1st time & looking for info

[Guest guest]

My third son also has complex partial seizures (from 24 hours) and

after trying many drugs, including all of the ones you listed he started

the kgd May 2001. When he started the diet he was on sabril, clobazam

and tegretol all at maximum amounts. He is now only on a tiny amount of

tegretol which we are weaning ever so slowly. We now have a happy

energetic boy who is not sleeping his life away and very, very few

seizures, has other problems also and is developmentally delayed

but the kgd has been a gift from God! I can't help with the reflux

issues except to support the other parent who said it may just disappear

or it may be related to a food allergy which the diet will eliminate. I

know that definitely has food intolerances and he used to be

treated for reflux but now doesn't have those screaming episodes and I

put it down to the diet and generally being so much better.

I hope this is of some help to you. Good luck with your research, and we

are all here with ideas and advice and a wealth of experience if

required.

ine