really need it that day. I > think cause I don't "look sick" or, like I have MS either--and unlike > my sister, for some reason, I want people to know...AND...while I'm > on a roll I'll tell ya this!--when I work down in Tarrytown, NY at my > little nursery school job--if I don't have my cane--the cars don't > stop as often to let me cross the pedestrian crossing--but gee whiz--> have my cane? They stop on a dime for me! Go figure! So, there can be > perks with a cane! Again, I'm very, very happy you brought this topic > up. It is a real source of angst for me personally . bless you, kate> > > > > > > Now, I don't mean this to start another controversy. I am > > > totally > > > empathetic to those in a wheelchair.> > > > > > But for those of you that are not....do you ever wish sometimes > > > you > > > were just so you have an excuse? Maybe I'm just more vain > > > then I > > > realized. But today, I was doing my grocery shopping and I have > > > a > > > bad case of "concrete" legs and some heavy duty vibrating going > > > on in > > > my spinal chord (the nasueating kind). I was trying to walk > > > around > > > the store and holding on to my cart tightly while trying to > > > maintain > > > some sense of "there is nothing wrong with me". > > > > > > To most, I look totally healthy. I was looking at the electric > > > carts > > > and drooling but I wouldn't get into one because I don't "look" > > > sick > > > and I know people will be thinking I'm just lazy. Isn't that > awful???> > > At the same time, I get so confuddled in the stores anyways > > > because I > > > can't piece together where something would be anymore and I ask > > > for > > > help a lot in finding things. > > > > > > Plus, the worse thing is that we are such a small area and > > > everyone > > > knows me from my business. I had to stop and talk to at least > > > five > > > people and their interruptions sent me in the wrong direction > > > for the > > > next item. I was so flustered when I left and I'm sure I don't > > > have > > > half the stuff I need.> > > > > > Speaking of small towns, Akyba, I think I saw your hubby today. > > > Was > > > he in IM? Red van, right? > > > > > > Anyways, I'm going to take a nap...my body is telling me it's > > > way > > > over due.> > > > > > > > > > > > > > > > > > Please visit: http://www.bicycleman.com > > awesome guy, fantastic site. All types of bicyles, many > recumbents; perfect for an MS Bike Tour!> >>

June 13, 2007

Huh? lol. We do too, but we still qualify.

~Trista~********************************When the world says, "give up,"Hope whispers, "try it one more time."

Re: Sometimes we want to just be disabled!!!> > > > Gee, Mindy...Thanks for being brave enough to bring this up. You really helped break the ice for me, and for some reason, I'm crying right now...I can so totally relate to what you say here. For me, also, with a younger sis with MS--who was dx'd 5 yrs before me--SHE who bikes, works FT, is fit and trim--doesn't tell anyone she has MS! Here I am using a cane most days. I keep saying to myself: use it or lose it. Keep moving. Keep walking. Push yourself. However, I have heard more about the notion of : PACE YOURSELF. and that spoon story too. Like, if we were to bite the bullet, and yes, get into that scooter to do our shopping--groceries or Walmart or wherever--would we not have more energy at home for our family and kids? I am confused also. One day...I don't know when...I might just make the move. Get into one of those scooters and do my shopping...And then what? See how it feels. AND, if anyone asks me--I might just say--I'm finally learning to pace myself....And you know what, Mindy? Some days I just take my cane--even if I don't really need it that day. I think cause I don't "look sick" or, like I have MS either--and unlike my sister, for some reason, I want people to know...AND...while I'm on a roll I'll tell ya this!--when I work down in Tarrytown, NY at my little nursery school job--if I don't have my cane--the cars don't stop as often to let me cross the pedestrian crossing--but gee whiz--have my cane? They stop on a dime for me! Go figure! So, there can be perks with a cane! Again, I'm very, very happy you brought this topic up. It is a real source of angst for me personally . bless you, kate> > > > Now, I don't mean this to start another controversy. I am > > totally > > empathetic to those in a wheelchair.> > > > But for those of you that are not....do you ever wish sometimes > > you > > were just so you have an excuse? Maybe I'm just more vain > > then I > > realized. But today, I was doing my grocery shopping and I have > > a > > bad case of "concrete" legs and some heavy duty vibrating going > > on in > > my spinal chord (the nasueating kind). I was trying to walk > > around > > the store and holding on to my cart tightly while trying to > > maintain > > some sense of "there is nothing wrong with me". > > > > To most, I look totally healthy. I was looking at the electric > > carts > > and drooling but I wouldn't get into one because I don't "look" > > sick > > and I know people will be thinking I'm just lazy. Isn't that awful???> > At the same time, I get so confuddled in the stores anyways > > because I > > can't piece together where something would be anymore and I ask > > for > > help a lot in finding things. > > > > Plus, the worse thing is that we are such a small area and > > everyone > > knows me from my business. I had to stop and talk to at least > > five > > people and their interruptions sent me in the wrong direction > > for the > > next item. I was so flustered when I left and I'm sure I don't > > have > > half the stuff I need.> > > > Speaking of small towns, Akyba, I think I saw your hubby today. > > Was > > he in IM? Red van, right? > > > > Anyways, I'm going to take a nap...my body is telling me it's > > way > > over due.> > > > > > > > > > > Please visit: http://www.bicycleman.com > awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour!>

Be a better Globetrotter. Get better travel answers from someone who knows.Yahoo! Answers - Check it out.

June 13, 2007

Hi I found this video of Fairhaven on Youtube that looks like a nice area.

Bill

Harbour Tour New Bedford Fairhaven MA04:15

Re: Sometimes we want to just be disabled!!!

I'm not on the Cape - about 20 minutes west in a town called Fairhaven. I'm less than a mile from the water. Now that "Deadliest Catch" on the Discovery channel about the king crab fishing is over, they were doing a show on catching lobsters this weekend, and one of the boats was from my town. We're famous now.Suekatelloydkidzoptonline (DOT) net wrote:

We have a chilly 64 here in NY ...And to think it was 91 and sticky humid just last wk! What part of the Cape are you? We adore N. Truro. Might just plan a long wk end there with the kids, but the prices are soaring there since we've been last there in the 80's...Love the bike path in the dunes too--just lovely! blessings, kate> You're welcome to visit the coast of New England. I'm not far > from Cape Cod, it's almost noon, and only 54 degrees. I wore a > jacket when I left the house today and put the heat on in my > car. It's also drizzling. Well, it technically still is > spring. I will enjoy it while it lasts...> > Sue> > mindythores wrote:> > Stay cool today everyone...it's already hot at 7:30am!!> > > > > > > ---------------------------------> Take the Internet to Go: Yahoo!Go puts the Internet in your > pocket: mail, news, photos & more. > Please visit: http://www.bicycleman.com awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour!begin:vcardn:Rothschild;katefn:Kate Rothschildtel;cell:tel;home:914 762-8734tel;work:914 332-1943url:http://www.phil413.isagenix.com/org:http://www.allinonebusiness.net;Recharge Your Chiurl:http://www.phil413.isagenix.com/adr:;;;Ossining;NY;10562;USAemail;internet:katelloydkidzoptonline (DOT) netemail;home;internet:katelloydkidzoptonline (DOT) nettitle:Associate and moving UP!version:2.1end:vcard

Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us.

June 14, 2007

Trista, I'm okay with a 2 story house IF what's upstairs is just the

kids' rooms & bathrooms - then I don't *have* to go up there. I want,

on ONE level, my bedroom, a school/office room, laundry, kitchen,

food storage (currently in upstairs kid's bedroom closet), living

room (currently 2 steps down). I was just so angry after I worked my

butt off last year - hubby put deadlines!!! on me finishing painting

& oiling walls by scheduling in the floor people. His rationale was

that otherwise I might not finish til October. That made my life last

year much harder than it needed to be. Then this spring when he was

reluctant to talk to real estate, he finally admitted he's afraid to

move. I'm angry becasue if I had known that, I would have skipped

doing the **** carpet and gotten a carpenter in to do the work I need

to make the downstairs bedroom work.

Sigh.

Amy

> > >

> > > You know girls, I can totally relate. Here is how my thinking

> > goes..............

> > > 1. Other people might need the cart more

> > > 2. Older people might need it more (I'm 36. This is crazy,

> because

> > most days the elderly could walk circles around me.)

> > > 3. I have " no dx " . (which isn't completely true, but if I say

> > possible MS,,people might ask more questions that I don't feel

> like

> > answering. If I say CFS/FM/MM.........still more questions.)

> > > 4. What if people wonder why I need a cart today, when just a

> few

> > days ago I could walk ok?

> > > 5. If I use it due to fatigue........ am I going to get some

> > annoying person trying to tell me they know how it feels to be

> > tired? NOT tired......fatigued.

> > > 6. If I use it because of fatigue........ am I going to get

> some

> > well meaning person that scolds me and says I need to be

getting

> more

> > sleep, or should see the Dr. or have I tried Melatonin? lol.

Yes,

> > it happened.

> > >

> > > Some days I am too prideful to use my cane when I need it. (I

> know

> > it's stupid) Yet, some days I use it when I don't need it,

> because I

> > don't want people to assume I'm " up for anything " , since I'm

> feeling

> > better. I am still learning. In the time I have been on this

> group

> > (a little over 2 years, maybe 2.5) I have learned so much from

> you

> > all. This is the place I can come to tell what's going

on.......

> and

> > you " get it " . I get angry that I can't do what I want, when I

> want.

> > How dare my body not do what I want it to!? Yet, even through

my

> > anger, I am thankful. I am thankful for the lessons I am

learning

> on

> > this journey. No, I don't want to go through his, but I might

as

> > well make the best of it, and be thankful for the blessings

that

> come

> > with it. There are blessings.

> > >

> > > ~Trista~

> > > ********************************

> > > When the world says, " give up, "

> > > Hope whispers, " try it one more time. "

> > > Re: Sometimes we want to just be disabled!!!

> > >

> > > Gee, Mindy...Thanks for being brave enough to bring this up.

> You

> > really helped break the ice for me, and for some reason, I'm

> crying

> > right now...I can so totally relate to what you say here. For

me,

> > also, with a younger sis with MS--who was dx'd 5 yrs before me--

> SHE

> > who bikes, works FT, is fit and trim--doesn't tell anyone she

has

> MS!

> > Here I am using a cane most days. I keep saying to myself: use

it

> or

> > lose it. Keep moving. Keep walking. Push yourself. However, I

> have

> > heard more about the notion of : PACE YOURSELF. and that spoon

> story

> > too. Like, if we were to bite the bullet, and yes, get into

that

> > scooter to do our shopping--groceries or Walmart or wherever--

> would

> > we not have more energy at home for our family and kids? I am

> > confused also. One day...I don't know when...I might just make

> the

> > move. Get into one of those scooters and do my shopping...And

> then

> > what? See how it feels. AND, if anyone asks me--I might just

say--

> I'm

> > finally learning to pace myself....And you know what, Mindy?

Some

> > days I just take my cane--even if I don't really need it that

> day. I

> > think cause I don't " look sick " or, like I have MS either--and

> unlike

> > my sister, for some reason, I want people to know...AND...while

> I'm

> > on a roll I'll tell ya this!--when I work down in Tarrytown, NY

> at my

> > little nursery school job--if I don't have my cane--the cars

> don't

> > stop as often to let me cross the pedestrian crossing--but gee

> whiz--

> > have my cane? They stop on a dime for me! Go figure! So, there

> can be

> > perks with a cane! Again, I'm very, very happy you brought this

> topic

> > up. It is a real source of angst for me personally . bless you,

> kate

> > >

> > > > Now, I don't mean this to start another controversy. I am

> > > > totally

> > > > empathetic to those in a wheelchair.

> > > >

> > > > But for those of you that are not....do you ever wish

> sometimes

> > > > you

> > > > were just so you have an excuse? Maybe I'm just more vain

> > > > then I

> > > > realized. But today, I was doing my grocery shopping and I

> have

> > > > a

> > > > bad case of " concrete " legs and some heavy duty vibrating

> going

> > > > on in

> > > > my spinal chord (the nasueating kind). I was trying to walk

> > > > around

> > > > the store and holding on to my cart tightly while trying to

> > > > maintain

> > > > some sense of " there is nothing wrong with me " .

> > > >

> > > > To most, I look totally healthy. I was looking at the

> electric

> > > > carts

> > > > and drooling but I wouldn't get into one because I

> don't " look "

> > > > sick

> > > > and I know people will be thinking I'm just lazy. Isn't

that

> > awful???

> > > > At the same time, I get so confuddled in the stores anyways

> > > > because I

> > > > can't piece together where something would be anymore and I

> ask

> > > > for

> > > > help a lot in finding things.

> > > >

> > > > Plus, the worse thing is that we are such a small area and

> > > > everyone

> > > > knows me from my business. I had to stop and talk to at

least

> > > > five

> > > > people and their interruptions sent me in the wrong

direction

> > > > for the

> > > > next item. I was so flustered when I left and I'm sure I

> don't

> > > > have

> > > > half the stuff I need.

> > > >

> > > > Speaking of small towns, Akyba, I think I saw your hubby

> today.

> > > > Was

> > > > he in IM? Red van, right?

> > > >

> > > > Anyways, I'm going to take a nap...my body is telling me

it's

> > > > way

> > > > over due.

> > > >

> > >

> > > Please visit: http://www.bicycleman.com

> > > awesome guy, fantastic site. All types of bicyles, many

> > recumbents; perfect for an MS Bike Tour!

> > >

> >

>

June 14, 2007

The rule is one house, one car, of ANY VALUE, any other cars count

against your total assets. If you need multiple cars, they need to be

older. We have an 97 pickup truck for his business, and 80 pickup

truck he used to drive to work when I drove the newer truck (these

are on initial app) - we bought a 95 Explorer last year becasue the

good pickup has 225K miles,, hubby was worried mechanically, and it

was getting harder for me to get into it independently. He had to

shove me in on several occasions when my legs wouldn't cooperate.

Amy

> >

> > You know girls, I can totally relate. Here is how my

thinking

> goes..............

> > 1. Other people might need the cart more

> > 2. Older people might need it more (I'm 36. This is crazy,

because

> most days the elderly could walk circles around me.)

> > 3. I have " no dx " . (which isn't completely true, but if I

say

> possible MS,,people might ask more questions that I don't

feel like

> answering. If I say CFS/FM/MM.........still more questions.)

> > 4. What if people wonder why I need a cart today, when just

a few

> days ago I could walk ok?

> > 5. If I use it due to fatigue........ am I going to get

some

> annoying person trying to tell me they know how it feels to

be

> tired? NOT tired......fatigued.

> > 6. If I use it because of fatigue........ am I going to get

some

> well meaning person that scolds me and says I need to be

getting more

> sleep, or should see the Dr. or have I tried Melatonin? lol.

Yes,

> it happened.

> >

> > Some days I am too prideful to use my cane when I need it.

(I know

> it's stupid) Yet, some days I use it when I don't need it,

because I

> don't want people to assume I'm " up for anything " , since I'm

feeling

> better. I am still learning. In the time I have been on this

group

> (a little over 2 years, maybe 2.5) I have learned so much

from you

> all. This is the place I can come to tell what's going

on....... and

> you " get it " . I get angry that I can't do what I want, when I

want.

> How dare my body not do what I want it to!? Yet, even through

my

> anger, I am thankful. I am thankful for the lessons I am

learning on

> this journey. No, I don't want to go through his, but I might

as

> well make the best of it, and be thankful for the blessings

that come

> with it. There are blessings.

> >

> > ~Trista~

> > ********************************

> > When the world says, " give up, "

> > Hope whispers, " try it one more time. "

> > Re: Sometimes we want to just be

disabled!!!

> >

> > Gee, Mindy...Thanks for being brave enough to bring this

up. You

> really helped break the ice for me, and for some reason, I'm

crying

> right now...I can so totally relate to what you say here. For

me,

> also, with a younger sis with MS--who was dx'd 5 yrs before

me--SHE

> who bikes, works FT, is fit and trim--doesn't tell anyone she

has MS!

> Here I am using a cane most days. I keep saying to myself:

use it or

> lose it. Keep moving. Keep walking. Push yourself. However, I

have

> heard more about the notion of : PACE YOURSELF. and that

spoon story

> too. Like, if we were to bite the bullet, and yes, get into

that

> scooter to do our shopping--groceries or Walmart or wherever--

would

> we not have more energy at home for our family and kids? I am

> confused also. One day...I don't know when...I might just

make the

> move. Get into one of those scooters and do my shopping...And

then

> what? See how it feels. AND, if anyone asks me--I might just

say--I'm

> finally learning to pace myself....And you know what, Mindy?

Some

> days I just take my cane--even if I don't really need it that

day. I

> think cause I don't " look sick " or, like I have MS either--

and unlike

> my sister, for some reason, I want people to

know...AND...while I'm

> on a roll I'll tell ya this!--when I work down in Tarrytown,

NY at my

> little nursery school job--if I don't have my cane--the cars

don't

> stop as often to let me cross the pedestrian crossing--but

gee whiz--

> have my cane? They stop on a dime for me! Go figure! So,

there can be

> perks with a cane! Again, I'm very, very happy you brought

this topic

> up. It is a real source of angst for me personally . bless

you, kate

> >

> > > Now, I don't mean this to start another controversy. I am

> > > totally

> > > empathetic to those in a wheelchair.

> > >

> > > But for those of you that are not....do you ever wish

sometimes

> > > you

> > > were just so you have an excuse? Maybe I'm just more vain

> > > then I

> > > realized. But today, I was doing my grocery shopping and

I have

> > > a

> > > bad case of " concrete " legs and some heavy duty vibrating

going

> > > on in

> > > my spinal chord (the nasueating kind). I was trying to

walk

> > > around

> > > the store and holding on to my cart tightly while trying

to

> > > maintain

> > > some sense of " there is nothing wrong with me " .

> > >

> > > To most, I look totally healthy. I was looking at the

electric

> > > carts

> > > and drooling but I wouldn't get into one because I

don't " look "

> > > sick

> > > and I know people will be thinking I'm just lazy. Isn't

that

> awful???

> > > At the same time, I get so confuddled in the stores

anyways

> > > because I

> > > can't piece together where something would be anymore and

I ask

> > > for

> > > help a lot in finding things.

> > >

> > > Plus, the worse thing is that we are such a small area

and

> > > everyone

> > > knows me from my business. I had to stop and talk to at

least

> > > five

> > > people and their interruptions sent me in the wrong

direction

> > > for the

> > > next item. I was so flustered when I left and I'm sure I

don't

> > > have

> > > half the stuff I need.

> > >

> > > Speaking of small towns, Akyba, I think I saw your hubby

today.

> > > Was

> > > he in IM? Red van, right?

> > >

> > > Anyways, I'm going to take a nap...my body is telling me

it's

> > > way

> > > over due.

> > >

> >

> > Please visit: http://www.bicycleman.com

> > awesome guy, fantastic site. All types of bicyles, many

> recumbents; perfect for an MS Bike Tour!

> >

>

> --------------------------------------------------------------------

----------

> Be a better Globetrotter. Get better travel answers from someone

who knows.

> Yahoo! Answers - Check it out.

>

June 14, 2007

We have a 2004 Dodge Caravan, 3 older pick ups, and an older van. They only count 1 truck and the van. The van needed for appt.s and the truck for Steve's job.

~Trista~********************************When the world says, "give up,"Hope whispers, "try it one more time."

Re: Sometimes we want to just be disabled!!!> > > > > > > > Gee, Mindy...Thanks for being brave enough to bring this up. You > really helped break the ice for me, and for some reason, I'm crying > right now...I can so totally relate to what you say here. For me, > also, with a younger sis with MS--who was dx'd 5 yrs before me--SHE > who bikes, works FT, is fit and trim--doesn't tell anyone she has MS! > Here I am using a cane most days. I keep saying to myself: use it or > lose it. Keep moving. Keep walking. Push yourself. However, I have > heard more about the notion of : PACE YOURSELF. and that spoon story > too. Like, if we were to bite the bullet, and yes, get into that > scooter to do our shopping--groceries or Walmart or wherever--would > we not have more energy at home for our family and kids? I am > confused also. One day...I don't know when...I might just make the > move. Get into one of those scooters and do my shopping...And then > what? See how it feels. AND, if anyone asks me--I might just say--I'm > finally learning to pace myself....And you know what, Mindy? Some > days I just take my cane--even if I don't really need it that day. I > think cause I don't "look sick" or, like I have MS either--and unlike > my sister, for some reason, I want people to know...AND...while I'm > on a roll I'll tell ya this!--when I work down in Tarrytown, NY at my > little nursery school job--if I don't have my cane--the cars don't > stop as often to let me cross the pedestrian crossing--but gee whiz--> have my cane? They stop on a dime for me! Go figure! So, there can be > perks with a cane! Again, I'm very, very happy you brought this topic > up. It is a real source of angst for me personally . bless you, kate> > > > > > > Now, I don't mean this to start another controversy. I am > > > totally > > > empathetic to those in a wheelchair.> > > > > > But for those of you that are not....do you ever wish sometimes > > > you > > > were just so you have an excuse? Maybe I'm just more vain > > > then I > > > realized. But today, I was doing my grocery shopping and I have > > > a > > > bad case of "concrete" legs and some heavy duty vibrating going > > > on in > > > my spinal chord (the nasueating kind). I was trying to walk > > > around > > > the store and holding on to my cart tightly while trying to > > > maintain > > > some sense of "there is nothing wrong with me". > > > > > > To most, I look totally healthy. I was looking at the electric > > > carts > > > and drooling but I wouldn't get into one because I don't "look" > > > sick > > > and I know people will be thinking I'm just lazy. Isn't that > awful???> > > At the same time, I get so confuddled in the stores anyways > > > because I > > > can't piece together where something would be anymore and I ask > > > for > > > help a lot in finding things. > > > > > > Plus, the worse thing is that we are such a small area and > > > everyone > > > knows me from my business. I had to stop and talk to at least > > > five > > > people and their interruptions sent me in the wrong direction > > > for the > > > next item. I was so flustered when I left and I'm sure I don't > > > have > > > half the stuff I need.> > > > > > Speaking of small towns, Akyba, I think I saw your hubby today. > > > Was > > > he in IM? Red van, right? > > > > > > Anyways, I'm going to take a nap...my body is telling me it's > > > way > > > over due.> > > > > > > > > > > > > > > > > > Please visit: http://www.bicycleman.com > > awesome guy, fantastic site. All types of bicyles, many > recumbents; perfect for an MS Bike Tour!> >> > > > > > > --------------------------------------------------------------------> Be a better Globetrotter. Get better travel answers from someone who knows.> Yahoo! Answers - Check it out.>

June 14, 2007

My DH doesn't always communicate what he's thinking and feeling either. I could never have an upstairs that I couldn't get to. Who'd clean it? My OCD would drive me nuts, thinking of all the things growing up there, that doesn't bother the 5 males I live with! ewwwww.

~Trista~********************************When the world says, "give up,"Hope whispers, "try it one more time."

Re: Sometimes we want to just be disabled!!!> > > > > > > > > > > > Gee, Mindy...Thanks for being brave enough to bring this up. > You > > really helped break the ice for me, and for some reason, I'm > crying > > right now...I can so totally relate to what you say here. For me, > > also, with a younger sis with MS--who was dx'd 5 yrs before me--> SHE > > who bikes, works FT, is fit and trim--doesn't tell anyone she has > MS! > > Here I am using a cane most days. I keep saying to myself: use it > or > > lose it. Keep moving. Keep walking. Push yourself. However, I > have > > heard more about the notion of : PACE YOURSELF. and that spoon > story > > too. Like, if we were to bite the bullet, and yes, get into that > > scooter to do our shopping--groceries or Walmart or wherever--> would > > we not have more energy at home for our family and kids? I am > > confused also. One day...I don't know when...I might just make > the > > move. Get into one of those scooters and do my shopping...And > then > > what? See how it feels. AND, if anyone asks me--I might just say--> I'm > > finally learning to pace myself....And you know what, Mindy? Some > > days I just take my cane--even if I don't really need it that > day. I > > think cause I don't "look sick" or, like I have MS either--and > unlike > > my sister, for some reason, I want people to know...AND...while > I'm > > on a roll I'll tell ya this!--when I work down in Tarrytown, NY > at my > > little nursery school job--if I don't have my cane--the cars > don't > > stop as often to let me cross the pedestrian crossing--but gee > whiz--> > have my cane? They stop on a dime for me! Go figure! So, there > can be > > perks with a cane! Again, I'm very, very happy you brought this > topic > > up. It is a real source of angst for me personally . bless you, > kate> > > > > > > > > > Now, I don't mean this to start another controversy. I am > > > > totally > > > > empathetic to those in a wheelchair.> > > > > > > > But for those of you that are not....do you ever wish > sometimes > > > > you > > > > were just so you have an excuse? Maybe I'm just more vain > > > > then I > > > > realized. But today, I was doing my grocery shopping and I > have > > > > a > > > > bad case of "concrete" legs and some heavy duty vibrating > going > > > > on in > > > > my spinal chord (the nasueating kind). I was trying to walk > > > > around > > > > the store and holding on to my cart tightly while trying to > > > > maintain > > > > some sense of "there is nothing wrong with me". > > > > > > > > To most, I look totally healthy. I was looking at the > electric > > > > carts > > > > and drooling but I wouldn't get into one because I > don't "look" > > > > sick > > > > and I know people will be thinking I'm just lazy. Isn't that > > awful???> > > > At the same time, I get so confuddled in the stores anyways > > > > because I > > > > can't piece together where something would be anymore and I > ask > > > > for > > > > help a lot in finding things. > > > > > > > > Plus, the worse thing is that we are such a small area and > > > > everyone > > > > knows me from my business. I had to stop and talk to at least > > > > five > > > > people and their interruptions sent me in the wrong direction > > > > for the > > > > next item. I was so flustered when I left and I'm sure I > don't > > > > have > > > > half the stuff I need.> > > > > > > > Speaking of small towns, Akyba, I think I saw your hubby > today. > > > > Was > > > > he in IM? Red van, right? > > > > > > > > Anyways, I'm going to take a nap...my body is telling me it's > > > > way > > > > over due.> > > > > > > > > > > > > > > > > > > > > > > > > Please visit: http://www.bicycleman.com > > > awesome guy, fantastic site. All types of bicyles, many > > recumbents; perfect for an MS Bike Tour!> > >> >>

June 15, 2007

Oh Donna......... I wish I was the cleaning type. Want to hear about how mentally ill I am??? lol. I do have OCD. But, although I have OCD and want and NEED my house to be very clean, I cannot stand to touch certain things, so it makes cleaning a big challenge. I hate it! It drives me nuts! I hate touching the floor, because no matter how clean it is, it still "contaminates" everything that touches it! LMHO. Ok, now that you all know how crazy I really am........ I'll go back under my rock. lol.

~Trista~********************************When the world says, "give up,"Hope whispers, "try it one more time."

Re: Re: Sometimes we want to just be disabled!!!

My DH doesn't always communicate what he's thinking and feeling either. I could never have an upstairs that I couldn't get to. Who'd clean it? My OCD would drive me nuts, thinking of all the things growing up there, that doesn't bother the 5 males I live with! ewwwww.

~Trista~********************************When the world says, "give up,"Hope whispers, "try it one more time."

June 15, 2007

Oh Trista~

I can sooo relate? Wanna know how many times a day I wash my hands? Me too!! LOL I lose count. And door knobs! I'm always washing door knobs and spraying them with Lysol. Then, even though I've cleaned the knobs, I wash my hands after touching them anyway. Just gotta be sure. We all have little funny quirks. (I think we do, anyway) Don't we? Oh...And stay away from my dishes. I'll clean them, thank you. ( Hmmm...that may be an infused trust issue). )

GBU...Val @};-

Re: Re: Sometimes we want to just be disabled!!!

My DH doesn't always communicate what he's thinking and feeling either. I could never have an upstairs that I couldn't get to. Who'd clean it? My OCD would drive me nuts, thinking of all the things growing up there, that doesn't bother the 5 males I live with! ewwwww.

~Trista~********************************When the world says, "give up,"Hope whispers, "try it one more time."

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.17/850 - Release Date: 6/15/07 11:31 AM

June 16, 2007

There's that honesty again, Donna! Brutal honesty, but honesty anyways.

Ok, Ms.Honest, question for you...My husband was competely wowed by how clean the house is. Um...I had the cleaning ladies in yesterday, and paid them $120 with MY own paycheck from my nursery school, which is about 1/2 my paycheck. I DID have to pick up a lot before they started on the house--so it's not as if I did NOTHING! But...I just couldn't bring myself to tell him it wasn't completely me. It isn'st exactly LYING, but it sure as heck isn't telling the truth either. For me, the fallout that comes from me being honest with my husband--his rage, his anger that I would spend money on something he expects me to do, and stay on top of--well, talk about low self-esteem! We have a 2100 sq.ft. home--THAT doesn't include the full basement or attic! It is 2 stories of living space -2 bathrooms, 4 bedrooms, a huge kitchen,dining room, living room, family room--not to mention a big front porch, and smaller back deck--to try to maintain! With my MS it is a struggle. Kids should have their chores, but they, the chores, fall through the cracks often times. Ha! Now that I think of it, maybe I should tell the kids if they don't pick up, I'll take $ from their bank accounts to pay for cleaning people! See if THAT doesn't motivate them!

As far as your water story--cheers for telling it like it is, about the water. If enough consumers know about it, perhaps a change--in the form of a better filtration system or periodic water evaluation tests can be implemented. Ha! I STILL woulda taken one of those plastic bottles--blue or green! love to all, kate> Trista,> > Your public restroom etiquette does sound about right on the > money.. and drinking the tap water... well... it's not exactly > safe anywhere anymore..> > I walked into the water company to pay my bill.. which of course > had a $10 fee added on to it, because I didn't pay it ON TIME.. > so I wasn't a happy camper to start with.. And the bright > cheerful gal behind the counter, which was lined with water > bottles of several different colors, said to me.. "Before you > leave, be sure to pick your favorite color water bottle to take > with you".. And not being a very happy soul to begin with that > day, I replied, in a fairly loud voice "Oh so the water in safe > to drink now?" She asked me what I was talking about, so I > proceeded to tell her, AND everyone else in the office paying > their bill, that their last informative pamplet stated that it > wasn't safe to give the water to infants, elderly or those with > impaired immune systems... and then I asked her if she didn't > read her own companies updates??? Apparently she didn't, and > neither did anyone else in the office.. LOL.. Fact is, every > other day they put massive doses of chlorine in our water > supply, when you turn on the faucet you can smell it as plain as > day... I left their bottle sitting on the counter too... LOL> > I can be such a wench sometimes... LOL ... and sometimes my > fangs just pop right out on their own... > > |}onna> > Re: Re: Sometimes we want to just be disabled!!!> > > > Oh Trista~> I can sooo relate? Wanna know how many times a day I wash > my hands? Me too!! LOL I lose count. And door knobs! I'm always > washing door knobs and spraying them with Lysol. Then, even > though I've cleaned the knobs, I wash my hands after touching > them anyway. Just gotta be sure. We all have little funny > quirks. (I think we do, anyway) Don't we? Oh...And stay away > from my dishes. I'll clean them, thank you. ( Hmmm...that may be > an infused trust issue). )> GBU...Val @};-> Please visit: http://www.bicycleman.com

awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour!

Attachment: vcard [not shown]

June 16, 2007

Complaining about the water situation won't do a bit of good.. First off they are a Water Authority.. so they don't fall under PUC standards or control.. Second since almost all of Westmoreland County is undermined (there were deep mines that went from here to Pittsburgh.. that 30 minute drive on roads.. these guys took in man-cars) so ALL of the wells are no longer any good.. Laws weren't established yet, when these companies closed down, requiring them to put some kind of pumping system in them to keep the water from accumulating.. So in effect if you don't have Westmoreland Water Authorities water coming to your house.. you don't have water... So they CAN and do do basically anything they want... Found that out 20 plus years ago, when I paid $800 for a water tap for my new mobile home (the one that the tornado ate).. and then waited for more than THREE months to get the tap.. and then found out that the company I paid my tap fee to in turn bought their water from Westmoreland Water Authority, who also put in the taps.. And Westmoreland gave me the runaround on how Pleasant Valley hadn't sent them the money for the tap so they weren't putting it in... I called the PUC... only to be told that Water Authorities do NOT fall under their jurisdicition and there wasn't anything they could do for me.. But I think someone somewhere there, took it upon themselves to "urge" the water company to get on the ball and get my tap in.. LOL...

As for the hubby.. hmm.. I think we'd probably have a battle.. of some sort when it came to that... My X would have been like that.. He was like that.. We did go round and round at one point... When I was working a 9 to 5 job, and he was working his job.. and there were two kids at home.. one not quite kindergarten age.. It was... Wait one darned minute here! I work as many hours as you do, and it's MY job to clean the house, cook the meals, wash the clothes, get the kid and myself out the door and to day care before I go to an office job, that requires more than tossing on a t-shirt & a pair of jeans.. (fortunately the day care fed them breakfast as well as lunch) AND you are home from work earlier than I am, but you can't even swing by the daycare and pick the kid up on your way home from work.. AND you don't have to cross FOUR lanes of traffic to get to the daycare on your way home!!! Your responsibility.. ummm Take out the garbage???? (we didn't have to mow because the landlord had a service for that)... There's something wrong with this picture.. I think when I started that time, he remembered the time before.. and conceded to.. picking up the kid every other day on his way home from work.. and the days that he didn't pick up Earl.. he cooked dinner.. the days he cooked I loaded the dishwasher and vice versa..

The time before.. well Earl was just not much more than a toddler, when I decided that I had had just about enough of his crap.. I was working full time, paying the babysitter from MY paycheck (course the babysitter was his niece and she lived just across the yard, so she came to us, rather than me go to her in the morning)... but I was still stuck with ALL the housework that goes with a toddler AND an 8 or 9 year old.. So I shipped the oldest to my mother's house.. that was home to him anyway.. and I packed up and left the hubby with the house and Earl to contend with.. Now I know that sounds just horrific.. but I didn't leave my baby without knowing that he was well cared for.. the niece who babysat for us, loved him like her own.. Because I was the only one in the entire family who would let her hold a baby!!.. She had some physical disabilities.. dwarfism I do believe, though never diagnosed, and as a child she had Perthes (spelling there) Disease, which cause her tons of problems with her hips.. the sockets weren't round anymore they were squared or flat from the disease.. But to me those things did NOT mean that she wasn't perfectly capable of handling a baby.... oh there I go again.. off on a tangent...

Anyway, I visited every couple of days and knew Earl was well taken care of in my absence. On one particular visit, the hubby apologized and told me he had been cussing up a storm.. And of course I asked what he was talking about.. He proceeded to tell me.. He was on his hands and knees scrubbing the kitchen floor, and the sweat was just pouring off him and this was AFTER he'd been to work in a factory in all that heat during the day as well... I asked him if he was cussing at me because I wasn't there doing the work.. and he said "No, he was cussing himself for not realizing just what all my job entailed, as well as just how hard it was"... Of course all of that remore lasted just about six weeks AFTER I moved back in with him..

His last bunch of stupidities, inconsiderateness, was the last bunch of stupidities and inconsiderateness that he'll have.. IF he ever marries again.. but then again, maybe not.. He was raised on a farm, with 5 sisters and a mother who picked up after the "men" of the house no matter what.. Get up from the table, leave your dishes right there.. the women will get them... Taking a shower? hmm.. leave the dirty underwear lay where they dropped... the women will get them... that kind of stuff.. But I think he kind of did himself in during a period of a severe fatigue attack that lasted weeks.. only we had no clue that I had MS at the time.. All I know is that JUST thinking about washing the dishes sent me to bed for two days exhausted... He came home from work, to dirty dishes, and no supper on the table (and when I wasn't working outside the home, supper was on the table when he came through the door) he bitched pissed and moaned accusing me of just being "lazy".. Never once did he say.. "Do you think you might ought to go see a doctor about what's wrong?"... He was content to assume that I was being lazy and that justified his being mad at me.. I stand up from my desk, and he could see my legs doing that bouncy thing that they sometimes do... and never considered that to be odd... I thought it was strange, but never thought more of it.. it would come and go..

NOW.. he apologizes because he never even thought that I was sick that whole time.. he didn't realize... uh duh... now is too late...

Fact is though, that your hubby KNOWS that you have MS, and at this point he should realize that you can't do it all... He shouldn't let it all for you to do, and if the kid's have chores, HE should see that they do them.. He really won't be the bad guy by making them do what they are supposed to do. And I think the kids will develop more respect for him.. no matter how much they moan about him being mean and stuff.. the will one day realize that he taught them a valuable lesson. As for telling him that you spent money on cleaners to help.. I don't know that I'd tell him how much exactly.. but I probably would figure out a way to toss it back into his lap as being HIS FAULT that you had to bring in extra help to get the house clean the way HE wants it.. LOL.. He's healthy, and has all the energy in the world to rely on.. we don't.. we have the "Spoons" thing going for us.. Oh yeah, I'm betting that if I really set my mind to it.. I could clean this house (and it's only 1120 square feet.. not the thousand more that you have) in a day or so, from top to bottom.. Of course I'd better accomplish the MOST important thing today when I start, because come tomorrow I might not be able to move for the fatigue attack that will come about from overdoing today..

Have you read the "Spoons" Theory on I think her names is from a Lupus website somewhere? That story is completely true for someone who has Lupus, but it's equally as true for those of us living with the MonSter.. Copy and paste it to a document, or I can do it for you too.. then edit it somewhat to change Lupus references to MS.. and then print it and hand it to him and tell him to read it... I won't say that your hubby is stupid, that's not the correct term.. because if he were actually stupid, he wouldn't be in the line of work that he's in.. It's more along the line of some combination between "macho", "ignorant", "inconsiderate (but that goes with the macho theme)... Well, I'd say he was like my X hubby.. Not a thing wrong with him really, except he doesn't pay attention, and he doesn't really see, or hear what's going on around him, unless it affects HIM physically in some way shape or form.. As long as the status quo remains the status quo, he's content and happy... don't rock his boat though, or he doesn't know what to do...

He really does need to have his eyes opened in some way shape or form.. At some point the lines of communication have to be opened, and even though he doesn't agree with everything that you think, and you don't agree with all his opinions, you have to agree to disagree on some things.. Fact is.. you CAN'T do what you did before you got sick, and chances are, you'll be able to do less as time passes.. I hope that isn't the case, but I think we all pretty much know how it's going to be eventually... But there really is NO WAY you can keep up with a house, a husband and kids... It was nearly impossible to do BEFORE we got sick.. just how in the heck are we going to do what was nearly impossible when we were healthy now that we are sick, without someone else helping to pick up the slack??? Besides they ALL live in the house too.. and those that live in a community, even a community as small as a home.. have some responsibility to that communities well being.. Once the house is in shape.. if EVERYONE in the house were to pick up after themselves.. put stuff back where they got it from when they were done with it.. and so forth.. you might be able to keep up with the house.. Why not create a new law in the house.. NO ONE goes anywhere or does anything for enjoyment unless they each contribute one or two hours on Saturday morning putting everything back into order in and around the house? You could even pull and Uncle on them..... I had an Uncle, with 10 kids.. and EVERY morning of EVERY day of the year.. EVERYONE was out of bed at 6 AM... and the house got cleaned.. completely.. No one went anywhere or did anything else until it was done.. they could go back to bed to finish sleeping as soon as the work was complete.. they soon learned that if they kept everything picked up to start with.. their cleaning chores at 6 AM only lasted 15 minutes or so.. then they could go back to bed.. LOL..

I don't really know what to tell you on this question.. but I do know that at some point you or someone else is going to have to make him understand that he does NOT live in a normal household (of course would ask me to define "normal").. And that some things are going to have to change... Like either everyone pitch in and keep it clean the way he wants it.. OR once every month or so, SOMEONE is going to be called to come in and help do what you can't do on your own any longer.. OR.. the living conditions around there just won't be "a place for everything and everything in it's place" anymore..

And there I went.. tangentizing again.. and I need to start laundry.. BUT.. hey.. I found out that I can push the vaccuum sweeper and it doesn't push me anymore.. oh I do love Copaxone!!!.. One of the muttlies overturned a stand next to the love seat.. that had a drinking glass on it.. and it shattered when it hit the floor.. so outside they went while I picked up the glass and then vaccuumed the floor.. It was work.. cause the vaccuum is heavy.. but it didn't push back this time as I push it around the area.. YAY!!!!

|}onna.... who needs to get a load of laundry in the washer.. and then maybe a load of dishes in the sink... hmmmm.. but I won't be gone long.. the energy level fades quickly..

Re: Re: Sometimes we want to just be disabled!!!> > > > Oh Trista~> I can sooo relate? Wanna know how many times a day I wash > my hands? Me too!! LOL I lose count. And door knobs! I'm always > washing door knobs and spraying them with Lysol. Then, even > though I've cleaned the knobs, I wash my hands after touching > them anyway. Just gotta be sure. We all have little funny > quirks. (I think we do, anyway) Don't we? Oh...And stay away > from my dishes. I'll clean them, thank you. ( Hmmm...that may be > an infused trust issue). )> GBU...Val @};-> Please visit: http://www.bicycleman.com awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour!

June 16, 2007

I guess one could say I have it pretty lucky...Rob does ALL the housework (so he CAN'T complain iffen it ain't done right), I do the cooking, but he cleans the kitchen, does the dishes, I *can* at least help mow the lawn, and do, but he does all the rest, as well as tending to the increasing lot of animals. And he drives me to wherever I need to go, and rarely complains about all of it. HE IS a real Saint in my book. I just wish I had enough $ to get him something nice for Father's day. I *do* have a nice roast for dinner. Oh, and BTW I went to the new GP yesterday, I like her...she listened to me and we had a nice talk and a good visit. She is ordering a battery of tests, we already did the bloodwork and urine test, going to do a mommy-gram and pap and all that as well... Anywhoo. Robbin is on the floor moaning (wants lunch) so I better rescue him before he passes away from hunger... Hugs Akiba -- Re: Re: Sometimes we want to just be disabled!!! There's that honesty again, Donna! Brutal honesty, but honesty anyways. Ok, Ms.Honest, question for you...My husband was competely wowed by how clean the house is. Um...I had the cleaning ladies in yesterday, and paid them $120 with MY own paycheck from my nursery school, which is about 1/2 my paycheck. I DID have to pick up a lot before they started on the house--so it's not as if I did NOTHING! But...I just couldn't bring myself to tell him it wasn't completely me. It isn'st exactly LYING, but it sure as heck isn't telling the truth either. For me, the fallout that comes from me being honest with my husband--his rage, his anger that I would spend money on something he expects me to do, and stay on top of--well, talk about low self-esteem! We have a 2100 sq.ft. home--THAT doesn't include the full basement or attic! It is 2 stories of living space -2 bathrooms, 4 bedrooms, a huge kitchen,dining room, living room, family room--not to mention a big front porch, and smaller back deck--to try to maintain! With my MS it is a struggle. Kids should have their chores, but they, the chores, fall through the cracks often times. Ha! Now that I think of it, maybe I should tell the kids if they don't pick up, I'll take $ from their bank accounts to pay for cleaning people! See if THAT doesn't motivate them! As far as your water story--cheers for telling it like it is, about the water. If enough consumers know about it, perhaps a change--in the form of a better filtration system or periodic water evaluation tests can be implemented. Ha! I STILL woulda taken one of those plastic bottles--blue or green! love to all, kate> Trista,> > Your public restroom etiquette does sound about right on the > money.. and drinking the tap water... well... it's not exactly > safe anywhere anymore..> > I walked into the water company to pay my bill.. which of course > had a $10 fee added on to it, because I didn't pay it ON TIME.. > so I wasn't a happy camper to start with.. And the bright > cheerful gal behind the counter, which was lined with water > bottles of several different colors, said to me.. "Before you > leave, be sure to pick your favorite color water bottle to take > with you".. And not being a very happy soul to begin with that > day, I replied, in a fairly loud voice "Oh so the water in safe > to drink now?" She asked me what I was talking about, so I > proceeded to tell her, AND everyone else in the office paying > their bill, that their last informative pamplet stated that it > wasn't safe to give the water to infants, elderly or those with > impaired immune systems... and then I asked her if she didn't > read her own companies updates??? Apparently she didn't, and > neither did anyone else in the office.. LOL.. Fact is, every > other day they put massive doses of chlorine in our water > supply, when you turn on the faucet you can smell it as plain as > day... I left their bottle sitting on the counter too... LOL> > I can be such a wench sometimes... LOL ... and sometimes my > fangs just pop right out on their own... > > |}onna> > Re: Re: Sometimes we want to just be disabled!!!> > > > Oh Trista~> I can sooo relate? Wanna know how many times a day I wash > my hands? Me too!! LOL I lose count. And door knobs! I'm always > washing door knobs and spraying them with Lysol. Then, even > though I've cleaned the knobs, I wash my hands after touching > them anyway. Just gotta be sure. We all have little funny > quirks. (I think we do, anyway) Don't we? Oh...And stay away > from my dishes. I'll clean them, thank you. ( Hmmm...that may be > an infused trust issue). )> GBU...Val @};-> Please visit: http://www.bicycleman.com awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour!

Messages in this topic (0) Reply (via web post) | Start a new topic

Recent Activity

2

New PhotosVisit Your Group

June 16, 2007

LoL! Dont starve your poor son! Lol. Im so glad you

liked your gp. Yes. Your hubby sounds like quite the

saint! You lucky lady you! Lol. Its good to hear he

takes care of you,what a sweetie. Tell him Happy

Fathers day from me! Im sure that pot roast is goin to

be awesome, through in a home made card from Robbin

and he will be the happiest man alive. Oh. Went to pt

yesterday and the braces arnt ready they are being

authorized by my insurance,went for my blood test to

and they took 12 tubes of blood! Ahh. I was actually

lightheaded witch has never happened due to that but I

dont think I have ever had 12 tubes drawn either.lol.

But I hurried and wrote down all the tests he ordered

that I had never heard of it was page after

page.lol..so I know what im doin today.lol. Hey that

funky post i wrote you about the mythology,lol., well

I couldnt put that darn book down till 2 am.lol. Its

actually really good,never read about this kind of

stuff but its great..granted it has vampires and all

that.lol..but it isnt cheesy

--- MSersLife wrote:

> I guess one could say I have it pretty lucky...Rob

does ALL the housework

> (so he CAN'T complain iffen it ain't done right), I

do the cooking, but he

> cleans the kitchen, does the dishes, I *can* at

least help mow the lawn, an

> d

> do, but he does all the rest, as well as tending to

the increasing lot of

> animals. And he drives me to wherever I need to go,

and rarely complains

> about all of it. HE IS a real Saint in my book. I

just wish I had enough $

> to get him something nice for Father's day. I *do*

have a nice roast for

> dinner.

>

> Oh, and BTW I went to the new GP yesterday, I like

her...she listened to me

> and we had a nice talk and a good visit. She is

ordering a battery of tests

> ,

> we already did the bloodwork and urine test, going

to do a mommy-gram and

> pap and all that as well...

>

> Anywhoo. Robbin is on the floor moaning (wants

lunch) so I better rescue hi

> m

> before he passes away from hunger...

>

> Hugs

>

> Akiba

>

> -- Re: Re: Sometimes we want to just

be disabled!!!

>

> There's that honesty again, Donna! Brutal honesty,

but honesty anyways.

>

> Ok, Ms.Honest, question for you...My husband was

competely wowed by how

> clean the house is. Um...I had the cleaning ladies

in yesterday, and paid

> them $120 with MY own paycheck from my nursery

school, which is about 1/2 m

> y

> paycheck. I DID have to pick up a lot before they

started on the house--so

> it's not as if I did NOTHING! But...I just couldn't

bring myself to tell hi

> m

> it wasn't completely me. It isn'st exactly LYING,

but it sure as heck isn't

> telling the truth either. For me, the fallout that

comes from me being

> honest with my husband--his rage, his anger that I

would spend money on

> something he expects me to do, and stay on top

of--well, talk about low

> self-esteem! We have a 2100 sq.ft. home--THAT

doesn't include the full

> basement or attic! It is 2 stories of living space

-2 bathrooms, 4 bedrooms

> ,

> a huge kitchen,dining room, living room, family

room--not to mention a big

> front porch, and smaller back deck--to try to

maintain! With my MS it is a

> struggle. Kids should have their chores, but they,

the chores, fall through

> the cracks often times. Ha! Now that I think of it,

maybe I should tell the

> kids if they don't pick up, I'll take $ from their

bank accounts to pay for

> cleaning people! See if THAT doesn't motivate them!

>

> As far as your water story--cheers for telling it

like it is, about the

> water. If enough consumers know about it, perhaps a

change--in the form of

> a

> better filtration system or periodic water

evaluation tests can be

> implemented. Ha! I STILL woulda taken one of those

plastic bottles--blue or

> green! love to all, kate

>

> > Trista,

>

> >

>

> > Your public restroom etiquette does sound about

right on the

>

> > money.. and drinking the tap water... well... it's

not exactly

>

=== Message Truncated ===

________________________________________________________________________________\

____

Shape Yahoo! in your own image. Join our Network Research Panel today!

http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7

June 16, 2007

Trista! Do you have a lil OCD? Rofl.lol.jk.. Ok.I

clean the doorknobs sometimes but dont use my shirt to

open them.lol. Well,you have alot of respect for your

floor! Rofl.lol..jus messn with you. Lots of luv,

cassy

--- MSersLife

wrote:

> Yay Val!!!!!! I knew you were a " freak " like me!

lol. Just teasing.

> Door knobs! ewwwww! I do not touch door knobs at

all. At home, I use my

> shirt to grab and turn the knob. At public

bathrooms, I use paper towels t

> o open the doors, then toss them into the trash.

> Today is our anniversary. We have tickets to see

Brad Paisley in San Diego

> on the 29th. I am sooooo excited, but I'm already

stressing over having

> to use the public restrooms.

> I have lots of quirks. I will not leave my tooth

brush in the bathroom. A

> nd I won't brush my teeth in the bathroom either. I

wear my sandals indoor

> s, because I hate my feet to feel dirty. (and the

floor is contaminated re

> member? lol. )

> I do NOT drink tap water. lol. As a kid in a town

I lived in a few miles

> from here, we had water issues. A report came out

that said they found nas

> ty stuff in the water, including toilet paper. I

never drank tap again.

>

> ~Trista~

> ********************************

> When the world says, " give up, "

> Hope whispers, " try it one more time. "

> Re: Re: Sometimes we want to

just be disabled!!!

>

> Trista,

> I'm glad my Obsessiveness doesn't entail

cleaning.. or I'd be locked

> up in a psych ward for sure!!! and would have been

for years and years and

> years now... When the boys were growing up.. I

just tood a deep breath an

> d held it while I pulled their bedroom door shut...

>

> They were never happy when I did go in to

clean their rooms anyway...

> I had a garbage bag theory and modus operandi ...

If it's on the floor or

> under the bed you must not need or want it any

longer... Worked well for a

> long time..

>

> |}onna

>

> ----- Original Message -----

> From: Trista

> To: MSersLife

=== Message Truncated ===

________________________________________________________________________________\

____Ready for the edge of your seat?

Check out tonight's top picks on Yahoo! TV.

http://tv.yahoo.com/

June 16, 2007

I managed to get him some food before he passed out Had a children's b'day party to go to today but just didn't have the coins so I sent Rob into town with the prescriptions and medical card and shopping list and stayed home. 12 tubes?? Wow! She only took 3 from me yesterday.... Coins did I say? See, my "spoon theory" involves coins...I wake up and have a finite number of energy coins to spend in my energy bank. I have to chose what I will spend them on and what not, because when the last coin is spent, so am I, that's IT for that day, now to rest and refill the coffers for tomorrow...sometimes when I am just about out of coins, Rob will say "cha-chink, I just heard the last coin drop" and he's almost always right, he knows me just that well... Hugs Akiba -- Re: Re: Sometimes we want to justbe disabled!!!> > > > There's that honesty again, Donna! Brutal honesty, but honesty anyways.> > Ok, Ms.Honest, question for you...My husband wascompetely wowed by how> clean the house is. Um...I had the cleaning ladiesin yesterday, and paid> them $120 with MY own paycheck from my nurseryschool, which is about 1/2 m> y> paycheck. I DID have to pick up a lot before theystarted on the house--so> it's not as if I did NOTHING! But...I just couldn'tbring myself to tell hi> m> it wasn't completely me. It isn'st exactly LYING,but it sure as heck isn't> telling the truth either. For me, the fallout thatcomes from me being> honest with my husband--his rage, his anger that Iwould spend money on> something he expects me to do, and stay on topof--well, talk about low> self-esteem! We have a 2100 sq.ft. home--THATdoesn't include the full> basement or attic! It is 2 stories of living space-2 bathrooms, 4 bedrooms> ,> a huge kitchen,dining room, living room, familyroom--not to mention a big> front porch, and smaller back deck--to try tomaintain! With my MS it is a> struggle. Kids should have their chores, but they,the chores, fall through> the cracks often times. Ha! Now that I think of it,maybe I should tell the> kids if they don't pick up, I'll take $ from theirbank accounts to pay for> cleaning people! See if THAT doesn't motivate them!> > As far as your water story--cheers for telling itlike it is, about the> water. If enough consumers know about it, perhaps achange--in the form of > a> better filtration system or periodic waterevaluation tests can be> implemented. Ha! I STILL woulda taken one of thoseplastic bottles--blue or> green! love to all, kate> > > > > Trista,> > > > > > Your public restroom etiquette does sound aboutright on the > > > money.. and drinking the tap water... well... it'snot exactly > === Message Truncated === __________________________________________________________Shape Yahoo! in your own image. Join our Network Research Panel today! http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 Messages in this topic (0) Reply (via web post) | Start a new topic Recent Activity 2 New PhotosVisit Your Group

June 16, 2007

Trista~

I don't brush my teeth in the bathroom either. I do it in the kitchen. And when I'm done cleaning my toothbrush, I wrap it up in a paper towel.

I never was a tap water drinker. In fact, I really don't like water. I'll drink it, but it's usually bottled. And you know what I've heard? Bottled water isn't much different than tap. Well, I know it costs more.

Now the wearing of shoes in the house....I definately don't do that. I absolutely hate shoes, even sandals. But, I know my floors are clean. ) I'm the one who cleans them. In the winter, I wear socks with the little rubber soles.

Love and blessings....Val

Re: Re: Sometimes we want to just be disabled!!!

My DH doesn't always communicate what he's thinking and feeling either. I could never have an upstairs that I couldn't get to. Who'd clean it? My OCD would drive me nuts, thinking of all the things growing up there, that doesn't bother the 5 males I live with! ewwwww.

~Trista~********************************When the world says, "give up,"Hope whispers, "try it one more time."

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.17/850 - Release Date: 6/15/07 11:31 AM

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.9.0/851 - Release Date: 6/16/07 12:50 PM

June 16, 2007

I would have taken one too. I like free things. :)Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Re: Re: Sometimes we want to just be disabled!!!> > > > Oh Trista~> I can sooo relate? Wanna know how many times a day I wash > my hands? Me too!! LOL I lose count. And door knobs! I'm always > washing door knobs and spraying them with Lysol. Then, even > though I've cleaned the

knobs, I wash my hands after touching > them anyway. Just gotta be sure. We all have little funny > quirks. (I think we do, anyway) Don't we? Oh...And stay away > from my dishes. I'll clean them, thank you. ( Hmmm...that may be > an infused trust issue). )> GBU...Val @};-> Please visit: http://www.bicyclem an.com

awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour!

Shape Yahoo! in your own image. Join our Network Research Panel today!

June 16, 2007

What animals have you gotten since being in your new home? Just wondering if you've gotten chickens again? hugs)Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Re: Re: Sometimes we want to just be disabled!!!> > > > Oh Trista~> I can sooo relate? Wanna know how many times a day I wash > my hands? Me too!! LOL I lose count. And door knobs! I'm always > washing door knobs and spraying them with Lysol. Then, even > though I've cleaned the knobs, I wash my hands after touching > them anyway. Just gotta be sure. We all have little funny > quirks. (I think we do, anyway) Don't we? Oh...And stay away > from my dishes. I'll

clean them, thank you. ( Hmmm...that may be > an infused trust issue). )> GBU...Val @};-> Please visit: http://www.bicyclem an.com awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour!

Messages in this topic (0) Reply (via web post) | Start a new topic

Recent Activity

2

New PhotosVisit Your Group

June 16, 2007

12 tubes of blood? My goodness. I think this doctor is really putting you through the tests! I hope they find out something this time.loveSharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Re: Re: Sometimes we want to just

be disabled!!!

>

> There's that honesty again, Donna! Brutal honesty,

but honesty anyways.

>

> Ok, Ms.Honest, question for you...My husband was

competely wowed by how

> clean the house is. Um...I had the cleaning ladies

in yesterday, and paid

> them $120 with MY own paycheck from my nursery

school, which is about 1/2 m

> y

> paycheck. I DID have to pick up a lot before they

started on the house--so

> it's not as if I did NOTHING! But...I just couldn't

bring myself to tell hi

> m

> it wasn't completely me. It isn'st exactly LYING,

but it sure as heck isn't

> telling the truth either. For me, the fallout that

comes from me being

> honest with my husband--his rage, his anger that I

would spend money on

> something he expects me to do, and stay on top

of--well, talk about low

> self-esteem! We have a 2100 sq.ft. home--THAT

doesn't include the full

> basement or attic! It is 2 stories of living space

-2 bathrooms, 4 bedrooms

> ,

> a huge kitchen,dining room, living room, family

room--not to mention a big

> front porch, and smaller back deck--to try to

maintain! With my MS it is a

> struggle. Kids should have their chores, but they,

the chores, fall through

> the cracks often times. Ha! Now that I think of it,

maybe I should tell the

> kids if they don't pick up, I'll take $ from their

bank accounts to pay for

> cleaning people! See if THAT doesn't motivate them!

>

> As far as your water story--cheers for telling it

like it is, about the

> water. If enough consumers know about it, perhaps a

change--in the form of

> a

> better filtration system or periodic water

evaluation tests can be

> implemented. Ha! I STILL woulda taken one of those

plastic bottles--blue or

> green! love to all, kate

>

> > Trista,

>

> >

>

> > Your public restroom etiquette does sound about

right on the

>

> > money.. and drinking the tap water... well... it's

not exactly

>

=== Message Truncated ===

____________ _________ _________ _________ _________ _________ _

Shape Yahoo! in your own image. Join our Network Research Panel today! http://surveylink. yahoo.com/ gmrs/yahoo_ panel_invite. asp?a=7

Ready for the edge of your seat? Check out tonight's top picks on Yahoo! TV.

June 16, 2007

Oh I like that Akiba. Coins! It makes much more sense than spoons. Rob is so funny. Cha-Chink! Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Re: Re: Sometimes we want to justbe disabled!!!> > > > There's that honesty again, Donna! Brutal honesty, but honesty anyways.> > Ok, Ms.Honest, question for you...My husband wascompetely wowed by how> clean the house is. Um...I had the cleaning ladiesin yesterday, and paid> them $120 with MY own paycheck from my nurseryschool, which is about 1/2 m> y> paycheck. I DID have to pick up a lot before theystarted

on the house--so> it's not as if I did NOTHING! But...I just couldn'tbring myself to tell hi> m> it wasn't completely me. It isn'st exactly LYING,but it sure as heck isn't> telling the truth either. For me, the fallout thatcomes from me being> honest with my husband--his rage, his anger that Iwould spend money on> something he expects me to do, and stay on topof--well, talk about low> self-esteem! We have a 2100 sq.ft. home--THATdoesn't include the full> basement or attic! It is 2 stories of living space-2 bathrooms, 4 bedrooms> ,> a huge kitchen,dining room, living room, familyroom--not to mention a big> front porch, and smaller back deck--to try tomaintain! With my MS it is a> struggle. Kids should have their chores, but they,the chores, fall through> the cracks often times. Ha! Now that I think of it,maybe I should tell the> kids

if they don't pick up, I'll take $ from theirbank accounts to pay for> cleaning people! See if THAT doesn't motivate them!> > As far as your water story--cheers for telling itlike it is, about the> water. If enough consumers know about it, perhaps achange--in the form of > a> better filtration system or periodic waterevaluation tests can be> implemented. Ha! I STILL woulda taken one of thoseplastic bottles--blue or> green! love to all, kate> > > > > Trista,> > > > > > Your public restroom etiquette does sound aboutright on the > > > money.. and drinking the tap water... well... it'snot exactly > === Message Truncated === ____________ _________ _________ _________ _________ _________ _Shape Yahoo! in your own image. Join our Network Research Panel today! http://surveylink. yahoo.com/ gmrs/yahoo_ panel_invite. asp?a=7 Messages in this topic (0) Reply (via web post) | Start a new topic Recent Activity 2 New PhotosVisit Your Group

June 16, 2007

We have over 2 dozen chicks and several rabbits, and adopted a cat that was abandoned here (and might be with kitten) Not to mention that one of the cats that came with us had a litter a bit over a month ago, 3 adorable kittens...the chicks are all light Brahman pullets and one white polish. Hugs Akiba -- Re: Re: Sometimes we want to just be disabled!!! What animals have you gotten since being in your new home? Just wondering if you've gotten chickens again? hugs)Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Re: Re: Sometimes we want to just be disabled!!!> > > > Oh Trista~> I can sooo relate? Wanna know how many times a day I wash > my hands? Me too!! LOL I lose count. And door knobs! I'm always > washing door knobs and spraying them with Lysol. Then, even > though I've cleaned the knobs, I wash my hands after touching > them anyway. Just gotta be sure. We all have little funny > quirks. (I think we do, anyway) Don't we? Oh...And stay away > from my dishes. I'll clean them, thank you. ( Hmmm...that may be > an infused trust issue). )> GBU...Val @};-> Please visit: http://www.bicyclem an.com awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour!

Messages in this topic (0) Reply (via web post) | Start a new topic

Recent Activity

2

New PhotosVisit Your Group

Sign In

Re: Sometimes we want to just be disabled!!!

Recommended Posts

Guest guest

Link to comment

Share on other sites

Popular Days

Popular Days

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites

Guest guest

Link to comment

Share on other sites