Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 I buy psyllium at the " natural " food store (Whole Foods). It comes in 2 forms and I buy the powder. I slowly increased to 1 tsp/day for Ally (she is 35 lbs). It is a natural fiber. She had no side effects-except more BMs! We had been waiting for well over a month for the " right " colace from the pharmacy. Don't forget that adding magnesium is even a more " natural " way to help combat constipation. I have also heard a lot on this list about constipation causing increased seizures. Good Luck --- heppner1@... wrote: > Where can I get psyllium? What exactly does it do? I am > still so upset > that the pharmacist substituted the med. They still > havent called me to > tell me it is in. I was hoping to give it to him this > weekend since his > seizures are getting worse again. I think it has alot to > do with him > being constipated. > > Thanks for the info. > > Jenn > > cindy atler wrote: > > > Hi Jenn, > > I was using colace for my daughter and twice was given > the > > wrong form of the medication--there was no way to tell > from > > the bottle, but I could smell the cherry flavoring and > knew > > it had to be wrong! We finally ordered from a > compounding > > pharmacy just to be sure. I was using it regularly > until I > > added psyllium to her diet, which works wonders for > her. > > Now I rarely have to use the colace. I am planning on > > increasing her magnesium too as soon as we're done > weaning > > phenobarb. > > > > > > --- heppner1@... wrote: > > > Has anyone used colace (drop) for constipation on the > > > diet? My son's > > > neuro prescribed them for him and I was wondering if > I > > > should use it or > > > if there is something that works better/faster? > Right > > > now he only goes > > > once/twice a week and usually that is only with a > > > suppository. I dont > > > use them more often because I am worried he will > become > > > dependant on > > > them. Any suggestions would be greatly appreciated. > > > Thanks so much! > > > > > > Jenn > > > > > > Kandylh3@... wrote: > > > > > > > Hi Patti, > > > > Thanks for your letter- yes, we are already using > the > > > Cal/Mag Zinc, > > > > and I increased the mag. citrate so that the ratio > was > > > even. > > > > It seemed to me our gastro. was not happy with her > > > getting so much > > > > magnesium, with the added M.O.M. and I'd also heard > > > from another mom > > > > on the rett list, that it can interfere with > seizure > > > med. absorption, > > > > so it was time to try something else. > > > > I think that is like Katera, I don't think > the > > > mag. in MOM was > > > > settling well with her. > > > > Her gastro. thinks that maybe even though it made > BM's > > > softer, she > > > > wasn't emptying out all the way, which led to the > > > harder/larger BM's > > > > every couple of weeks. > > > > I am hoping Miralax works, so we don't have to > figure > > > anything else > > > > out for her! > > > > Take care! > > > > Kandy > > > > 11 > > > > Idaho > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2001 Report Share Posted December 15, 2001 Mike is on magnesium. If I increase it he gets stomach cramps and complains of a tummy ache. I will try the colace as a short term remedy and hope that he can start having BM's on his own after we "help" him for a bit. Thanks for the info! I love this group! I have learned more in the few weeks that I have been with this group than I have from the docs in the last 7 months! Jenn cindy atler wrote: I buy psyllium at the "natural" food store (Whole Foods). It comes in 2 forms and I buy the powder. I slowly increased to 1 tsp/day for Ally (she is 35 lbs). It is a natural fiber. She had no side effects-except more BMs! We had been waiting for well over a month for the "right" colace from the pharmacy. Don't forget that adding magnesium is even a more "natural" way to help combat constipation. I have also heard a lot on this list about constipation causing increased seizures. Good Luck --- heppner1@... wrote: > Where can I get psyllium? What exactly does it do? I am > still so upset > that the pharmacist substituted the med. They still > havent called me to > tell me it is in. I was hoping to give it to him this > weekend since his > seizures are getting worse again. I think it has alot to > do with him > being constipated. > > Thanks for the info. > > Jenn > > cindy atler wrote: > > > Hi Jenn, > > I was using colace for my daughter and twice was given > the > > wrong form of the medication--there was no way to tell > from > > the bottle, but I could smell the cherry flavoring and > knew > > it had to be wrong! We finally ordered from a > compounding > > pharmacy just to be sure. I was using it regularly > until I > > added psyllium to her diet, which works wonders for > her. > > Now I rarely have to use the colace. I am planning on > > increasing her magnesium too as soon as we're done > weaning > > phenobarb. > > > > > > --- heppner1@... wrote: > > > Has anyone used colace (drop) for constipation on the > > > diet? My son's > > > neuro prescribed them for him and I was wondering if > I > > > should use it or > > > if there is something that works better/faster? > Right > > > now he only goes > > > once/twice a week and usually that is only with a > > > suppository. I dont > > > use them more often because I am worried he will > become > > > dependant on > > > them. Any suggestions would be greatly appreciated. > > > Thanks so much! > > > > > > Jenn > > > > > > Kandylh3@... wrote: > > > > > > > Hi Patti, > > > > Thanks for your letter- yes, we are already using > the > > > Cal/Mag Zinc, > > > > and I increased the mag. citrate so that the ratio > was > > > even. > > > > It seemed to me our gastro. was not happy with her > > > getting so much > > > > magnesium, with the added M.O.M. and I'd also heard > > > from another mom > > > > on the rett list, that it can interfere with > seizure > > > med. absorption, > > > > so it was time to try something else. > > > > I think that is like Katera, I don't think > the > > > mag. in MOM was > > > > settling well with her. > > > > Her gastro. thinks that maybe even though it made > BM's > > > softer, she > > > > wasn't emptying out all the way, which led to the > > > harder/larger BM's > > > > every couple of weeks. > > > > I am hoping Miralax works, so we don't have to > figure > > > anything else > > > > out for her! > > > > Take care! > > > > Kandy > > > > 11 > > > > Idaho > > > > Quote Link to comment Share on other sites More sharing options...
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