Re: Re: [VPD my condition is WORSE!!!

[Guest guest]

Thanks for listening. Has anybody had this procedure??? Alison

My daughter had urethra stretched several years ago. She's 9 now. she was having vaginal infections after vaginal infections so the specialist (urologist) decided to do this after several diagnostic procedures. she was also on Nitrofurantin (I think that's the same as Macrodantin , for a least a year). I'm scared to think what all this may have done to do and what her future holds for her in that area. Right now I can pray that she has not been harmed. She seems to have been helped by it.

Love,

Suzette

[Guest guest]

,

I'm so sorry to hear about your condition! My sister had that procedure done

a long time ago, but not dealing with your preexisting condition. Have you

tried sitting in a tub of cold water? That seems to help me when I'm at my

worst. At least it numbs everything for a while and helps the inflammation.

Sometimes when I get out of the tub, I walk around for a few minutes

thinking, " Wow. This is how I used to feel, normal. " Hope you're

feeling better soon.

Susie

[Guest guest]

Hi Alison,

I had the urethral dilation many years ago when I had chronic

cystitis. I had surgery when I was 18 where the dr. cut my urethra in 3 and

put a catheter in the size of a garden hose for 3 days. He swore I had a

stricture and I would never have a problem again. Six weeks later I had the

worst infection I was actually bleeding and I endured years of long term

antibiotics. My urine cultures always came back negative but the antibiotics

ga e me yeast infections. After several different drs. I went back to the

original urologist like a dummy and he did several in office dilations like

you had. It was unbearably painful and I know it gave me scar tissue. I have

had urethral bladder syndrome ever since. I am talking 25 years now. Vulvar

vestibulitis and IBS are all in this same time frame.

Jo

[Guest guest]

Hi Alison, I have a neurogenic bladder, which means that the only way that I can urinate most of the time is by catherizing myself every time. I have to go to my urologist every 2 mths. to have my urethrea dilated. Lately he has had to use larger dilators. The procedure itself is uncomfortable, but I have never had any lasting pain as a result of the procedure. I have been having this done for at least 2 yrs. I find it hard to believe that the dilation would cause that much pain. Also as a result of having to catherize myself, I constantly have urinary tract infections. In fact, I just got over one. I hope you can find some relief from your pain. Jerri

Re: [VPD my condition is WORSE!!!

Hi All! I mentioned the urethra dialation that I had last Saturday, which is causing additional horrible pain in new areas. Well, I saw another urlogist yesterday and he said it will take 6-8 weeks to "recover" from this procedure. That is the healing time for a NORMAL woman who doesn't already have inflammation, etc. I am in horrible pain! After some research I found that this procedure is totally uneccessary except when ADDITIONAL tests show blockage of the urethra. They also mention it is barbaric. I did NOT have ANY blockage, so this procedure only did additional damage. I have also read this procedure causes the urethra to heal with scar tissue. As you can imagaine, I am very upset. After 6 months of trying to get rid of labia pain, I am now conforonted with this NEW pain. I am miserable. The pubic area, upper outer labia majora, clitoris and deep inside my pelvic aches and feels bruised. I also have burning inside, which the drs said is muscle spasms. I can thank the dr that did this procedure for setting me back in the progress I was making with PT. I am soo upset and angry at myself for allowing him to do this procedure. I was hesitant, but thought he would "know" best. I am almost at a point of just giving up. I thought I would be on track to try to get pregnant in November, but now I can not have sex due to my bruised urethra, pubic area, etc. Every time I see a baby, I cry. I am never going to be able to start our family, at this rate. Sorry to ramble, I feel so hopeless. I am in disbelief that my problems actually got WORSE!!!! Thanks for listening. Has anybody had this procedure??? Alison *****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner *****

[Guest guest]

Hi,

I had a urethra dilation over 20 years ago and it helped me at the time. My symptoms were that i had to urinate just about every hour and i had repeated urinary tract infections. The repeated infections led to a narrowing of the urethra which led to not empyting my bladder completely, which in turn led to more urinary tract infections. I never had another problem until this VV (20 years later) which I strongly believe is related to using antibiotics. I asked my primary care physician to give me an antibiotic for what i thought was a repeat infection of H. Pylori. After that, i started getting a constant burning in the vulvar area. Of course, I treated it as a yeast infection (havent we all?) and just made matters worse. I had problems with VV for about 5 years, but got a lot of info from this website.I have been very pro-active in regards to finding a treatment for this... and my doctor has been open to what i have to say (except for one doctor, and i dropped her like a hot potato!!). I think the antibiotics led to an upset in my vaginal flora and i had a discharge that was very irritating to my vulva which set up a "cycle" of burning and rawness. I used Balmex ointment for MONTHS every day, slathering it on the area (it was the only thing that protected my skin from the irritating discharge). Between the Balmex and wearing my husbands jeans (baggy) and also using Dove or Neutrogena soap in the vulvar area and using Free and Clear detergent for my underwear, i did get relief. I also did baking soda douches a few times. I now use Estrace (Thanks so much Dee!!) and things are so much better. I should add that I never had a problem with intercourse, more a burning and rawness (my doc told me it looked like someone rubbed me with sandpaper). I do have slight flare-ups now and then (notably between ovulation and my period) but all in all i feel so much better. I get so upset when i hear the stories of doctors insensitivity. It's very clear that we are in charge of our health. I'm not saying that urethra dilation works for everyone..obviously it caused you more pain ,so sorry

Anyway, that is my story.