Guest guest Posted December 8, 2001 Report Share Posted December 8, 2001 Hi everyone: Our neurologist has changed to a new medication. It is called Zonegran. He wants to wean off of Sabril (because of visual loss side effects) and is getting him on Zonegran before we begin the wean. Has anyone had any experience with Zonegran good or bad? We recently completed our wean from clobazam!!! Yeah!!! I did it very slowly and we had no problems. This is a new neurologist and he want to try and get off the ketogenic diet within the next year. has been on it for nearly 2 1/2 years now. Well gotta run for now, but hope that you all have some input. Thanks, Tammy Carrington Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2001 Report Share Posted December 8, 2001 hi, my daughter is on zonegran currently.she is on a fairly high dose and she has never had any problems with the med. she was on vigabatrin successsfuly with zonegran combination. we are off of the vigabatrin but she is having head drops lately so we are considering getting back on it temporarily. our daughter is on the keto diet also. she is doing better, if you have any questions email me. our daughter is 16 1/2 months. tcatoire@... > >Reply-To: ketogenic >To: ketogenic >Subject: Zonegran >Date: Sat, 08 Dec 2001 13:20:40 -0600 > >Hi everyone: > >Our neurologist has changed to a new >medication. It is called >Zonegran. He wants to wean off of Sabril >(because of visual >loss side effects) and is getting him on Zonegran >before we begin the >wean. Has anyone had any experience with Zonegran >good or bad? > >We recently completed our wean from clobazam!!! >Yeah!!! I did it very >slowly and we had no problems. > >This is a new neurologist and he want to try and >get off the >ketogenic diet within the next year. has >been on it for nearly >2 1/2 years now. > >Well gotta run for now, but hope that you all have >some input. Thanks, >Tammy Carrington > > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2001 Report Share Posted December 13, 2001 Hello Everyone, My son is 3 1/2 and has been on the ketogenic diet for almost 2 years. He has been on Zonegran for almost as long. The medication and diet are controlling his petite mal seizures. He is still having myo cloinic jerking. This has been very difficult to control. Zonegran was a great alternative for my son. He was taking three medications and now only needs the Zonegran and we are even weaning him off it slowly. I have seen no contraindications. My son's neuro states that it has been used in Japan for many years. Hope this helps. Happy Holidays. Quote Link to comment Share on other sites More sharing options...
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