Guest guest Posted May 30, 2007 Report Share Posted May 30, 2007 At 03:39 PM 5/30/2007, n Rojas wrote: This is not a post that I wrote. n At 03:24 PM 5/30/2007, you wrote: I went to see my neuro last week. He says I don't have MS because I don't have any lesions on my brain and cervical mri's (with no contrast). The mri of my neck showed wear and tear and he gave me a soft 2 inch neck brace to wear at night. By the next day most of the tingling and numbness was gone from my hands, arms and legs, altho there is still a little. It has done nothing for the difficulty on the stairs or the fatigue which was the reason I went to see him. I also started a patch called Curb your Cravings. It actually does it. Doesn't stop it completely, but makes it bearable. I felt so out of control. It's supposed to be all natural. It's given me a more energy, yet I still need my afternoon nap before the boys get home from school to make it thru the rest of the day. But I'm eating better - and told my daughter that if she makes cookies again she has to do it when I'm not around and to leave absolutely NO evidence. They were wayyyy too good. I'm not entirely convinced I don't have ms. There were those weeks around Thanksgiving and Christmas where my vision was blurred, I had to have 2 naps a day, and walking was somewhat difficult because my legs weren't working well. Most of that has improved. Oh well. Life goes on. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2007 Report Share Posted May 30, 2007 Sue...please don't feel so discouraged...sometimes it takes a while to have the evidence..What about on your spine>? Did they do a T-spine MRI? Glad the patch is working for you. I just started something called, 'Detoxykall'. A liquid supplement to help curb appetite, and clean out the toxins..I'm trying just bout everything myself here... Keep the faith. Time will tell. Have you had any Evoked potentials done?> I went to see my neuro last week. He says I don't have MS > because I> don't have any lesions on my brain and cervical mri's (with no> contrast). The mri of my neck showed wear and tear and he gave > me a> soft 2 inch neck brace to wear at night. By the next day most > of the> tingling and numbness was gone from my hands, arms and legs, > altho there> is still a little. It has done nothing for the difficulty on > the stairs> or the fatigue which was the reason I went to see him.> > I also started a patch called Curb your Cravings. It actually > does it. > Doesn't stop it completely, but makes it bearable. I felt so > out of> control. It's supposed to be all natural. It's given me a more > energy,yet I still need my afternoon nap before the boys get > home from school> to make it thru the rest of the day. But I'm eating better - > and told> my daughter that if she makes cookies again she has to do it > when I'm> not around and to leave absolutely NO evidence. They were > wayyyy too> good.> > I'm not entirely convinced I don't have ms. There were those weeks> around Thanksgiving and Christmas where my vision was blurred, I > had to> have 2 naps a day, and walking was somewhat difficult because my legs> weren't working well. Most of that has improved. Oh well.> > Life goes on.> > Sue> > Please visit: http://www.bicycleman.com awesome guy, fantastic site. All types of bicyles, many recumbents; perfect for an MS Bike Tour! Attachment: vcard [not shown] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2007 Report Share Posted May 30, 2007 Do you have pain in your neck also? I'm glad the neck brace is helping the tingling and numbness. That's wonderful. You have a really good point though about the fatigue, blurred vision and difficulty with the stairs. I have heard so many instances of people being told they don't have MS. I've long been suspicious that doctors think if a person is told they don't have MS then they won't have the symptoms any more. I've read it somewhere recently that doctors actually do this and it's not just my paranoid thought processes after all. I don't know why they think that's okay with MS? Hopefully they don't do it with cancer patients or people with heart disease, you know? Hang in there and don't give up. Did your neuro have the actual MRI films to view? Or did he go on what the radiologist reported? Be sure to get copies of your films and if your symptoms keep up you can take the films with you to another neuro.Sharon visit to neuro I went to see my neuro last week. He says I don't have MS because I don't have any lesions on my brain and cervical mri's (with no contrast). The mri of my neck showed wear and tear and he gave me a soft 2 inch neck brace to wear at night. By the next day most of the tingling and numbness was gone from my hands, arms and legs, altho there is still a little. It has done nothing for the difficulty on the stairs or the fatigue which was the reason I went to see him. I also started a patch called Curb your Cravings. It actually does it. Doesn't stop it completely, but makes it bearable. I felt so out of control. It's supposed to be all natural. It's given me a more energy, yet I still need my afternoon nap before the boys get home from school to make it thru the rest of the day. But I'm eating better - and told my daughter that if she makes cookies again she has to do it when I'm not around and to leave absolutely NO evidence. They were wayyyy too good.I'm not entirely convinced I don't have ms. There were those weeks around Thanksgiving and Christmas where my vision was blurred, I had to have 2 naps a day, and walking was somewhat difficult because my legs weren't working well. Most of that has improved. Oh well.Life goes on.Sue Shape Yahoo! in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2007 Report Share Posted May 30, 2007 That's the post Sue wrote a little while ago. Sharon Re: visit to neuro At 03:39 PM 5/30/2007, n Rojas wrote: This is not a post that I wrote. n At 03:24 PM 5/30/2007, you wrote: I went to see my neuro last week. He says I don't have MS because I don't have any lesions on my brain and cervical mri's (with no contrast). The mri of my neck showed wear and tear and he gave me a soft 2 inch neck brace to wear at night. By the next day most of the tingling and numbness was gone from my hands, arms and legs, altho there is still a little. It has done nothing for the difficulty on the stairs or the fatigue which was the reason I went to see him. I also started a patch called Curb your Cravings. It actually does it. Doesn't stop it completely, but makes it bearable. I felt so out of control. It's supposed to be all natural. It's given me a more energy, yet I still need my afternoon nap before the boys get home from school to make it thru the rest of the day. But I'm eating better - and told my daughter that if she makes cookies again she has to do it when I'm not around and to leave absolutely NO evidence. They were wayyyy too good. I'm not entirely convinced I don't have ms. There were those weeks around Thanksgiving and Christmas where my vision was blurred, I had to have 2 naps a day, and walking was somewhat difficult because my legs weren't working well. Most of that has improved. Oh well. Life goes on. Sue Luggage? GPS? Comic books? Check out fitting gifts for grads at Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2007 Report Share Posted May 30, 2007 Sue, I would get a second opinion. Per the info I have been given, active lesions only show with contrast on an MRI. Have they ever done an evoked potential test for the eyes and hearing?? That was one of my first tests after the brain/cervial MRI. I certainly hope you do not have MS, but if you do,it needs to be diagnosed and treated to prevent damage. Exhaustion has been and still is my main symptom--besides the severe hip pain this week. I had MS for approx 20 years prior to being diagnosed. Thank heavens for good testing now and a good doc!! > > > > I went to see my neuro last week. He says I don't have MS because I > don't have any lesions on my brain and cervical mri's (with no > contrast). The mri of my neck showed wear and tear and he gave me a > soft 2 inch neck brace to wear at night. By the next day most of > the tingling and numbness was gone from my hands, arms and legs, altho > there is still a little. It has done nothing for the difficulty on > the stairs or the fatigue which was the reason I went to see him. > > > > I also started a patch called Curb your Cravings. It actually does > it. Doesn't stop it completely, but makes it bearable. I felt > so out of control. It's supposed to be all natural. It's > given me a more energy, yet I still need my afternoon nap before the boys > get home from school to make it thru the rest of the day. But I'm > eating better - and told my daughter that if she makes cookies again she > has to do it when I'm not around and to leave absolutely NO > evidence. They were wayyyy too good. > > > I'm not entirely convinced I don't have ms. There were those weeks > around Thanksgiving and Christmas where my vision was blurred, I had to > have 2 naps a day, and walking was somewhat difficult because my legs > weren't working well. Most of that has improved. Oh > well. > > > Life goes on. > > > Sue > > > > > > > > > > > > > > > <!-- > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} > #ygrp-mlmsg table {font-size:inherit;font:100%;} > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} > #ygrp-mlmsg pre, code {font:115% monospace;} > #ygrp-mlmsg * {line-height:1.22em;} > #ygrp-text{ > font-family:Georgia; > } > #ygrp-text p{ > margin:0 0 1em 0;} > #ygrp-tpmsgs{ > font-family:Arial; > clear:both;} > #ygrp-vitnav{ > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} > #ygrp-vitnav a{ > padding:0 1px;} > #ygrp-actbar{ > clear:both;margin:25px 0;white-space:nowrap;color:#666;text- align:right;} > #ygrp-actbar .left{ > float:left;white-space:nowrap;} > .bld{font-weight:bold;} > #ygrp-grft{ > font-family:Verdana;font-size:77%;padding:15px 0;} > #ygrp-ft{ > font-family:verdana;font-size:77%;border-top:1px solid #666; > padding:5px 0; > } > #ygrp-mlmsg #logo{ > padding-bottom:10px;} > > #ygrp-vital{ > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} > #ygrp-vital #vithd{ > font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text- transform:uppercase;} > #ygrp-vital ul{ > padding:0;margin:2px 0;} > #ygrp-vital ul li{ > list-style-type:none;clear:both;border:1px solid #e0ecee; > } > #ygrp-vital ul li .ct{ > font-weight:bold;color:#ff7900;float:right;width:2em;text- align:right;padding-right:.5em;} > #ygrp-vital ul li .cat{ > font-weight:bold;} > #ygrp-vital a { > text-decoration:none;} > > #ygrp-vital a:hover{ > text-decoration:underline;} > > #ygrp-sponsor #hd{ > color:#999;font-size:77%;} > #ygrp-sponsor #ov{ > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} > #ygrp-sponsor #ov ul{ > padding:0 0 0 8px;margin:0;} > #ygrp-sponsor #ov li{ > list-style-type:square;padding:6px 0;font-size:77%;} > #ygrp-sponsor #ov li a{ > text-decoration:none;font-size:130%;} > #ygrp-sponsor #nc { > background-color:#eee;margin-bottom:20px;padding:0 8px;} > #ygrp-sponsor .ad{ > padding:8px 0;} > #ygrp-sponsor .ad #hd1{ > font-family:Arial;font-weight:bold;color:#628c2a;font- size:100%;line-height:122%;} > #ygrp-sponsor .ad a{ > text-decoration:none;} > #ygrp-sponsor .ad a:hover{ > text-decoration:underline;} > #ygrp-sponsor .ad p{ > margin:0;} > o {font-size:0;} > .MsoNormal { > margin:0 0 0 0;} > #ygrp-text tt{ > font-size:120%;} > blockquote{margin:0 0 0 4px;} > .replbq {margin:4;} > --> > > > > > > > > > _____________________________________________________________________ _______________Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2007 Report Share Posted May 30, 2007 Good point; I am allergic to iodine, and thank heavens that by the time they did get around to doing an MRI, in 1986, the lesions were visible without contrast dye! I have NO doubt that I was accurately diagnosed during my first optic neuritis epi sode when I was 19! Physicians are so skeptical these days--it is not as if we are planning to SUE them over any diagnosis--not us, in this group, anyway. Love to you, Sue~ n Rojas5915@... Re: visit to neuro Sue, I would get a second opinion. Per the info I have been given, active lesions only show with contrast on an MRI. Have they ever done an evoked potential test for the eyes and hearing?? That was one of my first tests after the brain/cervial MRI. I certainly hope you do not have MS, but if you do,it needs to be diagnosed and treated to prevent damage. Exhaustion has been and still is my main symptom--besides the severe hip pain this week. I had MS for approx 20 years prior to being diagnosed. Thank heavens for good testing now and a good doc!! > > > > I went to see my neuro last week. He says I don't have MS because I> don't have any lesions on my brain and cervical mri's (with no> contrast). The mri of my neck showed wear and tear and he gave me a> soft 2 inch neck brace to wear at night. By the next day most of> the tingling and numbness was gone from my hands, arms and legs, altho> there is still a little. It has done nothing for the difficulty on> the stairs or the fatigue which was the reason I went to see him. > > > > I also started a patch called Curb your Cravings. It actually does> it. Doesn't stop it completely, but makes it bearable. I felt> so out of control. It's supposed to be all natural. It's> given me a more energy, yet I still need my afternoon nap before the boys> get home from school to make it thru the rest of the day. But I'm> eating better - and told my daughter that if she makes cookies again she> has to do it when I'm not around and to leave absolutely NO> evidence. They were wayyyy too good.> > > I'm not entirely convinced I don't have ms. There were those weeks> around Thanksgiving and Christmas where my vision was blurred, I had to> have 2 naps a day, and walking was somewhat difficult because my legs> weren't working well. Most of that has improved. Oh> well.> > > Life goes on.> > > Sue> > > > > > > > > > > > > > > <!--> > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;}> #ygrp-mlmsg table {font-size:inherit;font:100%;}> #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;}> #ygrp-mlmsg pre, code {font:115% monospace;}> #ygrp-mlmsg * {line-height:1.22em;}> #ygrp-text{> font-family:Georgia;> }> #ygrp-text p{> margin:0 0 1em 0;}> #ygrp-tpmsgs{> font-family:Arial;> clear:both;}> #ygrp-vitnav{> padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}> #ygrp-vitnav a{> padding:0 1px;}> #ygrp-actbar{> clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;}> #ygrp-actbar .left{> float:left;white-space:nowrap;}> .bld{font-weight:bold;}> #ygrp-grft{> font-family:Verdana;font-size:77%;padding:15px 0;}> #ygrp-ft{> font-family:verdana;font-size:77%;border-top:1px solid #666;> padding:5px 0;> }> #ygrp-mlmsg #logo{> padding-bottom:10px;}> > #ygrp-vital{> background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}> #ygrp-vital #vithd{> font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:uppercase;}> #ygrp-vital ul{> padding:0;margin:2px 0;}> #ygrp-vital ul li{> list-style-type:none;clear:both;border:1px solid #e0ecee;> }> #ygrp-vital ul li .ct{> font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-right:.5em;}> #ygrp-vital ul li .cat{> font-weight:bold;}> #ygrp-vital a {> text-decoration:none;}> > #ygrp-vital a:hover{> text-decoration:underline;}> > #ygrp-sponsor #hd{> color:#999;font-size:77%;}> #ygrp-sponsor #ov{> padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}> #ygrp-sponsor #ov ul{> padding:0 0 0 8px;margin:0;}> #ygrp-sponsor #ov li{> list-style-type:square;padding:6px 0;font-size:77%;}> #ygrp-sponsor #ov li a{> text-decoration:none;font-size:130%;}> #ygrp-sponsor #nc {> background-color:#eee;margin-bottom:20px;padding:0 8px;}> #ygrp-sponsor .ad{> padding:8px 0;}> #ygrp-sponsor .ad #hd1{> font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%;}> #ygrp-sponsor .ad a{> text-decoration:none;}> #ygrp-sponsor .ad a:hover{> text-decoration:underline;}> #ygrp-sponsor .ad p{> margin:0;}> o {font-size:0;}> .MsoNormal {> margin:0 0 0 0;}> #ygrp-text tt{> font-size:120%;}> blockquote{margin:0 0 0 4px;}> .replbq {margin:4;}> -->> > > > > > > > > _________________________________________________________________________Fussy? Opinionated? Impossible to please? Perfect. Join Yahoo!'s user panel and lay it on us. http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 Sue...please don't feel so discouraged...sometimes it takes a while to have the evidence..What about on your spine>? Did they do a T-spine MRI?No, just head and neck without the contrast. Glad the patch is working for you. I just started something called, 'Detoxykall'. A liquid supplement to help curb appetite, and clean out the toxins..I'm trying just bout everything myself here... Keep the faith. Time will tell. Have you had any Evoked potentials done?That was done on my hands/arms a couple of years ago to check for carpal tunnel syndrome, but he was confused by the results, because I was numb in the last two fingers on both hands, whereas carpal tunnel is the thumb and first two fingers. It seems that the wear and tear in the neck cause the nerves to kink especially when I'm asleep, so keeping my neck straight helps. I was quite surprised the other day when I checked my blood sugar that I actually felt the needle prick on my ring finger. I'm just going to patiently wait. Something's wrong, time will tell. I diagnosed autism in my son more than a year before the doctors would. I diagnosed one of my foster children with Marfan's, and the doctors wouldn't look at it at first because it wouldn't explain the MR, but I said it needs to be looked into because it can cause problems on its own. The geneticist did some testing, but he wouldn't cooperate for it all, but suggested that he be followed as if he has Marfan's because he has enough signs. It could mean heart trouble down the road, and possibly eye problems. So, the waiting continues until the doctor catches up.Sue> I went to see my neuro last week. He says I don't have MS > because I> don't have any lesions on my brain and cervical mri's (with no> contrast). The mri of my neck showed wear and tear and he gave > me a> soft 2 inch neck brace to wear at night. By the next day most > of the> tingling and numbness was gone from my hands, arms and legs, > altho there> is still a little. It has done nothing for the difficulty on > the stairs> or the fatigue which was the reason I went to see him.> > I also started a patch called Curb your Cravings. It actually > does it. > Doesn't stop it completely, but makes it bearable. I felt so > out of> control. It's supposed to be all natural. It's given me a more > energy,yet I still need my afternoon nap before the boys get > home from school> to make it thru the rest of the day. But I'm eating better - > and told> my daughter that if she makes cookies again she has to do it > when I'm> not around and to leave absolutely NO evidence. They were > wayyyy too> good.> > I'm not entirely convinced I don't have ms. There were those weeks> around Thanksgiving and Christmas where my vision was blurred, I > had to> have 2 naps a day, and walking was somewhat difficult because my legs> weren't working well. Most of that has improved. Oh well.> > Life goes on.> > Sue> Get the free Yahoo! toolbar and rest assured with the added security of spyware protection. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2007 Report Share Posted May 31, 2007 Sharon Marsden wrote: Hang in there and don't give up. Did your neuro have the actual MRI films to view? Or did he go on what the radiologist reported? Be sure to get copies of your films and if your symptoms keep up you can take the films with you to another neuro.I think I'm going to stay with this neuro. He explains things quite well, and has a very good bedside manner - difficult to find with many doctors. He said he did look at the films - they're on his computer. My problem is I didn't bring my hubby. I turn into the little girl who was traumatized by doctors and the procedures they did and don't stand up for myself when I'm not well prepared. I stand up well for the kids, but for myself I fall apart. I have a follow up in 3 months, and dragging hubby with me.Sue I went to see my neuro last week. He says I don't have MS because I don't have any lesions on my brain and cervical mri's (with no contrast). The mri of my neck showed wear and tear and he gave me a soft 2 inch neck brace to wear at night. By the next day most of the tingling and numbness was gone from my hands, arms and legs, altho there is still a little. It has done nothing for the difficulty on the stairs or the fatigue which was the reason I went to see him. I also started a patch called Curb your Cravings. It actually does it. Doesn't stop it completely, but makes it bearable. I felt so out of control. It's supposed to be all natural. It's given me a more energy, yet I still need my afternoon nap before the boys get home from school to make it thru the rest of the day. But I'm eating better - and told my daughter that if she makes cookies again she has to do it when I'm not around and to leave absolutely NO evidence. They were wayyyy too good.I'm not entirely convinced I don't have ms. There were those weeks around Thanksgiving and Christmas where my vision was blurred, I had to have 2 naps a day, and walking was somewhat difficult because my legs weren't working well. Most of that has improved. Oh well.Life goes on.Sue Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
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