Re: Do recovered kids still have issues????

[Guest guest]

We are getting close or in the ballpark or maybe even close to being in

the ballpark...

I am looking for: normal eyes, no shiners, normal stools, no more crazy

meltdowns. No more fragile kids. When we forget something or have an

infraction it is not devastating. Coming out of the spectrum to me

doesn't mean recovered, not yet. My kids look pretty darn good, but I

know what their issues are and they do struggle a lot. ADHD symptoms

need to be to the point where they are not such a huge hinderance.

amysmith_lasvegas wrote:

>

>

> I was wondering how to know when/if your child has recovered. I don't

> think everyone brings their child to a neurologist for a full exam to

> remove label. Many of us had trouble even getting a diagnosis in the

> first place! So how do you know? Is it certain symptoms that leave? A

> severity that is gone?? I was told that my child is " coming out of the

> spectrum " but I want to know what to look for and what to focus on.

> Thanks

>

>

[Guest guest]

Vivian, my kids are the same. I see kids at my son's former level and wish

their parents could have seen my son come out of it so they'd believe it. He's

not recovered because he still has major speech issues. I am praying that God

will reveal to me why this has happened to him (speech) because it's killing me

not knowing why he has such difficulty.

> >

> >

> > I was wondering how to know when/if your child has recovered. I don't

> > think everyone brings their child to a neurologist for a full exam to

> > remove label. Many of us had trouble even getting a diagnosis in the

> > first place! So how do you know? Is it certain symptoms that leave? A

> > severity that is gone?? I was told that my child is " coming out of the

> > spectrum " but I want to know what to look for and what to focus on.

> > Thanks

> >

> >

>

[Guest guest]

Unfortunately, recovered is still a lot of work, but at least the symptoms are

mostly gone. Here are my kids. My 17 year-old, recovered at 15, has been in

regular school for two year, no modifications, and no one can tell he use to

have autism. But, he is still fragile, in that he still has infections that are

under control, but not gone. He still has to eat organic. Last week he begged

me to start drinking coffee. I knew it was a bad idea, but he had to learn

through experience. He drank several cups of coffee for five days, and the the

6th, he didn't and passed out. He could not handle the caffiene withdrawal.

So, basically, he is still dependent upon supplements and diet to treat

linguering infections and toxins.

Basically, they are recovered before all thier infections and toxins are gone.

The same for my younger children. They can do regular school without

modifications as long as they eat organic and stay on supplements. When they

sneak wheat at school, their symptoms return. So, they are fragile still. When

I tell their teachers they use to have autism, the teachers are in shock, saying

they never guessed that. So, they appear neural-typical, but still very

dependent upon things. So, hopefully, after some more years, we will get those

pathogen and toxin loads down lower, but I am hearing relapse rates are high in

general.

I see stories of children being recovered for years, then relapsing. So, it's a

pathogen thing. They can regrow at any time. Hopefully, we will be more

successful in the future. When you look at it, just in this last year, the

amount of information has dramatically increased. So, sorry to let you know how

long this journey really is. But, along the way, you will learn all kinds of

ways to defeat pathogens and toxins, eat healthy, etc., which is likely to come

in very handy.

Love and prayers,

Heidi N

> > > I was wondering how to know when/if your child has recovered. I don't

> > > think everyone brings their child to a neurologist for a full exam to

> > > remove label. Many of us had trouble even getting a diagnosis in the

> > > first place! So how do you know? Is it certain symptoms that leave? A

> > > severity that is gone?? I was told that my child is " coming out of the

> > > spectrum " but I want to know what to look for and what to focus on.

> > > Thanks

> > >

> > >

> >

>

[Guest guest]

----- Original Message -----

From: amysmith_lasvegas

===>We took ours to a developmental psychologist, as she was going to a regular school and we wanted to know if there were any glaring learning disabilities. For children under 5, it's very hard to see what residual issues are going to cause issues later on.

Each year the demands on a child increase so any teeny, tiny little deficit will grow to glaring proportions by the time they are 10. In other words, you could have a pretty recovered looking child at 4 who has a lot of difficulties at 8.

In our case, ours was totally recovered cognitively with no learning disabilities, with weak fine motor skills, but no dx. This information was valuable as we kept chelating and her fine motor skills improved to normal.

I was wondering how to know when/if your child has recovered. I don't think everyone brings their child to a neurologist for a full exam to remove label. Many of us had trouble even getting a diagnosis in the first place! So how do you know? Is it certain symptoms that leave? A severity that is gone?? I was told that my child is "coming out of the spectrum" but I want to know what to look for and what to focus on. Thanks

[Guest guest]

" Yeah, I always had that rebel spirit (my mother loved that when I was a

teenager!) Now I am surprised that my mother, the nurse and conservative, would

listen to my ramblings and read my writings about modern medicine's fallacies.

Amazing how things turn out in life. "

====> Amen sister!!

[Guest guest]

I always find the following poem very comforting, i am blessed to have my son in my life and i appriciate EVERY small step my son achieves and i never take anything for granted:-

HEAVEN'S VERY SPECIAL CHILD

A meeting was held quite far from Earth!

It's time again for another birth.

Said the Angels to the LORD above,

This Special Child will need much love.

His progress may be very slow,

Accomplishments he may not show.

And he'll require extra care

From the folks he meets down there.

He may not run or laugh or play,

His thoughts may seem quite far away,

In many ways he won't adapt,

And he'll be known as handicapped.

So let's be careful where he's sent,

We want his life to be content.

Please LORD, find the parents who

Will do a special job for you.

They will not realize right away

The leading role they're asked to play,

But with this child sent from above

Comes stronger faith and richer love.

And soon they'll know the privilege given

In caring for their gift from Heaven.

Their precious charge, so meek and mild,

Is HEAVEN'S VERY SPECIAL CHILD.

To: mb12 valtrex From: smiths4him@...Date: Tue, 7 Jul 2009 23:45:49 +0000Subject: Re: Do recovered kids still have issues????

Vivian- You said beautifully what I wanted to say.I have seen so many blessings in our lives because of autism.I read an article a few weeks ago about a mom with 8 (soon to be 9) children. The 3 boys were all on the spectrum, and the girls all had neurological problems. She had to endure rude comments from people who wondered why she had so many children when they were not "NORMAL". Who are we to say what's normal and what's not? God has a special plan for each of our children. One day this mom was crying out to the Lord saying "Why me?" and He answered and said "Why NOT you?" So that is my constant thought when I feel overwhelmed with the hugeness of autism...Why NOT me? I always wondered why I have this "warrior mom" spirit in me...now I know. And I believe all the moms and dads on this board have that same thing.I believe autism is here to change and shakeup the medical community and the status quo. We parents will not stand for "there's no hope". That in itself is a HUGE thing. We're taking on the "establishment". Children ARE recovering every day. As the numbers continue to grow of recovered children, they cannot be ignored. We are part of a movement, much like a revolution. This is how the founding fathers of our country must have felt...no one's ever done this before, but here we are DOING it! And having success.God bless you all and all your children,Nanci> >> > Vivian, my kids are the same. I see kids at my son's former level and > > wish their parents could have seen my son come out of it so they'd > > believe it. He's not recovered because he still has major speech > > issues. I am praying that God will reveal to me why this has happened > > to him (speech) because it's killing me not knowing why he has such > > difficulty.> >>

Beyond Hotmail - see what else you can do with Windows Live. Find out more.

[Guest guest]

Beautiful poem!

I've never seen that before. That's one to print and keep

Nanci

> > >

> > > Vivian, my kids are the same. I see kids at my son's former level and

> > > wish their parents could have seen my son come out of it so they'd

> > > believe it. He's not recovered because he still has major speech

> > > issues. I am praying that God will reveal to me why this has happened

> > > to him (speech) because it's killing me not knowing why he has such

> > > difficulty.

> > >

> >

>

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> _________________________________________________________________

> With Windows Live, you can organise, edit, and share your photos.

> http://clk.atdmt.com/UKM/go/134665338/direct/01/

>

[Guest guest]

It is all well said.

Why not me? A very good question. I like the why me question better

though. So here are my thoughts on " why me " :

Why me:

I am willing to stand up for them.

I am willing to fight for them. Even if it means fighting my husband and

dragging him along on the way to health and fighting relatives.

I am willing to lose friendships, because I am just too odd or make them

feel uncomfortable.

I am not willing to take no for an answer.

I am willing to spend the money on them, even if it means we don't have

anything left for anything others would consider a necessity.

I am willing to do everything I can to educate anybody and everybody

that will listen to me along the way. Whether or not they think I am crazy.

I am willing to fight for other suffering children.

I am willing to offer hope, where others see none.

I am willing to give my time, my money, and my energy to see others get

healthy.

I am willing to pray for others.

I see the incredible beauty in special needs kids. They are gorgeous and

I appreciate them and value their beauty.

He knew I would see it as a gift to be cherished.

He prepared me for them. I was ready.

Why me?

I needed to grow.

I needed to find out just how unhealthy I was.

I needed to draw nearer to the LORD.

I needed answers and never could get them either.

My kids needed a mother that could give their all. Without the knowledge

gained from seeking answers for them, I wasn't able to give them the

mother they needed.

My marriage needed so much more.

My husband needed someone to have answers for him.

My children's generation is going to be the first generation to fulfill

God's Old Testament promise that even unto a thousand generations will

the deeds of a righteous man be passed down. This was the generation to

stop the dysfunction.

I needed to be on my knees.

I needed God. He brought me to a place that I could see Him.

He trusted me with beautiful children. I would not have any others. He

trusted me, there is no greater gift. He filled me up with so much love

for them that it spills over.

Thank you my new friends for welcoming me. No one else understands us

quite so well, do they? I am filled with gratitude for today. I am

filled with anticipation for tomorrow and the Lord's plans. The future

is the Lord's. The future is bright.

My job: To love and cherish them and to give the Lord our God the glory!

smiths4him wrote:

>

>

> Beautiful poem!

> I've never seen that before. That's one to print and keep

>

> Nanci

>

>

> > > >

> > > > Vivian, my kids are the same. I see kids at my son's former

> level and

> > > > wish their parents could have seen my son come out of it so they'd

> > > > believe it. He's not recovered because he still has major speech

> > > > issues. I am praying that God will reveal to me why this has

> happened

> > > > to him (speech) because it's killing me not knowing why he has such

> > > > difficulty.

> > > >

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > __________________________________________________________

> > With Windows Live, you can organise, edit, and share your photos.

> > http://clk.atdmt.com/UKM/go/134665338/direct/01/

> <http://clk.atdmt.com/UKM/go/134665338/direct/01/>

> >

>

>

[Guest guest]

Yeah....

I think that you move up the spectrum. For us, clear speech and fine motor

skills have been the toughest. Mentally, ADD issues were taken care of via lead

removal. It was pretty easy.

The last of the issues for most of these kids is poor organizational skills. We

are working on that now and it is a life issue for certain. They must be able

to adequately organize their belongings to survive.... take care of important

papers, keys, money, notes, knapsacks and passports! I cannot tell you how

agravating it makes me to pay for yet another lost textbook just when I think

we've improved on the organizational front.

At the end of the day, though, aren't we all a little weird? Though my son may

have a couple of little quirks here and there, they are lessoning with puberty.

He gets up each morning to shower because he wants to impress the girls and he

works at being a regular guy because he enjoys his friends. Like all NT

children, he works to fit in and because he has struggled socially so much in

the past, he is now a great party organizer! (wish he'd do that with his

knapsack!)

I have met many a man or woman for that matter who have truckloads of emotional

baggage slung to their life. You may not be able to see it at first glance but

it's there, impeding the success of every relationship they have. Who has a

perfect upbringing?

My boy is pretty balanced emotionally now that his neurotransmittors are nice

and balanced.....

Our family is peaceful and generally a happy one. There is no abuse; no

alcoholics, drug addicts or other items that mess with the mind, heart and

spirit. There is no screaming, yelling or discord. We live in a happy place

and because of that, I know that my boy will grow to be a man of character and

substance. He won't have 'issues' that others have hidden in their back

pockets; just a couple of quirky traits that won't impede his happiness.... He's

not going to be a brain surgeon; fine motor is not that great... nor an auto

mechanic.... and he'll drive his wife crazy for his inability to fix things

around the house. He'll definately have to hire someone! He'll probably always

use an electric shaver too rather then a blade. But he is very smart and will

have no troubles fitting into this world. I know that now and it is a relief to

be able to say it out loud.

Carrying a few funny little quirks actually makes you interesting! You should

see the really high IQ kids at his school! They are the dorkiest kids you've

ever seen...but brilliant. I'll bet you in 10 years time, every one will want

to date them! Just ask Bill Gates; sometimes quirky and dorky is not so bad....

he turned out okay...

Janice

Mother of Mark, 14

> > >

> > >

> > > I was wondering how to know when/if your child has recovered. I don't

> > > think everyone brings their child to a neurologist for a full exam to

> > > remove label. Many of us had trouble even getting a diagnosis in the

> > > first place! So how do you know? Is it certain symptoms that leave? A

> > > severity that is gone?? I was told that my child is " coming out of the

> > > spectrum " but I want to know what to look for and what to focus on.

> > > Thanks

> > >

> > >

> >

>