Re: Hi all

[Guest guest]

Hi Akiba,

I noticed that you lived in Rome. I was stationed there at Grifiss AFB. That was way back in 1962-62. My oldest son was born at the base. I am originally from Utica, so it was nice to be stationed near home, since I knew I was getting out and could set up house in my spare time.

I also used to visit bay. The St Lawrence had some giant fish in it. We used to camp there. For the life of me, I can't remember the name of the fish I used to catch. I know we had to troll for them and they fought like a sports fish.

Welcome back Peggy. WE have a great time on this list.

Love to all, See what's free at AOL.com.

[Guest guest]

Where in central NY are you? I used to live in NYS...northern NY, Clayton, Bay, and in Rome, hubby was born in Central Square and son in Watertown. I had a neuro in Watertown, he was not too bad...can't remember his name... Akiba (now in Wi.) -- Hi all Hi everyone!!! I'm actually not new to this group but haven't posted in a long time. The reality is I forgot I belonged to this group, how sad is that??? My mind has really gone downhill in the past year since my dx.I guess I'll reintroduce myself. My name is Peggy and I am 40 years old. I was dx July of last year with RRMS after having 2 separate bouts of vertigo. The dx was a shock to say the least. I am married to and we just celebrated our 21st anniversary in April. We have 2 children, , 17 and Zack, almost 5.I had a terrible Winter and have just experienced the 2 hottest days so far this Summer and didn't fare too well. My balance is off and I have terrible tremors. I bought a cane a few months back after falling 4 times. I am going to see an MS Specialist an hour away from my home in central NY as my current neuro stinks!!!! I am appealing my denial for SSI. I also suffer from chronic depression and very bad anxiety. Basically I'm a basket case. I had these problems before the MS came along.My daughter is a junior in high school and wants to be a nurse. She helps me as much as she can and will make an excellent nurse. She has found her calling. My son has severe ADHD and ODD (Oppositional Defiance Disorder) so he is a constant source of stress for all of us. He of course can't help it and can be the best boy. He is very loving and holds my heart!!I hope to get to know all of you again, now that I realize that I do belong to a group for MS!!! Talk about being out in the ozone, WOW!!!Peggy

[Guest guest]

Dear Peggy, thank heavens that we finally appeared in consciousness; welcome

back! Love and hope, and COURAGE!

n Rojas5915@...

Hi all

Hi everyone!!! I'm actually not new to this group but haven't posted in a long time. The reality is I forgot I belonged to this group, how sad is that??? My mind has really gone downhill in the past year since my dx.I guess I'll reintroduce myself. My name is Peggy and I am 40 years old. I was dx July of last year with RRMS after having 2 separate bouts of vertigo. The dx was a shock to say the least. I am married to and we just celebrated our 21st anniversary in April. We have 2 children, , 17 and Zack, almost 5.I had a terrible Winter and have just experienced the 2 hottest days so far this Summer and didn't fare too well. My balance is off and I have terrible tremors. I bought a cane a few months back after falling 4 times. I am going to see an MS Specialist an hour away from my home in central NY as my current neuro stinks!!!! I am appealing my denial for SSI. I also suffer from chronic depression and very bad anxiety. Basically I'm a basket case. I had these problems before the MS came along.My daughter is a junior in high school and wants to be a nurse. She helps me as much as she can and will make an excellent nurse. She has found her calling. My son has severe ADHD and ODD (Oppositional Defiance Disorder) so he is a constant source of stress for all of us. He of course can't help it and can be the best boy. He is very loving and holds my heart!!I hope to get to know all of you again, now that I realize that I do belong to a group for MS!!! Talk about being out in the ozone, WOW!!!Peggy

[Guest guest]

Welcome back Peggy!~

I'm glad you found us again. And from what I read in your post, I'm not surprised that you forgot about the group. It sounds like you've got alot going on in your life. I also have the short term memory problem, and I'm quite fortunate if I can remember a conversation for more than a day. Guess that's why I keep coming back here for refresher courses... . Besides the fact that this is my home within my home. And all of these folks are my family.

I hope all goes well with your appeal. Is this the first time you've applied for SSDI?

It's nice that your daughter wants to become a nurse. I'm sure it's a great feeling to have her here right now to help you when you need it. She's going to be a great nurse.

I have a daughter who has ADHD. Diagnosed while young with ADD. Just that alone was really hard on her and the rest of us. As she's gotten older, she does pretty well. She has concentration issues and has a hard time staying focused. But, she tries real hard.

ODD, I know, has to be a real strain on the family. I feel for your son, because it's like you said, he can't help it. This has got to be pretty hard on your MS.

Well, I'm glad you're back. And if you have any issues that you'd like to discuss, know that we are here for you. Admittedly, I'm not the most knowledgable one here, but I'm a good listener and a good one to vent to if you find yourself in that position.

May God bless you... Val

Hi all

Hi everyone!!! I'm actually not new to this group but haven't posted in a long time. The reality is I forgot I belonged to this group, how sad is that??? My mind has really gone downhill in the past year since my dx.I guess I'll reintroduce myself. My name is Peggy and I am 40 years old. I was dx July of last year with RRMS after having 2 separate bouts of vertigo. The dx was a shock to say the least. I am married to and we just celebrated our 21st anniversary in April. We have 2 children, , 17 and Zack, almost 5.I had a terrible Winter and have just experienced the 2 hottest days so far this Summer and didn't fare too well. My balance is off and I have terrible tremors. I bought a cane a few months back after falling 4 times. I am going to see an MS Specialist an hour away from my home in central NY as my current neuro stinks!!!! I am appealing my denial for SSI. I also suffer from chronic depression and very bad anxiety. Basically I'm a basket case. I had these problems before the MS came along.My daughter is a junior in high school and wants to be a nurse. She helps me as much as she can and will make an excellent nurse. She has found her calling. My son has severe ADHD and ODD (Oppositional Defiance Disorder) so he is a constant source of stress for all of us. He of course can't help it and can be the best boy. He is very loving and holds my heart!!I hope to get to know all of you again, now that I realize that I do belong to a group for MS!!! Talk about being out in the ozone, WOW!!!Peggy

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.0/819 - Release Date: 5/26/07 10:47 AM

[Guest guest]

Hi Peggy! Welcome back.How long has it been since you have been here? I think I

remember you but maybe it wasnt you.lol.see we all got a lil bit of the memory

problem thingy goin.lol.It is great to have you back! THIS group is a lifesaver

for me.The wonderful caring family anyone who is sick or struggling in any way

needs.You can fix your settings so you get all the emails sent directly to your

email.We are so active it will be impossible to forget your in the group with

all the emails you will get.Im glad your daughter helps you alot what a

blessing,and im sure she will be an excellent nurse.I am having some troubles

with my almost 4 yr.old. So I know how tough it can be with a child that tests

us,and struggles.Autism runs in my fiances family and after about a yr.of

research and learning from the family,I have finally made her a doctors appt.

For her current problems.Her sleep is bad,she wakes up at 7-8 am and I have to

fight her to get her to bed at 9pm.Naps?what are

those.lol.take care,lots of luv,cassy

[spazman222@...] wrote:

Hi everyone!!! I'm actually not new to this group but haven't posted

in a long time. The reality is I forgot I belonged to this group, how

sad is that??? My mind has really gone downhill in the past year

since my dx.

I guess I'll reintroduce myself. My name is Peggy and I am 40 years

old. I was dx July of last year with RRMS after having 2 separate

bouts of vertigo. The dx was a shock to say the least. I am married

to and we just celebrated our 21st anniversary in April. We

have 2 children, , 17 and Zack, almost 5.

I had a terrible Winter and have just experienced the 2 hottest days

so far this Summer and didn't fare too well. My balance is off and I

have terrible tremors. I bought a cane a few months back after

falling 4 times. I am going to see an MS Specialist an hour away from

my home in central NY as my current neuro stinks!!!! I am appealing

my denial for SSI. I also suffer from chronic depression and very bad

anxiety. Basically I'm a basket case. I had these problems before the

MS came along.

My daughter is a junior in high school and wants to be a nurse. She

helps me as much as she can and will make an excellent nurse. She has

found her calling. My son has severe ADHD and ODD (Oppositional

Defiance Disorder) so he is a constant source of stress for all of

us. He of course can't help it and can be the best boy. He is very

loving and holds my heart!!

I hope to get to know all of you again, now that I realize that I do

belong to a group for MS!!! Talk about being out in the ozone, WOW!!!

Peggy

[Guest guest]

Hi Peggy my son will be a Senior next year and I am hoping this Scholarship the MS Society will come in handy for him.

I am sorry about the troubles you are having getting Social Security and hope things will work out for you. I have had my MS now since august of 99. I am married to my wife Judy and we have 2 boys 17 and 9. We just did celebrate our 19th wedding last week.

I am glad you are back in the group.

Bill - Indiana

National MS Society Scholarship Program During the past year, 942 applications for the scholarship program were received and we are awarding $442,000 to 204 students from 49 chapters.

In 2005 we funded 88 students out of 754 applications for a total of $207,000. In 2004 we funded 52 students out of 394 applications for $127,000 and in 2003 (our first year) we funded 36 students of 329 applications for $68,000.

The submission deadline for 2007 scholarship has passed.

Notification to scholarship recipients will be given in May.

2008 applications will be available in October.

Read our scholarship FAQ to learn about eligibility criteria, awards, and more

Congratulations to our 2006 Scholarship Recipients!204 awards granted totaling over $442,000!

Make a Contribution to the Scholarship Fund

Show your support! Send a check to:

Scholarship FundNational MS Society 700 Broadway, Suite 810Denver, CO 80203

We applaud those who provided the monies to fund the scholarships of this program. View a list of contributors

If you have questions about making a gift, contact: Hackett LillyPhone: E-mail: courtney.lilly@...

Last updated May 8, 2007

Hi all

Hi everyone!!! I'm actually not new to this group but haven't posted in a long time. The reality is I forgot I belonged to this group, how sad is that??? My mind has really gone downhill in the past year since my dx.I guess I'll reintroduce myself. My name is Peggy and I am 40 years old. I was dx July of last year with RRMS after having 2 separate bouts of vertigo. The dx was a shock to say the least. I am married to and we just celebrated our 21st anniversary in April. We have 2 children, , 17 and Zack, almost 5.I had a terrible Winter and have just experienced the 2 hottest days so far this Summer and didn't fare too well. My balance is off and I have terrible tremors. I bought a cane a few months back after falling 4 times. I am going to see an MS Specialist an hour away from my home in central NY as my current neuro stinks!!!! I am appealing my denial for SSI. I also suffer from chronic depression and very bad anxiety. Basically I'm a basket case. I had these problems before the MS came along.My daughter is a junior in high school and wants to be a nurse. She helps me as much as she can and will make an excellent nurse. She has found her calling. My son has severe ADHD and ODD (Oppositional Defiance Disorder) so he is a constant source of stress for all of us. He of course can't help it and can be the best boy. He is very loving and holds my heart!!I hope to get to know all of you again, now that I realize that I do belong to a group for MS!!! Talk about being out in the ozone, WOW!!!Peggy

[Guest guest]

Thanks for the welcome . I'm not a fishing type of person but my

son is really starting to get into it. He caught his first small

mouth bass last year at our camp up near ville at Eatonbrook

Resevoir.

I myself have never been to Bay but have heard it is beautiful.

Peggy

>

> Hi Akiba,

> I noticed that you lived in Rome. I was stationed there at

Grifiss AFB.

> That was way back in 1962-62. My oldest son was born at the base.

I am

> originally from Utica, so it was nice to be stationed near home,

since I knew I was

> getting out and could set up house in my spare time.

> I also used to visit bay. The St Lawrence had some giant

fish in it.

> We used to camp there. For the life of me, I can't remember the

name of the

> fish I used to catch. I know we had to troll for them and they

fought like a

> sports fish.

> Welcome back Peggy. WE have a great time on this list.

> Love to all,

>

>

>

> ************************************** See what's free at

http://www.aol.com.

>

[Guest guest]

Thanks Val,

Yeah the memory thing really bothers me. My husbands memory was

always bad and now with mine not working too well it's really

scary!!! I repeat myself, lose words from my brain to my mouth, words

come out completely wrong, and I lose my thought process in the

middle of a conversation. Some days I feel as dumb as a box of rocks!!

I've only applied once for SSDI and got like a blanket denial. They

didn't even talk to the people I put on my list. None of my drs.,

therapist. They said they talked to my sister!!! She's a nurse, yes,

she gives me my shots of Avonex, yes, but why would you call her,

which they never did!!!

Today I got a letter from my lawyer with this huge packet that asks a

ton of questions about my mental health and my physical capabilities.

My therapist I guess will fill out the mental health one and I don't

know who will fill out the medical one. The neuro I'm seeing on Tues.

is new to me so I don't want to shove that right down her throat, ya

know. They obviously know nothing about MS and that one day you can

be fine and the next you can feel like you are dying. We are getting

slammed with copays from meds for me, my daughter, and my son and all

the drs visits. We pay over $300 a month.

Zack was dx with ADHD when he was 3 and got kicked out of his first

preschool after 4 days of attendance. I knew something wasn't right

with him right off the bat, but everyone kept saying, " he's just a

typical boy, they all have energy like that " Yeah, right!!!! Do they

all band their heads on the floor when they get mad? Oh well. We deal

with it the best we can. It is hard, but we worked so hard to have

him, he is actually an IVF baby, that's why there is such a big age

difference. Hubby was told he had a one in a million chance of having

kids. We thought was our one. Finally s insurance covered

IVF and we went for it and got lucky on the first try. 3 eggs in, 1

beautiful baby boy.

I'd love to know how you all handle the heat. How it affects or

effects (I can't remember which is the correct word) you. I'm still

pretty new to it. Still getting used to it, if it's at all possible

to ever get used to.

Peggy

>

> Welcome back Peggy!~

> I'm glad you found us again. And from what I read in your post,

I'm not surprised that you forgot about the group. It sounds like

you've got alot going on in your life. I also have the short term

memory problem, and I'm quite fortunate if I can remember a

conversation for more than a day. Guess that's why I keep coming back

here for refresher courses... . Besides the fact that this is my home

within my home. And all of these folks are my family.

> I hope all goes well with your appeal. Is this the first time

you've applied for SSDI?

> It's nice that your daughter wants to become a nurse. I'm sure

it's a great feeling to have her here right now to help you when you

need it. She's going to be a great nurse.

> I have a daughter who has ADHD. Diagnosed while young with ADD.

Just that alone was really hard on her and the rest of us. As she's

gotten older, she does pretty well. She has concentration issues and

has a hard time staying focused. But, she tries real hard.

> ODD, I know, has to be a real strain on the family. I feel for

your son, because it's like you said, he can't help it. This has got

to be pretty hard on your MS.

> Well, I'm glad you're back. And if you have any issues that you'd

like to discuss, know that we are here for you. Admittedly, I'm not

the most knowledgable one here, but I'm a good listener and a good

one to vent to if you find yourself in that position.

> May God bless you... Val

> Hi all

>

>

> Hi everyone!!! I'm actually not new to this group but haven't

posted

> in a long time. The reality is I forgot I belonged to this group,

how

> sad is that??? My mind has really gone downhill in the past year

> since my dx.

>

> I guess I'll reintroduce myself. My name is Peggy and I am 40

years

> old. I was dx July of last year with RRMS after having 2 separate

> bouts of vertigo. The dx was a shock to say the least. I am

married

> to and we just celebrated our 21st anniversary in April. We

> have 2 children, , 17 and Zack, almost 5.

>

> I had a terrible Winter and have just experienced the 2 hottest

days

> so far this Summer and didn't fare too well. My balance is off

and I

> have terrible tremors. I bought a cane a few months back after

> falling 4 times. I am going to see an MS Specialist an hour away

from

> my home in central NY as my current neuro stinks!!!! I am

appealing

> my denial for SSI. I also suffer from chronic depression and very

bad

> anxiety. Basically I'm a basket case. I had these problems before

the

> MS came along.

>

> My daughter is a junior in high school and wants to be a nurse.

She

> helps me as much as she can and will make an excellent nurse. She

has

> found her calling. My son has severe ADHD and ODD (Oppositional

> Defiance Disorder) so he is a constant source of stress for all

of

> us. He of course can't help it and can be the best boy. He is

very

> loving and holds my heart!!

>

> I hope to get to know all of you again, now that I realize that I

do

> belong to a group for MS!!! Talk about being out in the ozone,

WOW!!!

>

> Peggy

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.472 / Virus Database: 269.8.0/819 - Release Date:

5/26/07 10:47 AM

>

[Guest guest]

I was dx'd on April Fool's day, 2004...as far as how long...who knows? Why leave NY? Let me count the reasons LOL... We are now buying a wonderful place in Wisconsin...check out my blog for pics...(link in sig line) Peace and Blessings~*~ Akiba ~*~Pragmatic Visionary & Eternal Optimist! http://yodamamma.blogspot.com/ http://www.solay-twinflames.com/ -- Hi all> > > > Hi everyone!!! I'm actually not new to this group but haven't posted > > in a long time. The reality is I forgot I belonged to this group, how > > sad is that??? My mind has really gone downhill in the past year > > since my dx.> > > > I guess I'll reintroduce myself. My name is Peggy and I am 40 years > > old. I was dx July of last year with RRMS after having 2 separate > > bouts of vertigo. The dx was a shock to say the least. I am married > > to and we just celebrated our 21st anniversary in April. We > > have 2 children, , 17 and Zack, almost 5.> > > > I had a terrible Winter and have just experienced the 2 hottest days > > so far this Summer and didn't fare too well. My balance is off and I > > have terrible tremors. I bought a cane a few months back after > > falling 4 times. I am going to see an MS Specialist an hour away from > > my home in central NY as my current neuro stinks!!!! I am appealing > > my denial for SSI. I also suffer from chronic depression and very bad > > anxiety. Basically I'm a basket case. I had these problems before the > > MS came along.> > > > My daughter is a junior in high school and wants to be a nurse. She > > helps me as much as she can and will make an excellent nurse. She has > > found her calling. My son has severe ADHD and ODD (Oppositional > > Defiance Disorder) so he is a constant source of stress for all of > > us. He of course can't help it and can be the best boy. He is very > > loving and holds my heart!!> > > > I hope to get to know all of you again, now that I realize that I do > > belong to a group for MS!!! Talk about being out in the ozone, WOW!!!> > > > Peggy>

[Guest guest]

Hi ,

Thanks for the welcome and I'm sorry for the confusion on your dx.

It's scary to know that there are drs out there that are flying by

the seat of their pants. That is the neuro I have now. From the notes

I just requested for myself I found out that I have an 8 mm round

lesion in the back of my brain that she never told me about!!! I knew

about the 3 mm one and the 2 5 mm ones, but the 8 was news to me. I

wonder if it was really me she was talking about as she never wrote

anything down or put anything into the computer.

She always did the same exam, 15 minutes, in and out, and if I had

any questions, she answered them with her hand on the door as if she

were ready to leave, on to the next patient!!! I hope the new neuro

is as good as I've heard.

I do have a lawyer for this appeal and if I do get the SSDI it will

be retroactive which will be sweet as we desperately need the money.

In NY if you are turned down twice you have to wait at least 2 years

before you can apply again for it. I won't give up until I get it. I

should receive it on my anxiety and depression alone.

I hear you about migraines. I suffer from those as well. I get them

every Tuesday after my shot of Avonex. Every other day I have a

regular headache, just a dull one, but it won't go away. Very

annoying.

We have 2 dogs and 2 cats. I just told my hubby I wanted to get 2

rare parakeets at the pet store and he about flipped, so I guess that

was a no,LOL!!!!

Nice to meet you, and hope that you are feeling better. Don't give up

on the drs. there is one out there for you. I don't understand how

they can dx you with a disease and then undx you.

Peggy

> Hi everyone!!! I'm actually not new to this group but

haven't posted

> in a long time. The reality is I forgot I belonged to this group,

how

> sad is that??? My mind has really gone downhill in the past year

> since my dx.

>

> I guess I'll reintroduce myself. My name is Peggy and I am 40 years

> old. I was dx July of last year with RRMS after having 2 separate

> bouts of vertigo. The dx was a shock to say the least. I am married

> to and we just celebrated our 21st anniversary in April. We

> have 2 children, , 17 and Zack, almost 5.

>

> I had a terrible Winter and have just experienced the 2 hottest

days

> so far this Summer and didn't fare too well. My balance is off and

I

> have terrible tremors. I bought a cane a few months back after

> falling 4 times. I am going to see an MS Specialist an hour away

from

> my home in central NY as my current neuro stinks!!!! I am appealing

> my denial for SSI. I also suffer from chronic depression and very

bad

> anxiety. Basically I'm a basket case. I had these problems before

the

> MS came along.

>

> My daughter is a junior in high school and wants to be a nurse. She

> helps me as much as she can and will make an excellent nurse. She

has

> found her calling. My son has severe ADHD and ODD (Oppositional

> Defiance Disorder) so he is a constant source of stress for all of

> us. He of course can't help it and can be the best boy. He is very

> loving and holds my heart!!

>

> I hope to get to know all of you again, now that I realize that I

do

> belong to a group for MS!!! Talk about being out in the ozone,

WOW!!!

>

> Peggy

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Peggy, Glad you found a good neurologist. That's going to be very important to get your SSDI. Sometimes neurologists just tell you what they want to tell you and leave out what they deem unimportant. Personally and probably for most people I would like to know the truth. I was on the Avonex and I got sick for 4 days after every shot. I hear that the newer medications are better and also less side effects. About getting the new pets and your husband....usually flipping out means absolutely NOT LOL. My husband flips out every time I mention I want another pug Good luck to you. :)Peggy wrote: Hi ,Thanks for the welcome and I'm sorry for the confusion on your dx. It's scary to know that there are drs out there that are flying by the seat of their pants. That is the neuro I have now. From the notes I just requested for myself I found out that I have an 8 mm round lesion in the back of my brain that she never told me about!!! I knew about the 3 mm one and the 2 5 mm ones, but the 8 was news to me. I wonder if it was really me she was talking about as she never wrote anything down or put anything into the computer. She always did the same exam, 15 minutes, in and out, and if I had any questions, she answered them with her hand on the door as if she were ready to leave, on to the next

patient!!! I hope the new neuro is as good as I've heard.I do have a lawyer for this appeal and if I do get the SSDI it will be retroactive which will be sweet as we desperately need the money. In NY if you are turned down twice you have to wait at least 2 years before you can apply again for it. I won't give up until I get it. I should receive it on my anxiety and depression alone.I hear you about migraines. I suffer from those as well. I get them every Tuesday after my shot of Avonex. Every other day I have a regular headache, just a dull one, but it won't go away. Very annoying.We have 2 dogs and 2 cats. I just told my hubby I wanted to get 2 rare parakeets at the pet store and he about flipped, so I guess that was a no,LOL!!!!Nice to meet you, and hope that you are feeling better. Don't give up on the drs. there is one out there for you. I don't understand how they can dx you with a disease

and then undx you. Peggy> Hi everyone!!! I'm actually not new to this group but haven't posted > in a long time. The reality is I forgot I belonged to this group, how > sad is that??? My mind has really gone downhill in the past year > since my dx.> > I guess I'll reintroduce myself. My name is Peggy and I am 40 years

> old. I was dx July of last year with RRMS after having 2 separate > bouts of vertigo. The dx was a shock to say the least. I am married > to and we just celebrated our 21st anniversary in April. We > have 2 children, , 17 and Zack, almost 5.> > I had a terrible Winter and have just experienced the 2 hottest days > so far this Summer and didn't fare too well. My balance is off and I > have terrible tremors. I bought a cane a few months back after > falling 4 times. I am going to see an MS Specialist an hour away from > my home in central NY as my current neuro stinks!!!! I am appealing > my denial for SSI. I also suffer from chronic depression and very bad > anxiety. Basically I'm a basket case. I had these problems before the > MS came along.> > My daughter is a junior in high school and wants to be a nurse. She > helps me as

much as she can and will make an excellent nurse. She has > found her calling. My son has severe ADHD and ODD (Oppositional > Defiance Disorder) so he is a constant source of stress for all of > us. He of course can't help it and can be the best boy. He is very > loving and holds my heart!!> > I hope to get to know all of you again, now that I realize that I do > belong to a group for MS!!! Talk about being out in the ozone, WOW!!!> > Peggy> > > > > > > > > >

[Guest guest]

Hi Peggy My son has ADD and OCD and autism traits. You'll find alot of us have children with these problems. Stange connection huh. Tell your daughter to study hard, stay in school and get her bachelors degree in nursing for the most job choices. ' in Texas Disabled LVNPeggy wrote: Hi everyone!!! I'm actually not new to this group but haven't posted in a long time. The reality is I forgot I belonged to this

group, how sad is that??? My mind has really gone downhill in the past year since my dx.I guess I'll reintroduce myself. My name is Peggy and I am 40 years old. I was dx July of last year with RRMS after having 2 separate bouts of vertigo. The dx was a shock to say the least. I am married to and we just celebrated our 21st anniversary in April. We have 2 children, , 17 and Zack, almost 5.I had a terrible Winter and have just experienced the 2 hottest days so far this Summer and didn't fare too well. My balance is off and I have terrible tremors. I bought a cane a few months back after falling 4 times. I am going to see an MS Specialist an hour away from my home in central NY as my current neuro stinks!!!! I am appealing my denial for SSI. I also suffer from chronic depression and very bad anxiety. Basically I'm a basket case. I had these problems before the MS came along.My daughter is

a junior in high school and wants to be a nurse. She helps me as much as she can and will make an excellent nurse. She has found her calling. My son has severe ADHD and ODD (Oppositional Defiance Disorder) so he is a constant source of stress for all of us. He of course can't help it and can be the best boy. He is very loving and holds my heart!!I hope to get to know all of you again, now that I realize that I do belong to a group for MS!!! Talk about being out in the ozone, WOW!!!Peggy' in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

[Guest guest]

n, Your posts aren't coming through to me. Sharon, are the yahoo monkeys playing again. 'Peggy wrote: Thanks n,I know!!! I don't know what made me even decide to look today but I'm glad I did. Love, I have, it's hope and courage that I need more of.Still working on that!!!Thanks for the welcome back.Peggy>> Dear Peggy, thank heavens that we finally appeared in consciousness; welcome> back! Love and hope, and COURAGE!> n > Rojas5915@...> Hi all> > > Hi everyone!!! I'm actually not new to this group but haven't posted > in a long time. The reality is I forgot I belonged to this group, how > sad is that??? My mind has really gone downhill in the past year > since my dx.> > I guess I'll reintroduce myself. My name is Peggy and I am 40 years > old. I was dx July of last year with RRMS after having 2 separate > bouts of vertigo. The dx was a shock to say the least. I am married

> to and we just celebrated our 21st anniversary in April. We > have 2 children, , 17 and Zack, almost 5.> > I had a terrible Winter and have just experienced the 2 hottest days > so far this Summer and didn't fare too well. My balance is off and I > have terrible tremors. I bought a cane a few months back after > falling 4 times. I am going to see an MS Specialist an hour away from > my home in central NY as my current neuro stinks!!!! I am appealing > my denial for SSI. I also suffer from chronic depression and very bad > anxiety. Basically I'm a basket case. I had these problems before the > MS came along.> > My daughter is a junior in high school and wants to be a nurse. She > helps me as much as she can and will make an excellent nurse. She has > found her calling. My son has severe ADHD and ODD (Oppositional >

Defiance Disorder) so he is a constant source of stress for all of > us. He of course can't help it and can be the best boy. He is very > loving and holds my heart!!> > I hope to get to know all of you again, now that I realize that I do > belong to a group for MS!!! Talk about being out in the ozone, WOW!!!> > Peggy>' in Texas Courage is not being fearless, courage is facing your fears and not running for cover!

[Guest guest]

----- Original Message -----

Thanks Val,Yeah the memory thing really bothers me. My husbands memory was always bad and now with mine not working too well it's really scary!!! I repeat myself, lose words from my brain to my mouth, words come out completely wrong, and I lose my thought process in the middle of a conversation. Some days I feel as dumb as a box of rocks!!

* Peggy, I completely understand about the memory thing. It does make you feel kinda stupid. I use to write quite a bit. Some short stories and poetry. I even started on a novel a couple of years ago. My memory has gotten so bad, that I'm fortunate enough to remember how to spell and punctuate, let alone remember what the topic was about. I've been known to repeat myself often.I've only applied once for SSDI and got like a blanket denial. They didn't even talk to the people I put on my list. None of my drs., therapist. They said they talked to my sister!!! She's a nurse, yes, she gives me my shots of Avonex, yes, but why would you call her, which they never did!!!

*I've had this experience as well. I've applied for SSDI alot more than once. Being stupid, I never appealed it. Mostly because after being denied, I always go into these deep depressions, and have an "I don't give a crud" attitude. But, you are right. They don't contact the people you give them. They have their own, and it's all designed to keep you from qualifying.Today I got a letter from my lawyer with this huge packet that asks a ton of questions about my mental health and my physical capabilities. My therapist I guess will fill out the mental health one and I don't know who will fill out the medical one. The neuro I'm seeing on Tues. is new to me so I don't want to shove that right down her throat, ya know. They obviously know nothing about MS and that one day you can be fine and the next you can feel like you are dying. We are getting slammed with copays from meds for me, my daughter, and my son and all the drs visits. We pay over $300 a month.

* If you know all the doctors you've seen and know how to reach them, couldn't you just have your records transfered to your lawyer? Or didn't you have a neuro. until now?

Whew, $300.00 a month is alot for co-payments. Just think how much it would cost without any insurance. (Nevermind, I don't even want to think about it.)Zack was dx with ADHD when he was 3 and got kicked out of his first preschool after 4 days of attendance. I knew something wasn't right with him right off the bat, but everyone kept saying, "he's just a typical boy, they all have energy like that" Yeah, right!!!! Do they all band their heads on the floor when they get mad? Oh well. We deal with it the best we can. It is hard, but we worked so hard to have him, he is actually an IVF baby, that's why there is such a big age difference. Hubby was told he had a one in a million chance of having kids. We thought was our one. Finally s insurance covered IVF and we went for it and got lucky on the first try. 3 eggs in, 1 beautiful baby boy.

* You know, my twins used to do the same thing when they were small. I remember going to the store one day, there was a lady in the check out line who kept starring at me and my kids. She looked at me and gave me a really evil look. I knew why. She had appearantly seen all the bruises on my childrens heads, and assumed that I was beating my children. My kids would go into HUGE rages and bang their heads on the floor, hit themselves, and pull their hair. There was nothing I could do to stop it. One of the twins was dx'd when she was 7 with ADD. The other child was later dx'd as being bi-polar. No matter what is wrong with our children, we love them. Looks like zack was wanted very much so. So, I know that as parents you are doing the best you can.I'd love to know how you all handle the heat. How it affects or effects (I can't remember which is the correct word) you. I'm still pretty new to it. Still getting used to it, if it's at all possible to ever get used to.

* The heat is always hard to deal with. Just stay as cool as you possibly can. Try to stay out of the heat if possible. I've been known to take 3 or 4 cool showers a day. This year I'm going to keep stocked up cool cloths.

I received a call yesterday from MS Lifelines. The woman I talked to told me to get a really good financial advisor. She said I may be able to get cooling units for the home. She said it's tax deductable if you can prove you have MS. There are sites you can go to that have cooling vests, hats, and neckerchiefs. I've heard you can get some for free. Right now, I'm having one of those, MS burp moments, I can't remember what sites they are. Maybe someone here in the group can help me??Peggy

* Blessed be....Val

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.0/819 - Release Date: 5/26/07 10:47 AM

[Guest guest]

I happen to own several bags of rocks and I can testify that you are WAAAY smarter then they are. Hugs Akiba -- Re: Hi all ----- Original Message ----- Thanks Val,Yeah the memory thing really bothers me. My husbands memory was always bad and now with mine not working too well it's really scary!!! I repeat myself, lose words from my brain to my mouth, words come out completely wrong, and I lose my thought process in the middle of a conversation. Some days I feel as dumb as a box of rocks!! * Peggy, I completely understand about the memory thing. It does make you feel kinda stupid. I use to write quite a bit. Some short stories and poetry. I even started on a novel a couple of years ago. My memory has gotten so bad, that I'm fortunate enough to remember how to spell and punctuate, let alone remember what the topic was about. I've been known to repeat myself often.I've only applied once for SSDI and got like a blanket denial. They didn't even talk to the people I put on my list. None of my drs., therapist. They said they talked to my sister!!! She's a nurse, yes, she gives me my shots of Avonex, yes, but why would you call her, which they never did!!! *I've had this experience as well. I've applied for SSDI alot more than once. Being stupid, I never appealed it. Mostly because after being denied, I always go into these deep depressions, and have an "I don't give a crud" attitude. But, you are right. They don't contact the people you give them. They have their own, and it's all designed to keep you from qualifying.Today I got a letter from my lawyer with this huge packet that asks a ton of questions about my mental health and my physical capabilities. My therapist I guess will fill out the mental health one and I don't know who will fill out the medical one. The neuro I'm seeing on Tues. is new to me so I don't want to shove that right down her throat, ya know. They obviously know nothing about MS and that one day you can be fine and the next you can feel like you are dying. We are getting slammed with copays from meds for me, my daughter, and my son and all the drs visits. We pay over $300 a month. * If you know all the doctors you've seen and know how to reach them, couldn't you just have your records transfered to your lawyer? Or didn't you have a neuro. until now? Whew, $300.00 a month is alot for co-payments. Just think how much it would cost without any insurance. (Nevermind, I don't even want to think about it.)Zack was dx with ADHD when he was 3 and got kicked out of his first preschool after 4 days of attendance. I knew something wasn't right with him right off the bat, but everyone kept saying, "he's just a typical boy, they all have energy like that" Yeah, right!!!! Do they all band their heads on the floor when they get mad? Oh well. We deal with it the best we can. It is hard, but we worked so hard to have him, he is actually an IVF baby, that's why there is such a big age difference. Hubby was told he had a one in a million chance of having kids. We thought was our one. Finally s insurance covered IVF and we went for it and got lucky on the first try. 3 eggs in, 1 beautiful baby boy.

* You know, my twins used to do the same thing when they were small. I remember going to the store one day, there was a lady in the check out line who kept starring at me and my kids. She looked at me and gave me a really evil look. I knew why. She had appearantly seen all the bruises on my childrens heads, and assumed that I was beating my children. My kids would go into HUGE rages and bang their heads on the floor, hit themselves, and pull their hair. There was nothing I could do to stop it. One of the twins was dx'd when she was 7 with ADD. The other child was later dx'd as being bi-polar. No matter what is wrong with our children, we love them. Looks like zack was wanted very much so. So, I know that as parents you are doing the best you can.I'd love to know how you all handle the heat. How it affects or effects (I can't remember which is the correct word) you. I'm still pretty new to it. Still getting used to it, if it's at all possible to ever get used to.

* The heat is always hard to deal with. Just stay as cool as you possibly can. Try to stay out of the heat if possible. I've been known to take 3 or 4 cool showers a day. This year I'm going to keep stocked up cool cloths.

I received a call yesterday from MS Lifelines. The woman I talked to told me to get a really good financial advisor. She said I may be able to get cooling units for the home. She said it's tax deductable if you can prove you have MS. There are sites you can go to that have cooling vests, hats, and neckerchiefs. I've heard you can get some for free. Right now, I'm having one of those, MS burp moments, I can't remember what sites they are. Maybe someone here in the group can help me??Peggy

* Blessed be....Val

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.0/819 - Release Date: 5/26/07 10:47 AM

[Guest guest]

Odd, I am getting my posts back from the list and at the site--pretty sure about that,

although I cannot guarantee that I did not have at least one escapee today; if YOU

are the only one not receiving them, see post below in string of previous posts, then

you might check your settings at the MSersLife site and/or call your internet provider!

Let Sharon know if others appear to be receiving my posts on list, as below, and you

are not! Love and good luck,

n Rojas5915@...

Hi all> > > Hi everyone!!! I'm actually not new to this group but haven't posted > in a long time. The reality is I forgot I belonged to this group, how > sad is that??? My mind has really gone downhill in the past year > since my dx.> > I guess I'll reintroduce myself. My name is Peggy and I am 40 years > old. I was dx July of last year with RRMS after having 2 separate > bouts of vertigo. The dx was a shock to say the least. I am married > to and we just celebrated our 21st anniversary in April. We > have 2 children, , 17 and Zack, almost 5.> > I had a terrible Winter and have just experienced the 2 hottest days > so far this Summer and didn't fare too well. My balance is off and I > have terrible tremors. I bought a cane a few months back after > falling 4 times. I am going to see an MS Specialist an hour away from > my home in central NY as my current neuro stinks!!!! I am appealing > my denial for SSI. I also suffer from chronic depression and very bad > anxiety. Basically I'm a basket case. I had these problems before the > MS came along.> > My daughter is a junior in high school and wants to be a nurse. She > helps me as much as she can and will make an excellent nurse. She has > found her calling. My son has severe ADHD and ODD (Oppositional > Defiance Disorder) so he is a constant source of stress for all of > us. He of course can't help it and can be the best boy. He is very > loving and holds my heart!!> > I hope to get to know all of you again, now that I realize that I do > belong to a group for MS!!! Talk about being out in the ozone, WOW!!!> > Peggy>

' in Texas

Courage is not being fearless, courage is facing your fears and not running for cover!

[Guest guest]

Akiba~

A lot of stuff goin' on on that day, huh? It's a sure bet as far as I'm concerned. Y'all are gonna be one of those families that stays together forever! I just love it. Nothing but blessing for the three of you!! Val

Re: Hi all

Hi Akiba,

I noticed that you lived in Rome. I was stationed there at Grifiss AFB. That was way back in 1962-62. My oldest son was born at the base. I am originally from Utica, so it was nice to be stationed near home, since I knew I was getting out and could set up house in my spare time.

I also used to visit bay. The St Lawrence had some giant fish in it. We used to camp there. For the life of me, I can't remember the name of the fish I used to catch. I know we had to troll for them and they fought like a sports fish.

Welcome back Peggy. WE have a great time on this list.

Love to all,

See what's free at AOL.com.

No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.0/819 - Release Date: 5/26/07 10:47 AM

[Guest guest]

From your keyboard to God's harddrive.... Akiba -- Re: Hi all Akiba~ A lot of stuff goin' on on that day, huh? It's a sure bet as far as I'm concerned. Y'all are gonna be one of those families that stays together forever! I just love it. Nothing but blessing for the three of you!! Val Re: Hi all Hi Akiba, I noticed that you lived in Rome. I was stationed there at Grifiss AFB. That was way back in 1962-62. My oldest son was born at the base. I am originally from Utica, so it was nice to be stationed near home, since I knew I was getting out and could set up house in my spare time. I also used to visit bay. The St Lawrence had some giant fish in it. We used to camp there. For the life of me, I can't remember the name of the fish I used to catch. I know we had to troll for them and they fought like a sports fish. Welcome back Peggy. WE have a great time on this list. Love to all, See what's free at AOL.com. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.0/819 - Release Date: 5/26/07 10:47 AM

[Guest guest]

Val, I am not sure exactly what I am going to do but yes, in the heat of the moment I do get mad and say I am not going to do it anymore. I think I am just going to let things settle down for my husband for a while (he has been on the same rollar coaster ride as me) and then proceed with another doctor. I don't know if I should start with a neuro or just a family doctor bcs it seems the more popular the neuro the less interested they seem to be. I have had more action from a family physician than any expert I have seen. Thanks for the advice. Yes, sometimes when a doctor gets your medical records from another doctor there are probably notes in there of some sort and god only knows what they write. They could be writing that we are really mentally ill or something. I know when something is wrong with my body and mind, don't you. It's just hard convincing a doctor you know what you are talking

about. But after 21 years it seems like a lost cause. At least for now but am sure it's never over or done with. I hope your new neurologist changes his actions bcs you know what they say "word of mouth" will damage him in the long run. Good luck. Thanks for the prayers and you are also in mine. :)Val Lee wrote: ~ I don't think I

would give up. I know I say all the time..."I give up! I'm tired of fighting", But, I say a lot of things in the heat of the moment. Most of the time it's speaking before thinking. In your case, if the neurologist doesn't want to look further into the matter, I would take that to mean, I'm a lazy son-of-a-nose-pickin'-mule. I have other things to do with my time. I really think it would be in your best interest to take this to another neuro. I made a big mistake last year with my former neuro. After I called her, stupid and fired her, I went to another neuro. He was really nice, and assured me that he was going to do everything he could to help me. Then, he said to save some time, he was going to send for my records from the other neuro. I should have told him NO. But, I didn't. I gave him permission.

Well, on my next visit, his demeaner took a drastic change. He acted like I was just taking up his valuable time. After I left the office, it dawned on me that maybe my other neuro may have put something in my file that was negitive. I'm just guessing, but that's how I took it. Still lifting you in prayer...Val ----- Original Message ----- Hi :I wrote yesterday about a radiologist saying I didn't have MS after having been dxed 5 years prior. I took the films to 2 different neuros and they both said I DO have MS. One of the neuros said "what's wrong with him?!? I can see the black holes from

here!" when he glanced at them before they went up on the light board. When I showed them to the 2nd neuro I asked him what he thought. He looked very puzzled and said "well, I see someone who has MS. Why"" He couldn't believe it when I told him what that radiologist had said. Last summer I had new MRIs done and this radiologist said he could see progression since those MRIs in 2003 (the films where I didn't have MS Where is the neuro who diagnosed you to begin with? I'm assuming this latest neuro is not the one who diagnosed you. When were you dxed with MS to begin with? hugs))Sharon No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.472 / Virus Database: 269.8.0/820 - Release Date: 5/27/07 12:31 PM The Love Of Pugs!

[Guest guest]

Sharon, A home is never too small to have pets to love. My first dog I brought home in the middle of winter about 5 years ago (actually in the middle of a snow storm and traveled 2 1/2 hours for this puppy) in my winter coat. As soon as my husband seen the puppy he was hooked. Unfortunetely, the chihauhau did not get along with the dogs that came after and we gave her to my sister where there are no animals but many children to give lots of love and attention to her. I wonder how long it will take me to get another pug. LOL :)Sharon Marsden wrote: LOL... I share a household with my son, his wife and their four children ages 4-12. We have 6 large dogs, 7 cats, three aquariums full of fish and one water frog and another (dry) aquarium with 6 hermit crabs. Everytime one of the kids says "Dad, I want to go to Petsmart" he yells "NO!" Talk about flipping out.... hugs))Sharon Re: Hi all Peggy, Glad you found a good neurologist. That's going to be very important to get your SSDI. Sometimes neurologists just tell you what they want to tell you and leave out what they deem unimportant. Personally and probably for most people I would like to know the truth. I was on the Avonex and I got sick for 4 days after every shot. I hear that the newer medications are better and also less side effects. About getting the new pets and your husband....usually flipping out means absolutely NOT LOL. My husband flips out every time I mention I want another pug Good luck to you. :)Peggy <spazman222verizon (DOT) net> wrote: Hi ,Thanks for the welcome and I'm sorry for the confusion on your dx. It's scary to know that there are drs out there that are flying by the seat of their pants. That is the neuro I have now. From the notes I just requested for myself I found out that I have an 8 mm round lesion in the back of my brain that she never told me about!!! I knew about the 3 mm one and the 2 5 mm ones, but the 8 was news to me. I wonder if it was really me she was talking about as she never wrote anything down or put anything into the computer. She always did the same exam, 15 minutes, in and out, and if I had any questions, she answered them with her hand on the door as if she were ready to leave, on to the next patient!!! I hope the new neuro is as good as I've heard.I do have a lawyer for this appeal and if I do get the SSDI it will

be retroactive which will be sweet as we desperately need the money. In NY if you are turned down twice you have to wait at least 2 years before you can apply again for it. I won't give up until I get it. I should receive it on my anxiety and depression alone.I hear you about migraines. I suffer from those as well. I get them every Tuesday after my shot of Avonex. Every other day I have a regular headache, just a dull one, but it won't go away. Very annoying.We have 2 dogs and 2 cats. I just told my hubby I wanted to get 2 rare parakeets at the pet store and he about flipped, so I guess that was a no,LOL!!!!Nice to meet you, and hope that you are feeling better. Don't give up on the drs. there is one out there for you. I don't understand how they can dx you with a disease and then undx you. Peggy> Hi everyone!!! I'm actually not new to this group but haven't posted > in a long time. The reality is I forgot I belonged to this group, how > sad is that??? My mind has really gone downhill in the past year > since my dx.> > I guess I'll reintroduce myself. My name is Peggy and I am 40 years > old. I was dx July of last year with RRMS after having 2 separate > bouts

of vertigo. The dx was a shock to say the least. I am married > to and we just celebrated our 21st anniversary in April. We > have 2 children, , 17 and Zack, almost 5.> > I had a terrible Winter and have just experienced the 2 hottest days > so far this Summer and didn't fare too well. My balance is off and I > have terrible tremors. I bought a cane a few months back after > falling 4 times. I am going to see an MS Specialist an hour away from > my home in central NY as my current neuro stinks!!!! I am appealing > my denial for SSI. I also suffer from chronic depression and very bad > anxiety. Basically I'm a basket case. I had these problems before the > MS came along.> > My daughter is a junior in high school and wants to be a nurse. She > helps me as much as she can and will make an excellent nurse. She has > found her calling. My

son has severe ADHD and ODD (Oppositional > Defiance Disorder) so he is a constant source of stress for all of > us. He of course can't help it and can be the best boy. He is very > loving and holds my heart!!> > I hope to get to know all of you again, now that I realize that I do > belong to a group for MS!!! Talk about being out in the ozone, WOW!!!> > Peggy> > > > > > > > > > Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center. The Love Of Pugs!