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Zoe (from N.Z.)

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After 11 months on the diet, our dearest little Zoe has gone to be

with Jesus. She was just 3 years old. While on the diet we had

experienced 3 wonderful seizure free months, but over July/August she

had some break through and when they did come they were always

difficult to stop. Apart from the fact that they were associated with

illness, I don't know why they returned as Zoe also went through

illnesses during her seizure free period. We lost Zoe a month ago

today and are still awaiting an autopsy report to understand exactly

what happened. She was sick with a febrile illness - probably the

influenza I was just recovering from. During one of those difficult

to stop seizures she suffered a cardiac arrest while they were trying

to anaethetise her and while they were able to bring her back fairly

quickly at the time, she eventually suffered a second and final

arrest.

I just wanted to thank those of you who have been such awesome

support to me, and to tell you how much I admire you all - both for

the incredible knowledge base you collectively are, and for the love

and compassionate caring you share. It looks as if I will soon have a

computer in my own home and then I may rejoin in the hope of

occasionally being able to offer some support back.

, wife to Mark and mum to (8) and Kate (7)

New Zealand

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