Re: Surgery worked for me

[Guest guest]

Hi there,

I also had surgery in May (may 15th). I had a vulvar vestibulectomy with

vaginal advancement and perinial skin tuck. I had all of my vestibulary

glands and my Bartholins glands removed.

I am happy to hear that your surgery was successful. I would love to hear

more details about your surgery and your recovery if you would not mind

sharing them with me. Do you have LS, or Atrophic Vaginitis as well, or

just pure vestibulitis? Did you have a perinial skin tuck or graft with

your surgery?

I have not been able to have intercourse yet myself. I am seeing a PT for

treatment of my secondary vaginisimus. I also had a couple of yeast

infections post surgery that I feel set my healing process back a bit.

Besides the vaginisimus, I still have some skin irritation in the area and

feel tender. But I can tell that the tenderness is getting better the

farther out from surgery I get. I am hoping that the PT will be helpful and

that I will be able to have intercourse again soon.

Feel free to email me off list anytime:)

Bunny /| |\

. .

( ! )

From: sivancat@...

Reply-To: VulvarDisorders

To: VulvarDisorders

Subject: Surgery worked for me

Date: Sun, 23 Sep 2001 20:27:22 -0000

First some history. I have had vulvar vestibulitis for the last 10

years (ie as long as I have been having intercourse). I only have

pain on contact, but it was so bad that I never wanted to have sex

and it was really affecting my feelings about myself and my body.

I just thought there was something wrong with me and that I was

a freak. I was thrilled to find this list and know that it was a

medical condition and not a psychological problem.

About 2 years ago, a woman on this list gave me the name of a

doctor in my area. I went to Dr. in Rochester, NY

who specializes in vulvar pain treatment. First we tried a medical

treatment (specially mixed lidocane ointment, desiprimine,

neurontin (not at the same time), other meds) but none of these

reduced the pain much, so about 6 months ago, I opted for

surgery. In May, Dr. performed a vestibulectomy with

vaginal advancement. It really hurt. The healing time was longer

that I had expected and I couldn't sit down for a few weeks.

Fast forward to August. I have been able to have regular

intercourse for the first time in my life. I also feel a lot better

about myself and my body. I still use a dab of EMLA (numbing)

cream right before intercourse, but otherwise am able to have

sex without a problem. I wish I had known about this years ago.

I was initially reluctant to have surgery, in part because of horror

stories I had heard from women who had undergone surgical

treatment for VV, but for me it worked really well. I hope this helps

someone else with pain. Dr. is a really good doctor. He

was patient with me and I always felt like my concerns were

taken seriously

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[Guest guest]

Hi,

I had a perineoplasty 13 wks ago. The scar tissue hurts so bad if I

try to stretch it. And there is still a lot of painful skin that he

didn't remove. Do you do dialation therapy or PT or anything? Did

you have a lot of scar tissue. What is vaginal advancement? I am so

glad it worked for you!!

Love,

Ruth

> First some history. I have had vulvar vestibulitis for the last 10

> years (ie as long as I have been having intercourse). I only have

> pain on contact, but it was so bad that I never wanted to have sex

> and it was really affecting my feelings about myself and my body.

> I just thought there was something wrong with me and that I was

> a freak. I was thrilled to find this list and know that it was a

> medical condition and not a psychological problem.

>

> About 2 years ago, a woman on this list gave me the name of a

> doctor in my area. I went to Dr. in Rochester, NY

> who specializes in vulvar pain treatment. First we tried a medical

> treatment (specially mixed lidocane ointment, desiprimine,

> neurontin (not at the same time), other meds) but none of these

> reduced the pain much, so about 6 months ago, I opted for

> surgery. In May, Dr. performed a vestibulectomy with

> vaginal advancement. It really hurt. The healing time was longer

> that I had expected and I couldn't sit down for a few weeks.

>

> Fast forward to August. I have been able to have regular

> intercourse for the first time in my life. I also feel a lot better

> about myself and my body. I still use a dab of EMLA (numbing)

> cream right before intercourse, but otherwise am able to have

> sex without a problem. I wish I had known about this years ago.

>

> I was initially reluctant to have surgery, in part because of

horror

> stories I had heard from women who had undergone surgical

> treatment for VV, but for me it worked really well. I hope this

helps

> someone else with pain. Dr. is a really good doctor. He

> was patient with me and I always felt like my concerns were

> taken seriously