Vulva/Vagina Itching

[Guest guest]

16/12/01

Hello

I am new to this group? I have just joined and I don't understand my

my message is not going through. Sorry if I keep sending the same

message again and again, but I'm not sure what I am doing wrong. Can

someone tell/help me.

I have been suffering from Vulva/Vagina itching for the last 6 years

and have had several test done but they have always come back

normal. I have seen a Dermatologist and a Gynaecologist and they

have both done several tests and cannot find

anything that is causing the itching on my Vulva.

I have accessed some information on the website about a hospital in

America, in Iowa City, New York. The Department of Obstetrics and

Gynaecology Vulva/Vagina Disease Clinic. I have phoned them and I

have explained my problem to the nurse and I have also sent her a

Email explaining my problem from the beginning, we have been keeping

in touch via Email quite a lot. She said she can help me but I need

to come over, she cannot diagnose me over the phone or by Email.

I have contacted quite a lot of Gynaecologists here in London via

Email, they are all private and very expensive. I don't mind

spending the money as long as I know someone can help me. Some of

them have Emailed me back and said they cannot help me, because

everything I have had done and used, they would have done the same

think. I am not sure who to contact here in London anymore I am

running out of Doctors. My only hope is America I think now.

I am also on Homeopathic treatment for the last 4 years but that has

not helped either. I have basically tried everything but no-one and

nothing has helped. How can I get hold of people who are suffering

from the same problem, Vulva/Vagina itching. I would like to get in

touch with them.

Do you know of anyone that can help me with my problem I am really

suffering badly, for 6 years now. Does anyone think it is a Hormone

Imbalance because the itching gets worse when I am about to start my

period and when I am on my period and before I go to the toilet the

itching gets very bad. Who can I see to check if it is a Hormone

Imbalance or is there anyone else that can help me. I have asked the

doctors here in London to test me for Lichen Simplex, Lichen

Sclerosis Vulvar Vestibulitis Yeast Infections etc, but whenever I go

to any doctor they just take one look at my Vulva and say no it's not

anything like that your skin is perfectly normal. That is the

problem my skin looks perfectly normal. I would like to be tested to

be on the safe side.

I would like to contact other people via E-mail with the same or

similar problem I have. Please could you let me know of any

Gynaecologist or Dermatologists that can help me, I am really

desperate. I don't mind travelling anywhere in London. I would be

grateful for your help.

Hope to hear from you soon.

Email Address:

Anees.Ahmed@...

Thank you

Shehla Ahmed

[Guest guest]

Hi Shehla-

I'm sorry about your vaginal pain, and also that you haven't been

getting responses to your messages. You mention many things in your

posting, so it's a bit difficult to know what to respond to. Reading

through the postings on this website will give you ideas about the

treatments other women are trying, as well as emotional support and

encouragement.

Suffering for a number of years and getting no meaningful results on

tests from doctors is the same story of most of the women here.

Seeing a good doctor is really the best place to start. I'm sorry

that you haven't had any luck finding doctors in London. I live in

the US, and I don't know who to recommend in London. On the website

" vulvodynia.com " there is a listing of doctors who are knowledgable in

vaginal pain.

You mentioned that you had tried many treatments. What were they?

Some of the treatments available include Diflucan, Elavil, low oxalate

diets, biofeedback/physical therapy, hormone creams, birth control

pills, boric acid suppositories, acidophilus supplements. Many of

these are prescription medications. It seems the best method is to

just keep trying different things. I've had a lot of relief and

success with physical therapy (which I understand is hard to find

outside the US).

I wish you good luck with your efforts at healing.

Misty

[Guest guest]

shela..not sure whether you received this in your personal e mail box...so

heres a copy of what i wrote !

Shela,

im sorry to hear about your itching problem....i happened to save an old e

mail from a woman on our vulvular list regarding help for itching.

(another idea is Aveeno oatmeal bathtub soaks, and just recently heard of

Calamine Soaks in the bath) i use corn oil that has vitamin e on the

outside of my vuvla just to relieve dryness and it has helped topically, in

that way.

so....here is a copy of the letter with the members idea...(im sure there are

many women on the list with lots of other ideas for you! and i think at least

one member who is also from the U.K).

good luck!!! warmly, > does anyone have suggestions for symptomatic

> relief of itching?

I don't know if they have the ingredients in the UK,

but here's the recipe for my super anti-itch goop: I

mix one glob Benadryl anti-itch cream (available

over-the-counter), one glob 1% hydrocortisone

cream/ointment (also OTC), and one glob Terazol

(prescription antifungal). I apply liberally as needed

for extraordinary itching.

Taking OTC oral Benadryl and an OTC anti-inflammatory

(like ibuprofen) together at regular intervals also

helped me through a recent severe itching episode.