Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 I am really intrigued by PANDAS as it fits my son, EXCEPT for the fact that he rarely gets sick. Could it still be PANDAS? I think the idea of PANDAS shows that researchers are at least looking outside the box for commonalities and at least giving us parents some kind of hope. They don't obviously have all the answers, but at least it gives another avenue to pursue and it does fit in with the viral/bacterial underlying infection aspect of autism. Just my 2 cents that I don't agree that it's a crock. I think open discussion is healthy. Nanci > > > > I suspect my son has Pandas, on the website it said there was no official > test for Pandas. what supplements can I give him to try to see if I can get > rid of some of the OCD behaviors? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 Frequent illness is not a requirement for PANDAS. My son had a history of Strep Throat. However, there have been diagnosed cases of PANDAS where there was a never a diagnosed case of Strep. Dr. Bock discusses one such case in his book. Dr. Swedo from NIH discussed PANDAS at the recent DAN! Conference in Atlanta. You can watch for free here. www.autism.com/danwebcast Pamela From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of smiths4him Sent: Friday, July 10, 2009 5:25 PM To: mb12 valtrex Subject: Re: Pandas I am really intrigued by PANDAS as it fits my son, EXCEPT for the fact that he rarely gets sick. Could it still be PANDAS? I think the idea of PANDAS shows that researchers are at least looking outside the box for commonalities and at least giving us parents some kind of hope. They don't obviously have all the answers, but at least it gives another avenue to pursue and it does fit in with the viral/bacterial underlying infection aspect of autism. Just my 2 cents that I don't agree that it's a crock. I think open discussion is healthy. Nanci > > > > I suspect my son has Pandas, on the website it said there was no official > test for Pandas. what supplements can I give him to try to see if I can get > rid of some of the OCD behaviors? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 Thank you! My son has never had strep. Nanci > > > > > > I suspect my son has Pandas, on the website it said there was no > official > > test for Pandas. what supplements can I give him to try to see if I can > get > > rid of some of the OCD behaviors? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 Thank you! My son has never had strep. Nanci > > > > > > I suspect my son has Pandas, on the website it said there was no > official > > test for Pandas. what supplements can I give him to try to see if I can > get > > rid of some of the OCD behaviors? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 Did you use capsules or liquid OLE? All the liquid OLE I've seen on the web seems to have alcohol in it, and I don't want to give that to a 10 yo. He can't swallow pills. I'm wondering if the capsules can be squeezed out. Does it taste like Olive Oil? Does anyone know? Just thinking how to hide the taste. Nanci > > > > I suspect my son has Pandas, on the website it said there was no official test for Pandas. what supplements can I give him to try to see if I can get rid of some of the OCD behaviors? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 The Vitamin Shop brand OLE is alcohol free. That is what we use. Dana smiths4him wrote: > Did you use capsules or liquid OLE? All the liquid OLE I've seen on the web seems to have alcohol in it, and I don't want to give that to a 10 yo. He can't swallow pills. I'm wondering if the capsules can be squeezed out. Does it taste like Olive Oil? Does anyone know? > Just thinking how to hide the taste. > Nanci > >> > >> > I suspect my son has Pandas, on the website it said there was no official test for Pandas. what supplements can I give him to try to see if I can get rid of some of the OCD behaviors? >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 liquids are no where near as strong as the pills. they Do taste bad but I would encourage you to work on teaching him to swollow them as it's a life skill he will need down the road and opens alot more treatment options up for you Original Message: ----------------- From: smiths4him smiths4him@... Date: Sat, 11 Jul 2009 05:01:58 -0000 To: mb12 valtrex Subject: Re: Pandas Did you use capsules or liquid OLE? All the liquid OLE I've seen on the web seems to have alcohol in it, and I don't want to give that to a 10 yo. He can't swallow pills. I'm wondering if the capsules can be squeezed out. Does it taste like Olive Oil? Does anyone know? Just thinking how to hide the taste. Nanci > > > > I suspect my son has Pandas, on the website it said there was no official test for Pandas. what supplements can I give him to try to see if I can get rid of some of the OCD behaviors? > > > -------------------------------------------------------------------- mail2web LIVE – Free email based on Microsoft® Exchange technology - http://link.mail2web.com/LIVE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 My son is almost never sick. I've read that is a sign that the immune system is out of whack - don't have a referece handy. Oh, man, strep exposures lead to bad, bad, bad OCD in our house. > > > My son rarely gets sick. In fact his only major illness in the last 4-5 > years has been the bout of strep that lead to his PANDAS. > > Kerrie > > In a message dated 7/10/2009 5:31:53 P.M. Eastern Daylight Time, > pamelaleigh99@... writes: > > I am really intrigued by PANDAS as it fits my son, EXCEPT for the fact > that he rarely gets sick. Could it still be PANDAS > > > > **************A Good Credit Score is 700 or Above. See yours in just 2 easy > steps! > (http://pr.atwola.com/promoclk/100126575x1221323031x1201367232/aol?redir=http://\ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 My son is non-asd PANDAS/PITAND and was also never sick for years prior to onset of PANDAS after a virus. His immune system is finally behaving normally this year, he occasionally catches something, processes it and heals without backlash. His DAN! doc agrees this is a very good sign. Gayle > > > > > > My son rarely gets sick. In fact his only major illness in the last 4-5 > > years has been the bout of strep that lead to his PANDAS. > > > > Kerrie > > > > In a message dated 7/10/2009 5:31:53 P.M. Eastern Daylight Time, > > pamelaleigh99@ writes: > > > > I am really intrigued by PANDAS as it fits my son, EXCEPT for the fact > > that he rarely gets sick. Could it still be PANDAS > > > > > > > > **************A Good Credit Score is 700 or Above. See yours in just 2 easy > > steps! > > (http://pr.atwola.com/promoclk/100126575x1221323031x1201367232/aol?redir=http://\ Quote Link to comment Share on other sites More sharing options...
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