EEGs, etc

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Date: Sun, 16 Dec 2001 09:30:37 EST

Subject: eegs, etc

has eegs and other tests frequently, The one I wanted repeated one year into the diet was the P.E.T. scan...couldn't get it done despite my beggings, so my theory of controlling loss of myelin wasn't supported by that. I still think I was right and have some other evidence to back up my gut feeling.... Carol 's Mother, 7 years on KGD

I am going to ask for another EEG. By the time we see the neuro again Mike will have been on the diet for 8 months and I am curious to see what if anything has changed with it. Jenn Kandylh3@... wrote:

Hi Jenn, I am sorry it took me so long to get back to you on the LGS. I am not sure what made 's pattern change, and what made her go seizure free for a whole year on the keto diet. For her, the results were dramatic, and instant. I believe they did another EEG about 6 months into the diet, just out of curiosity. Her EEG was normal. However, since she does also have Rett Syndrome, her seizure disorder is secondary to this syndrome, and I believe this is why they are so much harder to keep control of, compared to a "typical" child who has epilepsy. I know some of these kids have harder to control seizures too, but just think that having a syndrome as the primary disorder, makes it hard to get total control too. I saw that someone wrote to you about LGS and told you not to be discouraged or scared by the literature on LGS. I agree, Jenn. I think if you are able to find a doctor who specializes, you will have more support, and I sure hope that things work out. I too get down about 's seizures returning, but also keep in mind that they are nearly what they were before we'd gone to the diet. Love, Kandy 11 Idaho