Desquamative Inflammatory Vaginitis (DIV) IS Lichen Planus!

[Guest guest]

I just read this and found out that DIV is the same as Lichen

Planus--one condition with two names!! This may help those with DIV

to find out more info.

http://www.asccp.org/lichen_planus.asp

This site says that DIV is a form of strep. I know of one girl who

got DIV after oral sex with a man with strep (she didn't know he had

it till after the fact). The strep is from the throat and not the

group B that is more common to the vagina.

http://1wms.com/omnirx/vaginitis/vaginitis_inform.htm

Just some FYI

Lynn

[Guest guest]

I just wanted to make it clear that they are not the same condition.

I asked Dr. about this and he said lichen planus is completely

different than DIV. I have DIV and they can't even find a bacterial

infection on me.

Lichen planus is sometimes considered an autoimmune disease - 2/3 of

the people who have this usually have lesions in the mouth as well.

He said lichen planus is associated with fusing whereas DIV is not. I

think like Dee said, the treatments are similar but the symptoms of

the condition are not the same.

Seema

> I just read this and found out that DIV is the same as Lichen

> Planus--one condition with two names!! This may help those with DIV

> to find out more info.

>

> http://www.asccp.org/lichen_planus.asp

>

>

> This site says that DIV is a form of strep. I know of one girl who

> got DIV after oral sex with a man with strep (she didn't know he had

> it till after the fact). The strep is from the throat and not the

> group B that is more common to the vagina.

>

> http://1wms.com/omnirx/vaginitis/vaginitis_inform.htm

>

> Just some FYI

>

> Lynn

[Guest guest]

> I just wanted to make it clear that they are not the same condition.

> I asked Dr. about this and he said lichen planus is completely

> different than DIV. I have DIV and they can't even find a bacterial

> infection on me.

>

> Lichen planus is sometimes considered an autoimmune disease - 2/3 of

> the people who have this usually have lesions in the mouth as well.

> He said lichen planus is associated with fusing whereas DIV is not.

I

> think like Dee said, the treatments are similar but the symptoms of

> the condition are not the same.

>

> Seema

>

Here is another site about LP that says it can cause fusing (see

scarring) and only 1/2 the women with vulvar LP gets oral LP.

Autoimmune is just a " theory " which means it may or may not be, they

don't know. Or in doctor terms: we can't figure it out yet.

http://www.doctorswhoswho.com/medical_library/diseases_conditions/wome

n/vulvar_vaginal_lichen_planus.htm

Here is another. The fusing comes from scarring. This one does not

talk about autoimmune. It says they don't know what causes it.

http://www.med.umich.edu/obgyn/vulva/lichenp.htm

This one is very interesting--suggesting co-conditions like ulcerative

colits and hepititis.

http://www.emedicine.com/DERM/topic233.htm

..

Lynn

[Guest guest]

Thanks for the information. I will ask for more clarification from

. He told me this is not lichen planus and he said it's a night

and day difference between DIV and lichen planus (his words!!)

I just wanted to let everyone know that all of the symptoms listed do

not always apply. For instance, I have a white discharge (not

yellow-gray) and I have DIV. Also, I don't have any bacterial

infection and they've tested for everything!! also said I have

no evidence of fusing and he did say on the majority of his lichen

planus patients, there is evidence of some fusing.

Also, in terms of autoimmune, I talked to a doctor last night who

believed my DIV was caused by a drug induced reaction to Bactrim

antibiotics. Her sister had a drug induced reaction to an antibiotic

that caused desquamative inflammation in the mouth. She said it

behaves like an autoimmune disease in that it attacks healthy cells,

but it does not mean it is an autoimmune disease. Her sister got well

after 6 months - but she told me that it can take a long time. Her

patient went to see after a reaction to a topical cream - it

took 2 years and now she is fine - she had to see davis once a week

sometimes.

Anyways, that's my take on it - if you guys have specific questions on

this, could you send them and I will ask about it. Thanks.

Seema

> > I just wanted to make it clear that they are not the same

condition.

>

> > I asked Dr. about this and he said lichen planus is

completely

> > different than DIV. I have DIV and they can't even find a

bacterial

> > infection on me.

> >

> > Lichen planus is sometimes considered an autoimmune disease - 2/3

of

> > the people who have this usually have lesions in the mouth as

well.

>

> > He said lichen planus is associated with fusing whereas DIV is

not.

> I

> > think like Dee said, the treatments are similar but the symptoms

of

> > the condition are not the same.

> >

> > Seema

> >

>

>

>

> Here is another site about LP that says it can cause fusing (see

> scarring) and only 1/2 the women with vulvar LP gets oral LP.

>

> Autoimmune is just a " theory " which means it may or may not be, they

> don't know. Or in doctor terms: we can't figure it out yet.

>

>

>

http://www.doctorswhoswho.com/medical_library/diseases_conditions/wome

> n/vulvar_vaginal_lichen_planus.htm

>

> Here is another. The fusing comes from scarring. This one does not

> talk about autoimmune. It says they don't know what causes it.

>

> http://www.med.umich.edu/obgyn/vulva/lichenp.htm

>

> This one is very interesting--suggesting co-conditions like

ulcerative

> colits and hepititis.

>

> http://www.emedicine.com/DERM/topic233.htm

>

> .

> Lynn

[Guest guest]

> Thanks for the information. I will ask for more clarification from

> . He told me this is not lichen planus and he said it's a

night

> and day difference between DIV and lichen planus (his words!!)

>

> I just wanted to let everyone know that all of the symptoms listed

do

> not always apply. For instance, I have a white discharge (not

> yellow-gray) and I have DIV. Also, I don't have any bacterial

> infection and they've tested for everything!! also said I

have

> no evidence of fusing and he did say on the majority of his lichen

> planus patients, there is evidence of some fusing.

Hi Seema,

Just a note about ---I have found that he can contradict himself.

He did it 2 times when I was seeing him (one my husband caught). Just

wanted to pass that on as my experience.

I know someone with DIV who has a whitish discharge. She said it

burns like acid is dripping on her.

I am interested in the reaction theory to topical creams. I didn't

get my problems until after I used monistat yeast med over the counter

(2 complete 7 day doses in a row). The yeast went away but I have

burned ever since. No bacteria, no lesions, no nothing. Then it

progessed to my anal skin burning and now I have urethral

pain/achiness and sometimes bladder pressure. Had a cystocscopy and

he said nothing is wrong other than the trigone area is inflammed a

little (that is the part that connects to the vestibule from behind

the vaginal wall) and since my vesitbule is irritated, the trigone is

too. That area is like a plug in a piggy bank. They share the same

tissue but on is inside the bladder and one is the vulvar area.

Anyway---let us know how things are going.

Lynn

[Guest guest]

Lynn,

Just wondering, is this person you know with DIV getting better?

I'm just trying to find some hope in defeating this, as I am not

responding to the Cleocin or the steroids so far. I can't believe he

contradicted himself like that - I know you've decided not to see him.

I have an apointment with Dr. Willems in San Diego on November. I

know I keep going to doctors but I just want to be cured from this!!

What did diagnose you with - I too used Monistat after the

Bactrim (the doctors thought it was a yeast infection when it was not

and it greatly exacerbated my problems). How long has it been since

you've had this problem? I'm just wondering since that lady took 2

years to get better and am hoping that in your case, your body will

recover as well. Take care!

Seema

> Hi Seema,

>

> Just a note about ---I have found that he can contradict

himself.

> He did it 2 times when I was seeing him (one my husband caught).

Just

> wanted to pass that on as my experience.

>

> I know someone with DIV who has a whitish discharge. She said it

> burns like acid is dripping on her.

>

> I am interested in the reaction theory to topical creams. I didn't

> get my problems until after I used monistat yeast med over the

counter

> (2 complete 7 day doses in a row). The yeast went away but I have

> burned ever since. No bacteria, no lesions, no nothing. Then it

> progessed to my anal skin burning and now I have urethral

> pain/achiness and sometimes bladder pressure. Had a cystocscopy and

> he said nothing is wrong other than the trigone area is inflammed a

> little (that is the part that connects to the vestibule from behind

> the vaginal wall) and since my vesitbule is irritated, the trigone

is

> too. That area is like a plug in a piggy bank. They share the same

> tissue but on is inside the bladder and one is the vulvar area.

>

> Anyway---let us know how things are going.

>

> Lynn