Re: Weaning Lamictal - carbohydrate content-

[Guest guest]

Jill, and others,

is finally out of status from the chickenpox, but still in hospital,

was in intensive care for 7 days on a midazolam infusion, up to the ward

yesterday following the infusion 'tap' being turned off in the morning

following a drawn out wean from it. EEG yesterday afternoon was apparently

(verbal report only) completely normal, no epileptiform activity at all,

normal background etc! I credit the diet for this minor miracle, there are

those at the hospital that are sceptical, but that's okay! Somehow managed

to keep him in ketosis through it all, despite hiccups through lack of

knowledge of the diet, cleaning his teeth with toothpaste in our absence

etc.

Anyway, the purpose of this post is also to question the lactose content in

his meds. I didn't know lamictal contained lactose, my worry has been that

is now on nitrazepam, an oral benzodiazepine to cover the weaning of

the midazolam infusion. We plan to get him off this ASAP, but are very wary

of rocking the boat at present.

The nitrazepam also contains lactose, and although we have calculated it

into the diet, am I right in thinking this could be a seizure trigger, being

one of the 'oses'. Is this why so many ketokids are not completely seizure

free till off lamictal and other drugs that contain lactose etc?

Hill, mother to a battle weary in NZ

Weaning Lamictal - carbohydrate content

> Hi

>

> I have been investigating the ingredient content of varying strengths of

> Lamictal tablets in order to try and solve the problem of my daughter's

> increased seizures and possible relationship to weaning Lamictal. I wonder

> if I have found something significant here. Below are the figures I have

> found:

>

> Lamictal 200mg tablets

>

> 123.4 mg lactose

> 15mg Na starch glycolate

> Fat - 2.4mg magnesium stearate

>

>

> Lamictal 100mg tablets

>

> 99mg lactose

> 10mg Na starch glycolate

> Fat - 1.6mg magnesium stearate

>

> Lamical 25mg tablets

>

> 24.8 mg lactose

> 2.5 mg Na starch glycolate

> Fat - 0.4mg magnesium stearate

>

> My daughter was on 2 x 200mg tablets per day which means that she was

> having daily:

> 246.8mg lactose

> 30 mg Na starch glycolate

> Fat - 4.8 mg magnesium stearate

>

> Currently she is having 2 x 100mg tablets plus 6 x 25mg tablets which

means

> that she is having daily:

> 346mg lactose

> 35mg Na starch glycolate

> Fat - 5.6mg magnesium stearate

>

> I was wondering whether these differences are significant and whether they

> could be a factor affecting seizure control. Any input appreciated.

>

> Many thanks

> Jill

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a professional

keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

[Guest guest]

So glad to hear that is out of status! Do you think he will

be home for new years? So sorry that there is so little knowledge

at the hospital and they are making so many mistakes with him. When

Mike is in the hospital we always have someone staying with him at all

times - myself, my hubby or one of my parents - I am very very fortunate

that we are able to do this and I am sure it has stopped many problems

that would have happened had we not been there since the staff altho wonderful

with the kids at the hospital - they dont know much if anything about this

diet either!

Glad things are getting better for !! Hope he comes home

soon!!

Jenn

richard & susan hill wrote:

Jill, and others,

is finally out of status from the chickenpox, but still

in hospital,

was in intensive care for 7 days on a midazolam infusion, up to

the ward

yesterday following the infusion 'tap' being turned off in the

morning

following a drawn out wean from it. EEG yesterday afternoon was

apparently

(verbal report only) completely normal, no epileptiform activity

at all,

normal background etc! I credit the diet for this minor miracle,

there are

those at the hospital that are sceptical, but that's okay! Somehow

managed

to keep him in ketosis through it all, despite hiccups through

lack of

knowledge of the diet, cleaning his teeth with toothpaste in our

absence

etc.

Anyway, the purpose of this post is also to question the lactose

content in

his meds. I didn't know lamictal contained lactose, my worry has

been that

is now on nitrazepam, an oral benzodiazepine to cover the

weaning of

the midazolam infusion. We plan to get him off this ASAP, but are

very wary

of rocking the boat at present.

The nitrazepam also contains lactose, and although we have calculated

it

into the diet, am I right in thinking this could be a seizure trigger,

being

one of the 'oses'. Is this why so many ketokids are not completely

seizure

free till off lamictal and other drugs that contain lactose etc?

Hill, mother to a battle weary in NZ

Weaning Lamictal - carbohydrate content

> Hi

>

> I have been investigating the ingredient content of varying strengths

of

> Lamictal tablets in order to try and solve the problem of my

daughter's

> increased seizures and possible relationship to weaning Lamictal.

I wonder

> if I have found something significant here. Below are the

figures I have

> found:

>

> Lamictal 200mg tablets

>

> 123.4 mg lactose

> 15mg Na starch glycolate

> Fat - 2.4mg magnesium stearate

>

>

> Lamictal 100mg tablets

>

> 99mg lactose

> 10mg Na starch glycolate

> Fat - 1.6mg magnesium stearate

>

> Lamical 25mg tablets

>

> 24.8 mg lactose

> 2.5 mg Na starch glycolate

> Fat - 0.4mg magnesium stearate

>

> My daughter was on 2 x 200mg tablets per day which means that

she was

> having daily:

> 246.8mg lactose

> 30 mg Na starch glycolate

> Fat - 4.8 mg magnesium stearate

>

> Currently she is having 2 x 100mg tablets plus 6 x 25mg tablets

which

means

> that she is having daily:

> 346mg lactose

> 35mg Na starch glycolate

> Fat - 5.6mg magnesium stearate

>

> I was wondering whether these differences are significant and

whether they

> could be a factor affecting seizure control. Any input appreciated.

>

> Many thanks

> Jill

>

>

>

> "The Ketogenic Diet....a realistic treatment option,

NOT just a last

resort!"

>

>

List is for parent to parent support only.

>

It is important to get medical advice from a professional

keto team!

>

Subscribe: ketogenic-subscribe

>

Unsubscribe: ketogenic-unsubscribe

>

>

>

>

[Guest guest]

,

I hadn't had time to respond earlier, but I have been reading your posts.

You must be exhausted! I'm so happy to hear that is doing much

better. I know when we are in the midst of things such as that it feels as

though it will never end and when it finally does, the physical and emotional

exhaustion sets in along with the relief of better days. It sounds like they

did not make things easy for you in the hospital. Good for you for being

such a wonderful advocate for your child.

My input about the lactose base is to be very careful. Some kids can

tolerate small amounts of things like that and others can't. Since you may

have had trouble with it before, I would be wary. Marissa is one that is

very sensitive to most everything. Even a tiny bit of any type of sugar

sends her into status.

Love

Jen