Hello again and update

[Guest guest]

Hi, all, this is Debbie Reynolds, back again for a while. I had to stop

this list for a while, too much mail. I missed you all.

UPDATE: After 19 months on the diet with good control but not seizure-free,

and down to a 3.3 to 1 ratio, we lost all our help at home in August and had

to switch to more of an Atkins style diet. Worked fabulous for 6-8 weeks,

then Nate started fighting us worse than ever. Added to the worst

transition we've ever had starting third grade, and some SERIOUS issues

which need to be resolved at school, things just went all to H in a hurry.

Trying very hard to keep Nate in ketosis led to a roller-coaster effect, in

one day, out the next, and massively increased seizures. We decided to stop

the diet and increase his zonegran (zonisamide) and concentrate on handling

the autism/school issues if we could just maintain some kind of control. We

felt terrible about it, and the diet has worked better for us than anything,

but.....

something had to give.

So, we have slightly less control than on the diet, but still very

manageable. He's more prone to seizures when sick than he was on the diet.

I have been reading some articles (can't remember where I found them!) which

indicated that kids do better on meds after stopping the diet than they did

before, that the diet's effect lasts a longer time than previously

suspected. Very interesting research.

I will be " listening in " for a while, anyone who wants to " catch up " with me

privately, feel free, it's nater@... and I will be fascinated to see

how well you all are doing after my several months absence! Love, Deb

Reynolds, mom to Nate, keto-kid 01-09-00 to 10-01. non-verbal autism,

intractible epilepsy, with far more potential than anyone will admit!!