Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 > Yesterday morning I woke up feeling that awful burning in my urinary tract > and i knew I was in trouble, going pee felt like passing shards of glass, When I get a UTI now they do a catheter sample. Regular samples are easy to contaminate and then they can't find the bacteria. You may need to see a urologist and have a catheter sample done. Have you had a cystoscopy with hydrodistention done? They put you to sleep then fill your bladder with water (this is very painful as it is fuller than you have ever felt so they put you to sleep). This is the only way to be sure if you have or don't have Interstital Cystitis which can also include vaginal burning and swelling. Just having a scope put into the bladder is not enough to rule out Interstitial Cystitis. Many with IC are findout out it is an uncommon bacteria called enteroccocus which labs to not look for. You have to ASK for them to look for it as it is a whole different procedure. Same with yeast---you have to ask them to grow the yeast culture and see if you have yeast in your bladder. The bladder has the same tissue makeup as the vulva so when one is inflamed the other will get that way as well. Also---whatever is in your urine that is causing you to burn in the bladder/urethra--spills all over the vulva too. For this you can keep a squirt bottle of water nearby and rinse after urination. One thing to try is to use antiacids. Or 1 tsp of baking soda in a glass of water but plug your nose---it tastes nasty! My doctor gave this to me for bladder infection relief and if you have IC---it will help with that too as acid foods cause flares. Max of 2 times a day though!!! It will change the pH of your urine so it burns less and the bacteria can't survive as well. Have you been checked for all the sexually transmited diseases? A current yeast infection? All vaginal infections can cause urethral pain including yeast and bacterial vaginosis. Allergies---can cause skin to be irritated and swell---cotton fabric is an allergen for some. I know......you were never allergic before so why would it change......that's simple...hormones and aging. There are millions of people out there that never had an allergy that will suddenly become allergic to something they eat or wear or use. It just happens. The longer we are alive the more pollutants and outside forces our body has to deal with. I used to be able to use sulfa meds with no problem. 2 years ago I became allergic to it. It happens. Have you seen an allergist or dermatologist? Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 daphne, I had exactly the same thing as you, and it happened to me when I was in hospital! Nightmare! You must be unbelievably uncomfortable. When I was in hospital this urinary feeling came on me, very severe but maybe not as painful as you. I was tested and it came up negative! Doctors just did not seem to take me seriously or want to discuss it - maybe they're afraid to admit I got from their hospital. Getting up continuously through the night is awkward in hospital as it wakes everyone up. Eventually it got less. It seemed to happen when I was very constipated and had just started taking Citalopram an SSRI Anti-depressant. For a while I had spasms in urinary area at every loud noise and getting to sleep was a nightmare. Urinary feeling has gone but it now transpires I have possible thrush now from cream I've being using, constantly wet etc on my peeling skin between my legs. Hope you get some relief from soon. My thing gradually subsided which is unbelievable really as it was so bad and quite frightening, goodness knows what it was! Sometimes the urinary area becomes irritated/bruised just inside and causes pain and urgency, but heals up. How can they say to you that you are 'perfectly normal', they just don't listen! Sometimes I feel my doctor just doesn't want to deal with it. They just don't understand how agonising urinary problems are. love wendyxx what is going on?? Yesterday morning I woke up feeling that awful burning in my urinary tract and i knew I was in trouble, going pee felt like passing shards of glass, i called the doctor, then called my husband distraught and bawling because i have reached the end of my rope!! My doctor who knows my story couldn't see me,The office urine test was neg. !! again I start to sob, he wants to do some cultures..... The nurse went to get my doctor,( who was kind enough to rescue me even when she was busy,) whom said the urine was very dilute so she sent it to the lab and said she thought I should try an antidepressant to help me get through this, along with an antibiotic that I did well with the last uti. she gave me zoloft which probley wasn't the right choice for what we were trying to achieve.......OH my, I was up all night it was and still is horrible I feel sick and shakey and I keep having these waves of weirdness like my brain is crawling and anxiety attachs. my vulva and bottom both feel like I am sitting on a hot pad, although they look normal except for the vest glands that are super swollen thats never happened to me before!! I don't know if it is the zoloft or the antibiotic?? Today I am not taking a damn thing! If i don't have a ut infection what else would cause that?? I saw an urologist a while back, he said I was perfectly normal!! This just keeps getting better!!!!!!! Daphne *****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2002 Report Share Posted February 8, 2002 > daphne, > > I had exactly the same thing as you, and it happened to me when I was in hospital! Nightmare! You must be unbelievably uncomfortable. When I was in hospital this urinary feeling came on me, very severe but maybe not as painful as you. > > love wendyxx Did you have a catheter? You can get that feeling from having one put it as it stretches the urethra (the surgery ones do but not the ones they use to get urine samples). Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2002 Report Share Posted February 8, 2002 Lynn what a great bunch of info I am printing it to take to my doctor, I had a cytoscopy done in oct. not with water though. When this first happened to me, i had the bladder trouble big time then came the vulvar burning, i even asked back then if the pain meds i was taking for the bladder where causing my burning, now that I know that the vulvar tissue is being damaged some how( the hyperkeritinized cells) This gives me something to look for. I am going to try keeping everything off it and try the antacid, the dermatologist gave me one because it can also help with allergys.he said dermatitis and tried to give me another steroid?? I think I need to look into what you have just told me. Thank you, Daphne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2002 Report Share Posted February 8, 2002 wouldn't it be nice if they could all have one day of this they would be more understanding don't you think?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2002 Report Share Posted February 8, 2002 yet another ray of hope! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2002 Report Share Posted February 8, 2002 > Lynn what a great bunch of info I am printing it to take to my doctor, I > had a cytoscopy done in oct. not with water though. When this first happened > to me, i had the bladder trouble big time then came the vulvar burning, i > even asked back then if the pain meds i was taking for the bladder where > causing my burning, now that I know that the vulvar tissue is being damaged > some how( the hyperkeritinized cells) > This gives me something to look for. I am going to try keeping everything > off it and try the antacid, the dermatologist gave me one because it can also > help with allergys.he said dermatitis and tried to give me another steroid?? > I think I need to look into what you have just told me. > Thank you, > Daphne I'm glad this was helpful.... here is something I just found at the IC-Network site: " When IC patients speak of their pain, they often describe it in many different ways, including: pressure, heat, electrical currents, razor blades or ground glass. Many IC patients also describe their pain as being referred to their back, vagina, rectum, perineum or lower extremities. " Here is the site:http://www.ic-network.com/handbook/ There is a Top 10 List of foods to avoid (too acid) and see if any of them are triggers for you....you'll have to think back or brave it and try one of them. Not all of them affect all IC patients either--- some can drink coffee for instance. #1: Cranberry Juices & Extracts #2: Coffee & Tea Products #3: Carbonated Beverages & Sodas of Any Type (diet & regular) #4: Tomatoes, Tofu and some Beans #5: Herbal Teas #6: Tobacco #7: Alcohol & Vinegars #8: Chocolate #9: Strawberries & other acidic fruits #10: Food Additives & Seasonings Also-read the list of the related conditions on the bottom left of the page--vulvodynia is one of them. This may not be what is causing your symptoms but if it is---it would be nice to get a diagnosis and get treated. Good luck!!! Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2002 Report Share Posted February 8, 2002 Daphne, I'm so sorry you have to deal with this. I know how you feel, the exact same thing happened to me. I had the regular VV for about a year, then the bladder problems started. For some odd reason I would get temporary relief from Diflucan, but that is not what I did to make it go away for good. The urinary and urethral gland pain is worse than the vulvar pain, in my opinion. Daphne, you have become allergic to something and you need to find out what it is, fast. The longer you let the inflammation go on the harder it will be to cure. Allergies are hard to pinpoint, because they develop slowly, over time. Go on an elimination diet for two weeks. Eat only meat (and meat you don't usually eat all the time, chicken maybe you should avoid too if you eat it all the time) and vegetables and fruit (but no citrus, it's a common allergen). No egg, diary, wheat, corn or yeast. See if you feel better. I can tell you from experience that eating something you are allergic to *can* make you have pain down there, my bladder goes crazy if I eat a lot of yeast, like a beer, and if I eat corn-based products my urethral glands start killing me. You'll have to read lots of labels on food and it's hard to eat out, but it will be worth it. Then start trying out the bad foods one by one, one every couple of days. I bet you $100 you will find a few foods that set off the pain. You are probably allergic to some of your hormones too, I know of 2 places in the US that do this kind of testing, let me know if you would like contact info. Keep coming here to vent if you feel like it, this kind of pain is very draining. in SF > Yesterday morning I woke up feeling that awful burning in my urinary tract > and i knew I was in trouble, going pee felt like passing shards of glass, i > called the doctor, then called my husband distraught and bawling because i > have reached the end of my rope!! My doctor who knows my story couldn't see > me,The office urine test was neg. !! again I start to sob, he wants to do > some cultures..... The nurse went to get my doctor,( who was kind enough to > rescue me even when she was busy,) whom said the urine was very dilute so she > sent it to the lab and said she thought I should try an antidepressant to > help me get through this, along with an antibiotic that I did well with the > last uti. she gave me zoloft which probley wasn't the right choice for what > we were trying to achieve.......OH my, I was up all night it was and still is > horrible I feel sick and shakey and I keep having these waves of weirdness > like my brain is crawling and anxiety attachs. my vulva and bottom both feel > like I am sitting on a hot pad, although they look normal except for the vest > glands that are super swollen thats never happened to me before!! I don't > know if it is the zoloft or the antibiotic?? Today I am not taking a damn > thing! > If i don't have a ut infection what else would cause that?? I saw an > urologist a while back, he said I was perfectly normal!! > This just keeps getting better!!!!!!! > Daphne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 Hi , Could you possible e-mail me some information on hormone allergies or how to go about being tested for them? I basically in the same situ- ation as Daphane with the urinary, vulva and vaginal burning and pain. I have tried just about everything possible except surgery and am losing hope in ever feeling better. Thanks, Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 Lynne, I didn't have a catheter in, but I had put wadding in that area that would sometimes dry in quite hard and I think I got a bit bruised or inflammed. I had this feeling like I didn't have control over the muscles in that area. I still get a twinge/ache now and again. I find this area is very sensitive, considering my hospitalisation was at the end of November last year. Daphne, good luck and I hope there is some improvement for you soon. wendyxx Re: what is going on?? > daphne,> > I had exactly the same thing as you, and it happened to me when I was in hospital! Nightmare! You must be unbelievably uncomfortable. When I was in hospital this urinary feeling came on me, very severe but maybe not as painful as you. > > love wendyxxDid you have a catheter? You can get that feeling from having one put it as it stretches the urethra (the surgery ones do but not the ones they use to get urine samples).Lynn*****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner ***** Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.