Guest guest Posted October 10, 2001 Report Share Posted October 10, 2001 Thank you to everyone that replied to my introduction email. Jack has been doing so much better since we increased his calories to 1080 per day. Thank you to for advising me that there may be another child through this link that has Jack's condition, Glut-1 Deficiency Syndrome, aka Glucose Transporter Protein Syndrome. Does anyone remember who this was or have any contact with the family? I have been trying to find a match through Parent to Parent in New Zealand and MUMS in USA but have had little luck so far. Sue Senior (Mum of Jack 3 1/2 years keto kid since 09 2001 and Molly 18 months) Quote Link to comment Share on other sites More sharing options...
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