Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Debby wrote: >>>I seem to be budding in on another conversation...who is ? Is it >>>the Archie's ??<<< Debby, is 's " girlfriend " at school. :-) Debby wrote: >>>If it is, will be disappointed because Adam has already spoken for >>>her!!!<< too funny! Sue R. _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 and others I had to ask about . It seems Adam's imagination has taken front and centre stage. He is into, not including the ever popular Digimon/Pokemon, the Archie's cartoons. One day his books from school came home and he had rubbed out his name on every one and put either Betty or . The teacher scratched this out and re wrote " Adam " and didn't the little fart cross that out !! and re write Betty or . He wants to send them mail, he named our fish Betty and ...and oh then there is his invisible friend who seems to always be around--Mimi (another tv character)!! I am about to go nuts with this!!! Anyone else find their kids with this " behaviour " or do I have a true and certifiable " wacko " on my hands???????? Any help will be much appreciated Debby (at least I think that's still my name....I could be Jughead now for all I know!!!!!!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2000 Report Share Posted November 27, 2000 Hi Cheryl my name is Carolyn. My son Noah is almost 10 months & was diagnosed with RSS last month. It has definalty been a hard thing to except but I never of could of gotten this far without everyone from here. I am not from Canada I am from Long Island, New York but if you ever need to chat feel free to e-mail me. Thanks Carolyn (My3Sons-Noah w/RSS) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2000 Report Share Posted November 27, 2000 Hi Cheryl I was the only resident Canadian here for the longest time, but now we have a few more. You don't say what city or province. I'm in Toronto and Kristi is out in BC. We seem to be the two regular contributors. Welcome to the group. I've been here since August and have learned so much. My son, Adam, is 8 but was diagnosed around 2. But it's taken me this long to accept the diagnosis and then find some help with it. One prior endo. at Sick Kids told me not to come back he could do nothing. Right now I am waiting (rather impatiently) to get approval for Growth Hormone (GH). Please write back and let me know where you are. Kristi or I might be able to help with doctors etc. I sure have visited the lot at this end of Canada. Take care and hope to hear from you soon. Then we can get into some specific " Canadian " details. Debby (mother of Adam, 8, 35.5 lbs, 109.2 cm. and Colette, age 11 5 feet tall and 115 lbs--BIG!!) kevinandcheryl.vanderheyden@... wrote: > Hi, my name is Cheryl and I have a son named who will be 3 on > Dec. 1. He has not been diagnosed with RSS, but after discovering > this group and the Magic site, I know in my heart. We just had a bone > age done, and are waiting on results. I just wanted to introduce > myself, and let you know that I am getting to know a little about > many of you from the messages here. I would like to hear from anyone > in Canada to find out who the " good " endos are, and anything else I > might need to know that is different in Canada than in the US. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 Hi Debby, I think I am figuring out how to use this message board thing! Anyway, we live near Sault Ste Marie in Ontario. I am starting to think I may have over reacted to right away think that my son may have RSS. He has lots of the characteristics, but there are lots he doesn't have too. He was 8lbs at birth and grew well for the first few months. Aside from not growing and not wanting to eat, he is too healthy. How do they actually diagnose RSS, since the cause isn't understood and symptoms vary so much? What is involved in getting approved for GHt? Our pediatrician mentioned getting Gh pretty casually 1.5 years ago and sent us to Sick kids, but our appointment gat cancelled and I never got around to going back. I guess I didn't realize we might be dealing with something serious. Oh well, there's still lots of time. Cheryl > > > Hi, my name is Cheryl and I have a son named who will be 3 on > > Dec. 1. He has not been diagnosed with RSS, but after discovering > > this group and the Magic site, I know in my heart. We just had a bone > > age done, and are waiting on results. I just wanted to introduce > > myself, and let you know that I am getting to know a little about > > many of you from the messages here. I would like to hear from anyone > > in Canada to find out who the " good " endos are, and anything else I > > might need to know that is different in Canada than in the US. Thanks. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 Hi Debby, Sorry it takes forever to get around to answering sometimes. We went to Pancake Bay for the first time this summer and had fun on the beautiful beach except that it was cold. We are actually from Milton, and moved here 3.5 years ago. We make numerous trips to the Toronto area every year...including Christmas this year. That's how I got started re-opening this can of worms...In the spring of '99 we had an immediate referal to sick kids only 5 or 6 weeks after the appointment was made. I don't know who we were going to see. It was a weight gain clinic and there would be a panel of doctors and dieticians etc. who would determine if further tests were necessary, and GH had been mentioned by our doctor. They really inconvenienced us by cancelling on short notice so I said " don't bother rescheduling " . I thought it would easy to get in again when we were planning a trip " home " . I guess it isn't that easy, and now our ped. has sent a photo of to somebody in London(an endo?). I will find out who on Wed at our appt. And just for the record, there aren't any doctors in the SOO with credentials!!! Cheryl Debra Baillargeon wrote: > Hi Cheryl > Sault Ste Marie is a nice town. On my honeymoon, my husband (now ex) and I camped at Pancake > Bay. We ended up in " the Soo " one day when it rained. We kicked around in a mall. > > Anyway, my son was 5-3 when he was born. I smoked when I was pregnant but had also smoked > with my daughter and she was 7-11. But with Adam I had some bleeding at 32 weeks of > pregnancy and was hospitalized for a week. During that week the ultrasound showed Adam to be > 5 lbs and 6 weeks later when he was born, he hadn't grown much since that time. > The doctors figured it was a combination of the smoking and a possible tear or something in > the placenta that restricted food getting to him. > The doctors felt he was initially growing and " catching up " fine until around 9 months when > his weight gain seemed to plateau. By a year he was a skeleton. So began the rounds to see > why he wasn't growing. > I tell you this because, in the end, he was given the RSS diagnosis. No one can prove for > sure the kids have it. It's basically one of elimination of any other problems coupled with > some visual characteristics. > What doctor were you supposed to see at Sick Kids. Dr. Ehrlick by any chance?? He was the > one who told me Adam had RSS but he couldn't do anything for us and I wasn't to come back. > (that was in and around 1996 or 1997). He has since retired and the head of endo. now is Dr. > Daneman, who has examined Adam, has agreed with the RSS diagnosis and is starting the > process to get GH. > > Unfortunately this process is proving to be very slow. I am teacher and have a good > insurance/health care plan with the school. He has been " applying " for approval from my > insurance for--oh 2 months or so now (but then again I don't know for sure--maybe he hasn't > even started the paperwork yet all I know is when I call, his assistant says they are > working on it and won't say anything else). > Dr. Daneman did assure me that if my insurance will not cover the growth hormone treatments > he can still get it, from the drug company, without my paying. He says that the company > needs the " stats " of GH working for RSS kids so they can widen their base of approved > treatment options through OHIP. > > I know it's not easy to get down to Toronto from where you are. And with the winter coming > it's even more difficult to think of. But if you decide you would like to try again and see > what the doc's at sick kids have to say...just let me know. > You know from experience that even if you were to get a referral tomorrow, it would take 4-6 > months for you to get an appointment anyway. So you'd be looking at the spring anyhow > (better driving weather). > If you want, keep it in mind that I am out here and I can always help out (recommend hotels, > how to drive down there, a free meal at my place etc.) I live in Scarborough (which is a > suburb of downtown Toronto--it takes me about 1/2 hour to drive to sick kids) but my house > is only 5 minutes off the 401 (which is the eventual highway you would end up on to get into > Toronto anyway). > > Give it some thought. I am a firm believer (after many mistakes!!) of getting second > opinions. That way, either you get things confirmed or you have someone else's opinion on > options. > > Please write back and let me know how things are and I'm interested in which doctor you were > supposed to see at Sick Kids. > > Ps I would strongly recommend Dr. Daneman (over Dr. Ehrlick) as he was very straight forward > and honest with us. He seemed to know what he was talking about and had a good " bed side > manner " . I also have a endo. pediatric specialist that sees Adam for the " regular " things. > She's excellent too and is involved in on going research through sick kids but has her own > " regular " practice. But you wouldn't want to get into having to drive down here every time > you needed to see the doctor. Although, if you'd like, I could call her and ask her if she > could recommend a good doctor comparable to her credentials up in the " soo " . She also has a > daughter with a growth disorder, so she is wonderful and caring. > > Let me know. > > Thanks > Debby > > kevinandcheryl.vanderheyden@... wrote: > > > Hi Debby, > > > > I think I am figuring out how to use this message board thing! > > Anyway, we live near Sault Ste Marie in Ontario. I am starting to > > think I may have over reacted to right away think that my son may have > > RSS. He has lots of the characteristics, but there are lots he > > doesn't have too. He was 8lbs at birth and grew well for the first > > few months. Aside from not growing and not wanting to eat, he is too > > healthy. How do they actually diagnose RSS, since the cause isn't > > understood and symptoms vary so much? What is involved in getting > > approved for GHt? Our pediatrician mentioned getting Gh pretty > > casually 1.5 years ago and sent us to Sick kids, but our appointment > > gat cancelled and I never got around to going back. I guess I didn't > > realize we might be dealing with something serious. Oh well, there's > > still lots of time. > > > > Cheryl > > > > > > > > > Hi, my name is Cheryl and I have a son named who will be 3 > > on > > > > Dec. 1. He has not been diagnosed with RSS, but after discovering > > > > this group and the Magic site, I know in my heart. We just had a > > bone > > > > age done, and are waiting on results. I just wanted to introduce > > > > myself, and let you know that I am getting to know a little about > > > > many of you from the messages here. I would like to hear from > > anyone > > > > in Canada to find out who the " good " endos are, and anything else > > I > > > > might need to know that is different in Canada than in the US. > > Thanks. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2000 Report Share Posted December 4, 2000 , The only other test has had so far is for Celiac disease, which is a malabsorption disease caused by wheat gluten. Our doctor originally said he looked like a celiac kid (really fat round tummy and super skinny limbs), and then I told him that my mother-in-law has it. We were stumped that it came back negative (no antibodies against gluten), however the test was done when we were first trying to get him to eat and he may not have been exposed to wheat yet at that time. They just retested him, and it takes a couple of weeks to hear back. I was thinking of avoiding milk for a while to see if that made any difference, but I haven't yet since milk is his main diet. Anyway, thanks for giving more possibilities to consider and discuss with 's doctor. Cheryl JBSalem@... wrote: > Cheryl - > > These may be repetitive questions (I haven't done email for a couple days), but has your son been checked for allergies, for malabsorption, for shoot, I can't remember the name but chronic inflammation of the bowels, etc. In our rounds of GI and Endos, I have met several children similar to your son - unlike most RSS kids who are born small and still don't grow, these children were born normal or above-average, and then around 3-4 months, their weight plummets, and then several months after that, their height slows (height slows after weight stops naturally). From my memory, one child ended up being allergic to all milk protein ( meaning any dairy casings - its a tough one because so many foods have milk casings in them). Another child went through a lot of studies before finding out that she had the one I can't remember - it's a chronic inflamation and she now takes medicine every day (and will take forever). The third child has some type of malabsorption. > > Anyways. Just wondering if you have already had all these tests? > > Salem > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Hi Cheryl I know what you mean about sick kids and their cancellations!! I had an appointment for Adam to have a sleep study last December. That day I went crazy, organized his overnight bag, mine, and my daughter's. Arranged for my daughter to stay at my parents and get to school the next day. Which meant making next day's lunch in advance. Then, I had to organize my plans for the supply teacher because I knew the " morning after " would be wicked and I wouldn't be able to go into work. All that said, I dropped off Colette at my mom's (with dinner for her) then Adam and I came home. We didn't have to be at the hospital until close to bed time, so we had dinner (bought--so I had time for everything) and settled in for the wait. Suddenly, I get a call--the tech. was sick and they had to cancel us!! Literally within an hour of our leaving home. They were dam lucky I hadn't decided to go out for dinner and then straight down town or they'd have had one mean, angry mother on their hands!! Well talk about throwing everything in reverse fast. Called the daughter back home, got Adam down off the ceiling (he'd packed every stuff animal he owns 8 times over) and unpacked all the bags, canceled the supply who was to take my class the next day etc. I was major MAJOR peeved that night!!! But we were re scheduled for January 4th 2000. I had to laugh-- Adam is famous down there now because he was the first kid to " test " their computer Y2K business--the first patient of the new year (in the sleep lab anyway). Well, I'm trying to think where McMaster's University is. I think that's London--which is probably where you are planning to go. I hear they are 2nd best in the areas of treating children. It's so frustrating when we go to these arrangements and then get canceled. Especially for you doing all that distance driving. However, at least when you do come down here, you get to stay with relatives. And so you know the area better. If you don't like what you hear in London (I really think it is McMaster's you'll go to) be sure to keep in mind a second opinion at Sick Kids. Their bed side manner in regards to treating us parents is not the best, but they do seem to know what they are doing for kids (with the exception of that ward where two kids have died--was it ward 5?? Did you hear about that up there??) Actually in the first case, the coroner has decided to rule it homicide (as in murder) since the nurses were so negligent. But the second one is still being investigated. Scary eh?? Oh well, that's enough. Keep in touch and keep the brain going on those biology lessons LOL Debby PS How's the snow?? We were belted last night with news reports of the 1-2 cm. we were expected to get today. Oh leave for work real early etc. etc.they were cautioning us!! And it was probably about a 1/2 a cm when I got up--man we are wimps here in T.O. when it comes to snow!!!!! and Cheryl Vanderheyden wrote: > Hi Debby, > > Sorry it takes forever to get around to answering sometimes. We went to Pancake Bay for the > first time this summer and had fun on the beautiful beach except that it was cold. We are > actually from Milton, and moved here 3.5 years ago. We make numerous trips to the Toronto area > every year...including Christmas this year. That's how I got started re-opening this can of > worms...In the spring of '99 we had an immediate referal to sick kids only 5 or 6 weeks after > the appointment was made. I don't know who we were going to see. It was a weight gain clinic > and there would be a panel of doctors and dieticians etc. who would determine if further tests > were necessary, and GH had been mentioned by our doctor. They really inconvenienced us by > cancelling on short notice so I said " don't bother rescheduling " . I thought it would easy to > get in again when we were planning a trip " home " . I guess it isn't that easy, and now our ped. > has sent a photo of to somebody in London(an endo?). I will find out who on Wed at our > appt. And just for the record, there aren't any doctors in the SOO with credentials!!! > > Cheryl > > Debra Baillargeon wrote: > > > Hi Cheryl > > Sault Ste Marie is a nice town. On my honeymoon, my husband (now ex) and I camped at Pancake > > Bay. We ended up in " the Soo " one day when it rained. We kicked around in a mall. > > > > Anyway, my son was 5-3 when he was born. I smoked when I was pregnant but had also smoked > > with my daughter and she was 7-11. But with Adam I had some bleeding at 32 weeks of > > pregnancy and was hospitalized for a week. During that week the ultrasound showed Adam to be > > 5 lbs and 6 weeks later when he was born, he hadn't grown much since that time. > > The doctors figured it was a combination of the smoking and a possible tear or something in > > the placenta that restricted food getting to him. > > The doctors felt he was initially growing and " catching up " fine until around 9 months when > > his weight gain seemed to plateau. By a year he was a skeleton. So began the rounds to see > > why he wasn't growing. > > I tell you this because, in the end, he was given the RSS diagnosis. No one can prove for > > sure the kids have it. It's basically one of elimination of any other problems coupled with > > some visual characteristics. > > What doctor were you supposed to see at Sick Kids. Dr. Ehrlick by any chance?? He was the > > one who told me Adam had RSS but he couldn't do anything for us and I wasn't to come back. > > (that was in and around 1996 or 1997). He has since retired and the head of endo. now is Dr. > > Daneman, who has examined Adam, has agreed with the RSS diagnosis and is starting the > > process to get GH. > > > > Unfortunately this process is proving to be very slow. I am teacher and have a good > > insurance/health care plan with the school. He has been " applying " for approval from my > > insurance for--oh 2 months or so now (but then again I don't know for sure--maybe he hasn't > > even started the paperwork yet all I know is when I call, his assistant says they are > > working on it and won't say anything else). > > Dr. Daneman did assure me that if my insurance will not cover the growth hormone treatments > > he can still get it, from the drug company, without my paying. He says that the company > > needs the " stats " of GH working for RSS kids so they can widen their base of approved > > treatment options through OHIP. > > > > I know it's not easy to get down to Toronto from where you are. And with the winter coming > > it's even more difficult to think of. But if you decide you would like to try again and see > > what the doc's at sick kids have to say...just let me know. > > You know from experience that even if you were to get a referral tomorrow, it would take 4-6 > > months for you to get an appointment anyway. So you'd be looking at the spring anyhow > > (better driving weather). > > If you want, keep it in mind that I am out here and I can always help out (recommend hotels, > > how to drive down there, a free meal at my place etc.) I live in Scarborough (which is a > > suburb of downtown Toronto--it takes me about 1/2 hour to drive to sick kids) but my house > > is only 5 minutes off the 401 (which is the eventual highway you would end up on to get into > > Toronto anyway). > > > > Give it some thought. I am a firm believer (after many mistakes!!) of getting second > > opinions. That way, either you get things confirmed or you have someone else's opinion on > > options. > > > > Please write back and let me know how things are and I'm interested in which doctor you were > > supposed to see at Sick Kids. > > > > Ps I would strongly recommend Dr. Daneman (over Dr. Ehrlick) as he was very straight forward > > and honest with us. He seemed to know what he was talking about and had a good " bed side > > manner " . I also have a endo. pediatric specialist that sees Adam for the " regular " things. > > She's excellent too and is involved in on going research through sick kids but has her own > > " regular " practice. But you wouldn't want to get into having to drive down here every time > > you needed to see the doctor. Although, if you'd like, I could call her and ask her if she > > could recommend a good doctor comparable to her credentials up in the " soo " . She also has a > > daughter with a growth disorder, so she is wonderful and caring. > > > > Let me know. > > > > Thanks > > Debby > > > > kevinandcheryl.vanderheyden@... wrote: > > > > > Hi Debby, > > > > > > I think I am figuring out how to use this message board thing! > > > Anyway, we live near Sault Ste Marie in Ontario. I am starting to > > > think I may have over reacted to right away think that my son may have > > > RSS. He has lots of the characteristics, but there are lots he > > > doesn't have too. He was 8lbs at birth and grew well for the first > > > few months. Aside from not growing and not wanting to eat, he is too > > > healthy. How do they actually diagnose RSS, since the cause isn't > > > understood and symptoms vary so much? What is involved in getting > > > approved for GHt? Our pediatrician mentioned getting Gh pretty > > > casually 1.5 years ago and sent us to Sick kids, but our appointment > > > gat cancelled and I never got around to going back. I guess I didn't > > > realize we might be dealing with something serious. Oh well, there's > > > still lots of time. > > > > > > Cheryl > > > > > > > > > > > > Hi, my name is Cheryl and I have a son named who will be 3 > > > on > > > > > Dec. 1. He has not been diagnosed with RSS, but after discovering > > > > > this group and the Magic site, I know in my heart. We just had a > > > bone > > > > > age done, and are waiting on results. I just wanted to introduce > > > > > myself, and let you know that I am getting to know a little about > > > > > many of you from the messages here. I would like to hear from > > > anyone > > > > > in Canada to find out who the " good " endos are, and anything else > > > I > > > > > might need to know that is different in Canada than in the US. > > > Thanks. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Cheryl Can you help me out quickly here? I've got your emails saved (under Canadian--we need a special place LOL) but I was telling a friend of mine today about your son. In fact, 's email (see the bottom of these ones) I printed for him today. His son is 7 now and is on the bottom of the charts for weight (40 lbs) and his height was around the 10th percentile. Now he's not RSS, but given my fascination (and updating knowledge on growth disorders) I've been " gently bugging " him to get a second opinion. His son was 8 or 9 pounds at birth (typical father can't remember exactly). So I sent him home last week with a measuring tape to get his son's height (coincidentally his son's name is Adam as is mine). So I want him to look into some other things more along the line of what was talking about. So could you tell me again how old your son is and his weight/height now?? I'm trying to piece this together for him. His wife is in total denial--but he works at my school and he's seen Adam and he knows these things DO happen. You can't live your life with your head in the sand. It does not benefit the child at all. But then again I'm on a crusade to save all the small children of the world!!!!! Debby and Cheryl Vanderheyden wrote: > , > > The only other test has had so far is for Celiac disease, which is a malabsorption disease caused by wheat gluten. Our doctor originally said he looked like a celiac kid (really fat round tummy and super skinny limbs), and then I told him that my mother-in-law has it. We were stumped that it came back negative (no antibodies against gluten), however the test was done when we were first trying to get him to eat and he may not have been exposed to wheat yet at that time. They just retested him, and it takes a couple of weeks to hear back. > > I was thinking of avoiding milk for a while to see if that made any difference, but I haven't yet since milk is his main diet. Anyway, thanks for giving more possibilities to consider and discuss with 's doctor. > > Cheryl > > JBSalem@... wrote: > > > Cheryl - > > > > These may be repetitive questions (I haven't done email for a couple days), but has your son been checked for allergies, for malabsorption, for shoot, I can't remember the name but chronic inflammation of the bowels, etc. In our rounds of GI and Endos, I have met several children similar to your son - unlike most RSS kids who are born small and still don't grow, these children were born normal or above-average, and then around 3-4 months, their weight plummets, and then several months after that, their height slows (height slows after weight stops naturally). From my memory, one child ended up being allergic to all milk protein ( meaning any dairy casings - its a tough one because so many foods have milk casings in them). Another child went through a lot of studies before finding out that she had the one I can't remember - it's a chronic inflamation and she now takes medicine every day (and will take forever). The third child has some type of malabsorption. > > > > Anyways. Just wondering if you have already had all these tests? > > > > Salem > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 is 3 years old (Dec. 1) his height is 35 " and weight is 24lb. Debra Baillargeon wrote: > Cheryl > Can you help me out quickly here? I've got your emails saved (under Canadian--we need a special place LOL) but I was telling a friend of mine today about your son. In fact, 's email (see the bottom of these ones) I printed for him today. His son is 7 now and is on the bottom of the charts for weight (40 lbs) and his height was around the 10th percentile. Now he's not RSS, but given my fascination (and updating knowledge on growth disorders) I've been " gently bugging " him to get a second opinion. His son was 8 or 9 pounds at birth (typical father can't remember exactly). So I sent him home last week with a measuring tape to get his son's height (coincidentally his son's name is Adam as is mine). > So I want him to look into some other things more along the line of what was talking about. > > So could you tell me again how old your son is and his weight/height now?? I'm trying to piece this together for him. His wife is in total denial--but he works at my school and he's seen Adam and he knows these things DO happen. You can't live your life with your head in the sand. It does not benefit the child at all. > > But then again I'm on a crusade to save all the small children of the world!!!!! > > Debby > > and Cheryl Vanderheyden wrote: > > > , > > > > The only other test has had so far is for Celiac disease, which is a malabsorption disease caused by wheat gluten. Our doctor originally said he looked like a celiac kid (really fat round tummy and super skinny limbs), and then I told him that my mother-in-law has it. We were stumped that it came back negative (no antibodies against gluten), however the test was done when we were first trying to get him to eat and he may not have been exposed to wheat yet at that time. They just retested him, and it takes a couple of weeks to hear back. > > > > I was thinking of avoiding milk for a while to see if that made any difference, but I haven't yet since milk is his main diet. Anyway, thanks for giving more possibilities to consider and discuss with 's doctor. > > > > Cheryl > > > > JBSalem@... wrote: > > > > > Cheryl - > > > > > > These may be repetitive questions (I haven't done email for a couple days), but has your son been checked for allergies, for malabsorption, for shoot, I can't remember the name but chronic inflammation of the bowels, etc. In our rounds of GI and Endos, I have met several children similar to your son - unlike most RSS kids who are born small and still don't grow, these children were born normal or above-average, and then around 3-4 months, their weight plummets, and then several months after that, their height slows (height slows after weight stops naturally). From my memory, one child ended up being allergic to all milk protein ( meaning any dairy casings - its a tough one because so many foods have milk casings in them). Another child went through a lot of studies before finding out that she had the one I can't remember - it's a chronic inflamation and she now takes medicine every day (and will take forever). The third child has some type of malabsorption. > > > > > > Anyways. Just wondering if you have already had all these tests? > > > > > > Salem > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Hey, I'm really happy to hear your wonderful news today! I just want to clarify that McMaster is in Hamilton, not London, but I think it is London they want to send us to. You have scared me away from Sick Kids - What happened to those kids that died? Anyway, I have to go to bed. I keep staying up late to play on my computer, and the tiredness is catching up with me! Cheryl Debra Baillargeon wrote: > Hi Cheryl > I know what you mean about sick kids and their cancellations!! I had an appointment for Adam to > have a sleep study last December. That day I went crazy, organized his overnight bag, mine, and my > daughter's. Arranged for my daughter to stay at my parents and get to school the next day. Which > meant making next day's lunch in advance. Then, I had to organize my plans for the supply teacher > because I knew the " morning after " would be wicked and I wouldn't be able to go into work. > > All that said, I dropped off Colette at my mom's (with dinner for her) then Adam and I came home. > We didn't have to be at the hospital until close to bed time, so we had dinner (bought--so I had > time for everything) and settled in for the wait. Suddenly, I get a call--the tech. was sick and > they had to cancel us!! Literally within an hour of our leaving home. They were dam lucky I hadn't > decided to go out for dinner and then straight down town or they'd have had one mean, angry mother > on their hands!! > > Well talk about throwing everything in reverse fast. Called the daughter back home, got Adam down > off the ceiling (he'd packed every stuff animal he owns 8 times over) and unpacked all the bags, > canceled the supply who was to take my class the next day etc. I was major MAJOR peeved that > night!!! > > But we were re scheduled for January 4th 2000. I had to laugh-- Adam is famous down there now > because he was the first kid to " test " their computer Y2K business--the first patient of the new > year (in the sleep lab anyway). > > Well, I'm trying to think where McMaster's University is. I think that's London--which is probably > where you are planning to go. I hear they are 2nd best in the areas of treating children. It's so > frustrating when we go to these arrangements and then get canceled. Especially for you doing all > that distance driving. > > However, at least when you do come down here, you get to stay with relatives. And so you know the > area better. > > If you don't like what you hear in London (I really think it is McMaster's you'll go to) be sure to > keep in mind a second opinion at Sick Kids. Their bed side manner in regards to treating us parents > is not the best, but they do seem to know what they are doing for kids (with the exception of that > ward where two kids have died--was it ward 5?? Did you hear about that up there??) Actually in the > first case, the coroner has decided to rule it homicide (as in murder) since the nurses were so > negligent. But the second one is still being investigated. Scary eh?? > > Oh well, that's enough. Keep in touch and keep the brain going on those biology lessons LOL > > Debby > PS How's the snow?? We were belted last night with news reports of the 1-2 cm. we were expected to > get today. Oh leave for work real early etc. etc.they were cautioning us!! And it was probably > about a 1/2 a cm when I got up--man we are wimps here in T.O. when it comes to snow!!!!! > > and Cheryl Vanderheyden wrote: > > > Hi Debby, > > > > Sorry it takes forever to get around to answering sometimes. We went to Pancake Bay for the > > first time this summer and had fun on the beautiful beach except that it was cold. We are > > actually from Milton, and moved here 3.5 years ago. We make numerous trips to the Toronto area > > every year...including Christmas this year. That's how I got started re-opening this can of > > worms...In the spring of '99 we had an immediate referal to sick kids only 5 or 6 weeks after > > the appointment was made. I don't know who we were going to see. It was a weight gain clinic > > and there would be a panel of doctors and dieticians etc. who would determine if further tests > > were necessary, and GH had been mentioned by our doctor. They really inconvenienced us by > > cancelling on short notice so I said " don't bother rescheduling " . I thought it would easy to > > get in again when we were planning a trip " home " . I guess it isn't that easy, and now our ped. > > has sent a photo of to somebody in London(an endo?). I will find out who on Wed at our > > appt. And just for the record, there aren't any doctors in the SOO with credentials!!! > > > > Cheryl > > > > Debra Baillargeon wrote: > > > > > Hi Cheryl > > > Sault Ste Marie is a nice town. On my honeymoon, my husband (now ex) and I camped at Pancake > > > Bay. We ended up in " the Soo " one day when it rained. We kicked around in a mall. > > > > > > Anyway, my son was 5-3 when he was born. I smoked when I was pregnant but had also smoked > > > with my daughter and she was 7-11. But with Adam I had some bleeding at 32 weeks of > > > pregnancy and was hospitalized for a week. During that week the ultrasound showed Adam to be > > > 5 lbs and 6 weeks later when he was born, he hadn't grown much since that time. > > > The doctors figured it was a combination of the smoking and a possible tear or something in > > > the placenta that restricted food getting to him. > > > The doctors felt he was initially growing and " catching up " fine until around 9 months when > > > his weight gain seemed to plateau. By a year he was a skeleton. So began the rounds to see > > > why he wasn't growing. > > > I tell you this because, in the end, he was given the RSS diagnosis. No one can prove for > > > sure the kids have it. It's basically one of elimination of any other problems coupled with > > > some visual characteristics. > > > What doctor were you supposed to see at Sick Kids. Dr. Ehrlick by any chance?? He was the > > > one who told me Adam had RSS but he couldn't do anything for us and I wasn't to come back. > > > (that was in and around 1996 or 1997). He has since retired and the head of endo. now is Dr. > > > Daneman, who has examined Adam, has agreed with the RSS diagnosis and is starting the > > > process to get GH. > > > > > > Unfortunately this process is proving to be very slow. I am teacher and have a good > > > insurance/health care plan with the school. He has been " applying " for approval from my > > > insurance for--oh 2 months or so now (but then again I don't know for sure--maybe he hasn't > > > even started the paperwork yet all I know is when I call, his assistant says they are > > > working on it and won't say anything else). > > > Dr. Daneman did assure me that if my insurance will not cover the growth hormone treatments > > > he can still get it, from the drug company, without my paying. He says that the company > > > needs the " stats " of GH working for RSS kids so they can widen their base of approved > > > treatment options through OHIP. > > > > > > I know it's not easy to get down to Toronto from where you are. And with the winter coming > > > it's even more difficult to think of. But if you decide you would like to try again and see > > > what the doc's at sick kids have to say...just let me know. > > > You know from experience that even if you were to get a referral tomorrow, it would take 4-6 > > > months for you to get an appointment anyway. So you'd be looking at the spring anyhow > > > (better driving weather). > > > If you want, keep it in mind that I am out here and I can always help out (recommend hotels, > > > how to drive down there, a free meal at my place etc.) I live in Scarborough (which is a > > > suburb of downtown Toronto--it takes me about 1/2 hour to drive to sick kids) but my house > > > is only 5 minutes off the 401 (which is the eventual highway you would end up on to get into > > > Toronto anyway). > > > > > > Give it some thought. I am a firm believer (after many mistakes!!) of getting second > > > opinions. That way, either you get things confirmed or you have someone else's opinion on > > > options. > > > > > > Please write back and let me know how things are and I'm interested in which doctor you were > > > supposed to see at Sick Kids. > > > > > > Ps I would strongly recommend Dr. Daneman (over Dr. Ehrlick) as he was very straight forward > > > and honest with us. He seemed to know what he was talking about and had a good " bed side > > > manner " . I also have a endo. pediatric specialist that sees Adam for the " regular " things. > > > She's excellent too and is involved in on going research through sick kids but has her own > > > " regular " practice. But you wouldn't want to get into having to drive down here every time > > > you needed to see the doctor. Although, if you'd like, I could call her and ask her if she > > > could recommend a good doctor comparable to her credentials up in the " soo " . She also has a > > > daughter with a growth disorder, so she is wonderful and caring. > > > > > > Let me know. > > > > > > Thanks > > > Debby > > > > > > kevinandcheryl.vanderheyden@... wrote: > > > > > > > Hi Debby, > > > > > > > > I think I am figuring out how to use this message board thing! > > > > Anyway, we live near Sault Ste Marie in Ontario. I am starting to > > > > think I may have over reacted to right away think that my son may have > > > > RSS. He has lots of the characteristics, but there are lots he > > > > doesn't have too. He was 8lbs at birth and grew well for the first > > > > few months. Aside from not growing and not wanting to eat, he is too > > > > healthy. How do they actually diagnose RSS, since the cause isn't > > > > understood and symptoms vary so much? What is involved in getting > > > > approved for GHt? Our pediatrician mentioned getting Gh pretty > > > > casually 1.5 years ago and sent us to Sick kids, but our appointment > > > > gat cancelled and I never got around to going back. I guess I didn't > > > > realize we might be dealing with something serious. Oh well, there's > > > > still lots of time. > > > > > > > > Cheryl > > > > > > > > > > > > > > > Hi, my name is Cheryl and I have a son named who will be 3 > > > > on > > > > > > Dec. 1. He has not been diagnosed with RSS, but after discovering > > > > > > this group and the Magic site, I know in my heart. We just had a > > > > bone > > > > > > age done, and are waiting on results. I just wanted to introduce > > > > > > myself, and let you know that I am getting to know a little about > > > > > > many of you from the messages here. I would like to hear from > > > > anyone > > > > > > in Canada to find out who the " good " endos are, and anything else > > > > I > > > > > > might need to know that is different in Canada than in the US. > > > > Thanks. > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 Hi, She just got back from her trip - and gave me back my mascara and a tank top I didn't even notice was missing! I taught all my kids to do their own laundry years ago. It's about the only chore that has a natural consequence to not doing it - you run out of clean clothes! I do go in her room to look for my stuff - which I find! She can't say anything about it because then she has to admit she took the stuff. What's she going to say - " Were you in my room, because your perfume is missing? " I also look for illegal stuff - which I have also found, but not lately. She shares a room with her sister, so I can always get permission from the sister to go in. I used to get so mad about this - finally I gave up, realized I wasn't going to change her, and started hiding stuff. Also I don't hesitate to ask her if she's seen something that's missing. Usually I get " Oh, was that yours? I had one just like it. " or some such stuff. We both know that's bs, but I get my stuff back. > > Hi , > > Your daughter sounds like my BP daughter when it comes to 'borrowing' > things. > It's like it's okay for her to come into my room (whether i'm here or > not) but if I go into HER room.......... there's hell to pay. With > the orders of how i have to knock, i'm not to go into her room when > she's not home blah blah blah. > She's not saying don't come into my room when i'm not home thing so > much. I think she got sick of me dumping any clean laundry on the > floor outside her door. It seemed such a childish thing to do, but it > was a small victory. > She'll come into my room, spray my perfume, use moisturiser etc etc. > rarely asking first. > ARghh BP kids! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 , Welcome to this diabetic list, and I know you will find a lot of helpful friends on this list. Rowe New Member > Thanks for the group. I am looking forward to learning from > everyone. > > I am a newly diagnosed Type II diabetic, totally blind. I > am hoping to find resources and information. There does > seem to be a lot of information out > there, but most of it is presented in the format of printed > pamphlets or books, at least that from the American Diabetic > Association. Any source of that > kind of information on tape or electronic would be > appreciated. > > Thanks, and looking forward to the discussion. > > SS > > -- > No virus found in this outgoing message. > Checked by AVG Free Edition. > Version: 7.1.407 / Virus Database: 268.13.0/464 - Release > Date: 10/5/2006 > > > -- > No virus found in this outgoing message. > Checked by AVG Free Edition. > Version: 7.1.407 / Virus Database: 268.13.0/464 - Release > Date: 10/5/2006 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 , Welcome aboard. I see you already have some of the dtools in order to master blood glucose control, namely your computer. If you know how to count, then you possess another vitally important tool. With the possession of a computer and the ability to count you are now well equipped to master blood glucose level control, provided you are in charge of what you eat, what you do and have control over yourmedication dosage in conjunction with your prescribing physician. If the foregoing requirements are met, then all you need is a little knowledge. You can definitely get that here. So clue us in. How long have you been a type2? What was the date and reading of your last A1C? Do you have some present diabetic complications? If so, list some of them. Is your goal to prevent diabetic complications or to have good A1C levels for your doctor? In either case we can help you. I might add that I, too, am a type2 diabetic, who became insulin dependent after 16 years of my first diagnosis as a diabetic. I also credit the folks on this list for teaching me how to master bs level control, and most importantly how to keep my left leg from being amputated. My prescribing medical doctor taught me very little of what I needed to know. The only other tools you need is a sugar meter. Now that you can be in charge of charting with your computer and you know how to count, then all you need to know is what and when to count from now on. You can count on us here. Once again welcome aboard! Harry New Member > Thanks for the group. I am looking forward to learning from > everyone. > > I am a newly diagnosed Type II diabetic, totally blind. I > am hoping to find resources and information. There does > seem to be a lot of information out > there, but most of it is presented in the format of printed > pamphlets or books, at least that from the American Diabetic > Association. Any source of that > kind of information on tape or electronic would be > appreciated. > > Thanks, and looking forward to the discussion. > > SS > > -- > No virus found in this outgoing message. > Checked by AVG Free Edition. > Version: 7.1.407 / Virus Database: 268.13.0/464 - Release > Date: 10/5/2006 > > > -- > No virus found in this outgoing message. > Checked by AVG Free Edition. > Version: 7.1.407 / Virus Database: 268.13.0/464 - Release > Date: 10/5/2006 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 Hi , Welcome to the group! Ruth New Member Thanks for the group. I am looking forward to learning from everyone. I am a newly diagnosed Type II diabetic, totally blind. I am hoping to find resources and information. There does seem to be a lot of information out there, but most of it is presented in the format of printed pamphlets or books, at least that from the American Diabetic Association. Any source of that kind of information on tape or electronic would be appreciated. Thanks, and looking forward to the discussion. SS -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.407 / Virus Database: 268.13.0/464 - Release Date: 10/5/2006 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.407 / Virus Database: 268.13.0/464 - Release Date: 10/5/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Thanks to everyone for the greeting and encouragement. Harry, some of the pertinent information: I was just diagnosed last week with a sugar reading of 337 and one week later 220 and A1C 11. I had cholesterol of 270 and triglycerides of 800 something. I knew this was a distinct possibility with a family history, overweight, and poor eating habits for too long. But, I have never had any sugar or A1C issues, as soon as six months ago and had no physical manifestations. I was started on Metformin 750 once a day with note this could just be a temporary prescription, if I am able to bring the numbers down with diet and exercise. I was not started on regular testing yet. My goals are not to be a permanently medicated patient and to keep my numbers normal with diet and exercise. I HAVE BEEN GIVING MYSELF A CRASH COURSE IN DIABETIC NUTRITION WITH ALL THE RESOURCES I can muster. I believe the doctor's goal was blood sugar under 160 and A1C below 6.5. One of my big problems will be a meal plan. I cook pretty much just for myself and I don't have a whole lot of time to invest in preparation. I am not able to see a dietitian for over a month, but one of the things I have to figure is how prepared foods can fit into a good nutrition, weight loss, and diabetic diet -- like, Healthy Choice or Lean Cuisine type meals. I have started myself on a walking program and will be looking to create a better, broader exercise regimen in the near future. Baby steps! I leave any of the above open for pointers from you experienced people. Specifically, though, two immediate questions would be does the American Diabetes Association or anyone else have their information in accessible formats. As mentioned, they refer to many pamphlets. Second, should I be asked to do regular home testing or decide I want to do it, what are the differences in available accessible glucometers. For instance, I see Independent Living Aids has a Protegy for $29 and then the Accu-Chek, I think it was, for $500. What could be the differences. I did find a side-by-side comparison that AFB did, but it was from 2002, and I assume things have changed since then. Or maybe not. Well, that may be WTMI, but I lay it out there for people to advise as they have ideas. I certainly will appreciate it all. SS -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.407 / Virus Database: 268.13.0/465 - Release Date: 10/6/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Welcome , It sounds like you are starting on the right regime. Except that the ADA (American Diabetes Assoc.) recommends too many carbohydrates. On eof the best favors you can do for yourself is to learn to count carbohydrates. I have people in the store read me labls on everything to tell how many carbohydrates are in everything. Eating low carbs will get your sugar under control more quickly than anything else and help you lose weight. Hardly anthing is in accessible format. A really good book to read that is on Talking Books is Gretchen Becker's " Type 2 Diabetes. Also on November 8, Talking communities is putting on a 5 hour computer symposium on diabetes starting at 10 AM PST. I will be putting on more info on how to acces it on the computer-it will also be available later on the Talking communities website history file if you are not able to do it on Nov. 8. Unfortunatley we could not get speakers for this for weekends. The speakers are at 10 AM, Gretchen Becker, at 11 AM Dr. Mahaber who will talk about medications and insulin for diabetics at 12 noon Dr. Ann Wison a Certified Diabetic Educator talking about resources and research and at 1 PM A doctor from the endocrinology department from UCLA talking about complications and treatment and then at 2 PM a discussion. As you wil be able to ask questions during these talks, it would be of big help to you if you could participate. RE: New Member Thanks to everyone for the greeting and encouragement. Harry, some of the pertinent information: I was just diagnosed last week with a sugar reading of 337 and one week later 220 and A1C 11. I had cholesterol of 270 and triglycerides of 800 something. I knew this was a distinct possibility with a family history, overweight, and poor eating habits for too long. But, I have never had any sugar or A1C issues, as soon as six months ago and had no physical manifestations. I was started on Metformin 750 once a day with note this could just be a temporary prescription, if I am able to bring the numbers down with diet and exercise. I was not started on regular testing yet. My goals are not to be a permanently medicated patient and to keep my numbers normal with diet and exercise. I HAVE BEEN GIVING MYSELF A CRASH COURSE IN DIABETIC NUTRITION WITH ALL THE RESOURCES I can muster. I believe the doctor's goal was blood sugar under 160 and A1C below 6.5. One of my big problems will be a meal plan. I cook pretty much just for myself and I don't have a whole lot of time to invest in preparation. I am not able to see a dietitian for over a month, but one of the things I have to figure is how prepared foods can fit into a good nutrition, weight loss, and diabetic diet -- like, Healthy Choice or Lean Cuisine type meals. I have started myself on a walking program and will be looking to create a better, broader exercise regimen in the near future. Baby steps! I leave any of the above open for pointers from you experienced people. Specifically, though, two immediate questions would be does the American Diabetes Association or anyone else have their information in accessible formats. As mentioned, they refer to many pamphlets. Second, should I be asked to do regular home testing or decide I want to do it, what are the differences in available accessible glucometers. For instance, I see Independent Living Aids has a Protegy for $29 and then the Accu-Chek, I think it was, for $500. What could be the differences. I did find a side-by-side comparison that AFB did, but it was from 2002, and I assume things have changed since then. Or maybe not. Well, that may be WTMI, but I lay it out there for people to advise as they have ideas. I certainly will appreciate it all. SS -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.407 / Virus Database: 268.13.0/465 - Release Date: 10/6/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 First of all you will have to decide whose goal you wish to reach. Your goal, " My goals are not to be a permanently medicated patient and to keep my numbers normal with diet and exercise. " or " the doctor's goal was blood sugar under 160 and A1C below 6.5. " At this point I imagine you have a good chance to meet your goal. It requires a dramatic and drastic change in your life style beginning now and continuing for the rest of your life. I think you might possibly become a non-diabetic. You even have a chance to become a non-diabetic. However you can trigger the diabetes path by falling off the narrow path to health. You can also remain a diabetic for the rest of your life by altering your diet slightly and taking medications for the rest of your life by just following your doctor's recommendations. So, just let me know whose goal you wish to achieve and maintain. The goals presented require quite different paths to follow. It also requires quite a different emotional make up to reach each goal. It depends on your will and determination. If you do not have a strong will and a strong self-determination, you will be better off following your doctor's goal. He needs a patient, and you possibly can eliminate him as a needed resource at some distant time. Of course we all need a doctor, and what I say here can be taken to him for his opinion at any time. If he is anything like my old doctor, he will need a lot of diabetes education, which I provided to him with the help of the folks here. So let us know what you want. To reach your goal may take two or more years. To achieve your doctor's goal can be done in three months. So how are you for the long haul?, Or do you prefer to achieve and maintain the short stuff? Of course to reach the long goal means you will have to reach many short term goals in the mean time. It is your decission, and the folks here can help you attain either. Always remember we are the experts. RE: New Member > Thanks to everyone for the greeting and encouragement. > Harry, some of the pertinent information: > > I was just diagnosed last week with a sugar reading of 337 > and one week later 220 and A1C 11. I had cholesterol of 270 > and triglycerides of 800 something. I knew this was a > distinct possibility with a family history, overweight, and > poor eating habits for too long. But, I have never had any > sugar or A1C issues, as soon as six months ago and had no > physical manifestations. I was started on Metformin 750 > once a day with note this could just be a temporary > prescription, if I am able to bring the numbers down with > diet and exercise. I was not started on regular testing > yet. > > My goals are not to be a permanently medicated patient and > to keep my numbers normal with diet and exercise. I HAVE > BEEN GIVING MYSELF A CRASH COURSE IN DIABETIC NUTRITION WITH > ALL THE RESOURCES I can muster. I believe the doctor's goal > was blood sugar under 160 and A1C below 6.5. > > One of my big problems will be a meal plan. I cook pretty > much just for myself and I don't have a whole lot of time to > invest in preparation. I am not able to see a dietitian for > over a month, but one of the things I have to figure is how > prepared foods can fit into a good nutrition, weight loss, > and diabetic diet -- like, Healthy Choice or Lean Cuisine > type meals. I have started myself on a walking program and > will be looking to create a better, broader exercise regimen > in the near future. Baby steps! > > I leave any of the above open for pointers from you > experienced people. Specifically, though, two immediate > questions would be does the American Diabetes Association or > anyone else have their information in accessible formats. > As mentioned, they refer to many pamphlets. Second, should > I be asked to do regular home testing or decide I want to do > it, what are the differences in available accessible > glucometers. For instance, I see Independent Living Aids > has a Protegy for $29 and then the Accu-Chek, I think it > was, for $500. What could be the differences. I did find a > side-by-side comparison that AFB did, but it was from 2002, > and I assume things have changed since then. Or maybe not. > > Well, that may be WTMI, but I lay it out there for people to > advise as they have ideas. I certainly will appreciate it > all. > > SS > > > -- > No virus found in this outgoing message. > Checked by AVG Free Edition. > Version: 7.1.407 / Virus Database: 268.13.0/465 - Release > Date: 10/6/2006 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Hi , I am Cy from Oklahoma. I am blind but my wife is the diabetic. I joined this list a couple of years ago in order to learn what I needed to do in order to help and support my new bride. I would strongly suggest that you take a very close look at the Prodigy meter. It is, from all I have heard, quite accurate and the strips are just about half the price of any other. I have seen some later posts which suggest that carb counting is a major key to getting you where you need to be. I can only echo those words of advice. Count them carbs, count them carbs, count them carbs until you are sick of counting them carbs! Don't count the " net " carbs, count the total carbs. Do not worry about the grams of sugar in things because those are already included in the *carb* count. Past this, just lay off the soda pop because it will probably have something like 41 carbs unless you go to a sugar free soda pop. If you make sandwiches take a look at the low carb bread, this will cut your carb consumption in just about half as compared to regular bread. Wal-Mart carries Mrs Baird's bread and it is low carb, something like 7 to 9 carbs per slice as compared to 14 or so for regular type breads. If you like yogurt look for the low carb variety. Pork skins have no carbs although they may have other things which you may not need to ingest. (LOL) Celery has no carbs and also fewer calories than it takes to eat it. Hang it there and it will all work out for you. Cy, the Ancient Okie... RE: New Member Thanks to everyone for the greeting and encouragement. Harry, some of the pertinent information: I was just diagnosed last week with a sugar reading of 337 and one week later 220 and A1C 11. I had cholesterol of 270 and triglycerides of 800 something. I knew this was a distinct possibility with a family history, overweight, and poor eating habits for too long. But, I have never had any sugar or A1C issues, as soon as six months ago and had no physical manifestations. I was started on Metformin 750 once a day with note this could just be a temporary prescription, if I am able to bring the numbers down with diet and exercise. I was not started on regular testing yet. My goals are not to be a permanently medicated patient and to keep my numbers normal with diet and exercise. I HAVE BEEN GIVING MYSELF A CRASH COURSE IN DIABETIC NUTRITION WITH ALL THE RESOURCES I can muster. I believe the doctor's goal was blood sugar under 160 and A1C below 6.5. One of my big problems will be a meal plan. I cook pretty much just for myself and I don't have a whole lot of time to invest in preparation. I am not able to see a dietitian for over a month, but one of the things I have to figure is how prepared foods can fit into a good nutrition, weight loss, and diabetic diet -- like, Healthy Choice or Lean Cuisine type meals. I have started myself on a walking program and will be looking to create a better, broader exercise regimen in the near future. Baby steps! I leave any of the above open for pointers from you experienced people. Specifically, though, two immediate questions would be does the American Diabetes Association or anyone else have their information in accessible formats. As mentioned, they refer to many pamphlets. Second, should I be asked to do regular home testing or decide I want to do it, what are the differences in available accessible glucometers. For instance, I see Independent Living Aids has a Protegy for $29 and then the Accu-Chek, I think it was, for $500. What could be the differences. I did find a side-by-side comparison that AFB did, but it was from 2002, and I assume things have changed since then. Or maybe not. Well, that may be WTMI, but I lay it out there for people to advise as they have ideas. I certainly will appreciate it all. SS -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.407 / Virus Database: 268.13.0/465 - Release Date: 10/6/2006 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.