Re: Depakote Withdrawals

[Guest guest]

Jess had her first and only drop seizures a few weeks after the dep wean.

And I know other kids have done similar things. Thing with dep, is the

withdrawl problems seem to show up a lot later in a lot kids than with

the other drugs. I would ride it out for a while, watch for signs of acidity

and see if you need to modify the diet a little, a lot of kids needs that

after getting off the drugs

RMDRAGER@... wrote:

Hello,

Sure hope someone out there has some good advice. I completed

my son's

Depakote wean about 3 weeks ago. We did notice an increase

in head drop

seizures throughout the day, we expected it. What we didn't

expect was a new

type of seizure that causes his whole body to stiffen up and his

eyes to dart

to one side. It looks like quite an intense seizure.

It lasts between

40-160 seconds. They seem to be getting longer. Is

this a withdrawal

seizure I'm seeing or is something else going on? If anyone

has seen this in

their child, especially after stopping depakote, please let me

know. I'm

almost considering adding some depakote back. Your experience

is greatly

appreciated.

Marie, mom to

[Guest guest]

It could just be that the depakote was controlling this kind of

seizures???

My little girl was thrown off all her meds for a week-long video-eeg and

since she was doing so well, they told me to keep her off the meds and

se!!!

Hell ensued.

She had the horrors. I'm sure she was having visual and auditory

hallucinations (NOT happy ones!)

She is still (that was back in July) having several memory stealing

seizures.

Sunday she had fifteen words left.

She's not walking very well at all and even standing is difficult.

She's not sure about appropriate responses to anything, for example,

emotional, (hug her, she bursts into tears, I burst into tears, thus

reinforcing it all!)

So, good luck! Who knows what causes what!

Praying for you!

see ya

patti

oo

\/

[Guest guest]

Hi Marie

We went through a very tough dep wean with our son Mike, aged 5. He took his

last dose at

the end of Jan. About three weeks later he developed a new seizure type- I guess

you

would call them complex partials- very weird behaviors and non responsive to

sounds or

commands. These occured during the night on several occasions and each one

lasted for

several hours. They scared me alot at the time- still get shivers when I think

of them.

But we did attribute them to the withdrawl of dep. i have heard of many kids who

develop

transient but new seizure types after weaning dep. They may last a few months

and so it

is hard to know whether it is withdrawl or if the dep was simply controlling the

type of

seizure. It is a hard call and usually only waiting it out will tell for sure.

Hope this helps. Good Luck

Faye

RMDRAGER@... wrote:

> Hello,

>

> Sure hope someone out there has some good advice. I completed my son's

> Depakote wean about 3 weeks ago. We did notice an increase in head drop

> seizures throughout the day, we expected it. What we didn't expect was a new

> type of seizure that causes his whole body to stiffen up and his eyes to dart

> to one side. It looks like quite an intense seizure. It lasts between

> 40-160 seconds. They seem to be getting longer. Is this a withdrawal

> seizure I'm seeing or is something else going on? If anyone has seen this in

> their child, especially after stopping depakote, please let me know. I'm

> almost considering adding some depakote back. Your experience is greatly

> appreciated.

>

> Marie, mom to

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a professional

keto team!

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>

>

>

>

[Guest guest]

> Patti,

>

> What were the meds that were withdrawn?

>

Depakote and Lamictal

We put her back on a half a dose of Lamictal and are still dose-loading to

get to a therapeutic range

(Depakote and Lamictal enable each other, so you don't need so much of

either while you are on the other, apparently!)

[Guest guest]

Patti,

What were the meds that were withdrawn?

Bill

Patti Thistle wrote:

>

> It could just be that the depakote was controlling this kind of

> seizures???

> My little girl was thrown off all her meds for a week-long video-eeg and

> since she was doing so well, they told me to keep her off the meds and

> se!!!

> Hell ensued.

> She had the horrors. I'm sure she was having visual and auditory

> hallucinations (NOT happy ones!)

> She is still (that was back in July) having several memory stealing

> seizures.

> Sunday she had fifteen words left.

> She's not walking very well at all and even standing is difficult.

> She's not sure about appropriate responses to anything, for example,

> emotional, (hug her, she bursts into tears, I burst into tears, thus

> reinforcing it all!)

>

> So, good luck! Who knows what causes what!

>

> Praying for you!

>

[Guest guest]

Hi,

My son had a few drop seizures for the first time,

after finishing depakote. The wean was tough too

with sleep sz on particular days after dropping the

dose. Then about four months after he had sleep

sz again for a couple of months. I think other kids

too have seen sleep sz 3-4 months after stopping

dep. What you are seeing may well be withdrawals.

Check to see whether a different ratio is needed.

There is a theory that dep hangs around a long while

in the fatty tissues after youv'e stopped taking it.

The neuros probably wont agree on this. Some don't

even acknowlede withdrwals -----which definitely

do happen.

We stuck through, as we thought they were going

to end. Do whatever you feel comfortable with, if

you put back the dose, you can always wean again

slowly.

Good luck

Saro......Rohan's mum